Cystic Fibrosis Center Visis

[ziggygirlkcz]

I am trying to figure out where to go from here. Insurance is already giving me fits about going to the first supposed "specialist". I am at a loss as to what I should do! Yes his second sweat test was only 29, but the people in the lab were totally unsure about what they were doing. I am hoping, of course, that it is not CF like any mother would. But I still have my mommy sensor going off saying it is something more than just asthma. Seriously.......asthma does not cause ya to look like you poured cooking oil in the toilet.

 

[ziggygirlkcz]

I am trying to figure out where to go from here. Insurance is already giving me fits about going to the first supposed "specialist". I am at a loss as to what I should do! Yes his second sweat test was only 29, but the people in the lab were totally unsure about what they were doing. I am hoping, of course, that it is not CF like any mother would. But I still have my mommy sensor going off saying it is something more than just asthma. Seriously.......asthma does not cause ya to look like you poured cooking oil in the toilet.

 

[ziggygirlkcz]

I am trying to figure out where to go from here. Insurance is already giving me fits about going to the first supposed "specialist". I am at a loss as to what I should do! Yes his second sweat test was only 29, but the people in the lab were totally unsure about what they were doing. I am hoping, of course, that it is not CF like any mother would. But I still have my mommy sensor going off saying it is something more than just asthma. Seriously.......asthma does not cause ya to look like you poured cooking oil in the toilet.

 

[ziggygirlkcz]

I am trying to figure out where to go from here. Insurance is already giving me fits about going to the first supposed "specialist". I am at a loss as to what I should do! Yes his second sweat test was only 29, but the people in the lab were totally unsure about what they were doing. I am hoping, of course, that it is not CF like any mother would. But I still have my mommy sensor going off saying it is something more than just asthma. Seriously.......asthma does not cause ya to look like you poured cooking oil in the toilet.

 

[ziggygirlkcz]

I am trying to figure out where to go from here. Insurance is already giving me fits about going to the first supposed "specialist". I am at a loss as to what I should do! Yes his second sweat test was only 29, but the people in the lab were totally unsure about what they were doing. I am hoping, of course, that it is not CF like any mother would. But I still have my mommy sensor going off saying it is something more than just asthma. Seriously.......asthma does not cause ya to look like you poured cooking oil in the toilet.

 

[MaryamsMommy]

Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most casses points right at CF.


Karen Mommy to Maryam 9 with CF

 

[MaryamsMommy]

Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most casses points right at CF.


Karen Mommy to Maryam 9 with CF

 

[MaryamsMommy]

Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most casses points right at CF.


Karen Mommy to Maryam 9 with CF

 

[MaryamsMommy]

Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most casses points right at CF.


Karen Mommy to Maryam 9 with CF

 

[MaryamsMommy]

Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most casses points right at CF.
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<br />Karen Mommy to Maryam 9 with CF