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Curcumin updates
- Thread starter anonymous
- Start date
After being hospitalized in March for the first time, I decided to start taking curcumin. I've been taking 8 - 500 mg capsules daily for the past month of Curcumin 95 by AOR (bottle says take 1 to 8 capsules daily...so I started with the most logical choice <img src="i/expressions/face-icon-small-smile.gif" border="0">. I've gained over 12 Kg (26 lbs for our American friends) and my PFTs have improved. Maybe it's just a coincidence that I'm feeling better after getting over my pneumonia, but I feel better than I have in a long time, have alot more energy and I'm not the only one to notice. Friends and co-workers have also noticed that I look better, and cough alot less during the course of the day. My mucous has thinned out and is easily coughed up. My Dr. has me on Pulmozyme daily and Tobi, month on, month off, and I'm on my month off right now, and I still continue to feel better. Richard 30 w/cf
[ q]<i>Originally signalé par: [ b]Anonymous</b>[/i ]Après avoir été hospitalisé en mars pour la première fois, j'ai décidé de commencer à prendre la curcumine. J'avais pris 8 - 500 capsules de magnésium quotidiennement pour le mois passé de la curcumine 95 par AOR (la bouteille indique des capsules de la prise 1 à 8 quotidiennement... ainsi j'ai commencé par le choix le plus logique<img src="i/expressions/face-icon-small-smile.gif" border="0">. J'ai gagné plus de 12 kilogrammes (26 livres pour nos amis américains) et mon PFTs se sont améliorés. Peut-être il est juste une coïncidence que je me sens mieux après avoir obtenu au-dessus de ma pneumonie, mais je me sens mieux que j'ai dans un long temps, ai l'alot plus d'énergie et je ne suis pas le seul à noter. Les amis et les collègues ont également noté que je regarde mieux, et tousse l'alot moins pendant le jour. Mon muqueux a dilué et facilement est craché. Mon Dr. m'a sur le journal de Pulmozyme et Tobi, mois dessus, mois au loin, et je ne suis pas en ligne mon mois en ce moment, et moi continuent toujours à se sentir mieux. Richard 30 w/cf[/q ]tu es français ?si oui ecris moi sur cette adresse : metalfrst@aol.com
Hi,where are you from? I´m living in Germany and would be interested in your curcumin tablets.Which brand is it, where can you get them and how much do they cost?Here the pharmazy does only have tablets with 95 mg of curcumin,so I would have to take 40 a day to reach your dosage...ByeUli
I live in Manitoba, Canada. I ordered the capsules online from www.naturesnutrition.com about $18 CDN for 100 capsules. They are produced by a company in Calgary, Alberta called Advanced Orthomolecular Research.I was diagnosed with CF at age 13 and have always struggled to gain weight. I've been in the 55 to 58 Kg range for quite a few years now. When I was sick this past winter I lost a bunch of weight, and was down to just over 50 Kg when I was admitted into the hospital.I'm up to 64 Kg now...most I've ever weighed. Richard 30 w/cfand...non, je ne suis pas francais...about all I can remember from high school french <img src="i/expressions/face-icon-small-smile.gif" border="0">
Sami,A few months ago there was a breakthrough in CF research. Curcumin is a spice that is in Curry. Researchers at Harvard university and the Hospital for sick kids in Toronto Canada did a joint study. They fed mice with CF this curcumin stuff and the mice gained weight and lived just as long as the other mice without CF. I just purchased Curcumin 95 (500 mg) by Jarrow off of the web site www.iherb.com which is a U.S. company. Check your local health stores you might be able to find it. Do some research first so you what you are taking.Dave 29 w/cf
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Sami, A bright yellow spice common in curry might hold a key to treating deadly cystic fibrosis. Key word here people is MIGHT. Not that it does. Anyway here is the article and please, please, please read it thoroughly and Talk to your doctor BEFORE you begin any independant curcumin treatments <a target=new class=ftalternatingbarlinklarge href="http://www.msnbc.msn.com/id/4808231/">http://www.msnbc.msn.com/id/4808231/</a>
everyone is right, do your research, make your choice. Being that I work in the occupational health field, I'm knowledgeable in toxicology and knew where to find accurate information to base my decision on...you can't believe everything you read on the internet. Use information from reputable agencies. Here is a link to The registry of Toxic Effects of Chemical Suibstances from the US Centre for Disease Control page on 1,6 - Heptadiene - 3,5 - dione, 1,7 - bis (4 - hydroxy - 3 - methoxyphenyl) which is the chemical name for curcumin. http://www.cdc.gov/niosh/rtecs/mi4fcdb0.html It lists the results of many experiments and lowest known toxic doses, which are all extremely high doses.Humans have a very high tolerance to this chemical. Hopefully the trials currently taking place will show similar results to the lab experiments and allow Dr.'s to come up with accurate doses required to achieve those results, but in the mean time, even if it's just something that MIGHT or MIGHT NOT be helping me...I'm personally willing to continue taking curcumin as I am feeling better and have not felt any bad side effects from it. And considering the side effects from CF and the ultimate fate of those of use with this disease, $40 a month for some capsules that might not be helping is something I'm willing to chance.Richard 30 w/cf
My daughter started Glutathione (GSH) about a year ago. At the time she was inhailing Tobi and taking oral antibiotics. Her condition was slowly worsening and heading for a Hospital stay. We followed the protocal suggested by a Doctor and started seeing results with in two weeks. One month after starting she was completely off all antibiotics and cough free. This was something we had not experienced for over a year. She has been antibiotic free since that time. We then stopped the vest treatments and now only take enzymes and natural suppliments. Her health has never been better. The only time we see any coughing is if we go without the inhailed treatments for a few days. However, it quickly disappears after starting back up the treatments.Two words of caution:1)Some transplant patients have had trouble but I am not sure of the circumstances.2) Many CF doctors and the CFF are wary of the treatment due to lack of data and clinical trials.For us, it is beyond words! Many others have had similiar experiences. You can go to http://members5.boardhost.com/cfgsh/ to read more.
I too have only been taking it for a week but I take 2 pills 4 times a day. I have not noticed much of a change. Maybe I should do what you are doing and take 4 pills twice a day. Are you taking the same brand that Richard suggested (AOR) on a prior post. That is what I am taking.Dave 29 w/cf
I am actually waiting for my supply of Curcumin to arrive and then I am going to start taking it. What brand are the rest of you using? I ordered Life Extension brand Super Curcumin with Bioperine. They are 900 mg capsules. What is the recommended dosage for CF'ers? After I have been taking for a week or two, I will certainly check back in to let you all know how it's going.Jen 34 w/cf
Is it accurate that the curcumin is only able to help those affected with that Delta mutation (sorry, I forget the number that comes after it)?Our friend with CF actually does not know his mutations, but knows that there is an X involved in it.<img src="i/expressions/face-icon-small-confused.gif" border="0">