Incomudrox
New member
However it is difficult in the winter, but even when I was in the 50-60% FEV1 I got, a response of year right, you aren't on oxygen suck it up and walk. I do agree with this however because then I was just trying to get one because. Now I actually need it. I'd say in the 70% that yeah it sucks but it's not that bad.
I'd kill to have 70 back i'd walk the length of 10 parking lots everyday just to have 70. I have been there coughing until you puke from the cold, done it many times actually even when I was in the 80s. Trust me when I say I'm not trying to be mean but I (NOW not at the time) see why the doctor said "no way man".
After a while what I did was just found ways to cope with the cold, I learned to manage it actually. Before I quit working I worked for Sears Autocenter in Pittsbugh, where in the winter in Pittsburgh it's very cold in the winter starting in about October. I'd have to get up early drive to work in the cold (my car had no heat sometimes) 30min, once I remember looking at the temp gauge for outside temp it said -7* and I was driving to work with no heat. Once getting to work it was a constant inside to 75* and then back out into the cold to record mileage, license plate numbers, VIN numbers, and tire wear off of every customers car. I did this in and out every 5min for 8-15 hour shifts some days. I remember black Fridays and around Christmas walking out to cars in 2ft of snow feet freezing. I somehow adapted to it. I think most people with CF would agree that its more problem-some going from Cold and dry to a warm and humid or warm and dry climate constantly. Learning breathe control was a huge part of it, and controlling my reaction for me it was mind over matter to control the cough. I did this for two years below 50% FEV1. I won't lie yeah there were days where I had issues more than others but I only recently got my parking pass in the last 2 months.
Whatever you choose to do is your choice no doubt, I hope that whatever way you go it is successful for you be it learning control skills or finding a doctor that will see your way. I hope I don't come across as a jerk. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I'd kill to have 70 back i'd walk the length of 10 parking lots everyday just to have 70. I have been there coughing until you puke from the cold, done it many times actually even when I was in the 80s. Trust me when I say I'm not trying to be mean but I (NOW not at the time) see why the doctor said "no way man".
After a while what I did was just found ways to cope with the cold, I learned to manage it actually. Before I quit working I worked for Sears Autocenter in Pittsbugh, where in the winter in Pittsburgh it's very cold in the winter starting in about October. I'd have to get up early drive to work in the cold (my car had no heat sometimes) 30min, once I remember looking at the temp gauge for outside temp it said -7* and I was driving to work with no heat. Once getting to work it was a constant inside to 75* and then back out into the cold to record mileage, license plate numbers, VIN numbers, and tire wear off of every customers car. I did this in and out every 5min for 8-15 hour shifts some days. I remember black Fridays and around Christmas walking out to cars in 2ft of snow feet freezing. I somehow adapted to it. I think most people with CF would agree that its more problem-some going from Cold and dry to a warm and humid or warm and dry climate constantly. Learning breathe control was a huge part of it, and controlling my reaction for me it was mind over matter to control the cough. I did this for two years below 50% FEV1. I won't lie yeah there were days where I had issues more than others but I only recently got my parking pass in the last 2 months.
Whatever you choose to do is your choice no doubt, I hope that whatever way you go it is successful for you be it learning control skills or finding a doctor that will see your way. I hope I don't come across as a jerk. <img src="i/expressions/face-icon-small-smile.gif" border="0">