Do you go into the hospital 3-4 times a year even if your feeling well?

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thelizardqueen

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

wow Liz all of your pictures are so pretty!!!! Is it a Canadian thing? You and Kiel and very beautiful people!!!!!!!!</end quote></div>


<img src="i/expressions/face-icon-small-wink.gif" border="0">It's the water.
 
T

thelizardqueen

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

wow Liz all of your pictures are so pretty!!!! Is it a Canadian thing? You and Kiel and very beautiful people!!!!!!!!</end quote></div>


<img src="i/expressions/face-icon-small-wink.gif" border="0">It's the water.
 
A

Allisa35

Member
I haven't been in the hospital for probably close to 18 years. I have never had home IV therapy either. But I also have this thing about needles, so I don't think I would do it even if the doctor wanted me to. My last FEV1 was 1.56, the one before that was 1.36 (49%), and the one before that was 1.69 (60%). They tend to flucuate. I do my treatments everyday (2 albuterol and 1 pulmozyme). I don't know if that has helped me or not. I know I have read of some people on here who don't do their treatments regularly so maybe that has some effect on their health.

I think it's probably just a personal choice. I choose not do it, but it is more out of my fear of needles. If I didn't have this problem, I might be more inclined to do so.
 
A

Allisa35

Member
I haven't been in the hospital for probably close to 18 years. I have never had home IV therapy either. But I also have this thing about needles, so I don't think I would do it even if the doctor wanted me to. My last FEV1 was 1.56, the one before that was 1.36 (49%), and the one before that was 1.69 (60%). They tend to flucuate. I do my treatments everyday (2 albuterol and 1 pulmozyme). I don't know if that has helped me or not. I know I have read of some people on here who don't do their treatments regularly so maybe that has some effect on their health.

I think it's probably just a personal choice. I choose not do it, but it is more out of my fear of needles. If I didn't have this problem, I might be more inclined to do so.
 
A

Allisa35

Member
I haven't been in the hospital for probably close to 18 years. I have never had home IV therapy either. But I also have this thing about needles, so I don't think I would do it even if the doctor wanted me to. My last FEV1 was 1.56, the one before that was 1.36 (49%), and the one before that was 1.69 (60%). They tend to flucuate. I do my treatments everyday (2 albuterol and 1 pulmozyme). I don't know if that has helped me or not. I know I have read of some people on here who don't do their treatments regularly so maybe that has some effect on their health.

I think it's probably just a personal choice. I choose not do it, but it is more out of my fear of needles. If I didn't have this problem, I might be more inclined to do so.
 
L

littledebbie

New member
I'm just chiming in to say no.  i don't do just regularly
scheduled tune ups and never have. It's either when my PFT's are
down or I'm feeling like crap.
 
L

littledebbie

New member
I'm just chiming in to say no.  i don't do just regularly
scheduled tune ups and never have. It's either when my PFT's are
down or I'm feeling like crap.
 
L

littledebbie

New member
I'm just chiming in to say no.  i don't do just regularly
scheduled tune ups and never have. It's either when my PFT's are
down or I'm feeling like crap.
 
A

anonymous

New member
I visit the doctor every month and go on IV's (for 3 weeks) every 3 months, rain or shine. Honestly, I'm usually ready to go on IVs when it's time. It's not that I'm ever really sick, but I can tell I will be if I wait too much longer.

I've only been seeing this doctor for 2 years, but I've felt much better since I started seeing him. My PFTs are up 10 points, and I've gained 10-15 pounds. I got a port about a year ago and that has made IVs much easier. Also, I do home IVs. I haven't been hospitalized in a few years.

The port and home IVs make all the difference in the world. I can go to work no problem, and I can even play softball and volleyball if I disconnect for a while. Other than the annoyance of changing the IV every few hours, it's really no big deal.

--Darby 35 M w/ CF
 
A

anonymous

New member
I visit the doctor every month and go on IV's (for 3 weeks) every 3 months, rain or shine. Honestly, I'm usually ready to go on IVs when it's time. It's not that I'm ever really sick, but I can tell I will be if I wait too much longer.

I've only been seeing this doctor for 2 years, but I've felt much better since I started seeing him. My PFTs are up 10 points, and I've gained 10-15 pounds. I got a port about a year ago and that has made IVs much easier. Also, I do home IVs. I haven't been hospitalized in a few years.

The port and home IVs make all the difference in the world. I can go to work no problem, and I can even play softball and volleyball if I disconnect for a while. Other than the annoyance of changing the IV every few hours, it's really no big deal.

--Darby 35 M w/ CF
 
A

anonymous

New member
I visit the doctor every month and go on IV's (for 3 weeks) every 3 months, rain or shine. Honestly, I'm usually ready to go on IVs when it's time. It's not that I'm ever really sick, but I can tell I will be if I wait too much longer.

I've only been seeing this doctor for 2 years, but I've felt much better since I started seeing him. My PFTs are up 10 points, and I've gained 10-15 pounds. I got a port about a year ago and that has made IVs much easier. Also, I do home IVs. I haven't been hospitalized in a few years.

The port and home IVs make all the difference in the world. I can go to work no problem, and I can even play softball and volleyball if I disconnect for a while. Other than the annoyance of changing the IV every few hours, it's really no big deal.

--Darby 35 M w/ CF
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

How do you handle the IVs at work?</end quote></div>

The pharmacy gives me a portable pump that I put in a bag/sling thing that my wife made for me. I sometimes get a little self-conscious about it, but I'm pretty much over it. It's funny, no one ever asks me about it unless I say something first. They just kinda eye it and I can tell they are curious but too polite to say anything.

I take the day's worth of meds in a cooler bag. I'm usually on two meds at a time that run for 3 hours each, so I just change the meds out every 3 hours or so at my desk and get back to work. I have to get up a about half an hour earlier than usual because of the added time to cover the port for my shower, and the time to assemble the day's meds, batteries, flushes, alcohol prep pads, etc, but I'm in a pretty good routine by now. I'm usually more tired than normal since I have to wake up in the middle of the night to change my meds, but I figure it's much better than being in the health club (hospital).

I can find out what kind of port the pharmacy gives us if you would like to know.
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

How do you handle the IVs at work?</end quote></div>

The pharmacy gives me a portable pump that I put in a bag/sling thing that my wife made for me. I sometimes get a little self-conscious about it, but I'm pretty much over it. It's funny, no one ever asks me about it unless I say something first. They just kinda eye it and I can tell they are curious but too polite to say anything.

I take the day's worth of meds in a cooler bag. I'm usually on two meds at a time that run for 3 hours each, so I just change the meds out every 3 hours or so at my desk and get back to work. I have to get up a about half an hour earlier than usual because of the added time to cover the port for my shower, and the time to assemble the day's meds, batteries, flushes, alcohol prep pads, etc, but I'm in a pretty good routine by now. I'm usually more tired than normal since I have to wake up in the middle of the night to change my meds, but I figure it's much better than being in the health club (hospital).

I can find out what kind of port the pharmacy gives us if you would like to know.
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

How do you handle the IVs at work?</end quote></div>

The pharmacy gives me a portable pump that I put in a bag/sling thing that my wife made for me. I sometimes get a little self-conscious about it, but I'm pretty much over it. It's funny, no one ever asks me about it unless I say something first. They just kinda eye it and I can tell they are curious but too polite to say anything.

I take the day's worth of meds in a cooler bag. I'm usually on two meds at a time that run for 3 hours each, so I just change the meds out every 3 hours or so at my desk and get back to work. I have to get up a about half an hour earlier than usual because of the added time to cover the port for my shower, and the time to assemble the day's meds, batteries, flushes, alcohol prep pads, etc, but I'm in a pretty good routine by now. I'm usually more tired than normal since I have to wake up in the middle of the night to change my meds, but I figure it's much better than being in the health club (hospital).

I can find out what kind of port the pharmacy gives us if you would like to know.
 
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