Does anyone else freak out when things get tough

[redheadedmommy]

for me it is a vicious cycle. when i am sick or i am getting sick it just seems like things are constantly getting worse. My boyfriend calls me hormonal or a grouch butt and that just seems to make things worse. but he is there when things get rough weather I want him there or not.

 

[redheadedmommy]

for me it is a vicious cycle. when i am sick or i am getting sick it just seems like things are constantly getting worse. My boyfriend calls me hormonal or a grouch butt and that just seems to make things worse. but he is there when things get rough weather I want him there or not.

 

[MusicalCFGirl]

Yes, yes, yes!
Just recently I moved 6 hrs from home to live with a friend to go to university and Ive been doing EVERYTHING right and more and biking to skool all the time (50 minutes) and feeling so great!....until I had my pfts tested at the clinic here and they dropped 13%. I was soooo frusturated and still am, so much that i stopped exercising because i thought whats the point? We are trying to figure out why this is because my pfts are still stabilizing at that 13% drop. Im worried if its the apartment im living in or worse...the city because its at the coast near the ocean, and although theres lots of salty air, mildew and fungus grows readily here. If thats the case I'll have to do this entire year of skool again and move which I DONT want to do because I love this place.
Its completely frusturating when u are doinf everything rite and committing all this time (over 3 hrs for me) to cf treatment and yet things are getting worse. It completely scares me.

Sincerely,
Scared and Frusturated

 

[MusicalCFGirl]

Yes, yes, yes!
Just recently I moved 6 hrs from home to live with a friend to go to university and Ive been doing EVERYTHING right and more and biking to skool all the time (50 minutes) and feeling so great!....until I had my pfts tested at the clinic here and they dropped 13%. I was soooo frusturated and still am, so much that i stopped exercising because i thought whats the point? We are trying to figure out why this is because my pfts are still stabilizing at that 13% drop. Im worried if its the apartment im living in or worse...the city because its at the coast near the ocean, and although theres lots of salty air, mildew and fungus grows readily here. If thats the case I'll have to do this entire year of skool again and move which I DONT want to do because I love this place.
Its completely frusturating when u are doinf everything rite and committing all this time (over 3 hrs for me) to cf treatment and yet things are getting worse. It completely scares me.

Sincerely,
Scared and Frusturated

 

[redheadedmommy]

Im with ya!! i took up running for my lungs, I was getting over being sick but i wasn't that sick ( or so I thought) my pfts went from 109 down to 86. im up to 4 treatments a day and as much clearance I can stand<img src="i/expressions/face-icon-small-sad.gif" border="0"> ..... this scares me and gets me to thinking...... <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[redheadedmommy]

Im with ya!! i took up running for my lungs, I was getting over being sick but i wasn't that sick ( or so I thought) my pfts went from 109 down to 86. im up to 4 treatments a day and as much clearance I can stand<img src="i/expressions/face-icon-small-sad.gif" border="0"> ..... this scares me and gets me to thinking...... <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[live2breath]

I know it seems like as hard as we try things never get easy even for a day and just when things get a little easier its like we have to start all over

 

[live2breath]

I know it seems like as hard as we try things never get easy even for a day and just when things get a little easier its like we have to start all over

 

[MusicalCFGirl]

WOW redheadedmommy, 4 treatments! Good for u, and I hope that works!
And yes it totally sucks having absolute no control over your health. In my teens I was totally able to be like, "Screw you CF!" and not look after myself as well, but still be able to bounce back! I dont know if its with age and the ability to bounce back decreases over time? But i still consider myself extremely young being at 21! And im doing everything rite! Meanwhile, sometimes I feel like I miss out on alot of stuff, BECAUSE im so diligent with my CF treatments. And rite now it seems like its not worth it cause my pfts have decreased regardless.
It doesnt seem fair when theres people out there who abuse what they have, for example I have a brother in his teens (without CF) and he's recently taken up smoking!! I want to smack him on the head! I know he's probably acting out as all teenagers do, but how can he abuse the very thing he has that is completely healthy, while his sister has fought tooth and nail all her life to be able to breathe like a normal human being. Its frusturating.
I hope for all of us, things will turn a corner and get better <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[MusicalCFGirl]

WOW redheadedmommy, 4 treatments! Good for u, and I hope that works!
And yes it totally sucks having absolute no control over your health. In my teens I was totally able to be like, "Screw you CF!" and not look after myself as well, but still be able to bounce back! I dont know if its with age and the ability to bounce back decreases over time? But i still consider myself extremely young being at 21! And im doing everything rite! Meanwhile, sometimes I feel like I miss out on alot of stuff, BECAUSE im so diligent with my CF treatments. And rite now it seems like its not worth it cause my pfts have decreased regardless.
It doesnt seem fair when theres people out there who abuse what they have, for example I have a brother in his teens (without CF) and he's recently taken up smoking!! I want to smack him on the head! I know he's probably acting out as all teenagers do, but how can he abuse the very thing he has that is completely healthy, while his sister has fought tooth and nail all her life to be able to breathe like a normal human being. Its frusturating.
I hope for all of us, things will turn a corner and get better <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[live2breath]

Ya I have the same problem if we wont bounce back as fast because of age or what and my brother also just took up smoking everytime I see him light a cigarette the only thing I think is "really" here I am doing everything I can to stay healthy and he chooses to smoke

 

[live2breath]

Ya I have the same problem if we wont bounce back as fast because of age or what and my brother also just took up smoking everytime I see him light a cigarette the only thing I think is "really" here I am doing everything I can to stay healthy and he chooses to smoke

 

[redheadedmommy]

same here. both my little sisters do. im constantly asking my self WHY? THEY have seen the crap i've went through, hours and hours of home IVS medicine constantly and they just set there and puff away. and like you said i just want to SMACK THEM-UGH!!! I try to do 4 treatments a day i average like 3 . i did and still kinda do have the invincability thing going on. but not so bad now, i have come to realize that life is not in my control 100% . im 23 with a 2 year old daughter that has cf. im going to college full time , and in all reality it does scare me. A friend of my sister asked me if the fact that either me or my daughter might not wake up one day ,and the other one would disturb me , I was like YEAH why wouldn't it ? i never really though about it until they brought it up though. we will never out run death it is something we will all have to face . Getting married, having a house full of kids, and becoming a doctor right now I only see half of that happening. one little girl , and im working on becoming a mid wife.. so ya win some you loose some.. I look at it this way GOD has it all figured out and wouldn't give me more then I can handle. <img src="i/expressions/face-icon-small-smile.gif" border="0"> sorry that iscame out as such a ramble

 

[redheadedmommy]

same here. both my little sisters do. im constantly asking my self WHY? THEY have seen the crap i've went through, hours and hours of home IVS medicine constantly and they just set there and puff away. and like you said i just want to SMACK THEM-UGH!!! I try to do 4 treatments a day i average like 3 . i did and still kinda do have the invincability thing going on. but not so bad now, i have come to realize that life is not in my control 100% . im 23 with a 2 year old daughter that has cf. im going to college full time , and in all reality it does scare me. A friend of my sister asked me if the fact that either me or my daughter might not wake up one day ,and the other one would disturb me , I was like YEAH why wouldn't it ? i never really though about it until they brought it up though. we will never out run death it is something we will all have to face . Getting married, having a house full of kids, and becoming a doctor right now I only see half of that happening. one little girl , and im working on becoming a mid wife.. so ya win some you loose some.. I look at it this way GOD has it all figured out and wouldn't give me more then I can handle. <img src="i/expressions/face-icon-small-smile.gif" border="0"> sorry that iscame out as such a ramble