You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
especially for women
- Thread starter scarlett
- Start date
I am 37 years old and just found this website tonight. As I am technologically challenged, I am not a usual web browser. I have CF and have been very thankful for such good health. In 2001, I managed to pick up pseudomonas (at such a late time in life), and my health has not been the same. I find myself battling things that I have not had to deal with before. Regular CPT and nebulized meds were not necessary until now. I have been having a rough time fitting it into a busy schedule. You know, places to go, things to do and people to see. My biggest heartache has been the infertility issue. I haven't seen anyone else mention it. My husband and I are very anxious to be parents, but it is just not happening on its own. The biological clock ticks loudly these days. I went through the gamut of infertility testing, and went through "intra-uterine insemination" without success. The next step is IVF, and this can be quite costly, even with good insurance. I guess that adoption can be costly too. Anyone else dealing with all of this? Diana
Thanks to everyone who advised me about my little professor issue. I finally registered with the office of disability services at school, so now I have all these letters to give to my teachers. All they say are "she has registered with this office and so she is allowed to stagger assignments and exams and be absent more often." It doesn't specify what I have or anything, but I'm still a little scared to give them out, because I don't want to be treated differently. I'm doing very well in school right now and I like knowing that teachers aren't being easy on me out of pity. So I don't know what to do.Also, Diane,I have worried a lot that when the time comes, I'll have a lot of trouble getting pregnant. My mom had a really hard time (does that make a difference? I don't know) My best friend is always saying, "Oh, when we get older we'll have babies together!" Sometimes I get really depressed, and think, I'll never get hold, much less have kids, but I try to keep reminding myself that even though my psychotic devil of a bio teacher says people with CF don't have offspring, they do!!!! (Yeah, one of these days I am really going to flip out on her). It must be really frustrating to have to go through all this. Anyways, I wish you luck with IVF, adoption, or whatever path you take. Okay, on a separate note: this website idea? Will I ever have the time for it? I honestly don't know, my life is very busy right now. But seeing as everyone has responded so positively, I am going to do my best. But, I need your help! Please, girls, keep on posting anything you can think of. Any info you want on there, please just e-mail me. I want this to materialize, I really hope someday it will . . . ~scarlett~ <a target=new class=ftalternatingbarlinklarge href="mailto:scarlett212@hotmail.com">e-mail me</a>
HiI am a twenty-two year old female. I am currently in college as an engineering major. Do to health complications school is taking me longer than I had expected. But I do plan to get my degree.I have been extremely healthy for the past two and a half years (no hospitalizations needed), and then on Monday I went to see the doctor for a regular check up. He confirmed to me that I had developed CFRD. On top of everything that has been going on in the last month, this has been hard to swallow. I have always kept an extremely healthy diet and exercise on a regular basis. I know that I just have to accept this and learn how to handle it. I'm just wondering how other people are dealing with this.
I'm 22, going to school for English and Theater. I totally understand. I was diagnosed w/ CFRD about a year ago. I know it feels like just one more thing to drag you down. It has taken me a while to get through school and I still have a semester or two to go. Managing CFRD isn't too hard at all, when you compare it to other forms of diabetes, and when you consider that missing a dose of insulin isn't going to be fatal. The CF foundation has some literature on CFRD that's pretty straight forward. THe standard treatment at my clinic is to use a few units of Humolog (fast acting insulin) with meals and check blood sugar once a day. I've found it's eaiser to keep up w/ shots than blood sugar. Basically, b/c our pancrease has been a piece of crap for so many years, it's started to take longer to get insulin out when we eat. We still produce it, but it doesn't get out fast enough. The fast acting insulin works until the real stuff kicks in. I've heard of some people needing regular insulin, but I don't know much about it. It takes a few weeks, but you'll see an increase in your energy level, weight gain, and most people's lung functions improve. I have no diet restrictions because of CFRD, but I don't use my insulin if I'll be drinking alcohol. Mind my asking where you're in school? I'm at Colorado State. If you want to talk at all, feel free to e-mail me.Debbie22 yr old w/ CF in COdncox3@comcast.net
CFRD is not the same as type I diabetes . . . but of course no one bothered to tell me this. I think it's important to know, however. A lot of endocrinologists don't know much about it. It's less complicated and hard-core medically, but in my experience, it gets really complicated when your pulmonologist and endocrinologist go to bat with each other. I was very underweight when I got cfrd, and the endocrine people told me to watch what I ate, and the CF people were all like "just get as many calories as you can!" and it got very confusing. Today I just have to explain everything to all the doctors. The other thing is, they say there's a direct correlation between how controlled you keep your sugar and your PFTs. So if you go on insulin, your lung function should improve. Does anyone here have the pump? I don't want to get one but I have heard very good things about it. ~ scarlett
I have a pump I like it's much better then the pen. I hated having the pen tho I didn't mind the shots. I am 16 and found out that I had CFRD a few months ago when I was younger I had CFRD only when I was sick but now I have it for the rest of my life it was really hard and still is.I would love to talk to you about itAlli
i am new to cf.com but it's so good to be able to read what you have to say about things. a few very relvant topics for me are the weak bladder muscles (Kegels). Kegels really help me. Any healthy douches or something to get rid of the smell that sometimes happens eg: when you are jumping at a concert or something? And you can't wait to get home and have a shower.Another is the bloating - what the hell is it caused by?????I'd love to get pregnant and am about to head down the road of infertility treatments. I am healthy enough - 2 years no hospitalisations in january - but it hasn't happened yet.....cross fingers not legs!Any ideas on how to get rid of tablet breath? that yukky taste of gelatine that my boyfriend kindly bought up the other day...You have rum breath, it's better than tablet breath. Bugger At least he tried to put it nicely.how about getting rid of that awful smell in your sinuses during an infection - any surefire way besides mints?It's such a good idea to get a website going - i'm going to tell the CF assoc of Australia about your great site and to get more understanding of what we have - between more of us!
My boyfriend has mentioned my breath too. It totally embarassed me and I was like, "um, I can't control it and if you don't like it go kiss on someone else." I just gargle w/ listeriene a few times a day. I don't like to chew gum, but I do use those breath strips. It's funny b/c when he mentions stuff like that, I don't think that he considers that I might have a medical reason that's completly out of my control. Once I snapped at him and was like "hey, I don't tell you how nasty your zits are! so just lay off" he immedatly got all red b/c he had a few really big pimples. (sigh)
Hello ScarlettI think your idea is wonderful and you will have a lot of support. There are many Woman who have CF who have Children and I am sure this group would have lots to share. I am 44 and had a double lung tx eight years ago as of this coming January. I would love to join in your discussion on your new website. I read many of the responses and you will have lots of support. Go for it. Let me know when your site is up and running txbuddies@yahoo.comSincerelyRisaPs. I love Glutathione and what it has done for my health. I have a website on GSH (Glutathione) check it out. Sorry if this is off topic everyone. I have a limited time to share on line these days.http://members3.boardhost.com/Thankyou/.
They r going to have to do a dnc and a hysterroscopy I was on the depo shot and had no period for six years.Six months is how long ive been off of it and still no period.im 21 and my health is going to hell.i was standing outside on the back porch and pead all over myself it was so embarrising im lucky noone saw me. ialso have yeast infections once a week one was so bad that i had a rash down my legs and its not diabeties. they have no idea what it is.doyou have any ideas?
buffikins23
New member
I know this is kind of late in the game to post, but I wanted to respond to Lizzie04's concerns about dating...In highschool, I was approached by guys that were real crazy or mad religious...but most of my guy friends did not want to date me because the two people in my area that had CF died. So my friends did not want to get too close. Once I got to college the story changed completely...I had killer legs (worked on getting them shapely through dancing) and I was thin and could eat just as much as they did. I never had a problem with guys wanting to date me, I even invited them to my dorm room when I knew I would be doing nebs and PT(I have a thairepy Vest an awesome thing that allows me to be independent in my chest PT, plus I call it my vibrator) I've been living with a guy for 2 years, been with him for 3.5 years, and occasionally he'll get the question" wow, isn't it hard to love somebody who has a critical illness" and he'll reply simply that,"I love her, I couldn't help falling in love with her no matter what physical illness she may have". And the stomach thing is a bother, but hey thank God for ultra low rise jeans!! Now I can buy my size twos and they fit everywhere without digging into my waist. Let's face it ladies, when we're healthy we're every girls' dream: we don't gain weight from eating a lot, we remain small and thin, and whenever I lift or do anything I show muscle definition right away!! We have to accentuate the positive after all<img src="i/expressions/face-icon-small-wink.gif" border="0">
buffikins23
New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>HiI am a twenty-two year old female. I am currently in college as an engineering major. Do to health complications school is taking me longer than I had expected. But I do plan to get my degree.I have been extremely healthy for the past two and a half years (no hospitalizations needed), and then on Monday I went to see the doctor for a regular check up. He confirmed to me that I had developed CFRD. On top of everything that has been going on in the last month, this has been hard to swallow. I have always kept an extremely healthy diet and exercise on a regular basis. I know that I just have to accept this and learn how to handle it. I'm just wondering how other people are dealing with this.<hr></blockquote>I know what you are going through...I'm insulin dependent and have been for 3 years now. It was devestating, but I found that once I started treating my diabetes my lung function improved and my overall health and energy levels. If you need to talk I'm your girl!! I'm also currently in college and due to get my degree in social work with a theater minor in December of this year!!Bethany 23/f/cf /cfrd
I find it very comforting to know that I am not the only one with the pregnant looking belly. I have had a belly all my life and I have never known any other cf's to have this. Apparently fluimucil sachets can help but normal GP's won't prescribe them. It would need to be your hospital chest doctor. All my life people have said when are you due? I can and do hold it in near enough 24 hours a day and i have recently started going to a gym, I will let you know of any improvements! Oh by the way, I have also heard it can be caused by a build up of mucus and the fluimucil sachets help to break it down.
Hey I know everyone is different, but I thought I would give my experience with the "pregnant" belly. I never had the pregnant belly look till about 6 months ago. I had just returned to the dorms from being home for the summer. Within days my stomach grew. In fact people used to comment on my big belly (which i did NOT appreciate!), but none of them knew it was CF related. I noticed that I had a lot of gas too. I realized that it may have to do with my enzymes because the dorm food was soooo much more fattening and greasy so my doc agreed to up my enzymes. Within a few days of taking more enzymes (I also took acidopholus, but I am not sure if it made a difference) my belly went back to normal and the gas problems dissapeared. I am sure that is not the only reason our belly gets big, but you guys may want to try to change your enzyme dose or even brands. Good luck with you stomaches<img src="i/expressions/face-icon-small-smile.gif" border="0">!Emily
Hi,when I read "fluimucil" i remembered something, and I wonder, if any other woman has this problems.I took fluimucil only two times until now.After taking it for about 2 weeks,my breasts felt swollen and were hurting in motion or when touching them. When I did a test in a special clinic, the doc said, there are water filled parts in there(sorry,I´m missing the english word, in german it is:Zysten?!). When I took special hormon tablets for 2 weeks, the problem vanished, but I´m quite shure, the reason was the fluimucil and so I don´t take it any longer.Uli,41,Germany
i remember there was a time when i was taking too many enzymes [i had switched from creon 8,000 to creon 10,000 at the time and didn't juggle it well] and it caused much stomach bloating. it was constant, not like now, when i have my flat hours and my pregnant hours. when i got my enzymes figured out and started taking the proper amount, my tummy deflated <img src="i/expressions/face-icon-small-smile.gif" border="0">of course, it gets bloated here and there, so i just wear low-rise jeans on these days. setting the belly free, as i call it <img src="i/expressions/face-icon-small-smile.gif" border="0"> also, i prefer shirts that are a bit loose around the stomach area, dresses and pants that don't require an ironing-board stomach. but that's also because i like to be comfortable with my clothes and anything too tight just doesn't meet my requirements.Lois, 21 w/CF, Israelboys_dont_cry_1982@yahoo.com