My daughter Sofia was just diagnosed with CF a couple days ago. She is three months old. We found out through the newborn screening test. Then my husband and I had genetic testing that confirmed her diagnosis. However, at 8 weeks old, her sweat test came back negative. Also, she is gaining weight and thriving and doesn't seem to be showing obvious symptoms of the disease at this time. I am on maternity leave right now but I will be going back to work very soon. When I asked the CF center at Children's Hospital in L.A. they told me I should try to stay home with her the first year and not put her in daycare or hire someone to come to my home. My husband and I don't really have the money to hire someone full-time to come to our home and I need to keep my job in order to have health insurance for my daughter.
Any advice would be a big help.
Much Thanks! Bee
Any advice would be a big help.
Much Thanks! Bee