I looked up the doc you mentioned and I'd never heard of her. Actually there were a couple of doc on the team that must be new cause I hadn't heard of them. Then again they are starting up an adult clinic so maybe that's who the others are.
I don't know what a 504 is, we never had any of those things for our girls. I hear/see people talking about them but I really don't know what they are.
How is your relationship with the CF coordinators? I won't mention their names so they don't have to go back and delete them. Anything I've ever needed I usually go through them (almost put her name down). I hardly ever called the nurse because, well, it would take forever. But, he did get a new nurse in the last year, by then I was already just going through the CF coordinator.
We are used to seeing all the docs in the practice/group. One rationale behind it was so that the kids and parents would be used to seeing different docs when they were in the hospital or in for an urgent visit. Except for when we were in Germany, the Dutch (we went to a Dutch CF cli nic, not German) usually had you see just one doc. That was a first but OK cause we saw the head of the clinic. It could have been too because we were American and maybe they wanted to show the best care, I don't know. At three different clinic, in three different states it was all the same way and they met once a week to discuss all the patients so they'd all be up to speed and offer their opinions as well.
We liked Dr.H though. He was great. I don't know what I'd do in your situation but if you apologize, keep your mom from calling the clinic and maybe ask to switch doctors to get a clean start? Good luck with it all. If you get back in, use the CF coordinators. One of the main reasons we went back there after that one year (Anna was 4-5, Rachel was 1-2) was because we'd come home on Christmas vacation, it was our first year back from Germany, and we miss judged the amount of Pancrease we needed and ran out. Being military and getting their meds from the bas
e pharmacy you can't just transfer the script. We called them up, explained the situation (Anna was 14, Rachel 10) and they remembered us! Called in a script for us and asked how the girls were doing after all these years. When my husband retired from the AF and we came home, there was no doubt to where they'd go, back to the same Doc.
I hope you get back in and things get straightened out.