I do not have CF but did not have biologic children. My children are both adopted including my daughter with CF. I did not wait for years and have my heart broken. I carefully researched and chose and adoption attorny. With my first child I waited just a month and my second was 3 months. There are lots of adoption subsidies and tax breaks so it is not as expensive and unattainable as people think. I would not trade either of my kids for the world and they are both undeniably mine.
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Could really use some info from the mommies
- Thread starter Asexyblond23
- Start date
I do not have CF but did not have biologic children. My children are both adopted including my daughter with CF. I did not wait for years and have my heart broken. I carefully researched and chose and adoption attorny. With my first child I waited just a month and my second was 3 months. There are lots of adoption subsidies and tax breaks so it is not as expensive and unattainable as people think. I would not trade either of my kids for the world and they are both undeniably mine.
I do not have CF but did not have biologic children. My children are both adopted including my daughter with CF. I did not wait for years and have my heart broken. I carefully researched and chose and adoption attorny. With my first child I waited just a month and my second was 3 months. There are lots of adoption subsidies and tax breaks so it is not as expensive and unattainable as people think. I would not trade either of my kids for the world and they are both undeniably mine.
I do not have CF but did not have biologic children. My children are both adopted including my daughter with CF. I did not wait for years and have my heart broken. I carefully researched and chose and adoption attorny. With my first child I waited just a month and my second was 3 months. There are lots of adoption subsidies and tax breaks so it is not as expensive and unattainable as people think. I would not trade either of my kids for the world and they are both undeniably mine.
I do not have CF but did not have biologic children. My children are both adopted including my daughter with CF. I did not wait for years and have my heart broken. I carefully researched and chose and adoption attorny. With my first child I waited just a month and my second was 3 months. There are lots of adoption subsidies and tax breaks so it is not as expensive and unattainable as people think. I would not trade either of my kids for the world and they are both undeniably mine.
What is a blood doctor? Is this cf related or do you have another condition? Why does your doc consider you "double high risk" with an FEV1 in the upper 80's? Do you have severe complications to your organs or inability to keep weight on or what? I think we need more info in order to respond to your specific situation.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
What is a blood doctor? Is this cf related or do you have another condition? Why does your doc consider you "double high risk" with an FEV1 in the upper 80's? Do you have severe complications to your organs or inability to keep weight on or what? I think we need more info in order to respond to your specific situation.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
What is a blood doctor? Is this cf related or do you have another condition? Why does your doc consider you "double high risk" with an FEV1 in the upper 80's? Do you have severe complications to your organs or inability to keep weight on or what? I think we need more info in order to respond to your specific situation.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
What is a blood doctor? Is this cf related or do you have another condition? Why does your doc consider you "double high risk" with an FEV1 in the upper 80's? Do you have severe complications to your organs or inability to keep weight on or what? I think we need more info in order to respond to your specific situation.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
What is a blood doctor? Is this cf related or do you have another condition? Why does your doc consider you "double high risk" with an FEV1 in the upper 80's? Do you have severe complications to your organs or inability to keep weight on or what? I think we need more info in order to respond to your specific situation.
<br />
<br />In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
<br />
<br />In the 3 years that I have been a part of this site, I can only think of 3 people that's health severely suffered. Most stayed about the same or improved during pregnancy. I also heard of one person who died shortly after becoming a mom but it was throgh someone on this site and was not a member to my knowledge. I believe she had cepacia. Although we also had a member with cepacia who is doing well. Now on the otherhand, I would say at 50% of the women that delivered babies have found their cf more instable after becoming a mom and many have lost lung function.
Asexyblond23
New member
Haha sorry we are so used to saying blood doctor I just typed that <img src="i/expressions/face-icon-small-smile.gif" border="0"> Along with the CF I am factor 5 liden ( thanks mom ) <img src="i/expressions/face-icon-small-smile.gif" border="0"> Meaning that I tend to clot eaiser then most. I have been on baby asprin for 1 year and a half now daily to help prevent and sheeths in my port line. It has worked great I can go a month between flushings and no blood clots. The concern with my blood is that when pregnant women are already at a higher risk for a blood clot, so add factor 5 on that and my odds really jump. Its the same thing with CF women with factor have babies all the time its just taking blood thinners and being extra carefull. I have a call into the hemotoligst right now to see what her view is 2 years after we last talked about it.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
Asexyblond23
New member
Haha sorry we are so used to saying blood doctor I just typed that <img src="i/expressions/face-icon-small-smile.gif" border="0"> Along with the CF I am factor 5 liden ( thanks mom ) <img src="i/expressions/face-icon-small-smile.gif" border="0"> Meaning that I tend to clot eaiser then most. I have been on baby asprin for 1 year and a half now daily to help prevent and sheeths in my port line. It has worked great I can go a month between flushings and no blood clots. The concern with my blood is that when pregnant women are already at a higher risk for a blood clot, so add factor 5 on that and my odds really jump. Its the same thing with CF women with factor have babies all the time its just taking blood thinners and being extra carefull. I have a call into the hemotoligst right now to see what her view is 2 years after we last talked about it.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
Asexyblond23
New member
Haha sorry we are so used to saying blood doctor I just typed that <img src="i/expressions/face-icon-small-smile.gif" border="0"> Along with the CF I am factor 5 liden ( thanks mom ) <img src="i/expressions/face-icon-small-smile.gif" border="0"> Meaning that I tend to clot eaiser then most. I have been on baby asprin for 1 year and a half now daily to help prevent and sheeths in my port line. It has worked great I can go a month between flushings and no blood clots. The concern with my blood is that when pregnant women are already at a higher risk for a blood clot, so add factor 5 on that and my odds really jump. Its the same thing with CF women with factor have babies all the time its just taking blood thinners and being extra carefull. I have a call into the hemotoligst right now to see what her view is 2 years after we last talked about it.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
Asexyblond23
New member
Haha sorry we are so used to saying blood doctor I just typed that <img src="i/expressions/face-icon-small-smile.gif" border="0"> Along with the CF I am factor 5 liden ( thanks mom ) <img src="i/expressions/face-icon-small-smile.gif" border="0"> Meaning that I tend to clot eaiser then most. I have been on baby asprin for 1 year and a half now daily to help prevent and sheeths in my port line. It has worked great I can go a month between flushings and no blood clots. The concern with my blood is that when pregnant women are already at a higher risk for a blood clot, so add factor 5 on that and my odds really jump. Its the same thing with CF women with factor have babies all the time its just taking blood thinners and being extra carefull. I have a call into the hemotoligst right now to see what her view is 2 years after we last talked about it.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
Asexyblond23
New member
Haha sorry we are so used to saying blood doctor I just typed that <img src="i/expressions/face-icon-small-smile.gif" border="0"> Along with the CF I am factor 5 liden ( thanks mom ) <img src="i/expressions/face-icon-small-smile.gif" border="0"> Meaning that I tend to clot eaiser then most. I have been on baby asprin for 1 year and a half now daily to help prevent and sheeths in my port line. It has worked great I can go a month between flushings and no blood clots. The concern with my blood is that when pregnant women are already at a higher risk for a blood clot, so add factor 5 on that and my odds really jump. Its the same thing with CF women with factor have babies all the time its just taking blood thinners and being extra carefull. I have a call into the hemotoligst right now to see what her view is 2 years after we last talked about it.
<br />
<br />As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
<br />
<br />As far as my CF I do Iv's usually 2 times a year, spring and fall. I actually just started on them yesterday since I had low small airway numbers I wanted to kick this in the butt. In between that I may be on oral antiboidics a total of 4 times a year. My wieght is good actually for some reason it keeps going up and up and they cant expalin why. Which is good but in 4 months 6 pounds and in the total of a year 12 pounds. So I guess that turns out that for prgnancy and this road if we take it this is a good thing.
JohnnaMarie
New member
It is an odd thing about pregnancy and cf. It is hard to tell how a person is going to do. Some do really really good and don't have much trouble. I am not a good source tho, cause I have pfts that are super high. They are always above 100 percent. The docs often don't even think I need any treatment. The part that did creep out last time was the gestational diabetes. My PFTS actually went up during my first pregnancy. YEs, they went up. The docs still argue over the numbers. This is my second pregnancy now, and I don't know if I will be as healthy or not. It is all a chance you know.... Plus with carrying for the toddler now, there is less time for my own self care. That really is the riskiest part about getting pregnant is when the baby is born. There are those weeks and sometimes months of exhaustion cause you can't get the sleep you need..... That is the hardest part. Then, when they get to be toddlers and are more demanding. You can't just be sick ..you have to be sick and still take care of your toddler. Kids are awesome don't get me wrong, but they do make even me who is pretty healthy... (current pfts are well over 100 and my weight is always more than it should be..my absorption is great.).... pretty darn tired by the time the day is up. I have to stress if you do go the route of having a baby..how crucial naps are. Naps will make you or break you if you dont get em.
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
JohnnaMarie
New member
It is an odd thing about pregnancy and cf. It is hard to tell how a person is going to do. Some do really really good and don't have much trouble. I am not a good source tho, cause I have pfts that are super high. They are always above 100 percent. The docs often don't even think I need any treatment. The part that did creep out last time was the gestational diabetes. My PFTS actually went up during my first pregnancy. YEs, they went up. The docs still argue over the numbers. This is my second pregnancy now, and I don't know if I will be as healthy or not. It is all a chance you know.... Plus with carrying for the toddler now, there is less time for my own self care. That really is the riskiest part about getting pregnant is when the baby is born. There are those weeks and sometimes months of exhaustion cause you can't get the sleep you need..... That is the hardest part. Then, when they get to be toddlers and are more demanding. You can't just be sick ..you have to be sick and still take care of your toddler. Kids are awesome don't get me wrong, but they do make even me who is pretty healthy... (current pfts are well over 100 and my weight is always more than it should be..my absorption is great.).... pretty darn tired by the time the day is up. I have to stress if you do go the route of having a baby..how crucial naps are. Naps will make you or break you if you dont get em.
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
JohnnaMarie
New member
It is an odd thing about pregnancy and cf. It is hard to tell how a person is going to do. Some do really really good and don't have much trouble. I am not a good source tho, cause I have pfts that are super high. They are always above 100 percent. The docs often don't even think I need any treatment. The part that did creep out last time was the gestational diabetes. My PFTS actually went up during my first pregnancy. YEs, they went up. The docs still argue over the numbers. This is my second pregnancy now, and I don't know if I will be as healthy or not. It is all a chance you know.... Plus with carrying for the toddler now, there is less time for my own self care. That really is the riskiest part about getting pregnant is when the baby is born. There are those weeks and sometimes months of exhaustion cause you can't get the sleep you need..... That is the hardest part. Then, when they get to be toddlers and are more demanding. You can't just be sick ..you have to be sick and still take care of your toddler. Kids are awesome don't get me wrong, but they do make even me who is pretty healthy... (current pfts are well over 100 and my weight is always more than it should be..my absorption is great.).... pretty darn tired by the time the day is up. I have to stress if you do go the route of having a baby..how crucial naps are. Naps will make you or break you if you dont get em.
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
JohnnaMarie
New member
It is an odd thing about pregnancy and cf. It is hard to tell how a person is going to do. Some do really really good and don't have much trouble. I am not a good source tho, cause I have pfts that are super high. They are always above 100 percent. The docs often don't even think I need any treatment. The part that did creep out last time was the gestational diabetes. My PFTS actually went up during my first pregnancy. YEs, they went up. The docs still argue over the numbers. This is my second pregnancy now, and I don't know if I will be as healthy or not. It is all a chance you know.... Plus with carrying for the toddler now, there is less time for my own self care. That really is the riskiest part about getting pregnant is when the baby is born. There are those weeks and sometimes months of exhaustion cause you can't get the sleep you need..... That is the hardest part. Then, when they get to be toddlers and are more demanding. You can't just be sick ..you have to be sick and still take care of your toddler. Kids are awesome don't get me wrong, but they do make even me who is pretty healthy... (current pfts are well over 100 and my weight is always more than it should be..my absorption is great.).... pretty darn tired by the time the day is up. I have to stress if you do go the route of having a baby..how crucial naps are. Naps will make you or break you if you dont get em.
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
You take Care of Yourself
Much Love
JohnnaMarie
New member
It is an odd thing about pregnancy and cf. It is hard to tell how a person is going to do. Some do really really good and don't have much trouble. I am not a good source tho, cause I have pfts that are super high. They are always above 100 percent. The docs often don't even think I need any treatment. The part that did creep out last time was the gestational diabetes. My PFTS actually went up during my first pregnancy. YEs, they went up. The docs still argue over the numbers. This is my second pregnancy now, and I don't know if I will be as healthy or not. It is all a chance you know.... Plus with carrying for the toddler now, there is less time for my own self care. That really is the riskiest part about getting pregnant is when the baby is born. There are those weeks and sometimes months of exhaustion cause you can't get the sleep you need..... That is the hardest part. Then, when they get to be toddlers and are more demanding. You can't just be sick ..you have to be sick and still take care of your toddler. Kids are awesome don't get me wrong, but they do make even me who is pretty healthy... (current pfts are well over 100 and my weight is always more than it should be..my absorption is great.).... pretty darn tired by the time the day is up. I have to stress if you do go the route of having a baby..how crucial naps are. Naps will make you or break you if you dont get em.
<br />Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
<br />
<br />You take Care of Yourself
<br />Much Love
<br />Anyways, I am rambling...I wish you the ultimate best in whatever you decide. Kids wear the heck out of anyone, but they sure are a treasure. The biggest thing is that if you are going to get pregnant to make sure your at your healthiest possible. That is always key in how any pregnancy turns out..and what your outcome is as well.
<br />
<br />You take Care of Yourself
<br />Much Love