Denufosol Trial

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EnergyGal

New member
I do not know if what I am saying applies ....

This drug is probably considered an orphan drug if it was designed specifically for cf. If so, you can write to the fda and ask for a compassionate release so you all can get the drug approved much quicker. Of course there are always the clinical trial phases but perhaps your doctors can get compassionate releases at the hospital to allow certain patients to get the drug earlier in order to save more lives.

Lives are at stake so fight for your rights. I am sure the CFF will help you with this.
 
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EnergyGal

New member
I do not know if what I am saying applies ....

This drug is probably considered an orphan drug if it was designed specifically for cf. If so, you can write to the fda and ask for a compassionate release so you all can get the drug approved much quicker. Of course there are always the clinical trial phases but perhaps your doctors can get compassionate releases at the hospital to allow certain patients to get the drug earlier in order to save more lives.

Lives are at stake so fight for your rights. I am sure the CFF will help you with this.
 
E

EnergyGal

New member
I remembered one important thing.
I believe you have to talk to the drug company first. That would make much more sense. <img src="i/expressions/face-icon-small-smile.gif" border="0">They have to apply to the fda etc....
 
E

EnergyGal

New member
I remembered one important thing.
I believe you have to talk to the drug company first. That would make much more sense. <img src="i/expressions/face-icon-small-smile.gif" border="0">They have to apply to the fda etc....
 
E

EnergyGal

New member
I remembered one important thing.
I believe you have to talk to the drug company first. That would make much more sense. <img src="i/expressions/face-icon-small-smile.gif" border="0">They have to apply to the fda etc....
 
E

EnergyGal

New member
I remembered one important thing.
I believe you have to talk to the drug company first. That would make much more sense. <img src="i/expressions/face-icon-small-smile.gif" border="0">They have to apply to the fda etc....
 
E

EnergyGal

New member
I remembered one important thing.
I believe you have to talk to the drug company first. That would make much more sense. <img src="i/expressions/face-icon-small-smile.gif" border="0">They have to apply to the fda etc....
 
E

EnergyGal

New member
I remembered one important thing.
I believe you have to talk to the drug company first. That would make much more sense. <img src="i/expressions/face-icon-small-smile.gif" border="0">They have to apply to the fda etc....
 
F

Faust

New member
We all hope/wish/pray new treatments/cures come about that can greatly improve the longevity and quality of life for those afflicted with our disease...But here is a hint: Follow the money. Like many other "orphan drugs", even with direct sponsorship from groups such as the CFF, the drugs that have the biggest potentiality for profitability, are the ones pursued the fiercest. 10 more years...10 more years...


10 more years...
 
F

Faust

New member
We all hope/wish/pray new treatments/cures come about that can greatly improve the longevity and quality of life for those afflicted with our disease...But here is a hint: Follow the money. Like many other "orphan drugs", even with direct sponsorship from groups such as the CFF, the drugs that have the biggest potentiality for profitability, are the ones pursued the fiercest. 10 more years...10 more years...


10 more years...
 
F

Faust

New member
We all hope/wish/pray new treatments/cures come about that can greatly improve the longevity and quality of life for those afflicted with our disease...But here is a hint: Follow the money. Like many other "orphan drugs", even with direct sponsorship from groups such as the CFF, the drugs that have the biggest potentiality for profitability, are the ones pursued the fiercest. 10 more years...10 more years...


10 more years...
 
F

Faust

New member
We all hope/wish/pray new treatments/cures come about that can greatly improve the longevity and quality of life for those afflicted with our disease...But here is a hint: Follow the money. Like many other "orphan drugs", even with direct sponsorship from groups such as the CFF, the drugs that have the biggest potentiality for profitability, are the ones pursued the fiercest. 10 more years...10 more years...


10 more years...
 
F

Faust

New member
We all hope/wish/pray new treatments/cures come about that can greatly improve the longevity and quality of life for those afflicted with our disease...But here is a hint: Follow the money. Like many other "orphan drugs", even with direct sponsorship from groups such as the CFF, the drugs that have the biggest potentiality for profitability, are the ones pursued the fiercest. 10 more years...10 more years...


10 more years...
 
F

Faust

New member
We all hope/wish/pray new treatments/cures come about that can greatly improve the longevity and quality of life for those afflicted with our disease...But here is a hint: Follow the money. Like many other "orphan drugs", even with direct sponsorship from groups such as the CFF, the drugs that have the biggest potentiality for profitability, are the ones pursued the fiercest. 10 more years...10 more years...


10 more years...
 
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