Dr thinks son may have CF

jjwhite

New member
I have a 2 and a half year old son who has never had a solid bowel movement. He has been on asthma puffers and had a few respitory infections and now my dr thinks he may have CF. He just doesn't seem to fit the profile. He is in the 95 percentile for weight and height and he doesn't taste salty. The only thing is that his bowels are always loose and he has respitory infections, although when he has tears that dry up they do leave a white streak on his face and you cn brush it off like powder. He does also have a protruding "pot belly". Does it sound like he may have cf? Thanks in advance for any input.
 

jjwhite

New member
I have a 2 and a half year old son who has never had a solid bowel movement. He has been on asthma puffers and had a few respitory infections and now my dr thinks he may have CF. He just doesn't seem to fit the profile. He is in the 95 percentile for weight and height and he doesn't taste salty. The only thing is that his bowels are always loose and he has respitory infections, although when he has tears that dry up they do leave a white streak on his face and you cn brush it off like powder. He does also have a protruding "pot belly". Does it sound like he may have cf? Thanks in advance for any input.
 

jjwhite

New member
I have a 2 and a half year old son who has never had a solid bowel movement. He has been on asthma puffers and had a few respitory infections and now my dr thinks he may have CF. He just doesn't seem to fit the profile. He is in the 95 percentile for weight and height and he doesn't taste salty. The only thing is that his bowels are always loose and he has respitory infections, although when he has tears that dry up they do leave a white streak on his face and you cn brush it off like powder. He does also have a protruding "pot belly". Does it sound like he may have cf? Thanks in advance for any input.
 

jjwhite

New member
I have a 2 and a half year old son who has never had a solid bowel movement. He has been on asthma puffers and had a few respitory infections and now my dr thinks he may have CF. He just doesn't seem to fit the profile. He is in the 95 percentile for weight and height and he doesn't taste salty. The only thing is that his bowels are always loose and he has respitory infections, although when he has tears that dry up they do leave a white streak on his face and you cn brush it off like powder. He does also have a protruding "pot belly". Does it sound like he may have cf? Thanks in advance for any input.
 

jjwhite

New member
I have a 2 and a half year old son who has never had a solid bowel movement. He has been on asthma puffers and had a few respitory infections and now my dr thinks he may have CF. He just doesn't seem to fit the profile. He is in the 95 percentile for weight and height and he doesn't taste salty. The only thing is that his bowels are always loose and he has respitory infections, although when he has tears that dry up they do leave a white streak on his face and you cn brush it off like powder. He does also have a protruding "pot belly". Does it sound like he may have cf? Thanks in advance for any input.
 

Ratatosk

Administrator
Staff member
My son gets salt crystals which form around his hairline when he sweats and white powdery residue on his face, too. When I kiss him, my lips taste salty. Without digestive enzymes, his stools are very loose -- when he was a baby and he didn't get enough enyzmes, his stools were fluffy like cake frosting.

I'd recommend having him tested. Has a lot of similar symptoms.
 

Ratatosk

Administrator
Staff member
My son gets salt crystals which form around his hairline when he sweats and white powdery residue on his face, too. When I kiss him, my lips taste salty. Without digestive enzymes, his stools are very loose -- when he was a baby and he didn't get enough enyzmes, his stools were fluffy like cake frosting.

I'd recommend having him tested. Has a lot of similar symptoms.
 

Ratatosk

Administrator
Staff member
My son gets salt crystals which form around his hairline when he sweats and white powdery residue on his face, too. When I kiss him, my lips taste salty. Without digestive enzymes, his stools are very loose -- when he was a baby and he didn't get enough enyzmes, his stools were fluffy like cake frosting.

I'd recommend having him tested. Has a lot of similar symptoms.
 

Ratatosk

Administrator
Staff member
My son gets salt crystals which form around his hairline when he sweats and white powdery residue on his face, too. When I kiss him, my lips taste salty. Without digestive enzymes, his stools are very loose -- when he was a baby and he didn't get enough enyzmes, his stools were fluffy like cake frosting.

I'd recommend having him tested. Has a lot of similar symptoms.
 

Ratatosk

Administrator
Staff member
My son gets salt crystals which form around his hairline when he sweats and white powdery residue on his face, too. When I kiss him, my lips taste salty. Without digestive enzymes, his stools are very loose -- when he was a baby and he didn't get enough enyzmes, his stools were fluffy like cake frosting.

I'd recommend having him tested. Has a lot of similar symptoms.
 

ktsmom

New member
It <i>could</i> be CF, and I think you would be wise to let your doctor follow up on testing. The first test would probably be a sweat test, and it is non-invasive and can result in a diagnosis. A negative or borderline sweat test result might still need to be followed up with full genetic testing.

Our daughter was diagnosed at age 3 years and 3 months, based on greasy stools, falling off the growth charts. She had a huge distended belly (the result of malnutrition from the fat soluble nutrients that she was not able to digest, among other things). She ate ALL the time.

She is doing so much better now that she is being treated. In my opinion you have nothing to lose and EVERYTHING to gain by futher testing - if it is CF, the sooner you start treating it, the better. Best of luck to you and please let us know how it goes!
 

ktsmom

New member
It <i>could</i> be CF, and I think you would be wise to let your doctor follow up on testing. The first test would probably be a sweat test, and it is non-invasive and can result in a diagnosis. A negative or borderline sweat test result might still need to be followed up with full genetic testing.

Our daughter was diagnosed at age 3 years and 3 months, based on greasy stools, falling off the growth charts. She had a huge distended belly (the result of malnutrition from the fat soluble nutrients that she was not able to digest, among other things). She ate ALL the time.

She is doing so much better now that she is being treated. In my opinion you have nothing to lose and EVERYTHING to gain by futher testing - if it is CF, the sooner you start treating it, the better. Best of luck to you and please let us know how it goes!
 

ktsmom

New member
It <i>could</i> be CF, and I think you would be wise to let your doctor follow up on testing. The first test would probably be a sweat test, and it is non-invasive and can result in a diagnosis. A negative or borderline sweat test result might still need to be followed up with full genetic testing.

Our daughter was diagnosed at age 3 years and 3 months, based on greasy stools, falling off the growth charts. She had a huge distended belly (the result of malnutrition from the fat soluble nutrients that she was not able to digest, among other things). She ate ALL the time.

She is doing so much better now that she is being treated. In my opinion you have nothing to lose and EVERYTHING to gain by futher testing - if it is CF, the sooner you start treating it, the better. Best of luck to you and please let us know how it goes!
 

ktsmom

New member
It <i>could</i> be CF, and I think you would be wise to let your doctor follow up on testing. The first test would probably be a sweat test, and it is non-invasive and can result in a diagnosis. A negative or borderline sweat test result might still need to be followed up with full genetic testing.

Our daughter was diagnosed at age 3 years and 3 months, based on greasy stools, falling off the growth charts. She had a huge distended belly (the result of malnutrition from the fat soluble nutrients that she was not able to digest, among other things). She ate ALL the time.

She is doing so much better now that she is being treated. In my opinion you have nothing to lose and EVERYTHING to gain by futher testing - if it is CF, the sooner you start treating it, the better. Best of luck to you and please let us know how it goes!
 

ktsmom

New member
It <i>could</i> be CF, and I think you would be wise to let your doctor follow up on testing. The first test would probably be a sweat test, and it is non-invasive and can result in a diagnosis. A negative or borderline sweat test result might still need to be followed up with full genetic testing.

Our daughter was diagnosed at age 3 years and 3 months, based on greasy stools, falling off the growth charts. She had a huge distended belly (the result of malnutrition from the fat soluble nutrients that she was not able to digest, among other things). She ate ALL the time.

She is doing so much better now that she is being treated. In my opinion you have nothing to lose and EVERYTHING to gain by futher testing - if it is CF, the sooner you start treating it, the better. Best of luck to you and please let us know how it goes!
 

jjwhite

New member
Thanks for your replies. He also has a very big appetite but isnt over weight, he's tall but his arms and legs are skinny. I licked him but he didn't taste salty. Could that mean he doesnt' have it?
 

jjwhite

New member
Thanks for your replies. He also has a very big appetite but isnt over weight, he's tall but his arms and legs are skinny. I licked him but he didn't taste salty. Could that mean he doesnt' have it?
 

jjwhite

New member
Thanks for your replies. He also has a very big appetite but isnt over weight, he's tall but his arms and legs are skinny. I licked him but he didn't taste salty. Could that mean he doesnt' have it?
 

jjwhite

New member
Thanks for your replies. He also has a very big appetite but isnt over weight, he's tall but his arms and legs are skinny. I licked him but he didn't taste salty. Could that mean he doesnt' have it?
 

jjwhite

New member
Thanks for your replies. He also has a very big appetite but isnt over weight, he's tall but his arms and legs are skinny. I licked him but he didn't taste salty. Could that mean he doesnt' have it?
 
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