do you travel far

[Jeana]

Us CFers in Alaska only have one clinic to choose--in Anchorage. Right now it is a 3 hour drive for me, but I have lived elsewhere in Alaska where it was a 3 hour flight for me (part of the reason I moved). Luckily, I really like my CF doc, except that he won't prescribe me an E-Flow, since it's not FDA approved. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, if it is a prescription refill, I just call it in. If I need an antibiotic, I go in to see my doctor. I've learned I get the best care that way. If it is for something outside of CF, I do have a hospital I can go to.

 

[Jeana]

Us CFers in Alaska only have one clinic to choose--in Anchorage. Right now it is a 3 hour drive for me, but I have lived elsewhere in Alaska where it was a 3 hour flight for me (part of the reason I moved). Luckily, I really like my CF doc, except that he won't prescribe me an E-Flow, since it's not FDA approved. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, if it is a prescription refill, I just call it in. If I need an antibiotic, I go in to see my doctor. I've learned I get the best care that way. If it is for something outside of CF, I do have a hospital I can go to.

 

[Jeana]

Us CFers in Alaska only have one clinic to choose--in Anchorage. Right now it is a 3 hour drive for me, but I have lived elsewhere in Alaska where it was a 3 hour flight for me (part of the reason I moved). Luckily, I really like my CF doc, except that he won't prescribe me an E-Flow, since it's not FDA approved. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, if it is a prescription refill, I just call it in. If I need an antibiotic, I go in to see my doctor. I've learned I get the best care that way. If it is for something outside of CF, I do have a hospital I can go to.

 

[Jeana]

Us CFers in Alaska only have one clinic to choose--in Anchorage. Right now it is a 3 hour drive for me, but I have lived elsewhere in Alaska where it was a 3 hour flight for me (part of the reason I moved). Luckily, I really like my CF doc, except that he won't prescribe me an E-Flow, since it's not FDA approved. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, if it is a prescription refill, I just call it in. If I need an antibiotic, I go in to see my doctor. I've learned I get the best care that way. If it is for something outside of CF, I do have a hospital I can go to.

 

[Jeana]

Us CFers in Alaska only have one clinic to choose--in Anchorage. Right now it is a 3 hour drive for me, but I have lived elsewhere in Alaska where it was a 3 hour flight for me (part of the reason I moved). Luckily, I really like my CF doc, except that he won't prescribe me an E-Flow, since it's not FDA approved. <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />Anyway, if it is a prescription refill, I just call it in. If I need an antibiotic, I go in to see my doctor. I've learned I get the best care that way. If it is for something outside of CF, I do have a hospital I can go to.
<br />
<br />

 

[Ratatosk]

We have a local cf accreditted clinic about 8 miles away, however, they're not very proactive and their lack of infection control was very disconcerting. Our primary CF doctor is about a 3 1/2 hour drive away. We usually plan a trip around a weekend and then shop, visit friends and relatives afterwards, though we have made the trip in a day a few times.

We usually call the doctor if a concern comes up and they get back to us asap. Unlike the local clinic, which never returns calls. When we all exposed to Influenza A last year, the clinic in the city called our local pharmacy and got ds a script for tamiflu within a few hours.

 

[Ratatosk]

We have a local cf accreditted clinic about 8 miles away, however, they're not very proactive and their lack of infection control was very disconcerting. Our primary CF doctor is about a 3 1/2 hour drive away. We usually plan a trip around a weekend and then shop, visit friends and relatives afterwards, though we have made the trip in a day a few times.

We usually call the doctor if a concern comes up and they get back to us asap. Unlike the local clinic, which never returns calls. When we all exposed to Influenza A last year, the clinic in the city called our local pharmacy and got ds a script for tamiflu within a few hours.

 

[Ratatosk]

We have a local cf accreditted clinic about 8 miles away, however, they're not very proactive and their lack of infection control was very disconcerting. Our primary CF doctor is about a 3 1/2 hour drive away. We usually plan a trip around a weekend and then shop, visit friends and relatives afterwards, though we have made the trip in a day a few times.

We usually call the doctor if a concern comes up and they get back to us asap. Unlike the local clinic, which never returns calls. When we all exposed to Influenza A last year, the clinic in the city called our local pharmacy and got ds a script for tamiflu within a few hours.

 

[Ratatosk]

We have a local cf accreditted clinic about 8 miles away, however, they're not very proactive and their lack of infection control was very disconcerting. Our primary CF doctor is about a 3 1/2 hour drive away. We usually plan a trip around a weekend and then shop, visit friends and relatives afterwards, though we have made the trip in a day a few times.

We usually call the doctor if a concern comes up and they get back to us asap. Unlike the local clinic, which never returns calls. When we all exposed to Influenza A last year, the clinic in the city called our local pharmacy and got ds a script for tamiflu within a few hours.

 

[Ratatosk]

We have a local cf accreditted clinic about 8 miles away, however, they're not very proactive and their lack of infection control was very disconcerting. Our primary CF doctor is about a 3 1/2 hour drive away. We usually plan a trip around a weekend and then shop, visit friends and relatives afterwards, though we have made the trip in a day a few times.
<br />
<br />We usually call the doctor if a concern comes up and they get back to us asap. Unlike the local clinic, which never returns calls. When we all exposed to Influenza A last year, the clinic in the city called our local pharmacy and got ds a script for tamiflu within a few hours.

 

[Buckeye]

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?I've been thinking of changing clinics for my son back to the one who diagnosed him that is 2 1/2 hours away (which I loved), but I can't put my head around what we would do when he gets admitted. I originally picked the clinic closest to us since I thought it would be necessary for all his doctors to be able to talk about his care since he has other problems in adddition to CF and all the other doctors are local. But it ends up that they really never talk to each other anyhow, so it's sort of a moot point now.

 

[Buckeye]

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?I've been thinking of changing clinics for my son back to the one who diagnosed him that is 2 1/2 hours away (which I loved), but I can't put my head around what we would do when he gets admitted. I originally picked the clinic closest to us since I thought it would be necessary for all his doctors to be able to talk about his care since he has other problems in adddition to CF and all the other doctors are local. But it ends up that they really never talk to each other anyhow, so it's sort of a moot point now.

 

[Buckeye]

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?I've been thinking of changing clinics for my son back to the one who diagnosed him that is 2 1/2 hours away (which I loved), but I can't put my head around what we would do when he gets admitted. I originally picked the clinic closest to us since I thought it would be necessary for all his doctors to be able to talk about his care since he has other problems in adddition to CF and all the other doctors are local. But it ends up that they really never talk to each other anyhow, so it's sort of a moot point now.

 

[Buckeye]

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?I've been thinking of changing clinics for my son back to the one who diagnosed him that is 2 1/2 hours away (which I loved), but I can't put my head around what we would do when he gets admitted. I originally picked the clinic closest to us since I thought it would be necessary for all his doctors to be able to talk about his care since he has other problems in adddition to CF and all the other doctors are local. But it ends up that they really never talk to each other anyhow, so it's sort of a moot point now.

 

[Buckeye]

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?<p>I've been thinking of changing clinics for my son back to the one who diagnosed him that is 2 1/2 hours away (which I loved), but I can't put my head around what we would do when he gets admitted. I originally picked the clinic closest to us since I thought it would be necessary for all his doctors to be able to talk about his care since he has other problems in adddition to CF and all the other doctors are local. But it ends up that they really never talk to each other anyhow, so it's sort of a moot point now.

 

[Skye]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?

</end quote></div>

This is my question for all of you who go out of town. I understand that many travel; but, my big question is how do you troubleshoot when things come up? I was OK with my local clinic before......they were new, small, pediatric only with only a ped. pulm.; but, the director had 30 plus years of experience and he was very motivating. Now this new guy is just that....brand new to medicine and just trying to figure out how to keep a caseload.

I am just wondering if a local pulmonologist and my GP could work with the big center. If I ever had to be admitted, I would not want to really be admitted in town. I don't know....I am just really confused and uncomfortable with this new set up and I don't EVER want to feel uncomfortable about my care.

I guess I feel like if I have 2 CF Centers involved that the closest one to me would call ALL the shots with my care; which I don't like with a NEW doc who probably has a LOT to learn still. Whereas if I had a local pulm then the big center would call ALL the shots and work closely with him. He would probably want to defer to their choices of meds and length of therapy....that kind of thing. A NEW doc who is the new director of the local CF center probably doesn't much like the idea of having to call another center and OK my care with them....though I really think he needs to being a ped. pulm and a new one at that.

I have already butted heads with him about use of steroids and length of IV time. 2 weeks and no roids was good with him. Not once did he ask me what I normally do or what works for me......just quoted me research. I guess he hasn't figured out yet that we are all different. I have never done 2 weeks and a steroid burst works wonders for me. I just don't want to fight my health and my doctor too. It is too hard.

 

[Skye]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?

</end quote></div>

This is my question for all of you who go out of town. I understand that many travel; but, my big question is how do you troubleshoot when things come up? I was OK with my local clinic before......they were new, small, pediatric only with only a ped. pulm.; but, the director had 30 plus years of experience and he was very motivating. Now this new guy is just that....brand new to medicine and just trying to figure out how to keep a caseload.

I am just wondering if a local pulmonologist and my GP could work with the big center. If I ever had to be admitted, I would not want to really be admitted in town. I don't know....I am just really confused and uncomfortable with this new set up and I don't EVER want to feel uncomfortable about my care.

I guess I feel like if I have 2 CF Centers involved that the closest one to me would call ALL the shots with my care; which I don't like with a NEW doc who probably has a LOT to learn still. Whereas if I had a local pulm then the big center would call ALL the shots and work closely with him. He would probably want to defer to their choices of meds and length of therapy....that kind of thing. A NEW doc who is the new director of the local CF center probably doesn't much like the idea of having to call another center and OK my care with them....though I really think he needs to being a ped. pulm and a new one at that.

I have already butted heads with him about use of steroids and length of IV time. 2 weeks and no roids was good with him. Not once did he ask me what I normally do or what works for me......just quoted me research. I guess he hasn't figured out yet that we are all different. I have never done 2 weeks and a steroid burst works wonders for me. I just don't want to fight my health and my doctor too. It is too hard.

 

[Skye]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?

</end quote></div>

This is my question for all of you who go out of town. I understand that many travel; but, my big question is how do you troubleshoot when things come up? I was OK with my local clinic before......they were new, small, pediatric only with only a ped. pulm.; but, the director had 30 plus years of experience and he was very motivating. Now this new guy is just that....brand new to medicine and just trying to figure out how to keep a caseload.

I am just wondering if a local pulmonologist and my GP could work with the big center. If I ever had to be admitted, I would not want to really be admitted in town. I don't know....I am just really confused and uncomfortable with this new set up and I don't EVER want to feel uncomfortable about my care.

I guess I feel like if I have 2 CF Centers involved that the closest one to me would call ALL the shots with my care; which I don't like with a NEW doc who probably has a LOT to learn still. Whereas if I had a local pulm then the big center would call ALL the shots and work closely with him. He would probably want to defer to their choices of meds and length of therapy....that kind of thing. A NEW doc who is the new director of the local CF center probably doesn't much like the idea of having to call another center and OK my care with them....though I really think he needs to being a ped. pulm and a new one at that.

I have already butted heads with him about use of steroids and length of IV time. 2 weeks and no roids was good with him. Not once did he ask me what I normally do or what works for me......just quoted me research. I guess he hasn't figured out yet that we are all different. I have never done 2 weeks and a steroid burst works wonders for me. I just don't want to fight my health and my doctor too. It is too hard.

 

[Skye]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>

Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?

</end quote>

This is my question for all of you who go out of town. I understand that many travel; but, my big question is how do you troubleshoot when things come up? I was OK with my local clinic before......they were new, small, pediatric only with only a ped. pulm.; but, the director had 30 plus years of experience and he was very motivating. Now this new guy is just that....brand new to medicine and just trying to figure out how to keep a caseload.

I am just wondering if a local pulmonologist and my GP could work with the big center. If I ever had to be admitted, I would not want to really be admitted in town. I don't know....I am just really confused and uncomfortable with this new set up and I don't EVER want to feel uncomfortable about my care.

I guess I feel like if I have 2 CF Centers involved that the closest one to me would call ALL the shots with my care; which I don't like with a NEW doc who probably has a LOT to learn still. Whereas if I had a local pulm then the big center would call ALL the shots and work closely with him. He would probably want to defer to their choices of meds and length of therapy....that kind of thing. A NEW doc who is the new director of the local CF center probably doesn't much like the idea of having to call another center and OK my care with them....though I really think he needs to being a ped. pulm and a new one at that.

I have already butted heads with him about use of steroids and length of IV time. 2 weeks and no roids was good with him. Not once did he ask me what I normally do or what works for me......just quoted me research. I guess he hasn't figured out yet that we are all different. I have never done 2 weeks and a steroid burst works wonders for me. I just don't want to fight my health and my doctor too. It is too hard.

 

[Skye]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Buckeye</b></i>
<br />
<br />Liza, so what do you do when your son is in the hospital - does he get admitted at the local hospital or the out of town hospital? And if it's the local hospital then who's the doctor in charge - the local clinic or the out of town clinic?
<br />
<br /></end quote>
<br />
<br />This is my question for all of you who go out of town. I understand that many travel; but, my big question is how do you troubleshoot when things come up? I was OK with my local clinic before......they were new, small, pediatric only with only a ped. pulm.; but, the director had 30 plus years of experience and he was very motivating. Now this new guy is just that....brand new to medicine and just trying to figure out how to keep a caseload.
<br />
<br />I am just wondering if a local pulmonologist and my GP could work with the big center. If I ever had to be admitted, I would not want to really be admitted in town. I don't know....I am just really confused and uncomfortable with this new set up and I don't EVER want to feel uncomfortable about my care.
<br />
<br />I guess I feel like if I have 2 CF Centers involved that the closest one to me would call ALL the shots with my care; which I don't like with a NEW doc who probably has a LOT to learn still. Whereas if I had a local pulm then the big center would call ALL the shots and work closely with him. He would probably want to defer to their choices of meds and length of therapy....that kind of thing. A NEW doc who is the new director of the local CF center probably doesn't much like the idea of having to call another center and OK my care with them....though I really think he needs to being a ped. pulm and a new one at that.
<br />
<br />I have already butted heads with him about use of steroids and length of IV time. 2 weeks and no roids was good with him. Not once did he ask me what I normally do or what works for me......just quoted me research. I guess he hasn't figured out yet that we are all different. I have never done 2 weeks and a steroid burst works wonders for me. I just don't want to fight my health and my doctor too. It is too hard.