CXR Accuracy in Children

[Ratatosk]

I've been waiting to get the results back from DS' well child appointment a couple of weeks ago. He's never, ever had a good chest Xray from the local clinic. In the past the reports have mentioned infiltration -- thus the reasons his CF doctor had ordered a ct scan with contrast last fall. It showed everything was clear.

Still haven't received the requested reports, but received a call last week that he wasn't culturing pseudo and his vitamin levels were fine. Was like pulling teeth to get additional info and then the nurse continued to read the report which indicated, why yes, he was still culturing steno malt -- rare. Grrr! Didn't they think they needed to share that tidbit of info?

Now at noon I get a call indicating that DS has Right Middle Lobe Infiltration and was asked how he was feeling. Similar to other parents comments mentioned here -- thought we were doing okay. Thought this was an exceptional year and then the local clinic drops the CXR bomb. Heck, when I left the clinic a couple weeks ago, I thought things were going great. In fact, we were shown his chest xrays and I thought they looked pretty darned good -- clear -- I was able to show DS where his heart was, his ribs, intestines... Sigh.

Just feeling bummed. Called the clinic and requested that they also send copies of the films to the CF doctor in the city along with the reports I'd previously requested. Feel like I've been punched in the stomach, although DH has pointed out that every single xray he's gotten at the local clinic has been similar.

Just had to have a little vent.

 

[Ratatosk]

I've been waiting to get the results back from DS' well child appointment a couple of weeks ago. He's never, ever had a good chest Xray from the local clinic. In the past the reports have mentioned infiltration -- thus the reasons his CF doctor had ordered a ct scan with contrast last fall. It showed everything was clear.

Still haven't received the requested reports, but received a call last week that he wasn't culturing pseudo and his vitamin levels were fine. Was like pulling teeth to get additional info and then the nurse continued to read the report which indicated, why yes, he was still culturing steno malt -- rare. Grrr! Didn't they think they needed to share that tidbit of info?

Now at noon I get a call indicating that DS has Right Middle Lobe Infiltration and was asked how he was feeling. Similar to other parents comments mentioned here -- thought we were doing okay. Thought this was an exceptional year and then the local clinic drops the CXR bomb. Heck, when I left the clinic a couple weeks ago, I thought things were going great. In fact, we were shown his chest xrays and I thought they looked pretty darned good -- clear -- I was able to show DS where his heart was, his ribs, intestines... Sigh.

Just feeling bummed. Called the clinic and requested that they also send copies of the films to the CF doctor in the city along with the reports I'd previously requested. Feel like I've been punched in the stomach, although DH has pointed out that every single xray he's gotten at the local clinic has been similar.

Just had to have a little vent.

 

[Ratatosk]

I've been waiting to get the results back from DS' well child appointment a couple of weeks ago. He's never, ever had a good chest Xray from the local clinic. In the past the reports have mentioned infiltration -- thus the reasons his CF doctor had ordered a ct scan with contrast last fall. It showed everything was clear.

Still haven't received the requested reports, but received a call last week that he wasn't culturing pseudo and his vitamin levels were fine. Was like pulling teeth to get additional info and then the nurse continued to read the report which indicated, why yes, he was still culturing steno malt -- rare. Grrr! Didn't they think they needed to share that tidbit of info?

Now at noon I get a call indicating that DS has Right Middle Lobe Infiltration and was asked how he was feeling. Similar to other parents comments mentioned here -- thought we were doing okay. Thought this was an exceptional year and then the local clinic drops the CXR bomb. Heck, when I left the clinic a couple weeks ago, I thought things were going great. In fact, we were shown his chest xrays and I thought they looked pretty darned good -- clear -- I was able to show DS where his heart was, his ribs, intestines... Sigh.

Just feeling bummed. Called the clinic and requested that they also send copies of the films to the CF doctor in the city along with the reports I'd previously requested. Feel like I've been punched in the stomach, although DH has pointed out that every single xray he's gotten at the local clinic has been similar.

Just had to have a little vent.

 

[Ratatosk]

I've been waiting to get the results back from DS' well child appointment a couple of weeks ago. He's never, ever had a good chest Xray from the local clinic. In the past the reports have mentioned infiltration -- thus the reasons his CF doctor had ordered a ct scan with contrast last fall. It showed everything was clear.

Still haven't received the requested reports, but received a call last week that he wasn't culturing pseudo and his vitamin levels were fine. Was like pulling teeth to get additional info and then the nurse continued to read the report which indicated, why yes, he was still culturing steno malt -- rare. Grrr! Didn't they think they needed to share that tidbit of info?

Now at noon I get a call indicating that DS has Right Middle Lobe Infiltration and was asked how he was feeling. Similar to other parents comments mentioned here -- thought we were doing okay. Thought this was an exceptional year and then the local clinic drops the CXR bomb. Heck, when I left the clinic a couple weeks ago, I thought things were going great. In fact, we were shown his chest xrays and I thought they looked pretty darned good -- clear -- I was able to show DS where his heart was, his ribs, intestines... Sigh.

Just feeling bummed. Called the clinic and requested that they also send copies of the films to the CF doctor in the city along with the reports I'd previously requested. Feel like I've been punched in the stomach, although DH has pointed out that every single xray he's gotten at the local clinic has been similar.

Just had to have a little vent.

 

[Ratatosk]

I've been waiting to get the results back from DS' well child appointment a couple of weeks ago. He's never, ever had a good chest Xray from the local clinic. In the past the reports have mentioned infiltration -- thus the reasons his CF doctor had ordered a ct scan with contrast last fall. It showed everything was clear.
<br />
<br />Still haven't received the requested reports, but received a call last week that he wasn't culturing pseudo and his vitamin levels were fine. Was like pulling teeth to get additional info and then the nurse continued to read the report which indicated, why yes, he was still culturing steno malt -- rare. Grrr! Didn't they think they needed to share that tidbit of info?
<br />
<br />Now at noon I get a call indicating that DS has Right Middle Lobe Infiltration and was asked how he was feeling. Similar to other parents comments mentioned here -- thought we were doing okay. Thought this was an exceptional year and then the local clinic drops the CXR bomb. Heck, when I left the clinic a couple weeks ago, I thought things were going great. In fact, we were shown his chest xrays and I thought they looked pretty darned good -- clear -- I was able to show DS where his heart was, his ribs, intestines... Sigh.
<br />
<br />Just feeling bummed. Called the clinic and requested that they also send copies of the films to the CF doctor in the city along with the reports I'd previously requested. Feel like I've been punched in the stomach, although DH has pointed out that every single xray he's gotten at the local clinic has been similar.
<br />
<br />Just had to have a little vent.

 

[Rebjane]

Liza,

I know I commented on this before; Maggie's CXR From her yearly showed Mild increase in interstitial pattern in her right lung zone. She , too, has had a good respiratory year. I did see the CXR, when they took the pic, Maggie wanted to see it, too. I could see the area, that showed the white sort of lines on the film, thinking that it's not normal. Course, I do not know how to read chest films. The impression from the radiologist was probable stable exam compared to last years film. So, I called the CF clinic; talked to the nurse; she thought it was "normal CF progression" I told her I wanted to talk to Maggie 's CF doc; hopefully will hear from him today, today's a clinic day. I guess my questions are why? Should we be concerned? SHould she have a CHest CT? Adjust her VEST settings? And yes, how reliable are these CXRs?Is it because Maggie is growing and it is easier to see her lung fields? Maggie has had a bronchoscopy when she was 2 1/2 and I of course did look back over the record , she did have mucus in her lungs at that time, but since has done fairly well after being blasted with anti's. We haven't done hard core anti's for a while(I don't think now is the time to do it either) SO, I don't have any answers but I'll update when the doc calls me back.

 

[Rebjane]

Liza,

I know I commented on this before; Maggie's CXR From her yearly showed Mild increase in interstitial pattern in her right lung zone. She , too, has had a good respiratory year. I did see the CXR, when they took the pic, Maggie wanted to see it, too. I could see the area, that showed the white sort of lines on the film, thinking that it's not normal. Course, I do not know how to read chest films. The impression from the radiologist was probable stable exam compared to last years film. So, I called the CF clinic; talked to the nurse; she thought it was "normal CF progression" I told her I wanted to talk to Maggie 's CF doc; hopefully will hear from him today, today's a clinic day. I guess my questions are why? Should we be concerned? SHould she have a CHest CT? Adjust her VEST settings? And yes, how reliable are these CXRs?Is it because Maggie is growing and it is easier to see her lung fields? Maggie has had a bronchoscopy when she was 2 1/2 and I of course did look back over the record , she did have mucus in her lungs at that time, but since has done fairly well after being blasted with anti's. We haven't done hard core anti's for a while(I don't think now is the time to do it either) SO, I don't have any answers but I'll update when the doc calls me back.

 

[Rebjane]

Liza,

I know I commented on this before; Maggie's CXR From her yearly showed Mild increase in interstitial pattern in her right lung zone. She , too, has had a good respiratory year. I did see the CXR, when they took the pic, Maggie wanted to see it, too. I could see the area, that showed the white sort of lines on the film, thinking that it's not normal. Course, I do not know how to read chest films. The impression from the radiologist was probable stable exam compared to last years film. So, I called the CF clinic; talked to the nurse; she thought it was "normal CF progression" I told her I wanted to talk to Maggie 's CF doc; hopefully will hear from him today, today's a clinic day. I guess my questions are why? Should we be concerned? SHould she have a CHest CT? Adjust her VEST settings? And yes, how reliable are these CXRs?Is it because Maggie is growing and it is easier to see her lung fields? Maggie has had a bronchoscopy when she was 2 1/2 and I of course did look back over the record , she did have mucus in her lungs at that time, but since has done fairly well after being blasted with anti's. We haven't done hard core anti's for a while(I don't think now is the time to do it either) SO, I don't have any answers but I'll update when the doc calls me back.

 

[Rebjane]

Liza,

I know I commented on this before; Maggie's CXR From her yearly showed Mild increase in interstitial pattern in her right lung zone. She , too, has had a good respiratory year. I did see the CXR, when they took the pic, Maggie wanted to see it, too. I could see the area, that showed the white sort of lines on the film, thinking that it's not normal. Course, I do not know how to read chest films. The impression from the radiologist was probable stable exam compared to last years film. So, I called the CF clinic; talked to the nurse; she thought it was "normal CF progression" I told her I wanted to talk to Maggie 's CF doc; hopefully will hear from him today, today's a clinic day. I guess my questions are why? Should we be concerned? SHould she have a CHest CT? Adjust her VEST settings? And yes, how reliable are these CXRs?Is it because Maggie is growing and it is easier to see her lung fields? Maggie has had a bronchoscopy when she was 2 1/2 and I of course did look back over the record , she did have mucus in her lungs at that time, but since has done fairly well after being blasted with anti's. We haven't done hard core anti's for a while(I don't think now is the time to do it either) SO, I don't have any answers but I'll update when the doc calls me back.

 

[Rebjane]

Liza,

I know I commented on this before; Maggie's CXR From her yearly showed Mild increase in interstitial pattern in her right lung zone. She , too, has had a good respiratory year. I did see the CXR, when they took the pic, Maggie wanted to see it, too. I could see the area, that showed the white sort of lines on the film, thinking that it's not normal. Course, I do not know how to read chest films. The impression from the radiologist was probable stable exam compared to last years film. So, I called the CF clinic; talked to the nurse; she thought it was "normal CF progression" I told her I wanted to talk to Maggie 's CF doc; hopefully will hear from him today, today's a clinic day. I guess my questions are why? Should we be concerned? SHould she have a CHest CT? Adjust her VEST settings? And yes, how reliable are these CXRs?Is it because Maggie is growing and it is easier to see her lung fields? Maggie has had a bronchoscopy when she was 2 1/2 and I of course did look back over the record , she did have mucus in her lungs at that time, but since has done fairly well after being blasted with anti's. We haven't done hard core anti's for a while(I don't think now is the time to do it either) SO, I don't have any answers but I'll update when the doc calls me back.

 

[Ratatosk]

I just pulled up my old caringbridge journal and previous reports interstitial lung issues in both the lower lobes, possible thickening and now apparently that's no longer the case? Sigh. I try to take these reports seriously -- okay, they really bother me, but the conflicting info, conflicting reports -- then the all clear from CT scans with nuclear medicine... Makes me wonder. Guess I'll just have to wait until his CF doctor in the city receives the reports from the local clinic. Sigh.

 

[Ratatosk]

I just pulled up my old caringbridge journal and previous reports interstitial lung issues in both the lower lobes, possible thickening and now apparently that's no longer the case? Sigh. I try to take these reports seriously -- okay, they really bother me, but the conflicting info, conflicting reports -- then the all clear from CT scans with nuclear medicine... Makes me wonder. Guess I'll just have to wait until his CF doctor in the city receives the reports from the local clinic. Sigh.

 

[Ratatosk]

I just pulled up my old caringbridge journal and previous reports interstitial lung issues in both the lower lobes, possible thickening and now apparently that's no longer the case? Sigh. I try to take these reports seriously -- okay, they really bother me, but the conflicting info, conflicting reports -- then the all clear from CT scans with nuclear medicine... Makes me wonder. Guess I'll just have to wait until his CF doctor in the city receives the reports from the local clinic. Sigh.

 

[Ratatosk]

I just pulled up my old caringbridge journal and previous reports interstitial lung issues in both the lower lobes, possible thickening and now apparently that's no longer the case? Sigh. I try to take these reports seriously -- okay, they really bother me, but the conflicting info, conflicting reports -- then the all clear from CT scans with nuclear medicine... Makes me wonder. Guess I'll just have to wait until his CF doctor in the city receives the reports from the local clinic. Sigh.

 

[Ratatosk]

I just pulled up my old caringbridge journal and previous reports interstitial lung issues in both the lower lobes, possible thickening and now apparently that's no longer the case? Sigh. I try to take these reports seriously -- okay, they really bother me, but the conflicting info, conflicting reports -- then the all clear from CT scans with nuclear medicine... Makes me wonder. Guess I'll just have to wait until his CF doctor in the city receives the reports from the local clinic. Sigh.

 

[Ratatosk]

So DS' doctor called from the City to see if he's gotten any better. Based on the reports, they assumed we'd gone to the local doctor because he was sick. Nope, just a well child visit... So his doctor wants a CT scan to make sure things are going okay. So we'll be taking a road trip next week to the City. Probably just do a day trip. Now I'm a nervous wreck. I guess I assumed when his doctor got the reports and CD of the xray that it'd be no big deal. Sigh...

 

[Ratatosk]

So DS' doctor called from the City to see if he's gotten any better. Based on the reports, they assumed we'd gone to the local doctor because he was sick. Nope, just a well child visit... So his doctor wants a CT scan to make sure things are going okay. So we'll be taking a road trip next week to the City. Probably just do a day trip. Now I'm a nervous wreck. I guess I assumed when his doctor got the reports and CD of the xray that it'd be no big deal. Sigh...

 

[Ratatosk]

So DS' doctor called from the City to see if he's gotten any better. Based on the reports, they assumed we'd gone to the local doctor because he was sick. Nope, just a well child visit... So his doctor wants a CT scan to make sure things are going okay. So we'll be taking a road trip next week to the City. Probably just do a day trip. Now I'm a nervous wreck. I guess I assumed when his doctor got the reports and CD of the xray that it'd be no big deal. Sigh...

 

[Ratatosk]

So DS' doctor called from the City to see if he's gotten any better. Based on the reports, they assumed we'd gone to the local doctor because he was sick. Nope, just a well child visit... So his doctor wants a CT scan to make sure things are going okay. So we'll be taking a road trip next week to the City. Probably just do a day trip. Now I'm a nervous wreck. I guess I assumed when his doctor got the reports and CD of the xray that it'd be no big deal. Sigh...

 

[Ratatosk]

So DS' doctor called from the City to see if he's gotten any better. Based on the reports, they assumed we'd gone to the local doctor because he was sick. Nope, just a well child visit... So his doctor wants a CT scan to make sure things are going okay. So we'll be taking a road trip next week to the City. Probably just do a day trip. Now I'm a nervous wreck. I guess I assumed when his doctor got the reports and CD of the xray that it'd be no big deal. Sigh...