Culture Update

Faust

New member
I guess depending on how you look at this, it can be good news AND bad news. It wasn't 100% of the news that I wanted, but the end results are that my PFT's have went way up, so that is a very good thing regardless what the culture says, though as I said before, i would have REALLY liked to have shown no pseudo overall. Because i'm honest with you guys, I share my results both good and bad.

The results:

She said I had heavy growth of normal flora (What should be present in normal peoples lung systems, but often is either light or sometimes non existent in most CF patients, probably due to all the antibiotics we do...I'm only on collistin atm, and plan to not do prophalactic antibiotics so I don't develope resistances, for when I really need them). This in itself is good news. The other good news is that my PFT's shot WAY up after doing the oregano oil, when the best they could do for me was get me about 84% with gunk still in my chest, and a "unidentified organism" in my culture, which was more than likely the result of them pumping MASSIVE amounts of antibiotics into my system. Trying to get information out of them while in the hospital is nearly impossible, but the unidentified organism turned out to be a fungus, if my memory serves me right, which the doctor himself said "Probably due to all the antibiotics".

Now for the not so great news (and partial good news): She said that I still showed Pseudo, but the culture was "very light", and just like before on previous cultures, was only resistant to Aztreonam and mezlocillin. I don't remember ever being givin those antibiotics, but it obviously happened to get the resistance. My pseudo is (quote) "Very weak to many antibiotics", so I should be thankful for that (and continue not to take prophalactic antibiotics so I don't develope more resistances).

Now for the two parts that concern me: She also said I had Serratia Marcescens. Which is something I had never heard of before, and on the report it was described as just "rare" in amount and type. After looking around, I found out that this microbe was present on many "sterile petri dishes" in labs...Maybe the petri dish was already contaminated with it (I hope)? The bacteria used to be used heavily in schools and by the military for experiments, because it was felt to be harmless. What makes me kind of angry, is this bacteria has actually been found to be growing in "sterile" saline medical solutions, and in other "supposedly sterile solutions". I more than likely got this bacteria from the hospital, due to it's heavy presence in such environments. It has also been reported by ABC news that this bacteria had contaminated the 2004 US flu vaccine supply (of which I got one)...So joy to that. It is considered a "nosocomial infection", which means it is highly likely that I got it just from being in the hospital.

(taken from answers.com...It was said to be common in the respiratory tract of adults...So I guess it's not a total doom and gloom scenario)

"S. marcescens can cause conjunctivitis, keratitis, endophthalmitis, and tear duct infections. It is not uncommon in the respiratory and urinary tracts of adults and the gastrointestinal system of children."


Here is some info on it: http://commtechlab.msu.edu/sites/dlc-me/zoo/microbes/serratia.html

http://www.sunysccc.edu/academic/mst/microbes/23smarc.htm

http://www.answers.com/main/ntquery;jsessionid=8l3bi4djqje5f?method=4&dsid=2222&dekey=Nosocomial+infection&gwp=8&curtab=2222_1&sbid=lc02a&linktext=nosocomial%0Ainfections


The second part of my "bad news": http://en.wikipedia.org/wiki/Staph_aureus

She said I had "Light Staph Aureus", which again, is another bug that is predominately acquired via hospitalizations. I had shown staph before a VERY long time ago when I was going to the CDC to do some studies, but since then it had gone away somehow, because my culture before my last hospital stay only showed my pseudo.


So here is what I know: My previous culture before my last hospital stay only showed medium pseudo (mucoid) colonization. I went into the hospital in very bad shape (49% overall PFT, and I usually ran close to 100% when not sick). The very first culture I produced for them (the day I went into the hospital) came back showing just the pseudo (with the same resistances). After being in the hospital a while and being pumped full with crazy amounts of antibiotics (and feeling like I was going to die), the doc came in one day (maybe near the end of my admission) to inform me "I have an unidentified organism in my culture". A day or two passed and I guess they got concerned, and then they said it was a fungus or something, probably directly related to the heavy antibiotic use.

I went home for 10 more days of heavy IV treatments. Got back up to about 83% overall PFT, and still felt like crap and had a ton of goo in the center of my chest that absolutely wouldn't go away no matter what they did for me. That is when I started to use the oregano oil products. After a period of time the goo in the center of my chest went away, and I started to feel amazing with very clear lungs, on next checkup afterwards, thats when I blew the 99% PFT, which was a large increase, and put me back to where I used to be when I was younger.

I personally think that I picked up the staph and the serratia in the hospital, due to them being notorious hospital bugs, but of course, anything is possible, but I did only have pseudo up till that hospital visit, then had that weird organism in house, now I show staph and serratia.

I started to slack off on some of my oil treatments due to how I felt (great), so I generally stopped the pills, and pretty much completely stopped the multi oil facial sauna inhalation. Knowing what I know now (my two new bugs), i'm going to hit it harder, and be more vigilant, and see if my next culture shows either elimiation (hopefully) or much lower levels. I'm also going to start hitting the monolaurin hard again.


Anyways, just thought i'd share...Both good news and bad news. I feel great with real high PFT's, but now I have two new hospital oriented bugs. I will let you guys know of any changes.


/your stalwart guinea pig,

Sean
 

Faust

New member
I guess depending on how you look at this, it can be good news AND bad news. It wasn't 100% of the news that I wanted, but the end results are that my PFT's have went way up, so that is a very good thing regardless what the culture says, though as I said before, i would have REALLY liked to have shown no pseudo overall. Because i'm honest with you guys, I share my results both good and bad.

The results:

She said I had heavy growth of normal flora (What should be present in normal peoples lung systems, but often is either light or sometimes non existent in most CF patients, probably due to all the antibiotics we do...I'm only on collistin atm, and plan to not do prophalactic antibiotics so I don't develope resistances, for when I really need them). This in itself is good news. The other good news is that my PFT's shot WAY up after doing the oregano oil, when the best they could do for me was get me about 84% with gunk still in my chest, and a "unidentified organism" in my culture, which was more than likely the result of them pumping MASSIVE amounts of antibiotics into my system. Trying to get information out of them while in the hospital is nearly impossible, but the unidentified organism turned out to be a fungus, if my memory serves me right, which the doctor himself said "Probably due to all the antibiotics".

Now for the not so great news (and partial good news): She said that I still showed Pseudo, but the culture was "very light", and just like before on previous cultures, was only resistant to Aztreonam and mezlocillin. I don't remember ever being givin those antibiotics, but it obviously happened to get the resistance. My pseudo is (quote) "Very weak to many antibiotics", so I should be thankful for that (and continue not to take prophalactic antibiotics so I don't develope more resistances).

Now for the two parts that concern me: She also said I had Serratia Marcescens. Which is something I had never heard of before, and on the report it was described as just "rare" in amount and type. After looking around, I found out that this microbe was present on many "sterile petri dishes" in labs...Maybe the petri dish was already contaminated with it (I hope)? The bacteria used to be used heavily in schools and by the military for experiments, because it was felt to be harmless. What makes me kind of angry, is this bacteria has actually been found to be growing in "sterile" saline medical solutions, and in other "supposedly sterile solutions". I more than likely got this bacteria from the hospital, due to it's heavy presence in such environments. It has also been reported by ABC news that this bacteria had contaminated the 2004 US flu vaccine supply (of which I got one)...So joy to that. It is considered a "nosocomial infection", which means it is highly likely that I got it just from being in the hospital.

(taken from answers.com...It was said to be common in the respiratory tract of adults...So I guess it's not a total doom and gloom scenario)

"S. marcescens can cause conjunctivitis, keratitis, endophthalmitis, and tear duct infections. It is not uncommon in the respiratory and urinary tracts of adults and the gastrointestinal system of children."


Here is some info on it: http://commtechlab.msu.edu/sites/dlc-me/zoo/microbes/serratia.html

http://www.sunysccc.edu/academic/mst/microbes/23smarc.htm

http://www.answers.com/main/ntquery;jsessionid=8l3bi4djqje5f?method=4&dsid=2222&dekey=Nosocomial+infection&gwp=8&curtab=2222_1&sbid=lc02a&linktext=nosocomial%0Ainfections


The second part of my "bad news": http://en.wikipedia.org/wiki/Staph_aureus

She said I had "Light Staph Aureus", which again, is another bug that is predominately acquired via hospitalizations. I had shown staph before a VERY long time ago when I was going to the CDC to do some studies, but since then it had gone away somehow, because my culture before my last hospital stay only showed my pseudo.


So here is what I know: My previous culture before my last hospital stay only showed medium pseudo (mucoid) colonization. I went into the hospital in very bad shape (49% overall PFT, and I usually ran close to 100% when not sick). The very first culture I produced for them (the day I went into the hospital) came back showing just the pseudo (with the same resistances). After being in the hospital a while and being pumped full with crazy amounts of antibiotics (and feeling like I was going to die), the doc came in one day (maybe near the end of my admission) to inform me "I have an unidentified organism in my culture". A day or two passed and I guess they got concerned, and then they said it was a fungus or something, probably directly related to the heavy antibiotic use.

I went home for 10 more days of heavy IV treatments. Got back up to about 83% overall PFT, and still felt like crap and had a ton of goo in the center of my chest that absolutely wouldn't go away no matter what they did for me. That is when I started to use the oregano oil products. After a period of time the goo in the center of my chest went away, and I started to feel amazing with very clear lungs, on next checkup afterwards, thats when I blew the 99% PFT, which was a large increase, and put me back to where I used to be when I was younger.

I personally think that I picked up the staph and the serratia in the hospital, due to them being notorious hospital bugs, but of course, anything is possible, but I did only have pseudo up till that hospital visit, then had that weird organism in house, now I show staph and serratia.

I started to slack off on some of my oil treatments due to how I felt (great), so I generally stopped the pills, and pretty much completely stopped the multi oil facial sauna inhalation. Knowing what I know now (my two new bugs), i'm going to hit it harder, and be more vigilant, and see if my next culture shows either elimiation (hopefully) or much lower levels. I'm also going to start hitting the monolaurin hard again.


Anyways, just thought i'd share...Both good news and bad news. I feel great with real high PFT's, but now I have two new hospital oriented bugs. I will let you guys know of any changes.


/your stalwart guinea pig,

Sean
 

Faust

New member
BTW I was looking forward to news similar to what a few other cystics reported after the oregano oil use, and that was to show no pseudo. That wasn't the case for me, but i'm going to double up my amount of oregano oil and monolaurin, and hopefully that will be the case for me as well in 3-4 months per next culture.
 

Faust

New member
BTW I was looking forward to news similar to what a few other cystics reported after the oregano oil use, and that was to show no pseudo. That wasn't the case for me, but i'm going to double up my amount of oregano oil and monolaurin, and hopefully that will be the case for me as well in 3-4 months per next culture.
 

anonymous

New member
Your stories sound amazing! My daughter is 2 years old and was diagnosed with CF at 6 weeks old. She has PA at present. Takes Colomycin twice a day via neb. Picked up PA at 10 months old.

Charlotte<img src="i/expressions/oxygen.gif" border="0">
 

anonymous

New member
Your stories sound amazing! My daughter is 2 years old and was diagnosed with CF at 6 weeks old. She has PA at present. Takes Colomycin twice a day via neb. Picked up PA at 10 months old.

Charlotte<img src="i/expressions/oxygen.gif" border="0">
 

bgchastain

New member
I'm sorry to hear your culturing new bugs, but hopefully you caught them quickly and can get them out just as quickly. It's still a good report any way you look at it. At least the psuedo is down to "light growth", a lot of us would LOVE for it to be light. Keep up the good work<img src="i/expressions/face-icon-small-smile.gif" border="0"> and thanks for keeping us updated.
 

bgchastain

New member
I'm sorry to hear your culturing new bugs, but hopefully you caught them quickly and can get them out just as quickly. It's still a good report any way you look at it. At least the psuedo is down to "light growth", a lot of us would LOVE for it to be light. Keep up the good work<img src="i/expressions/face-icon-small-smile.gif" border="0"> and thanks for keeping us updated.
 

EnergyGal

New member
Hi Sean

I think you have good news. I hear no bad news this is why. I have always believed when you culture heavy growth all the other bugs are covered by the heavy growth. When you hear you have light growth the other bugs come out. Seratia is a type of pseudo. I had it once many years ago and it went away. No worries. It sounds like you know your body really well. Do you do CPT? Anything extra that you can do will help besides taking an increase of oil. Have you ever tried goldenseal or any other herbal remedy? I of course cannot do these now but they worked for me when I did use them. I loved echacia but only took that two weeks on and two weeks off.

I do remember you saying your girlfriend was sick so maybe you were carrying her bugs but you felt too good to feel them. Some people are carriers.

I would just be thrilled that your pfts are good and I would focus on keeping them high. Bugs are always going to be around. Keeping your body strong will keep you healthy and your bugs at bay.

Cheers to you
Risa
 

EnergyGal

New member
Hi Sean

I think you have good news. I hear no bad news this is why. I have always believed when you culture heavy growth all the other bugs are covered by the heavy growth. When you hear you have light growth the other bugs come out. Seratia is a type of pseudo. I had it once many years ago and it went away. No worries. It sounds like you know your body really well. Do you do CPT? Anything extra that you can do will help besides taking an increase of oil. Have you ever tried goldenseal or any other herbal remedy? I of course cannot do these now but they worked for me when I did use them. I loved echacia but only took that two weeks on and two weeks off.

I do remember you saying your girlfriend was sick so maybe you were carrying her bugs but you felt too good to feel them. Some people are carriers.

I would just be thrilled that your pfts are good and I would focus on keeping them high. Bugs are always going to be around. Keeping your body strong will keep you healthy and your bugs at bay.

Cheers to you
Risa
 

thelizardqueen

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>PS Is it true that once you've cultured PA that it never really goes away?



Charlotte<hr></blockquote>


Once you've consitantly (Pseudo showing up in your cultures) cultured Pseudo for 26 months, this means it has colonized. Once Pseudo has colonized, you can not get rid of it. It may go "dormate" - go to sleep and not show up all the time, but you cannot eradicate it.
 

thelizardqueen

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>PS Is it true that once you've cultured PA that it never really goes away?



Charlotte<hr></blockquote>


Once you've consitantly (Pseudo showing up in your cultures) cultured Pseudo for 26 months, this means it has colonized. Once Pseudo has colonized, you can not get rid of it. It may go "dormate" - go to sleep and not show up all the time, but you cannot eradicate it.
 
S

skh

Guest
Thanks for the update Sean. My daughter goes in for her regular scheduled CF appointment tomorrow and I will be checking with her doc regarding starting the facial sauna w/oregano oil. I haven't received either of them yet but they should be here by the end of the week. If we get the ok from her doc then this should be a good time to start something new. Once again, thanks for all the research and sharing that you have done on this topic.

Sue
 
S

skh

Guest
Thanks for the update Sean. My daughter goes in for her regular scheduled CF appointment tomorrow and I will be checking with her doc regarding starting the facial sauna w/oregano oil. I haven't received either of them yet but they should be here by the end of the week. If we get the ok from her doc then this should be a good time to start something new. Once again, thanks for all the research and sharing that you have done on this topic.

Sue
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Risa</b></i><br>Hi Sean



I think you have good news. I hear no bad news this is why. I have always believed when you culture heavy growth all the other bugs are covered by the heavy growth. When you hear you have light growth the other bugs come out. Seratia is a type of pseudo. I had it once many years ago and it went away. No worries. It sounds like you know your body really well. Do you do CPT? Anything extra that you can do will help besides taking an increase of oil. Have you ever tried goldenseal or any other herbal remedy? I of course cannot do these now but they worked for me when I did use them. I loved echacia but only took that two weeks on and two weeks off.



I do remember you saying your girlfriend was sick so maybe you were carrying her bugs but you felt too good to feel them. Some people are carriers.



I would just be thrilled that your pfts are good and I would focus on keeping them high. Bugs are always going to be around. Keeping your body strong will keep you healthy and your bugs at bay.



Cheers to you

Risa<hr></blockquote>


Yeah, my lady was horribly sick for well over 10 days, and of course since we live together, I was right near her all the time like it or not. And when I went in for my last visit where I blew the good PFT's, I did have a slightly runny nose, so I do wonder if she gave me some of her bugs (she works in a dental office, so she probably gets exposed to stuff here and there). It's really scary about the bugs in the hospital though. I forget the actual numbers, but I have read many articles about how many people go into the hospital with minor problems, and actually die in there due to infections. Really scary, and more reason to try and stay out of the hospital!

I do feel amazing, and my lungs are pretty much crystal clear, even with 2 new bugs to deal with. So that is the real good news. I was just hoping to have similar results to the two CF's that posted here that their PA was gone after using the oil. But, my colonization was really light for all my bugs, so that's also real good news.

My problem when i'm in the hospital, is that i've never been a big germ freak, thinking I wouldn't catch anything etc etc. Well, I hope I don't have to go back in for a very long time, but if/when I do, i'm going to be an utter germ nazi and have like 10 bottles of lysol on hand and hand sanitizer. It's amazing how bug ridden those places really are.

As for CPT, I use the vest, but to be honest, I rarely use it, unless I feel a little chunky (not for a long time now). I told myself around new years I would try and do it atleast once a day, but when you feel great, you have the psychological block of "Why do this when I feel great"? going on.

As far as the person asking about PA being with you forever once you got it: I doubt you can ever 100% get rid of PA colonization by any means, but you CAN "get rid of it" in the way of it having extremely low colonization and not showing up in culture totally, or showing up in extremely low amounts. Kind of like Magic Johnson and his AIDS. He still has AIDS, but his drug cocktails have brought his antibodies down to "undetectable levels". There are too many places in the lungs for bacteria to hide regardless. If you took your lungs and laid them out in a thin layer flat, they would take up the area of a tennis court, now add to that large area all the "nooks and crannies" like an english muffin that your lungs have, and it would probably be impossible to 100% eradicate any bacteria that you have in your lungs, with anything.


The whole point of what i'm trying to do with natural substances is find relatively safe substances that are known to kill off microbes that I have (and others I don't want), and keep my levels very low so I wont need antibiotics/hospitalizations. So far in the big scheme of things, I think this approach is working...If I wouldn't have acquired those two bugs, probably in the hospital, i'd view these results as good news, but not the "best news possible".
 

Faust

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Risa</b></i><br>Hi Sean



I think you have good news. I hear no bad news this is why. I have always believed when you culture heavy growth all the other bugs are covered by the heavy growth. When you hear you have light growth the other bugs come out. Seratia is a type of pseudo. I had it once many years ago and it went away. No worries. It sounds like you know your body really well. Do you do CPT? Anything extra that you can do will help besides taking an increase of oil. Have you ever tried goldenseal or any other herbal remedy? I of course cannot do these now but they worked for me when I did use them. I loved echacia but only took that two weeks on and two weeks off.



I do remember you saying your girlfriend was sick so maybe you were carrying her bugs but you felt too good to feel them. Some people are carriers.



I would just be thrilled that your pfts are good and I would focus on keeping them high. Bugs are always going to be around. Keeping your body strong will keep you healthy and your bugs at bay.



Cheers to you

Risa<hr></blockquote>


Yeah, my lady was horribly sick for well over 10 days, and of course since we live together, I was right near her all the time like it or not. And when I went in for my last visit where I blew the good PFT's, I did have a slightly runny nose, so I do wonder if she gave me some of her bugs (she works in a dental office, so she probably gets exposed to stuff here and there). It's really scary about the bugs in the hospital though. I forget the actual numbers, but I have read many articles about how many people go into the hospital with minor problems, and actually die in there due to infections. Really scary, and more reason to try and stay out of the hospital!

I do feel amazing, and my lungs are pretty much crystal clear, even with 2 new bugs to deal with. So that is the real good news. I was just hoping to have similar results to the two CF's that posted here that their PA was gone after using the oil. But, my colonization was really light for all my bugs, so that's also real good news.

My problem when i'm in the hospital, is that i've never been a big germ freak, thinking I wouldn't catch anything etc etc. Well, I hope I don't have to go back in for a very long time, but if/when I do, i'm going to be an utter germ nazi and have like 10 bottles of lysol on hand and hand sanitizer. It's amazing how bug ridden those places really are.

As for CPT, I use the vest, but to be honest, I rarely use it, unless I feel a little chunky (not for a long time now). I told myself around new years I would try and do it atleast once a day, but when you feel great, you have the psychological block of "Why do this when I feel great"? going on.

As far as the person asking about PA being with you forever once you got it: I doubt you can ever 100% get rid of PA colonization by any means, but you CAN "get rid of it" in the way of it having extremely low colonization and not showing up in culture totally, or showing up in extremely low amounts. Kind of like Magic Johnson and his AIDS. He still has AIDS, but his drug cocktails have brought his antibodies down to "undetectable levels". There are too many places in the lungs for bacteria to hide regardless. If you took your lungs and laid them out in a thin layer flat, they would take up the area of a tennis court, now add to that large area all the "nooks and crannies" like an english muffin that your lungs have, and it would probably be impossible to 100% eradicate any bacteria that you have in your lungs, with anything.


The whole point of what i'm trying to do with natural substances is find relatively safe substances that are known to kill off microbes that I have (and others I don't want), and keep my levels very low so I wont need antibiotics/hospitalizations. So far in the big scheme of things, I think this approach is working...If I wouldn't have acquired those two bugs, probably in the hospital, i'd view these results as good news, but not the "best news possible".
 
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