Daily medications

grassisgreener · Jul 23, 2007

My cfer is 4, has normal lung function, has chronic sinus congestion, good BMI although small in stature (which does run in our family) and is very cute! Here is the list:

7 Creon5 with meals (usually 3 meals per day, sometimes 4 meals or a snack)
30 minutes of vest in the AM

Daily probiotic, multi-vitamin + magnesium, calcium, selenium, EFA, GSH and Taurine supplements.

Simply Saline & Xlear (for chronic sinus congestion)

*we are going to be making some changes in her treatment soon. We will be adding an extra vest session (at Dr. Warwick's suggestion, not our regular CF doc) and may be adding Nasacort for sinus congestion.

grassisgreener · Jul 23, 2007

My cfer is 4, has normal lung function, has chronic sinus congestion, good BMI although small in stature (which does run in our family) and is very cute! Here is the list:

7 Creon5 with meals (usually 3 meals per day, sometimes 4 meals or a snack)
30 minutes of vest in the AM

Daily probiotic, multi-vitamin + magnesium, calcium, selenium, EFA, GSH and Taurine supplements.

Simply Saline & Xlear (for chronic sinus congestion)

*we are going to be making some changes in her treatment soon. We will be adding an extra vest session (at Dr. Warwick's suggestion, not our regular CF doc) and may be adding Nasacort for sinus congestion.

hbollotte · Jul 27, 2007

this is what i'm on right now:

albuterol puffer - 1x day(4 puffs)
hypertonic saline 7% - 2x day
pulmozyme - 2x day
acapella (not really a med)
advair 250/50 -2x day
flonase- 1x day

zithromax - mon-wed-fri
vitamax- 1x day
calcium - 3x day
prima care one (prenatal vitamin)- 1x day

thats it

hbollotte · Jul 27, 2007

this is what i'm on right now:

albuterol puffer - 1x day(4 puffs)
hypertonic saline 7% - 2x day
pulmozyme - 2x day
acapella (not really a med)
advair 250/50 -2x day
flonase- 1x day

zithromax - mon-wed-fri
vitamax- 1x day
calcium - 3x day
prima care one (prenatal vitamin)- 1x day

thats it

hbollotte · Jul 27, 2007

this is what i'm on right now:

albuterol puffer - 1x day(4 puffs)
hypertonic saline 7% - 2x day
pulmozyme - 2x day
acapella (not really a med)
advair 250/50 -2x day
flonase- 1x day

zithromax - mon-wed-fri
vitamax- 1x day
calcium - 3x day
prima care one (prenatal vitamin)- 1x day

thats it

hbollotte · Jul 27, 2007

this is what i'm on right now:

albuterol puffer - 1x day(4 puffs)
hypertonic saline 7% - 2x day
pulmozyme - 2x day
acapella (not really a med)
advair 250/50 -2x day
flonase- 1x day

zithromax - mon-wed-fri
vitamax- 1x day
calcium - 3x day
prima care one (prenatal vitamin)- 1x day

thats it

hbollotte · Jul 27, 2007

this is what i'm on right now:

albuterol puffer - 1x day(4 puffs)
hypertonic saline 7% - 2x day
pulmozyme - 2x day
acapella (not really a med)
advair 250/50 -2x day
flonase- 1x day

zithromax - mon-wed-fri
vitamax- 1x day
calcium - 3x day
prima care one (prenatal vitamin)- 1x day

thats it

froggymama · Jul 29, 2007

Alyssa,

I just asked my doc why some kids are on Pulmozyme and others aren't. Our daughter started Pulmozyme at around 4 months, and we do it once a day. She's now almost 2 and doing great. She's never had a lung infection, or pseudomonas. Her doc said that they are very aggressive with treatments and recommend Pulm, before problems arise. We've only been dealing with the clinics for a little over a year, but our daughter is very healthy and we're pretty happy with her docs. Maybe you could get a second opinion.

froggymama · Jul 29, 2007

Alyssa,

I just asked my doc why some kids are on Pulmozyme and others aren't. Our daughter started Pulmozyme at around 4 months, and we do it once a day. She's now almost 2 and doing great. She's never had a lung infection, or pseudomonas. Her doc said that they are very aggressive with treatments and recommend Pulm, before problems arise. We've only been dealing with the clinics for a little over a year, but our daughter is very healthy and we're pretty happy with her docs. Maybe you could get a second opinion.

froggymama · Jul 29, 2007

Alyssa,

I just asked my doc why some kids are on Pulmozyme and others aren't. Our daughter started Pulmozyme at around 4 months, and we do it once a day. She's now almost 2 and doing great. She's never had a lung infection, or pseudomonas. Her doc said that they are very aggressive with treatments and recommend Pulm, before problems arise. We've only been dealing with the clinics for a little over a year, but our daughter is very healthy and we're pretty happy with her docs. Maybe you could get a second opinion.

froggymama · Jul 29, 2007

Alyssa,

I just asked my doc why some kids are on Pulmozyme and others aren't. Our daughter started Pulmozyme at around 4 months, and we do it once a day. She's now almost 2 and doing great. She's never had a lung infection, or pseudomonas. Her doc said that they are very aggressive with treatments and recommend Pulm, before problems arise. We've only been dealing with the clinics for a little over a year, but our daughter is very healthy and we're pretty happy with her docs. Maybe you could get a second opinion.

froggymama · Jul 29, 2007

Alyssa,

I just asked my doc why some kids are on Pulmozyme and others aren't. Our daughter started Pulmozyme at around 4 months, and we do it once a day. She's now almost 2 and doing great. She's never had a lung infection, or pseudomonas. Her doc said that they are very aggressive with treatments and recommend Pulm, before problems arise. We've only been dealing with the clinics for a little over a year, but our daughter is very healthy and we're pretty happy with her docs. Maybe you could get a second opinion.

RUSSELLCREW · Jul 30, 2007