Did you find out through your medical records?

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sdavis227

New member
I've never found anything out that the clinic was hiding, but I've gotten the feeling that they've hid things before, like on cultures. I'm sure it's because they don't want parents of newly diagnosed cfers to freak over one culture, but I'm one that would rather know.
hmmm. definitely a good subject.
 
S

sdavis227

New member
I've never found anything out that the clinic was hiding, but I've gotten the feeling that they've hid things before, like on cultures. I'm sure it's because they don't want parents of newly diagnosed cfers to freak over one culture, but I'm one that would rather know.
hmmm. definitely a good subject.
 
S

sdavis227

New member
I've never found anything out that the clinic was hiding, but I've gotten the feeling that they've hid things before, like on cultures. I'm sure it's because they don't want parents of newly diagnosed cfers to freak over one culture, but I'm one that would rather know.
hmmm. definitely a good subject.
 
S

sdavis227

New member
I've never found anything out that the clinic was hiding, but I've gotten the feeling that they've hid things before, like on cultures. I'm sure it's because they don't want parents of newly diagnosed cfers to freak over one culture, but I'm one that would rather know.
hmmm. definitely a good subject.
 
S

sdavis227

New member
I've never found anything out that the clinic was hiding, but I've gotten the feeling that they've hid things before, like on cultures. I'm sure it's because they don't want parents of newly diagnosed cfers to freak over one culture, but I'm one that would rather know.
hmmm. definitely a good subject.
 
C

CowTown

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Have you thought about asking them WHY they haven't told you? I'm just curious what their excuse would be.

I agree with Khristy and Amy - they are so busy they can't see straight - that's a recipe for crap like this. Are you going to a specialist at the same location or somewhere else?

I hope you get some good answers and insight - keep us posted.

</end quote></div>



Hi Sally, I will be asking them why, yes. Absolutely. I will be interested in hearing what they say too. My guess is that they say, he thought he did tell me, or he didn't want to upset me since I didn't complain of it happening....or something like that.
 
C

CowTown

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Have you thought about asking them WHY they haven't told you? I'm just curious what their excuse would be.

I agree with Khristy and Amy - they are so busy they can't see straight - that's a recipe for crap like this. Are you going to a specialist at the same location or somewhere else?

I hope you get some good answers and insight - keep us posted.

</end quote></div>



Hi Sally, I will be asking them why, yes. Absolutely. I will be interested in hearing what they say too. My guess is that they say, he thought he did tell me, or he didn't want to upset me since I didn't complain of it happening....or something like that.
 
C

CowTown

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Have you thought about asking them WHY they haven't told you? I'm just curious what their excuse would be.

I agree with Khristy and Amy - they are so busy they can't see straight - that's a recipe for crap like this. Are you going to a specialist at the same location or somewhere else?

I hope you get some good answers and insight - keep us posted.

</end quote></div>



Hi Sally, I will be asking them why, yes. Absolutely. I will be interested in hearing what they say too. My guess is that they say, he thought he did tell me, or he didn't want to upset me since I didn't complain of it happening....or something like that.
 
C

CowTown

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Have you thought about asking them WHY they haven't told you? I'm just curious what their excuse would be.

I agree with Khristy and Amy - they are so busy they can't see straight - that's a recipe for crap like this. Are you going to a specialist at the same location or somewhere else?

I hope you get some good answers and insight - keep us posted.

</end quote>



Hi Sally, I will be asking them why, yes. Absolutely. I will be interested in hearing what they say too. My guess is that they say, he thought he did tell me, or he didn't want to upset me since I didn't complain of it happening....or something like that.
 
C

CowTown

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CaliSally</b></i>

Have you thought about asking them WHY they haven't told you? I'm just curious what their excuse would be.

I agree with Khristy and Amy - they are so busy they can't see straight - that's a recipe for crap like this. Are you going to a specialist at the same location or somewhere else?

I hope you get some good answers and insight - keep us posted.

</end quote>



Hi Sally, I will be asking them why, yes. Absolutely. I will be interested in hearing what they say too. My guess is that they say, he thought he did tell me, or he didn't want to upset me since I didn't complain of it happening....or something like that.
 
C

CowTown

New member
Another thing I found in the report, much less of an ordeal though.....what does it mean when they say "1+ clubbing". I assume it means the beginning stages of clubbing? What are the numbered stages, does anyone know?
 
C

CowTown

New member
Another thing I found in the report, much less of an ordeal though.....what does it mean when they say "1+ clubbing". I assume it means the beginning stages of clubbing? What are the numbered stages, does anyone know?
 
C

CowTown

New member
Another thing I found in the report, much less of an ordeal though.....what does it mean when they say "1+ clubbing". I assume it means the beginning stages of clubbing? What are the numbered stages, does anyone know?
 
C

CowTown

New member
Another thing I found in the report, much less of an ordeal though.....what does it mean when they say "1+ clubbing". I assume it means the beginning stages of clubbing? What are the numbered stages, does anyone know?
 
C

CowTown

New member
Another thing I found in the report, much less of an ordeal though.....what does it mean when they say "1+ clubbing". I assume it means the beginning stages of clubbing? What are the numbered stages, does anyone know?
 
C

CowTown

New member
Updated:::: I asked my doctor yesterday about my collapsed lobe.

He pulled up my CT and explained it to me again. He said he doesn't believe that it is a 'collapse', but rather a large cavity, or air pocket that you see. Apparently it was the radiologist who wrote the report in my medical record, not my doctor. My doctor thought since he's not as used to seeing CF lungs that he just assumed he was looking at a collapse. Sounds a little weird to me, but I guess that's about right. My doc said if it was a complete collapse, then the whole lobe would look like the opaque cartilage areas of the scan.

So my doctor didn't "mess up" like how I had thought, and I'm not as mad anymore. Just thought I'd update that point here. I am going to get another opinion though on it next week. It will be interesting to see what a third person says!
 
C

CowTown

New member
Updated:::: I asked my doctor yesterday about my collapsed lobe.

He pulled up my CT and explained it to me again. He said he doesn't believe that it is a 'collapse', but rather a large cavity, or air pocket that you see. Apparently it was the radiologist who wrote the report in my medical record, not my doctor. My doctor thought since he's not as used to seeing CF lungs that he just assumed he was looking at a collapse. Sounds a little weird to me, but I guess that's about right. My doc said if it was a complete collapse, then the whole lobe would look like the opaque cartilage areas of the scan.

So my doctor didn't "mess up" like how I had thought, and I'm not as mad anymore. Just thought I'd update that point here. I am going to get another opinion though on it next week. It will be interesting to see what a third person says!
 
C

CowTown

New member
Updated:::: I asked my doctor yesterday about my collapsed lobe.

He pulled up my CT and explained it to me again. He said he doesn't believe that it is a 'collapse', but rather a large cavity, or air pocket that you see. Apparently it was the radiologist who wrote the report in my medical record, not my doctor. My doctor thought since he's not as used to seeing CF lungs that he just assumed he was looking at a collapse. Sounds a little weird to me, but I guess that's about right. My doc said if it was a complete collapse, then the whole lobe would look like the opaque cartilage areas of the scan.

So my doctor didn't "mess up" like how I had thought, and I'm not as mad anymore. Just thought I'd update that point here. I am going to get another opinion though on it next week. It will be interesting to see what a third person says!
 
C

CowTown

New member
Updated:::: I asked my doctor yesterday about my collapsed lobe.

He pulled up my CT and explained it to me again. He said he doesn't believe that it is a 'collapse', but rather a large cavity, or air pocket that you see. Apparently it was the radiologist who wrote the report in my medical record, not my doctor. My doctor thought since he's not as used to seeing CF lungs that he just assumed he was looking at a collapse. Sounds a little weird to me, but I guess that's about right. My doc said if it was a complete collapse, then the whole lobe would look like the opaque cartilage areas of the scan.

So my doctor didn't "mess up" like how I had thought, and I'm not as mad anymore. Just thought I'd update that point here. I am going to get another opinion though on it next week. It will be interesting to see what a third person says!
 
C

CowTown

New member
Updated:::: I asked my doctor yesterday about my collapsed lobe.

He pulled up my CT and explained it to me again. He said he doesn't believe that it is a 'collapse', but rather a large cavity, or air pocket that you see. Apparently it was the radiologist who wrote the report in my medical record, not my doctor. My doctor thought since he's not as used to seeing CF lungs that he just assumed he was looking at a collapse. Sounds a little weird to me, but I guess that's about right. My doc said if it was a complete collapse, then the whole lobe would look like the opaque cartilage areas of the scan.

So my doctor didn't "mess up" like how I had thought, and I'm not as mad anymore. Just thought I'd update that point here. I am going to get another opinion though on it next week. It will be interesting to see what a third person says!
 
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