CVS - testing fetus for CF

mltoliver

New member
Have any of you been through the CVS process?
If so, how soon is CVS available and do you have any experiences, pros/cons that you can share?
 

mltoliver

New member
Have any of you been through the CVS process?
If so, how soon is CVS available and do you have any experiences, pros/cons that you can share?
 

mltoliver

New member
Have any of you been through the CVS process?
If so, how soon is CVS available and do you have any experiences, pros/cons that you can share?
 
M

Mommafirst

Guest
I have not been through it, myself, but I believe it is available around 14-16 weeks gestation.
 
M

Mommafirst

Guest
I have not been through it, myself, but I believe it is available around 14-16 weeks gestation.
 
M

Mommafirst

Guest
I have not been through it, myself, but I believe it is available around 14-16 weeks gestation.
 

Liamsmommy

New member
CFV can be done between 10 weeks - 12 weeks
This is a good artical about CFV
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cpmc.org/learning/documents/cvs-ws.pdf
">http://www.cpmc.org/learning/documents/cvs-ws.pdf
</a>
Hope this helps
Shawna
 

Liamsmommy

New member
CFV can be done between 10 weeks - 12 weeks
This is a good artical about CFV
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cpmc.org/learning/documents/cvs-ws.pdf
">http://www.cpmc.org/learning/documents/cvs-ws.pdf
</a>
Hope this helps
Shawna
 

Liamsmommy

New member
CFV can be done between 10 weeks - 12 weeks
This is a good artical about CFV
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cpmc.org/learning/documents/cvs-ws.pdf
">http://www.cpmc.org/learning/documents/cvs-ws.pdf
</a>
Hope this helps
Shawna
 

mom2leila

New member
I did CVS testing with our third child. It was done at 11 weeks, 2 day. We had to travel about 1.5 hours to another city where they are routinely done. I wanted to make sure the doctor had lots of experience. When I arrived I visited with the genetic counselor who explained that we would find out about the chromosomes as a whole and then about the specifics (cystic fibrosis and alpha-1 antitrypsin deficiency - our daughter has both). We could also choose to know the sex if we wished. She explained that the information would come in pieces, first the chromosomes and later the specifics.

After genetic counseling the doctor came in and did an ultrasound. He decided to do the testing transabdominally (I've read that it can be done through the cervix as well, but he said this would be better in my case - I'm not really sure why). They used a needle similar to amniocentesis and kept the baby on ultrasound the whole time. It was a brief moment of pain in the right lower groin, then he took the needle out and examined the contents under a microscope. I was considerably more scared about the pain then I should have been. It was not pleasant, but not horrible either. He only had to stick me one time. I had a tiny band-aid placed on that spot. They warned me about bleeding and or cramping but I had neither. I just took it easy the day of, and was fine.

So then we went home to wait. Possibly the longest wait of my life. At the 10 day mark the genetic couselor called to tell us that the chromosomes looked normal and that it was a baby boy. She said she'd call again when she knew the rest. At exactly 14 days after she called in the morning. I'll never forget it because I almost missed her call. I was running out the door to take my oldest daughter to preschool and had my second daughter in my arms. She told us that he tested as a carrier for CF and not even a carrier for alpha-1. I was so extremely happy and relieved that I threw up and sobbed on the spot. My girls thought I was crazy! So glad I did the testing so we would be prepared. After that I just relaxed and enjoyed our last pregnancy. My son was full-term with no problems.

If you have any other questions I'd be happy to try and answer them. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

mom2leila

New member
I did CVS testing with our third child. It was done at 11 weeks, 2 day. We had to travel about 1.5 hours to another city where they are routinely done. I wanted to make sure the doctor had lots of experience. When I arrived I visited with the genetic counselor who explained that we would find out about the chromosomes as a whole and then about the specifics (cystic fibrosis and alpha-1 antitrypsin deficiency - our daughter has both). We could also choose to know the sex if we wished. She explained that the information would come in pieces, first the chromosomes and later the specifics.

After genetic counseling the doctor came in and did an ultrasound. He decided to do the testing transabdominally (I've read that it can be done through the cervix as well, but he said this would be better in my case - I'm not really sure why). They used a needle similar to amniocentesis and kept the baby on ultrasound the whole time. It was a brief moment of pain in the right lower groin, then he took the needle out and examined the contents under a microscope. I was considerably more scared about the pain then I should have been. It was not pleasant, but not horrible either. He only had to stick me one time. I had a tiny band-aid placed on that spot. They warned me about bleeding and or cramping but I had neither. I just took it easy the day of, and was fine.

So then we went home to wait. Possibly the longest wait of my life. At the 10 day mark the genetic couselor called to tell us that the chromosomes looked normal and that it was a baby boy. She said she'd call again when she knew the rest. At exactly 14 days after she called in the morning. I'll never forget it because I almost missed her call. I was running out the door to take my oldest daughter to preschool and had my second daughter in my arms. She told us that he tested as a carrier for CF and not even a carrier for alpha-1. I was so extremely happy and relieved that I threw up and sobbed on the spot. My girls thought I was crazy! So glad I did the testing so we would be prepared. After that I just relaxed and enjoyed our last pregnancy. My son was full-term with no problems.

If you have any other questions I'd be happy to try and answer them. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

mom2leila

New member
I did CVS testing with our third child. It was done at 11 weeks, 2 day. We had to travel about 1.5 hours to another city where they are routinely done. I wanted to make sure the doctor had lots of experience. When I arrived I visited with the genetic counselor who explained that we would find out about the chromosomes as a whole and then about the specifics (cystic fibrosis and alpha-1 antitrypsin deficiency - our daughter has both). We could also choose to know the sex if we wished. She explained that the information would come in pieces, first the chromosomes and later the specifics.

After genetic counseling the doctor came in and did an ultrasound. He decided to do the testing transabdominally (I've read that it can be done through the cervix as well, but he said this would be better in my case - I'm not really sure why). They used a needle similar to amniocentesis and kept the baby on ultrasound the whole time. It was a brief moment of pain in the right lower groin, then he took the needle out and examined the contents under a microscope. I was considerably more scared about the pain then I should have been. It was not pleasant, but not horrible either. He only had to stick me one time. I had a tiny band-aid placed on that spot. They warned me about bleeding and or cramping but I had neither. I just took it easy the day of, and was fine.

So then we went home to wait. Possibly the longest wait of my life. At the 10 day mark the genetic couselor called to tell us that the chromosomes looked normal and that it was a baby boy. She said she'd call again when she knew the rest. At exactly 14 days after she called in the morning. I'll never forget it because I almost missed her call. I was running out the door to take my oldest daughter to preschool and had my second daughter in my arms. She told us that he tested as a carrier for CF and not even a carrier for alpha-1. I was so extremely happy and relieved that I threw up and sobbed on the spot. My girls thought I was crazy! So glad I did the testing so we would be prepared. After that I just relaxed and enjoyed our last pregnancy. My son was full-term with no problems.

If you have any other questions I'd be happy to try and answer them. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

StevenKeiles

New member
My wife had a cvs just before Thanksgiving. Everything went well and she barely felt anything. It is done from 10-12 weeks, it is not done before 10 weeks or after 13.

I would recommend someone who has a lot of experience and also someone who does it transcervically. In some cases, it might need to be done abdominally, but it is better to and certainly less painful to have it done cervically.

Let me know where you live and I can get some recommendations for your area if you would like. The key questions to ask are how the doctor usually performs the procedure, and how many they have done and what is the complication rate.

In experienced hands, the risks are really no different than an amniocentesis.

Steve
 

StevenKeiles

New member
My wife had a cvs just before Thanksgiving. Everything went well and she barely felt anything. It is done from 10-12 weeks, it is not done before 10 weeks or after 13.

I would recommend someone who has a lot of experience and also someone who does it transcervically. In some cases, it might need to be done abdominally, but it is better to and certainly less painful to have it done cervically.

Let me know where you live and I can get some recommendations for your area if you would like. The key questions to ask are how the doctor usually performs the procedure, and how many they have done and what is the complication rate.

In experienced hands, the risks are really no different than an amniocentesis.

Steve
 

StevenKeiles

New member
My wife had a cvs just before Thanksgiving. Everything went well and she barely felt anything. It is done from 10-12 weeks, it is not done before 10 weeks or after 13.

I would recommend someone who has a lot of experience and also someone who does it transcervically. In some cases, it might need to be done abdominally, but it is better to and certainly less painful to have it done cervically.

Let me know where you live and I can get some recommendations for your area if you would like. The key questions to ask are how the doctor usually performs the procedure, and how many they have done and what is the complication rate.

In experienced hands, the risks are really no different than an amniocentesis.

Steve
 

tucksmama

New member
I just wanted to share with you the story about the CVS I had done, so you can be fully aware of the consequences of the procedure. Like the earlier posts said, they generally do the CVS between 10 and 12 weeks. The doctor who performed the CVS on me was a reputable physician, who had done thousands and thousands of these. To make a long story short, we ended up miscarrying our daughter, Rylie, when I was 19 weeks pregnant. They figure I ended up getting an infection from the CVS procedure. The infection spread to the placenta, which then eventually came detached, causing me to miscarry. The only reason I know this is because they sent the placenta in for testing after I delivered Rylie . I am not trying to scare you by sharing my story, but I wanted to make you aware of what could possibly happen. I know the percentage of miscarrying from a CVS is like 1%, but it does happen. At the time I was pregnant, my husband and I wanted to know whether or not the baby had CF before she arrived so we could emotionally prepare ourselves for possibly having a 2nd child with CF. I have regreted that decision each day since we lost Rylie, but at that time in my life that is what I felt I needed to do. So, don't let anyone tell you what to do regarding whether or not to have the CVS done or not. You need to make the decision for yourself. You will be in my thoughts.
 

tucksmama

New member
I just wanted to share with you the story about the CVS I had done, so you can be fully aware of the consequences of the procedure. Like the earlier posts said, they generally do the CVS between 10 and 12 weeks. The doctor who performed the CVS on me was a reputable physician, who had done thousands and thousands of these. To make a long story short, we ended up miscarrying our daughter, Rylie, when I was 19 weeks pregnant. They figure I ended up getting an infection from the CVS procedure. The infection spread to the placenta, which then eventually came detached, causing me to miscarry. The only reason I know this is because they sent the placenta in for testing after I delivered Rylie . I am not trying to scare you by sharing my story, but I wanted to make you aware of what could possibly happen. I know the percentage of miscarrying from a CVS is like 1%, but it does happen. At the time I was pregnant, my husband and I wanted to know whether or not the baby had CF before she arrived so we could emotionally prepare ourselves for possibly having a 2nd child with CF. I have regreted that decision each day since we lost Rylie, but at that time in my life that is what I felt I needed to do. So, don't let anyone tell you what to do regarding whether or not to have the CVS done or not. You need to make the decision for yourself. You will be in my thoughts.
 

tucksmama

New member
I just wanted to share with you the story about the CVS I had done, so you can be fully aware of the consequences of the procedure. Like the earlier posts said, they generally do the CVS between 10 and 12 weeks. The doctor who performed the CVS on me was a reputable physician, who had done thousands and thousands of these. To make a long story short, we ended up miscarrying our daughter, Rylie, when I was 19 weeks pregnant. They figure I ended up getting an infection from the CVS procedure. The infection spread to the placenta, which then eventually came detached, causing me to miscarry. The only reason I know this is because they sent the placenta in for testing after I delivered Rylie . I am not trying to scare you by sharing my story, but I wanted to make you aware of what could possibly happen. I know the percentage of miscarrying from a CVS is like 1%, but it does happen. At the time I was pregnant, my husband and I wanted to know whether or not the baby had CF before she arrived so we could emotionally prepare ourselves for possibly having a 2nd child with CF. I have regreted that decision each day since we lost Rylie, but at that time in my life that is what I felt I needed to do. So, don't let anyone tell you what to do regarding whether or not to have the CVS done or not. You need to make the decision for yourself. You will be in my thoughts.
 

StevenKeiles

New member
Jodi,

I am sorry for your loss and can certainly appreciate your story. It doesn't really matter if the risk is 1 in 100 or 1 in a million, when it happens to you it is 100%.

Of course we would all make different decisions if we knew the future. But we don't, all we get to do is make the best decision for ourselves and our families at the time, given the information we have.

Based on that, you made the best decision for you. It is being really hard on yourself to say you have regretted the decision every day of your life since then. Obviously you regret the outcome, but from what you wrote, it sounds to me that you don't regret the decision.

Maybe trying to think of it a little differently might make it a little easier to cope.

Again I am sorry for your loss. If you want, my direct contact information is below.

Steve
 

StevenKeiles

New member
Jodi,

I am sorry for your loss and can certainly appreciate your story. It doesn't really matter if the risk is 1 in 100 or 1 in a million, when it happens to you it is 100%.

Of course we would all make different decisions if we knew the future. But we don't, all we get to do is make the best decision for ourselves and our families at the time, given the information we have.

Based on that, you made the best decision for you. It is being really hard on yourself to say you have regretted the decision every day of your life since then. Obviously you regret the outcome, but from what you wrote, it sounds to me that you don't regret the decision.

Maybe trying to think of it a little differently might make it a little easier to cope.

Again I am sorry for your loss. If you want, my direct contact information is below.

Steve
 
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