Disability Help?

[froggymama]

I could really use some help!

My daughter Addie (just turned three) has CF and Epilepsy. We filed for disability (supplemental income security) last year and were denied. I appealed and they gave us a hearing, which was this morning. My friend who is a lawyer came with and asked for a postponement, because I didn't have enough time to get all her documentation.

So we have two weeks to hire an attorney, get all paperwork, etc.

My question is this: If you've been through this process, do you have any advice about how to increase our approval for supplemental income. Is there a magic word the judge needs to hear? Our social worker said that kids with CF have a better chance of receiving disability if they have a g-tube. My daughter does not. She's just
around the 25th percentile for weight and height.

Is there a specific topic we should focus on, something that causes the judge to pause before rubber stamping us denied? I would so appreciate any and all help!

And if you have an attorney you worked with in the Los Angeles area who was successful with your appeal, please send that info along too.

Thanks in advance. Elise

 

[froggymama]

I could really use some help!

My daughter Addie (just turned three) has CF and Epilepsy. We filed for disability (supplemental income security) last year and were denied. I appealed and they gave us a hearing, which was this morning. My friend who is a lawyer came with and asked for a postponement, because I didn't have enough time to get all her documentation.

So we have two weeks to hire an attorney, get all paperwork, etc.

My question is this: If you've been through this process, do you have any advice about how to increase our approval for supplemental income. Is there a magic word the judge needs to hear? Our social worker said that kids with CF have a better chance of receiving disability if they have a g-tube. My daughter does not. She's just
around the 25th percentile for weight and height.

Is there a specific topic we should focus on, something that causes the judge to pause before rubber stamping us denied? I would so appreciate any and all help!

And if you have an attorney you worked with in the Los Angeles area who was successful with your appeal, please send that info along too.

Thanks in advance. Elise

 

[froggymama]

I could really use some help!

My daughter Addie (just turned three) has CF and Epilepsy. We filed for disability (supplemental income security) last year and were denied. I appealed and they gave us a hearing, which was this morning. My friend who is a lawyer came with and asked for a postponement, because I didn't have enough time to get all her documentation.

So we have two weeks to hire an attorney, get all paperwork, etc.

My question is this: If you've been through this process, do you have any advice about how to increase our approval for supplemental income. Is there a magic word the judge needs to hear? Our social worker said that kids with CF have a better chance of receiving disability if they have a g-tube. My daughter does not. She's just
around the 25th percentile for weight and height.

Is there a specific topic we should focus on, something that causes the judge to pause before rubber stamping us denied? I would so appreciate any and all help!

And if you have an attorney you worked with in the Los Angeles area who was successful with your appeal, please send that info along too.

Thanks in advance. Elise

 

[froggymama]

I could really use some help!

My daughter Addie (just turned three) has CF and Epilepsy. We filed for disability (supplemental income security) last year and were denied. I appealed and they gave us a hearing, which was this morning. My friend who is a lawyer came with and asked for a postponement, because I didn't have enough time to get all her documentation.

So we have two weeks to hire an attorney, get all paperwork, etc.

My question is this: If you've been through this process, do you have any advice about how to increase our approval for supplemental income. Is there a magic word the judge needs to hear? Our social worker said that kids with CF have a better chance of receiving disability if they have a g-tube. My daughter does not. She's just
around the 25th percentile for weight and height.

Is there a specific topic we should focus on, something that causes the judge to pause before rubber stamping us denied? I would so appreciate any and all help!

And if you have an attorney you worked with in the Los Angeles area who was successful with your appeal, please send that info along too.

Thanks in advance. Elise

 

[froggymama]

I could really use some help!
<br />
<br />My daughter Addie (just turned three) has CF and Epilepsy. We filed for disability (supplemental income security) last year and were denied. I appealed and they gave us a hearing, which was this morning. My friend who is a lawyer came with and asked for a postponement, because I didn't have enough time to get all her documentation.
<br />
<br />So we have two weeks to hire an attorney, get all paperwork, etc.
<br />
<br />My question is this: If you've been through this process, do you have any advice about how to increase our approval for supplemental income. Is there a magic word the judge needs to hear? Our social worker said that kids with CF have a better chance of receiving disability if they have a g-tube. My daughter does not. She's just
<br />around the 25th percentile for weight and height.
<br />
<br />Is there a specific topic we should focus on, something that causes the judge to pause before rubber stamping us denied? I would so appreciate any and all help!
<br />
<br />And if you have an attorney you worked with in the Los Angeles area who was successful with your appeal, please send that info along too.
<br />
<br />Thanks in advance. Elise
<br />

 

[JazzysMom]

Having CF & Epilepsy alone doesnt qualify you for disability. I have Epilepsy also & none of my disability is based on it. Its all based on my CF.

Here are the SS Guideslines pertaining to CF & requirements for approval. I dont know of THAT many kids that get approved. The ones that are are quiet sick.

Julie on this site is a big help. She has started a non profit org to assist other CF Families with Disability & if in doubt you can seek assistance from Beth Sufian. Beth is a lawyer with CF who advocates for CFers.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3.04%20Cystic%20fibrosis
">http://www.ssa.gov/disability/...4%20Cystic%20fibrosis
</a>

 

[JazzysMom]

Having CF & Epilepsy alone doesnt qualify you for disability. I have Epilepsy also & none of my disability is based on it. Its all based on my CF.

Here are the SS Guideslines pertaining to CF & requirements for approval. I dont know of THAT many kids that get approved. The ones that are are quiet sick.

Julie on this site is a big help. She has started a non profit org to assist other CF Families with Disability & if in doubt you can seek assistance from Beth Sufian. Beth is a lawyer with CF who advocates for CFers.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3.04%20Cystic%20fibrosis
">http://www.ssa.gov/disability/...4%20Cystic%20fibrosis
</a>

 

[JazzysMom]

Having CF & Epilepsy alone doesnt qualify you for disability. I have Epilepsy also & none of my disability is based on it. Its all based on my CF.

Here are the SS Guideslines pertaining to CF & requirements for approval. I dont know of THAT many kids that get approved. The ones that are are quiet sick.

Julie on this site is a big help. She has started a non profit org to assist other CF Families with Disability & if in doubt you can seek assistance from Beth Sufian. Beth is a lawyer with CF who advocates for CFers.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3.04%20Cystic%20fibrosis
">http://www.ssa.gov/disability/...4%20Cystic%20fibrosis
</a>

 

[JazzysMom]

Having CF & Epilepsy alone doesnt qualify you for disability. I have Epilepsy also & none of my disability is based on it. Its all based on my CF.

Here are the SS Guideslines pertaining to CF & requirements for approval. I dont know of THAT many kids that get approved. The ones that are are quiet sick.

Julie on this site is a big help. She has started a non profit org to assist other CF Families with Disability & if in doubt you can seek assistance from Beth Sufian. Beth is a lawyer with CF who advocates for CFers.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3.04%20Cystic%20fibrosis
">http://www.ssa.gov/disability/...4%20Cystic%20fibrosis
</a>

 

[JazzysMom]

Having CF & Epilepsy alone doesnt qualify you for disability. I have Epilepsy also & none of my disability is based on it. Its all based on my CF.
<br />
<br />Here are the SS Guideslines pertaining to CF & requirements for approval. I dont know of THAT many kids that get approved. The ones that are are quiet sick.
<br />
<br />Julie on this site is a big help. She has started a non profit org to assist other CF Families with Disability & if in doubt you can seek assistance from Beth Sufian. Beth is a lawyer with CF who advocates for CFers.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3.04%20Cystic%20fibrosis
">http://www.ssa.gov/disability/...4%20Cystic%20fibrosis
</a><br />
<br />
<br />

 

[LouLou]

Call beth and get advice for free. She is the most experienced lawyer in the world for cf disability. SHe has a grant from pharma. co to give us free advice. Here is the information.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CFLegalHotline/">http://www.cff.org/LivingWithCF/CFLegalHotline/</a>

 

[LouLou]

Call beth and get advice for free. She is the most experienced lawyer in the world for cf disability. SHe has a grant from pharma. co to give us free advice. Here is the information.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CFLegalHotline/">http://www.cff.org/LivingWithCF/CFLegalHotline/</a>

 

[LouLou]

Call beth and get advice for free. She is the most experienced lawyer in the world for cf disability. SHe has a grant from pharma. co to give us free advice. Here is the information.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CFLegalHotline/">http://www.cff.org/LivingWithCF/CFLegalHotline/</a>

 

[LouLou]

Call beth and get advice for free. She is the most experienced lawyer in the world for cf disability. SHe has a grant from pharma. co to give us free advice. Here is the information.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CFLegalHotline/">http://www.cff.org/LivingWithCF/CFLegalHotline/</a>

 

[LouLou]

Call beth and get advice for free. She is the most experienced lawyer in the world for cf disability. SHe has a grant from pharma. co to give us free advice. Here is the information.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CFLegalHotline/">http://www.cff.org/LivingWithCF/CFLegalHotline/</a>

 

[julie]

Your child needs to meet, or have a combination of issues bad enough to "equal" at least one of the CF impairment listings. You can find that info here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm">http://www.ssa.gov/disability/.../ChildhoodListings.htm</a> Look under Respiratory which is 103.00, CF is 103.04

I'm not sure what epilepsy would fall under, but I can research it a little and get back to you.

I'm happy to help. I agree, Beth is a wonderful woman and she does give some free disability advice. However, if you end up hiring her, you will have to pay her 25% of your backpay, and I'm free.

I'm happy to guide you in the right direction and give you some info that will help you present your case to a judge.

Did they give you a reason for denial? Was it financial or medical?

I'm happy to chat about this on the phone too, give me a call at 425-280-7310 or PM me your # and I will call you.

 

[julie]

Your child needs to meet, or have a combination of issues bad enough to "equal" at least one of the CF impairment listings. You can find that info here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm">http://www.ssa.gov/disability/.../ChildhoodListings.htm</a> Look under Respiratory which is 103.00, CF is 103.04

I'm not sure what epilepsy would fall under, but I can research it a little and get back to you.

I'm happy to help. I agree, Beth is a wonderful woman and she does give some free disability advice. However, if you end up hiring her, you will have to pay her 25% of your backpay, and I'm free.

I'm happy to guide you in the right direction and give you some info that will help you present your case to a judge.

Did they give you a reason for denial? Was it financial or medical?

I'm happy to chat about this on the phone too, give me a call at 425-280-7310 or PM me your # and I will call you.

 

[julie]

Your child needs to meet, or have a combination of issues bad enough to "equal" at least one of the CF impairment listings. You can find that info here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm">http://www.ssa.gov/disability/.../ChildhoodListings.htm</a> Look under Respiratory which is 103.00, CF is 103.04

I'm not sure what epilepsy would fall under, but I can research it a little and get back to you.

I'm happy to help. I agree, Beth is a wonderful woman and she does give some free disability advice. However, if you end up hiring her, you will have to pay her 25% of your backpay, and I'm free.

I'm happy to guide you in the right direction and give you some info that will help you present your case to a judge.

Did they give you a reason for denial? Was it financial or medical?

I'm happy to chat about this on the phone too, give me a call at 425-280-7310 or PM me your # and I will call you.

 

[julie]

Your child needs to meet, or have a combination of issues bad enough to "equal" at least one of the CF impairment listings. You can find that info here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm">http://www.ssa.gov/disability/.../ChildhoodListings.htm</a> Look under Respiratory which is 103.00, CF is 103.04

I'm not sure what epilepsy would fall under, but I can research it a little and get back to you.

I'm happy to help. I agree, Beth is a wonderful woman and she does give some free disability advice. However, if you end up hiring her, you will have to pay her 25% of your backpay, and I'm free.

I'm happy to guide you in the right direction and give you some info that will help you present your case to a judge.

Did they give you a reason for denial? Was it financial or medical?

I'm happy to chat about this on the phone too, give me a call at 425-280-7310 or PM me your # and I will call you.

 

[julie]

Your child needs to meet, or have a combination of issues bad enough to "equal" at least one of the CF impairment listings. You can find that info here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm">http://www.ssa.gov/disability/.../ChildhoodListings.htm</a> Look under Respiratory which is 103.00, CF is 103.04
<br />
<br />I'm not sure what epilepsy would fall under, but I can research it a little and get back to you.
<br />
<br />I'm happy to help. I agree, Beth is a wonderful woman and she does give some free disability advice. However, if you end up hiring her, you will have to pay her 25% of your backpay, and I'm free.
<br />
<br />I'm happy to guide you in the right direction and give you some info that will help you present your case to a judge.
<br />
<br />Did they give you a reason for denial? Was it financial or medical?
<br />
<br />I'm happy to chat about this on the phone too, give me a call at 425-280-7310 or PM me your # and I will call you.