Cystic Fibrosis! I hate CF!

beleache

New member
You've listed so many that i dislike also, but here are a few more to add:
Dislike List:
I hate when ppl tell me that i am lucky that i don't have to work, HELLO i would so much rather be healthy, and i do point that out to them..

I hate needles

I hate being away from my family when i have to go in for a tune-up..

I hate it when Drs./Nurses make mistakes and almost kill you...

I hate packing for vacation, and all of the planing it takes for meds/medical equipment..It takes me forever and by the time i finish packing i am ready for sleep and not going anywhere..

I hate playing the guessing game... what's wrong we me now?

Some O.K. things:

Finding God/Jesus was a blessing for me...

Being appreciative/grateful for what i do have in this life...

This site and the ppl i have come to know/love...

I am sure there are many more that i will think of after i post...

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
You've listed so many that i dislike also, but here are a few more to add:
Dislike List:
I hate when ppl tell me that i am lucky that i don't have to work, HELLO i would so much rather be healthy, and i do point that out to them..

I hate needles

I hate being away from my family when i have to go in for a tune-up..

I hate it when Drs./Nurses make mistakes and almost kill you...

I hate packing for vacation, and all of the planing it takes for meds/medical equipment..It takes me forever and by the time i finish packing i am ready for sleep and not going anywhere..

I hate playing the guessing game... what's wrong we me now?

Some O.K. things:

Finding God/Jesus was a blessing for me...

Being appreciative/grateful for what i do have in this life...

This site and the ppl i have come to know/love...

I am sure there are many more that i will think of after i post...

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
You've listed so many that i dislike also, but here are a few more to add:
Dislike List:
I hate when ppl tell me that i am lucky that i don't have to work, HELLO i would so much rather be healthy, and i do point that out to them..

I hate needles

I hate being away from my family when i have to go in for a tune-up..

I hate it when Drs./Nurses make mistakes and almost kill you...

I hate packing for vacation, and all of the planing it takes for meds/medical equipment..It takes me forever and by the time i finish packing i am ready for sleep and not going anywhere..

I hate playing the guessing game... what's wrong we me now?

Some O.K. things:

Finding God/Jesus was a blessing for me...

Being appreciative/grateful for what i do have in this life...

This site and the ppl i have come to know/love...

I am sure there are many more that i will think of after i post...

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
You've listed so many that i dislike also, but here are a few more to add:
Dislike List:
I hate when ppl tell me that i am lucky that i don't have to work, HELLO i would so much rather be healthy, and i do point that out to them..

I hate needles

I hate being away from my family when i have to go in for a tune-up..

I hate it when Drs./Nurses make mistakes and almost kill you...

I hate packing for vacation, and all of the planing it takes for meds/medical equipment..It takes me forever and by the time i finish packing i am ready for sleep and not going anywhere..

I hate playing the guessing game... what's wrong we me now?

Some O.K. things:

Finding God/Jesus was a blessing for me...

Being appreciative/grateful for what i do have in this life...

This site and the ppl i have come to know/love...

I am sure there are many more that i will think of after i post...

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
You've listed so many that i dislike also, but here are a few more to add:
Dislike List:
I hate when ppl tell me that i am lucky that i don't have to work, HELLO i would so much rather be healthy, and i do point that out to them..

I hate needles

I hate being away from my family when i have to go in for a tune-up..

I hate it when Drs./Nurses make mistakes and almost kill you...

I hate packing for vacation, and all of the planing it takes for meds/medical equipment..It takes me forever and by the time i finish packing i am ready for sleep and not going anywhere..

I hate playing the guessing game... what's wrong we me now?

Some O.K. things:

Finding God/Jesus was a blessing for me...

Being appreciative/grateful for what i do have in this life...

This site and the ppl i have come to know/love...

I am sure there are many more that i will think of after i post...

<img src="i/expressions/heart.gif" border="0"> joni
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>


I hate playing the guessing game... what's wrong we me now?


<img src="i/expressions/heart.gif" border="0"> joni</end quote></div>


LMFAO
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>


I hate playing the guessing game... what's wrong we me now?


<img src="i/expressions/heart.gif" border="0"> joni</end quote></div>


LMFAO
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>


I hate playing the guessing game... what's wrong we me now?


<img src="i/expressions/heart.gif" border="0"> joni</end quote></div>


LMFAO
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>


I hate playing the guessing game... what's wrong we me now?


<img src="i/expressions/heart.gif" border="0"> joni</end quote>


LMFAO
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i>


I hate playing the guessing game... what's wrong we me now?


<img src="i/expressions/heart.gif" border="0"> joni</end quote>


LMFAO
 

Diane

New member
Heres another to add to the list,
For those who look completely healthy, having others think we are making too much of our illness and just think we are slackers, using it as an excuse to take it easy................ Now that one always pi$$es me off to no end <img src="i/expressions/face-icon-small-mad.gif" border="0">
 

Diane

New member
Heres another to add to the list,
For those who look completely healthy, having others think we are making too much of our illness and just think we are slackers, using it as an excuse to take it easy................ Now that one always pi$$es me off to no end <img src="i/expressions/face-icon-small-mad.gif" border="0">
 

Diane

New member
Heres another to add to the list,
For those who look completely healthy, having others think we are making too much of our illness and just think we are slackers, using it as an excuse to take it easy................ Now that one always pi$$es me off to no end <img src="i/expressions/face-icon-small-mad.gif" border="0">
 

Diane

New member
Heres another to add to the list,
For those who look completely healthy, having others think we are making too much of our illness and just think we are slackers, using it as an excuse to take it easy................ Now that one always pi$$es me off to no end <img src="i/expressions/face-icon-small-mad.gif" border="0">
 

Diane

New member
Heres another to add to the list,
For those who look completely healthy, having others think we are making too much of our illness and just think we are slackers, using it as an excuse to take it easy................ Now that one always pi$$es me off to no end <img src="i/expressions/face-icon-small-mad.gif" border="0">
 

blindhearted

New member
Dislikes :
Sick and tired of being sick and tired all the time.

Cant go to certain places because of the smoking issues...no dance clubs/bars.

Cant dance without getting short of breath.

When planning a vacation, you have to look at : can u handle the distance (car ride or the flight), does the place have a fridge (got to keep meds cold), did you pack ur pharmacy, what will the weather be like (too hot, too cold), how far is the nearest hospital (u never know what might happen), is the hotel room non-smoking, elevator access or stairs only.

Daily life is put on hold a few times a day for treatments that take a few hours each.

Hearing ppl say : I wish I could eat all I want and still be that skinny! I could do that when I was younger, but one day it's gonna catch up with you. - no it's not!

Coughing and ppl acting and openly talk about "sounds like someone has the flu." -thinking just because u are behind a bathroom stall, you cant hear them.

Coughing and ppl telling you : You really need to go to the doctor and get that checked out, I had that last week and it was terrible. - *eye roll*

Burning to a crisp each summer if I dont use at least 50+ SPF

Looking younger than u are - getting carded, ppl thinking I'm still in high school, getting dirty looks from little old ladies when my DH and I are out holding hands, being told that you might want to order off of the childrens menu because the adult plates contain a lot of food (yes that happened to me), etc.

Ppl at the hosptial / doctors office / pharmacy know u by name.

Likes:
My pale skin. - save money with fake tanning, less wrinkles and sun spots.

Looking younger than u are - when my friends are in their 30s and look it, I'll be in my 30s and look in my 20s (or so I tell myself). Get a meal at the child's price because the waitress assumed ur age - saves money!

My Husband - I meet him when I was in our local hopsital for an infection. He was a nurses aide, I was his patient. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ppl at the hospital / doctors office / pharmacy know u by name - saves on the waiting sometimes.

My strong faith and belief in God.
 

blindhearted

New member
Dislikes :
Sick and tired of being sick and tired all the time.

Cant go to certain places because of the smoking issues...no dance clubs/bars.

Cant dance without getting short of breath.

When planning a vacation, you have to look at : can u handle the distance (car ride or the flight), does the place have a fridge (got to keep meds cold), did you pack ur pharmacy, what will the weather be like (too hot, too cold), how far is the nearest hospital (u never know what might happen), is the hotel room non-smoking, elevator access or stairs only.

Daily life is put on hold a few times a day for treatments that take a few hours each.

Hearing ppl say : I wish I could eat all I want and still be that skinny! I could do that when I was younger, but one day it's gonna catch up with you. - no it's not!

Coughing and ppl acting and openly talk about "sounds like someone has the flu." -thinking just because u are behind a bathroom stall, you cant hear them.

Coughing and ppl telling you : You really need to go to the doctor and get that checked out, I had that last week and it was terrible. - *eye roll*

Burning to a crisp each summer if I dont use at least 50+ SPF

Looking younger than u are - getting carded, ppl thinking I'm still in high school, getting dirty looks from little old ladies when my DH and I are out holding hands, being told that you might want to order off of the childrens menu because the adult plates contain a lot of food (yes that happened to me), etc.

Ppl at the hosptial / doctors office / pharmacy know u by name.

Likes:
My pale skin. - save money with fake tanning, less wrinkles and sun spots.

Looking younger than u are - when my friends are in their 30s and look it, I'll be in my 30s and look in my 20s (or so I tell myself). Get a meal at the child's price because the waitress assumed ur age - saves money!

My Husband - I meet him when I was in our local hopsital for an infection. He was a nurses aide, I was his patient. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ppl at the hospital / doctors office / pharmacy know u by name - saves on the waiting sometimes.

My strong faith and belief in God.
 

blindhearted

New member
Dislikes :
Sick and tired of being sick and tired all the time.

Cant go to certain places because of the smoking issues...no dance clubs/bars.

Cant dance without getting short of breath.

When planning a vacation, you have to look at : can u handle the distance (car ride or the flight), does the place have a fridge (got to keep meds cold), did you pack ur pharmacy, what will the weather be like (too hot, too cold), how far is the nearest hospital (u never know what might happen), is the hotel room non-smoking, elevator access or stairs only.

Daily life is put on hold a few times a day for treatments that take a few hours each.

Hearing ppl say : I wish I could eat all I want and still be that skinny! I could do that when I was younger, but one day it's gonna catch up with you. - no it's not!

Coughing and ppl acting and openly talk about "sounds like someone has the flu." -thinking just because u are behind a bathroom stall, you cant hear them.

Coughing and ppl telling you : You really need to go to the doctor and get that checked out, I had that last week and it was terrible. - *eye roll*

Burning to a crisp each summer if I dont use at least 50+ SPF

Looking younger than u are - getting carded, ppl thinking I'm still in high school, getting dirty looks from little old ladies when my DH and I are out holding hands, being told that you might want to order off of the childrens menu because the adult plates contain a lot of food (yes that happened to me), etc.

Ppl at the hosptial / doctors office / pharmacy know u by name.

Likes:
My pale skin. - save money with fake tanning, less wrinkles and sun spots.

Looking younger than u are - when my friends are in their 30s and look it, I'll be in my 30s and look in my 20s (or so I tell myself). Get a meal at the child's price because the waitress assumed ur age - saves money!

My Husband - I meet him when I was in our local hopsital for an infection. He was a nurses aide, I was his patient. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ppl at the hospital / doctors office / pharmacy know u by name - saves on the waiting sometimes.

My strong faith and belief in God.
 

blindhearted

New member
Dislikes :
Sick and tired of being sick and tired all the time.

Cant go to certain places because of the smoking issues...no dance clubs/bars.

Cant dance without getting short of breath.

When planning a vacation, you have to look at : can u handle the distance (car ride or the flight), does the place have a fridge (got to keep meds cold), did you pack ur pharmacy, what will the weather be like (too hot, too cold), how far is the nearest hospital (u never know what might happen), is the hotel room non-smoking, elevator access or stairs only.

Daily life is put on hold a few times a day for treatments that take a few hours each.

Hearing ppl say : I wish I could eat all I want and still be that skinny! I could do that when I was younger, but one day it's gonna catch up with you. - no it's not!

Coughing and ppl acting and openly talk about "sounds like someone has the flu." -thinking just because u are behind a bathroom stall, you cant hear them.

Coughing and ppl telling you : You really need to go to the doctor and get that checked out, I had that last week and it was terrible. - *eye roll*

Burning to a crisp each summer if I dont use at least 50+ SPF

Looking younger than u are - getting carded, ppl thinking I'm still in high school, getting dirty looks from little old ladies when my DH and I are out holding hands, being told that you might want to order off of the childrens menu because the adult plates contain a lot of food (yes that happened to me), etc.

Ppl at the hosptial / doctors office / pharmacy know u by name.

Likes:
My pale skin. - save money with fake tanning, less wrinkles and sun spots.

Looking younger than u are - when my friends are in their 30s and look it, I'll be in my 30s and look in my 20s (or so I tell myself). Get a meal at the child's price because the waitress assumed ur age - saves money!

My Husband - I meet him when I was in our local hopsital for an infection. He was a nurses aide, I was his patient. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ppl at the hospital / doctors office / pharmacy know u by name - saves on the waiting sometimes.

My strong faith and belief in God.
 

blindhearted

New member
Dislikes :
Sick and tired of being sick and tired all the time.

Cant go to certain places because of the smoking issues...no dance clubs/bars.

Cant dance without getting short of breath.

When planning a vacation, you have to look at : can u handle the distance (car ride or the flight), does the place have a fridge (got to keep meds cold), did you pack ur pharmacy, what will the weather be like (too hot, too cold), how far is the nearest hospital (u never know what might happen), is the hotel room non-smoking, elevator access or stairs only.

Daily life is put on hold a few times a day for treatments that take a few hours each.

Hearing ppl say : I wish I could eat all I want and still be that skinny! I could do that when I was younger, but one day it's gonna catch up with you. - no it's not!

Coughing and ppl acting and openly talk about "sounds like someone has the flu." -thinking just because u are behind a bathroom stall, you cant hear them.

Coughing and ppl telling you : You really need to go to the doctor and get that checked out, I had that last week and it was terrible. - *eye roll*

Burning to a crisp each summer if I dont use at least 50+ SPF

Looking younger than u are - getting carded, ppl thinking I'm still in high school, getting dirty looks from little old ladies when my DH and I are out holding hands, being told that you might want to order off of the childrens menu because the adult plates contain a lot of food (yes that happened to me), etc.

Ppl at the hosptial / doctors office / pharmacy know u by name.

Likes:
My pale skin. - save money with fake tanning, less wrinkles and sun spots.

Looking younger than u are - when my friends are in their 30s and look it, I'll be in my 30s and look in my 20s (or so I tell myself). Get a meal at the child's price because the waitress assumed ur age - saves money!

My Husband - I meet him when I was in our local hopsital for an infection. He was a nurses aide, I was his patient. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ppl at the hospital / doctors office / pharmacy know u by name - saves on the waiting sometimes.

My strong faith and belief in God.
 
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