Did you get a CVS?

H

hopesiris

Guest
You can have the cord blood tested by Ambry, we did that to look for my second mutation since I was diagnosed with CF after we had already done the CVS. You can order an Ambry collection kit and form off their website and pack it in your hospital bag. We used fedex to ship it though since the carrier they sent us forms for never showed up. I just kept reminding DH and my doc about it as my due date approached.
 
H

hopesiris

Guest
You can have the cord blood tested by Ambry, we did that to look for my second mutation since I was diagnosed with CF after we had already done the CVS. You can order an Ambry collection kit and form off their website and pack it in your hospital bag. We used fedex to ship it though since the carrier they sent us forms for never showed up. I just kept reminding DH and my doc about it as my due date approached.
 
H

hopesiris

Guest
You can have the cord blood tested by Ambry, we did that to look for my second mutation since I was diagnosed with CF after we had already done the CVS. You can order an Ambry collection kit and form off their website and pack it in your hospital bag. We used fedex to ship it though since the carrier they sent us forms for never showed up. I just kept reminding DH and my doc about it as my due date approached.
 
H

hopesiris

Guest
You can have the cord blood tested by Ambry, we did that to look for my second mutation since I was diagnosed with CF after we had already done the CVS. You can order an Ambry collection kit and form off their website and pack it in your hospital bag. We used fedex to ship it though since the carrier they sent us forms for never showed up. I just kept reminding DH and my doc about it as my due date approached.
 
H

hopesiris

Guest
You can have the cord blood tested by Ambry, we did that to look for my second mutation since I was diagnosed with CF after we had already done the CVS. You can order an Ambry collection kit and form off their website and pack it in your hospital bag. We used fedex to ship it though since the carrier they sent us forms for never showed up. I just kept reminding DH and my doc about it as my due date approached.
 
L

LouLou

New member
Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. Oh and IV meds are sometimes less intrusive on the breastmilk than the orals. Get the book :) Oh and another recommended read is Healthy Sleep Habits, Happy Child. For me a good sleeper was and is a priority in order to maintain my health.

Also while I'm thinking of it and on the advice train. Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.

Your planning for a support system is smart.

Feel free to PM if you have any questions.
 
L

LouLou

New member
Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. Oh and IV meds are sometimes less intrusive on the breastmilk than the orals. Get the book :) Oh and another recommended read is Healthy Sleep Habits, Happy Child. For me a good sleeper was and is a priority in order to maintain my health.

Also while I'm thinking of it and on the advice train. Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.

Your planning for a support system is smart.

Feel free to PM if you have any questions.
 
L

LouLou

New member
Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. Oh and IV meds are sometimes less intrusive on the breastmilk than the orals. Get the book :) Oh and another recommended read is Healthy Sleep Habits, Happy Child. For me a good sleeper was and is a priority in order to maintain my health.

Also while I'm thinking of it and on the advice train. Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.

Your planning for a support system is smart.

Feel free to PM if you have any questions.
 
L

LouLou

New member
Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. Oh and IV meds are sometimes less intrusive on the breastmilk than the orals. Get the book :) Oh and another recommended read is Healthy Sleep Habits, Happy Child. For me a good sleeper was and is a priority in order to maintain my health.

Also while I'm thinking of it and on the advice train. Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.

Your planning for a support system is smart.

Feel free to PM if you have any questions.
 
L

LouLou

New member
Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. Oh and IV meds are sometimes less intrusive on the breastmilk than the orals. Get the book :) Oh and another recommended read is Healthy Sleep Habits, Happy Child. For me a good sleeper was and is a priority in order to maintain my health.

Also while I'm thinking of it and on the advice train. Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.

Your planning for a support system is smart.

Feel free to PM if you have any questions.
 
K

Keepercjr

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i>

Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. </end quote></div>

AND

<div class="FTQUOTE"><begin quote> Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.
</end quote></div>

What Lauren said above <img src="">

As for books, get books on breastfeeding and childbirth. For childbirth preparation read "The Thinking Woman's Guide to a Better Birth" by Henci Goer. And for baby I recommend anything by Dr. Sears - specifically "The Baby Book" But he also has books on sleep, breasfeeding, pregnancy and childbirth among others. Dr. Jay Gordon has a good book on babies' sleep as well. Incidentally, when DH was a baby he was seen by Dr. Gordon a few times (he also writes for Fit Pregnancy magazine I think - or another baby mag) because he was studying under Dr. Paul Fleiss, DH's primary pediatrician, at the time (also has written books and occasional articles for Mothering Magazine and is the papa of the famous Heidi Fleiss). MIL loved that practice - never pressured her to do anything that she didn't want to with DH.
 
K

Keepercjr

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i>

Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. </end quote></div>

AND

<div class="FTQUOTE"><begin quote> Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.
</end quote></div>

What Lauren said above <img src="">

As for books, get books on breastfeeding and childbirth. For childbirth preparation read "The Thinking Woman's Guide to a Better Birth" by Henci Goer. And for baby I recommend anything by Dr. Sears - specifically "The Baby Book" But he also has books on sleep, breasfeeding, pregnancy and childbirth among others. Dr. Jay Gordon has a good book on babies' sleep as well. Incidentally, when DH was a baby he was seen by Dr. Gordon a few times (he also writes for Fit Pregnancy magazine I think - or another baby mag) because he was studying under Dr. Paul Fleiss, DH's primary pediatrician, at the time (also has written books and occasional articles for Mothering Magazine and is the papa of the famous Heidi Fleiss). MIL loved that practice - never pressured her to do anything that she didn't want to with DH.
 
K

Keepercjr

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i>

Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. </end quote></div>

AND

<div class="FTQUOTE"><begin quote> Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.
</end quote></div>

What Lauren said above <img src="">

As for books, get books on breastfeeding and childbirth. For childbirth preparation read "The Thinking Woman's Guide to a Better Birth" by Henci Goer. And for baby I recommend anything by Dr. Sears - specifically "The Baby Book" But he also has books on sleep, breasfeeding, pregnancy and childbirth among others. Dr. Jay Gordon has a good book on babies' sleep as well. Incidentally, when DH was a baby he was seen by Dr. Gordon a few times (he also writes for Fit Pregnancy magazine I think - or another baby mag) because he was studying under Dr. Paul Fleiss, DH's primary pediatrician, at the time (also has written books and occasional articles for Mothering Magazine and is the papa of the famous Heidi Fleiss). MIL loved that practice - never pressured her to do anything that she didn't want to with DH.
 
K

Keepercjr

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i>

Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. </end quote>

AND

<div class="FTQUOTE"><begin quote> Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.
</end quote>

What Lauren said above <img src="">

As for books, get books on breastfeeding and childbirth. For childbirth preparation read "The Thinking Woman's Guide to a Better Birth" by Henci Goer. And for baby I recommend anything by Dr. Sears - specifically "The Baby Book" But he also has books on sleep, breasfeeding, pregnancy and childbirth among others. Dr. Jay Gordon has a good book on babies' sleep as well. Incidentally, when DH was a baby he was seen by Dr. Gordon a few times (he also writes for Fit Pregnancy magazine I think - or another baby mag) because he was studying under Dr. Paul Fleiss, DH's primary pediatrician, at the time (also has written books and occasional articles for Mothering Magazine and is the papa of the famous Heidi Fleiss). MIL loved that practice - never pressured her to do anything that she didn't want to with DH.
 
K

Keepercjr

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i>

Add this book to your baby registry, <b><i>Medication and Mother's Milk</i></b> by Thomas Hale. It's a must have reference for cf moms. Get it in your home library before the baby arrives. It shows you what's safe for lactation/pregnancy. You'll be amazed how little the doctor knows about this subject. Most error on the side of switching to formula when drugs are needed but I'm telling you a healthy baby is in every cfers best interest so its important to really weigh the risks with the meds vs. discontinuing breastfeeding. Since the immunities your baby will get from breastfeeding are not available through any formula. Many drugs don't pass on to breastmilk. Much lower than pregnancy and if you're anything like me you are taking a bunch while pregnant LOL. </end quote>

AND

<div class="FTQUOTE"><begin quote> Make a connection with a recommended lactation consultant for you to call on once you are home from the hospital. While you are in the hospital they will provide you with one but you might need help or advice around day 3-12. The first month is the most difficult and then it's sooo easy. I think we'll all attest to that.
</end quote>

What Lauren said above <img src="">

As for books, get books on breastfeeding and childbirth. For childbirth preparation read "The Thinking Woman's Guide to a Better Birth" by Henci Goer. And for baby I recommend anything by Dr. Sears - specifically "The Baby Book" But he also has books on sleep, breasfeeding, pregnancy and childbirth among others. Dr. Jay Gordon has a good book on babies' sleep as well. Incidentally, when DH was a baby he was seen by Dr. Gordon a few times (he also writes for Fit Pregnancy magazine I think - or another baby mag) because he was studying under Dr. Paul Fleiss, DH's primary pediatrician, at the time (also has written books and occasional articles for Mothering Magazine and is the papa of the famous Heidi Fleiss). MIL loved that practice - never pressured her to do anything that she didn't want to with DH.
 
W

wanderlost

New member
LouLou! I love your lactivism!! <img src="i/expressions/heart.gif" border="0">

I had no prenatal testing done with either of my children. With my son, it was a surprize pregnancy and I knew that I wasn't going to not have him should any tests come back unfavorably, so I figured, why bother? He was sweat tested for CF after birth. At 8 I feel positive , despite not having any genetic testing, that he doesn't have CF. With our daughter, I wish that I would have had my husband genetically tested prior to her conception, which I am a little ashamed to say we didn't do - and now, especially after Lauren's experience, I see how you just can't be too sure - but we didn't, and as of yet she shows no symptoms of CF. I think at some point I will have her tested, but I am not ready to do that yet. with both children I did have ultra sounds and made sure that my tech looked for echogenic bowel - as that can be a sign of CF. Neither did, obviously.

I do think you need to ask yourself, is this invasive procedure what you need to have peace of mind, and what will you do if the results are not what you hope for?
 
W

wanderlost

New member
LouLou! I love your lactivism!! <img src="i/expressions/heart.gif" border="0">

I had no prenatal testing done with either of my children. With my son, it was a surprize pregnancy and I knew that I wasn't going to not have him should any tests come back unfavorably, so I figured, why bother? He was sweat tested for CF after birth. At 8 I feel positive , despite not having any genetic testing, that he doesn't have CF. With our daughter, I wish that I would have had my husband genetically tested prior to her conception, which I am a little ashamed to say we didn't do - and now, especially after Lauren's experience, I see how you just can't be too sure - but we didn't, and as of yet she shows no symptoms of CF. I think at some point I will have her tested, but I am not ready to do that yet. with both children I did have ultra sounds and made sure that my tech looked for echogenic bowel - as that can be a sign of CF. Neither did, obviously.

I do think you need to ask yourself, is this invasive procedure what you need to have peace of mind, and what will you do if the results are not what you hope for?
 
W

wanderlost

New member
LouLou! I love your lactivism!! <img src="i/expressions/heart.gif" border="0">

I had no prenatal testing done with either of my children. With my son, it was a surprize pregnancy and I knew that I wasn't going to not have him should any tests come back unfavorably, so I figured, why bother? He was sweat tested for CF after birth. At 8 I feel positive , despite not having any genetic testing, that he doesn't have CF. With our daughter, I wish that I would have had my husband genetically tested prior to her conception, which I am a little ashamed to say we didn't do - and now, especially after Lauren's experience, I see how you just can't be too sure - but we didn't, and as of yet she shows no symptoms of CF. I think at some point I will have her tested, but I am not ready to do that yet. with both children I did have ultra sounds and made sure that my tech looked for echogenic bowel - as that can be a sign of CF. Neither did, obviously.

I do think you need to ask yourself, is this invasive procedure what you need to have peace of mind, and what will you do if the results are not what you hope for?
 
W

wanderlost

New member
LouLou! I love your lactivism!! <img src="i/expressions/heart.gif" border="0">

I had no prenatal testing done with either of my children. With my son, it was a surprize pregnancy and I knew that I wasn't going to not have him should any tests come back unfavorably, so I figured, why bother? He was sweat tested for CF after birth. At 8 I feel positive , despite not having any genetic testing, that he doesn't have CF. With our daughter, I wish that I would have had my husband genetically tested prior to her conception, which I am a little ashamed to say we didn't do - and now, especially after Lauren's experience, I see how you just can't be too sure - but we didn't, and as of yet she shows no symptoms of CF. I think at some point I will have her tested, but I am not ready to do that yet. with both children I did have ultra sounds and made sure that my tech looked for echogenic bowel - as that can be a sign of CF. Neither did, obviously.

I do think you need to ask yourself, is this invasive procedure what you need to have peace of mind, and what will you do if the results are not what you hope for?
 
W

wanderlost

New member
LouLou! I love your lactivism!! <img src="i/expressions/heart.gif" border="0">

I had no prenatal testing done with either of my children. With my son, it was a surprize pregnancy and I knew that I wasn't going to not have him should any tests come back unfavorably, so I figured, why bother? He was sweat tested for CF after birth. At 8 I feel positive , despite not having any genetic testing, that he doesn't have CF. With our daughter, I wish that I would have had my husband genetically tested prior to her conception, which I am a little ashamed to say we didn't do - and now, especially after Lauren's experience, I see how you just can't be too sure - but we didn't, and as of yet she shows no symptoms of CF. I think at some point I will have her tested, but I am not ready to do that yet. with both children I did have ultra sounds and made sure that my tech looked for echogenic bowel - as that can be a sign of CF. Neither did, obviously.

I do think you need to ask yourself, is this invasive procedure what you need to have peace of mind, and what will you do if the results are not what you hope for?
 
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