Dr thinks son may have CF

jjwhite

New member
So, the results came back in the 40s and he will be going to a pediatrician who specializes in cf. I dont know what to think. I really thought he didn't have it. He's not the "typical" case.
 

jjwhite

New member
So, the results came back in the 40s and he will be going to a pediatrician who specializes in cf. I dont know what to think. I really thought he didn't have it. He's not the "typical" case.
 

jjwhite

New member
So, the results came back in the 40s and he will be going to a pediatrician who specializes in cf. I dont know what to think. I really thought he didn't have it. He's not the "typical" case.
 

jjwhite

New member
So, the results came back in the 40s and he will be going to a pediatrician who specializes in cf. I dont know what to think. I really thought he didn't have it. He's not the "typical" case.
 

jjwhite

New member
So, the results came back in the 40s and he will be going to a pediatrician who specializes in cf. I dont know what to think. I really thought he didn't have it. He's not the "typical" case.
 

Alyssa

New member
I have two "non-typical" kids too... their sweat test numbers are 38 and 41 -- we found the Delta F 508 and the R117H gene in them both.
 

Alyssa

New member
I have two "non-typical" kids too... their sweat test numbers are 38 and 41 -- we found the Delta F 508 and the R117H gene in them both.
 

Alyssa

New member
I have two "non-typical" kids too... their sweat test numbers are 38 and 41 -- we found the Delta F 508 and the R117H gene in them both.
 

Alyssa

New member
I have two "non-typical" kids too... their sweat test numbers are 38 and 41 -- we found the Delta F 508 and the R117H gene in them both.
 

Alyssa

New member
I have two "non-typical" kids too... their sweat test numbers are 38 and 41 -- we found the Delta F 508 and the R117H gene in them both.
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cindy402</b></i>

Help! My grandson Charlie, born 2/1/08 has come back with viral markers for CF. He will have a sweat test on 3/3....and I have told mom and dad to get genetic testing done too. Can anyone tell me early signs of CF? He is breastfed and nurses every 2 hrs....he seems to have alot of gas, and cries before he has a bm. His stools are orange in color and has small amount of mucus in it....I have no idea of what a "greesy stool" looks like. He does not have a salty taste, but his skin does seem very dry....his tummy even flakes dispite using baby lotion. I am so scared, and want to find out as much as I can. I have a thousand questions, and have no where to turn it seems.</end quote></div>

Cindy402,
I have a newborn that was diagnosed at 7 days old. Here is what I noticed before she was put on enzymes:
She had alot of gas.
She cried alot because her tummy hurt when she needed to poop.
She pooped often.
Her stools had a small amount of mucus in it.
She was very hungry.
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cindy402</b></i>

Help! My grandson Charlie, born 2/1/08 has come back with viral markers for CF. He will have a sweat test on 3/3....and I have told mom and dad to get genetic testing done too. Can anyone tell me early signs of CF? He is breastfed and nurses every 2 hrs....he seems to have alot of gas, and cries before he has a bm. His stools are orange in color and has small amount of mucus in it....I have no idea of what a "greesy stool" looks like. He does not have a salty taste, but his skin does seem very dry....his tummy even flakes dispite using baby lotion. I am so scared, and want to find out as much as I can. I have a thousand questions, and have no where to turn it seems.</end quote></div>

Cindy402,
I have a newborn that was diagnosed at 7 days old. Here is what I noticed before she was put on enzymes:
She had alot of gas.
She cried alot because her tummy hurt when she needed to poop.
She pooped often.
Her stools had a small amount of mucus in it.
She was very hungry.
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cindy402</b></i>

Help! My grandson Charlie, born 2/1/08 has come back with viral markers for CF. He will have a sweat test on 3/3....and I have told mom and dad to get genetic testing done too. Can anyone tell me early signs of CF? He is breastfed and nurses every 2 hrs....he seems to have alot of gas, and cries before he has a bm. His stools are orange in color and has small amount of mucus in it....I have no idea of what a "greesy stool" looks like. He does not have a salty taste, but his skin does seem very dry....his tummy even flakes dispite using baby lotion. I am so scared, and want to find out as much as I can. I have a thousand questions, and have no where to turn it seems.</end quote></div>

Cindy402,
I have a newborn that was diagnosed at 7 days old. Here is what I noticed before she was put on enzymes:
She had alot of gas.
She cried alot because her tummy hurt when she needed to poop.
She pooped often.
Her stools had a small amount of mucus in it.
She was very hungry.
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cindy402</b></i>

Help! My grandson Charlie, born 2/1/08 has come back with viral markers for CF. He will have a sweat test on 3/3....and I have told mom and dad to get genetic testing done too. Can anyone tell me early signs of CF? He is breastfed and nurses every 2 hrs....he seems to have alot of gas, and cries before he has a bm. His stools are orange in color and has small amount of mucus in it....I have no idea of what a "greesy stool" looks like. He does not have a salty taste, but his skin does seem very dry....his tummy even flakes dispite using baby lotion. I am so scared, and want to find out as much as I can. I have a thousand questions, and have no where to turn it seems.</end quote>

Cindy402,
I have a newborn that was diagnosed at 7 days old. Here is what I noticed before she was put on enzymes:
She had alot of gas.
She cried alot because her tummy hurt when she needed to poop.
She pooped often.
Her stools had a small amount of mucus in it.
She was very hungry.
 

MargaritaChic

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cindy402</b></i>
<br />
<br />Help! My grandson Charlie, born 2/1/08 has come back with viral markers for CF. He will have a sweat test on 3/3....and I have told mom and dad to get genetic testing done too. Can anyone tell me early signs of CF? He is breastfed and nurses every 2 hrs....he seems to have alot of gas, and cries before he has a bm. His stools are orange in color and has small amount of mucus in it....I have no idea of what a "greesy stool" looks like. He does not have a salty taste, but his skin does seem very dry....his tummy even flakes dispite using baby lotion. I am so scared, and want to find out as much as I can. I have a thousand questions, and have no where to turn it seems.</end quote>
<br />
<br />Cindy402,
<br />I have a newborn that was diagnosed at 7 days old. Here is what I noticed before she was put on enzymes:
<br />She had alot of gas.
<br />She cried alot because her tummy hurt when she needed to poop.
<br />She pooped often.
<br />Her stools had a small amount of mucus in it.
<br />She was very hungry.
 

jjwhite

New member
I'm so frusterated. His test came back borderline and now they are going to do another sweat test. But what if it comes back borderline. What are the chances he has cf if he's borderline?
 

jjwhite

New member
I'm so frusterated. His test came back borderline and now they are going to do another sweat test. But what if it comes back borderline. What are the chances he has cf if he's borderline?
 

jjwhite

New member
I'm so frusterated. His test came back borderline and now they are going to do another sweat test. But what if it comes back borderline. What are the chances he has cf if he's borderline?
 

jjwhite

New member
I'm so frusterated. His test came back borderline and now they are going to do another sweat test. But what if it comes back borderline. What are the chances he has cf if he's borderline?
 

jjwhite

New member
I'm so frusterated. His test came back borderline and now they are going to do another sweat test. But what if it comes back borderline. What are the chances he has cf if he's borderline?
 
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