Exercise, and cystic fibrosis

Melissa75 · Jan 20, 2010

Ditto what Lance said. I just eat MORE!

Like you, I prefer classes where I feel like I am picking up a skill. I have been doing Zumba (Thank you, again, NightWriter) for a while now and I love it. And I am actually getting closer to a BMI out of the teens.

The dance classes are really hard when you are getting an exacerbation or getting over one (see old threads on sweat ;-), but the inspiration to last through the song or to get to the next song is much stronger for me than just "stay on the treadmill."

Also, the people who do Zumba are all different sizes--and how good you dance is not directly related to how fit/thin you are. In fact, skinny no-butts like me have to work hard to look good doing some of the moves. I don't know why that makes me happy, but it does. I guess in the classes that are all about perfecting your muscle tone, I feel like I am out of the running if I have been sick for a few weeks. I guess I have a competitive streak. In Zumba, I can have fun, learn a new rountine, and be on the beat but tone it down if I am SOB.

Melissa75 · Jan 20, 2010

Ditto what Lance said. I just eat MORE!

Like you, I prefer classes where I feel like I am picking up a skill. I have been doing Zumba (Thank you, again, NightWriter) for a while now and I love it. And I am actually getting closer to a BMI out of the teens.

The dance classes are really hard when you are getting an exacerbation or getting over one (see old threads on sweat ;-), but the inspiration to last through the song or to get to the next song is much stronger for me than just "stay on the treadmill."

Also, the people who do Zumba are all different sizes--and how good you dance is not directly related to how fit/thin you are. In fact, skinny no-butts like me have to work hard to look good doing some of the moves. I don't know why that makes me happy, but it does. I guess in the classes that are all about perfecting your muscle tone, I feel like I am out of the running if I have been sick for a few weeks. I guess I have a competitive streak. In Zumba, I can have fun, learn a new rountine, and be on the beat but tone it down if I am SOB.

Melissa75 · Jan 20, 2010

Ditto what Lance said. I just eat MORE!

Like you, I prefer classes where I feel like I am picking up a skill. I have been doing Zumba (Thank you, again, NightWriter) for a while now and I love it. And I am actually getting closer to a BMI out of the teens.

The dance classes are really hard when you are getting an exacerbation or getting over one (see old threads on sweat ;-), but the inspiration to last through the song or to get to the next song is much stronger for me than just "stay on the treadmill."

Also, the people who do Zumba are all different sizes--and how good you dance is not directly related to how fit/thin you are. In fact, skinny no-butts like me have to work hard to look good doing some of the moves. I don't know why that makes me happy, but it does. I guess in the classes that are all about perfecting your muscle tone, I feel like I am out of the running if I have been sick for a few weeks. I guess I have a competitive streak. In Zumba, I can have fun, learn a new rountine, and be on the beat but tone it down if I am SOB.

Melissa75 · Jan 20, 2010

Ditto what Lance said. I just eat MORE!

Like you, I prefer classes where I feel like I am picking up a skill. I have been doing Zumba (Thank you, again, NightWriter) for a while now and I love it. And I am actually getting closer to a BMI out of the teens.

The dance classes are really hard when you are getting an exacerbation or getting over one (see old threads on sweat ;-), but the inspiration to last through the song or to get to the next song is much stronger for me than just "stay on the treadmill."

Also, the people who do Zumba are all different sizes--and how good you dance is not directly related to how fit/thin you are. In fact, skinny no-butts like me have to work hard to look good doing some of the moves. I don't know why that makes me happy, but it does. I guess in the classes that are all about perfecting your muscle tone, I feel like I am out of the running if I have been sick for a few weeks. I guess I have a competitive streak. In Zumba, I can have fun, learn a new rountine, and be on the beat but tone it down if I am SOB.

Melissa75 · Jan 20, 2010

Ditto what Lance said. I just eat MORE!
 
 Like you, I prefer classes where I feel like I am picking up a skill. I have been doing Zumba (Thank you, again, NightWriter) for a while now and I love it. And I am actually getting closer to a BMI out of the teens.
 
 The dance classes are really hard when you are getting an exacerbation or getting over one (see old threads on sweat ;-), but the inspiration to last through the song or to get to the next song is much stronger for me than just "stay on the treadmill."
 
 Also, the people who do Zumba are all different sizes--and how good you dance is not directly related to how fit/thin you are. In fact, skinny no-butts like me have to work hard to look good doing some of the moves. I don't know why that makes me happy, but it does. I guess in the classes that are all about perfecting your muscle tone, I feel like I am out of the running if I have been sick for a few weeks. I guess I have a competitive streak. In Zumba, I can have fun, learn a new rountine, and be on the beat but tone it down if I am SOB.

BaylorCrew07 · Jan 20, 2010

I'm basically just echoing what has already been said, but exercise is one of the best things you can do for CF! My docs attribute it to my high PFT's and why my lungs have stayed so healthy.

I *love* kickboxing...great way to get out my stress after a crazy day at work <img src="i/expressions/face-icon-small-wink.gif" border="0"> and of course running, etc.

have fun!

BaylorCrew07 · Jan 20, 2010

I'm basically just echoing what has already been said, but exercise is one of the best things you can do for CF! My docs attribute it to my high PFT's and why my lungs have stayed so healthy.

I *love* kickboxing...great way to get out my stress after a crazy day at work <img src="i/expressions/face-icon-small-wink.gif" border="0"> and of course running, etc.

have fun!

BaylorCrew07 · Jan 20, 2010

I'm basically just echoing what has already been said, but exercise is one of the best things you can do for CF! My docs attribute it to my high PFT's and why my lungs have stayed so healthy.

I *love* kickboxing...great way to get out my stress after a crazy day at work <img src="i/expressions/face-icon-small-wink.gif" border="0"> and of course running, etc.

have fun!

BaylorCrew07 · Jan 20, 2010

I'm basically just echoing what has already been said, but exercise is one of the best things you can do for CF! My docs attribute it to my high PFT's and why my lungs have stayed so healthy.

I *love* kickboxing...great way to get out my stress after a crazy day at work <img src="i/expressions/face-icon-small-wink.gif" border="0"> and of course running, etc.

have fun!

BaylorCrew07 · Jan 20, 2010

I'm basically just echoing what has already been said, but exercise is one of the best things you can do for CF! My docs attribute it to my high PFT's and why my lungs have stayed so healthy.
 
 I *love* kickboxing...great way to get out my stress after a crazy day at work <img src="i/expressions/face-icon-small-wink.gif" border="0"> and of course running, etc.
 
 have fun!

Nightwriter · Jan 20, 2010

Well, when I see my name, I've just gotta answer.

First to Vampy since it was your question. I work out 5 days a week (yes, LOVE Zumba) When I was im college, I was a phys. ed major. I credit exercise as one of the THE most important aspects of slowing/reversing certain CF complications.

What is fascinating is if you were to do blood tests, BP, pulse, cholesterol, etc. before starting an exercise regime, you will be amazed as every test improves drastically when retested. I cannot believe my own results comparing my tests to over 10 years ago.

Besides the obvious, which is strengthening your entire body, lung functions going up (making your heart stronger also improves lungs) exercise actually affects the T cells (the fighter cells) which helps you fight off and recover infections. Not to mention mood elevation due to endorphins released into the body as your heart rate goes up (and stays up for at least 20 minutes if possible). If not ANYTHING is better than nothing. And it takes a while to improve. Don't expect overnight results. And exacerbations do set me back all the time -- but when you are fit, it may take you a few weeks or more to get back, but the body has muscle memory of 3 months (according to my trainer).

Also, weight bearing exercises replenish the bones (osteoporosis being a CF related problem due to drugs). Exercise helps move mucus out of the lungs.

Exercise is truly the fountain of youth (ask Dr. Oz, lol). It is best to do cross training, in other words a little bit of everything. The three things that we lose as we get older and if you are sick it is like getting older is the following:

1)strength
2)cardio
3)flexibility

So you want to do weight training (doesn't have to be heavy weights), cardio of any kind, and stretching.

Many CF'ers start to have rounded backs from coughing, and exercise can correct this.

For Vampy specifically, the martial arts are great and you should continue on. I used to do Judo and there was nothing more satsifying than throwing someone over your head and watch them crash to the floor.

But Vampy raises a really important point about food intake. Junk food will literally hasten this disease. We worry about what gas to put in our cars,but throw anything into a body that is trying to stay well.

I cannot emphasize this enough. Sugar for instance depresses the immune system, feeds yeast which is a problem from constant antibiotics, and contributes to lungs bleeding.

Preservatives and chemicals contribute to raising inflammation, triggering the asthma component (if you are on bronchodilators or steroids you have asthma).

Sodas contain sodium benzoate which triggers asthma. And just because you don't feel it immediately, doesn't mean it you are not having a delayed reaction.

So what should you eat? Honestly, good, healthy, chemical/preservative free food will change your life. Organic preferably, but not always possible.

You can have shakes with whey/soy or egg protein with yogurt, fruit, crushed hemp seeds (a geat anti-inflammatory), bananas, fruit, flaxseed oil mixed in...

You could have good fats like nuts, avacados, almond butter,
multigrain breads, lowfat cheeses, fruits of all kinds with blueberries being the most healthy...

There are so many healthy snacks made with fruit juice that are really good like Barbara's brand or Pamela's cookies, packaged snacks like Pirate's Booty or Snapeas...If you have a Trader Joe's there are so many healthy snacks without high sugar or junk in them.

A look in Whole Foods or online on a discount site like Vitacost by punching in organic snacks or fruit juice sweetened snacks will come up with so many healthy snacks.

I just found a product called Eden Wild Berry Mix -- discounted on Vitacost that is healthy and so good.. I found fruit juice sweetened coconut bars (a bit high in calories and fat) so I would have it infrequently.

Feed the machine well and it will last.

Nightwriter · Jan 20, 2010

Well, when I see my name, I've just gotta answer.

First to Vampy since it was your question. I work out 5 days a week (yes, LOVE Zumba) When I was im college, I was a phys. ed major. I credit exercise as one of the THE most important aspects of slowing/reversing certain CF complications.

What is fascinating is if you were to do blood tests, BP, pulse, cholesterol, etc. before starting an exercise regime, you will be amazed as every test improves drastically when retested. I cannot believe my own results comparing my tests to over 10 years ago.

Besides the obvious, which is strengthening your entire body, lung functions going up (making your heart stronger also improves lungs) exercise actually affects the T cells (the fighter cells) which helps you fight off and recover infections. Not to mention mood elevation due to endorphins released into the body as your heart rate goes up (and stays up for at least 20 minutes if possible). If not ANYTHING is better than nothing. And it takes a while to improve. Don't expect overnight results. And exacerbations do set me back all the time -- but when you are fit, it may take you a few weeks or more to get back, but the body has muscle memory of 3 months (according to my trainer).

Also, weight bearing exercises replenish the bones (osteoporosis being a CF related problem due to drugs). Exercise helps move mucus out of the lungs.

Exercise is truly the fountain of youth (ask Dr. Oz, lol). It is best to do cross training, in other words a little bit of everything. The three things that we lose as we get older and if you are sick it is like getting older is the following:

1)strength
2)cardio
3)flexibility

So you want to do weight training (doesn't have to be heavy weights), cardio of any kind, and stretching.

Many CF'ers start to have rounded backs from coughing, and exercise can correct this.

For Vampy specifically, the martial arts are great and you should continue on. I used to do Judo and there was nothing more satsifying than throwing someone over your head and watch them crash to the floor.

But Vampy raises a really important point about food intake. Junk food will literally hasten this disease. We worry about what gas to put in our cars,but throw anything into a body that is trying to stay well.

I cannot emphasize this enough. Sugar for instance depresses the immune system, feeds yeast which is a problem from constant antibiotics, and contributes to lungs bleeding.

Preservatives and chemicals contribute to raising inflammation, triggering the asthma component (if you are on bronchodilators or steroids you have asthma).

Sodas contain sodium benzoate which triggers asthma. And just because you don't feel it immediately, doesn't mean it you are not having a delayed reaction.

So what should you eat? Honestly, good, healthy, chemical/preservative free food will change your life. Organic preferably, but not always possible.

You can have shakes with whey/soy or egg protein with yogurt, fruit, crushed hemp seeds (a geat anti-inflammatory), bananas, fruit, flaxseed oil mixed in...

You could have good fats like nuts, avacados, almond butter,
multigrain breads, lowfat cheeses, fruits of all kinds with blueberries being the most healthy...

There are so many healthy snacks made with fruit juice that are really good like Barbara's brand or Pamela's cookies, packaged snacks like Pirate's Booty or Snapeas...If you have a Trader Joe's there are so many healthy snacks without high sugar or junk in them.

A look in Whole Foods or online on a discount site like Vitacost by punching in organic snacks or fruit juice sweetened snacks will come up with so many healthy snacks.

I just found a product called Eden Wild Berry Mix -- discounted on Vitacost that is healthy and so good.. I found fruit juice sweetened coconut bars (a bit high in calories and fat) so I would have it infrequently.

Feed the machine well and it will last.

Nightwriter · Jan 20, 2010

Well, when I see my name, I've just gotta answer.

First to Vampy since it was your question. I work out 5 days a week (yes, LOVE Zumba) When I was im college, I was a phys. ed major. I credit exercise as one of the THE most important aspects of slowing/reversing certain CF complications.

What is fascinating is if you were to do blood tests, BP, pulse, cholesterol, etc. before starting an exercise regime, you will be amazed as every test improves drastically when retested. I cannot believe my own results comparing my tests to over 10 years ago.

Besides the obvious, which is strengthening your entire body, lung functions going up (making your heart stronger also improves lungs) exercise actually affects the T cells (the fighter cells) which helps you fight off and recover infections. Not to mention mood elevation due to endorphins released into the body as your heart rate goes up (and stays up for at least 20 minutes if possible). If not ANYTHING is better than nothing. And it takes a while to improve. Don't expect overnight results. And exacerbations do set me back all the time -- but when you are fit, it may take you a few weeks or more to get back, but the body has muscle memory of 3 months (according to my trainer).

Also, weight bearing exercises replenish the bones (osteoporosis being a CF related problem due to drugs). Exercise helps move mucus out of the lungs.

Exercise is truly the fountain of youth (ask Dr. Oz, lol). It is best to do cross training, in other words a little bit of everything. The three things that we lose as we get older and if you are sick it is like getting older is the following:

1)strength
2)cardio
3)flexibility

So you want to do weight training (doesn't have to be heavy weights), cardio of any kind, and stretching.

Many CF'ers start to have rounded backs from coughing, and exercise can correct this.

For Vampy specifically, the martial arts are great and you should continue on. I used to do Judo and there was nothing more satsifying than throwing someone over your head and watch them crash to the floor.

But Vampy raises a really important point about food intake. Junk food will literally hasten this disease. We worry about what gas to put in our cars,but throw anything into a body that is trying to stay well.

I cannot emphasize this enough. Sugar for instance depresses the immune system, feeds yeast which is a problem from constant antibiotics, and contributes to lungs bleeding.

Preservatives and chemicals contribute to raising inflammation, triggering the asthma component (if you are on bronchodilators or steroids you have asthma).

Sodas contain sodium benzoate which triggers asthma. And just because you don't feel it immediately, doesn't mean it you are not having a delayed reaction.

So what should you eat? Honestly, good, healthy, chemical/preservative free food will change your life. Organic preferably, but not always possible.

You can have shakes with whey/soy or egg protein with yogurt, fruit, crushed hemp seeds (a geat anti-inflammatory), bananas, fruit, flaxseed oil mixed in...

You could have good fats like nuts, avacados, almond butter,
multigrain breads, lowfat cheeses, fruits of all kinds with blueberries being the most healthy...

There are so many healthy snacks made with fruit juice that are really good like Barbara's brand or Pamela's cookies, packaged snacks like Pirate's Booty or Snapeas...If you have a Trader Joe's there are so many healthy snacks without high sugar or junk in them.

A look in Whole Foods or online on a discount site like Vitacost by punching in organic snacks or fruit juice sweetened snacks will come up with so many healthy snacks.

I just found a product called Eden Wild Berry Mix -- discounted on Vitacost that is healthy and so good.. I found fruit juice sweetened coconut bars (a bit high in calories and fat) so I would have it infrequently.

Feed the machine well and it will last.

Nightwriter · Jan 20, 2010

Well, when I see my name, I've just gotta answer.

First to Vampy since it was your question. I work out 5 days a week (yes, LOVE Zumba) When I was im college, I was a phys. ed major. I credit exercise as one of the THE most important aspects of slowing/reversing certain CF complications.

What is fascinating is if you were to do blood tests, BP, pulse, cholesterol, etc. before starting an exercise regime, you will be amazed as every test improves drastically when retested. I cannot believe my own results comparing my tests to over 10 years ago.

Besides the obvious, which is strengthening your entire body, lung functions going up (making your heart stronger also improves lungs) exercise actually affects the T cells (the fighter cells) which helps you fight off and recover infections. Not to mention mood elevation due to endorphins released into the body as your heart rate goes up (and stays up for at least 20 minutes if possible). If not ANYTHING is better than nothing. And it takes a while to improve. Don't expect overnight results. And exacerbations do set me back all the time -- but when you are fit, it may take you a few weeks or more to get back, but the body has muscle memory of 3 months (according to my trainer).

Also, weight bearing exercises replenish the bones (osteoporosis being a CF related problem due to drugs). Exercise helps move mucus out of the lungs.

Exercise is truly the fountain of youth (ask Dr. Oz, lol). It is best to do cross training, in other words a little bit of everything. The three things that we lose as we get older and if you are sick it is like getting older is the following:

1)strength
2)cardio
3)flexibility

So you want to do weight training (doesn't have to be heavy weights), cardio of any kind, and stretching.

Many CF'ers start to have rounded backs from coughing, and exercise can correct this.

For Vampy specifically, the martial arts are great and you should continue on. I used to do Judo and there was nothing more satsifying than throwing someone over your head and watch them crash to the floor.

But Vampy raises a really important point about food intake. Junk food will literally hasten this disease. We worry about what gas to put in our cars,but throw anything into a body that is trying to stay well.

I cannot emphasize this enough. Sugar for instance depresses the immune system, feeds yeast which is a problem from constant antibiotics, and contributes to lungs bleeding.

Preservatives and chemicals contribute to raising inflammation, triggering the asthma component (if you are on bronchodilators or steroids you have asthma).

Sodas contain sodium benzoate which triggers asthma. And just because you don't feel it immediately, doesn't mean it you are not having a delayed reaction.

So what should you eat? Honestly, good, healthy, chemical/preservative free food will change your life. Organic preferably, but not always possible.

You can have shakes with whey/soy or egg protein with yogurt, fruit, crushed hemp seeds (a geat anti-inflammatory), bananas, fruit, flaxseed oil mixed in...

You could have good fats like nuts, avacados, almond butter,
multigrain breads, lowfat cheeses, fruits of all kinds with blueberries being the most healthy...

There are so many healthy snacks made with fruit juice that are really good like Barbara's brand or Pamela's cookies, packaged snacks like Pirate's Booty or Snapeas...If you have a Trader Joe's there are so many healthy snacks without high sugar or junk in them.

A look in Whole Foods or online on a discount site like Vitacost by punching in organic snacks or fruit juice sweetened snacks will come up with so many healthy snacks.

I just found a product called Eden Wild Berry Mix -- discounted on Vitacost that is healthy and so good.. I found fruit juice sweetened coconut bars (a bit high in calories and fat) so I would have it infrequently.

Feed the machine well and it will last.

Nightwriter · Jan 20, 2010

Well, when I see my name, I've just gotta answer.
 
 First to Vampy since it was your question. I work out 5 days a week (yes, LOVE Zumba) When I was im college, I was a phys. ed major. I credit exercise as one of the THE most important aspects of slowing/reversing certain CF complications.
 
 What is fascinating is if you were to do blood tests, BP, pulse, cholesterol, etc. before starting an exercise regime, you will be amazed as every test improves drastically when retested. I cannot believe my own results comparing my tests to over 10 years ago.
 
 Besides the obvious, which is strengthening your entire body, lung functions going up (making your heart stronger also improves lungs) exercise actually affects the T cells (the fighter cells) which helps you fight off and recover infections. Not to mention mood elevation due to endorphins released into the body as your heart rate goes up (and stays up for at least 20 minutes if possible). If not ANYTHING is better than nothing. And it takes a while to improve. Don't expect overnight results. And exacerbations do set me back all the time -- but when you are fit, it may take you a few weeks or more to get back, but the body has muscle memory of 3 months (according to my trainer).
 
 Also, weight bearing exercises replenish the bones (osteoporosis being a CF related problem due to drugs). Exercise helps move mucus out of the lungs.
 
 Exercise is truly the fountain of youth (ask Dr. Oz, lol). It is best to do cross training, in other words a little bit of everything. The three things that we lose as we get older and if you are sick it is like getting older is the following:
 
 1)strength
 2)cardio
 3)flexibility
 
 So you want to do weight training (doesn't have to be heavy weights), cardio of any kind, and stretching.
 
 Many CF'ers start to have rounded backs from coughing, and exercise can correct this.
 
 For Vampy specifically, the martial arts are great and you should continue on. I used to do Judo and there was nothing more satsifying than throwing someone over your head and watch them crash to the floor.
 
 But Vampy raises a really important point about food intake. Junk food will literally hasten this disease. We worry about what gas to put in our cars,but throw anything into a body that is trying to stay well.
 
 I cannot emphasize this enough. Sugar for instance depresses the immune system, feeds yeast which is a problem from constant antibiotics, and contributes to lungs bleeding.
 
 Preservatives and chemicals contribute to raising inflammation, triggering the asthma component (if you are on bronchodilators or steroids you have asthma).
 
 Sodas contain sodium benzoate which triggers asthma. And just because you don't feel it immediately, doesn't mean it you are not having a delayed reaction.
 
 So what should you eat? Honestly, good, healthy, chemical/preservative free food will change your life. Organic preferably, but not always possible.
 
 You can have shakes with whey/soy or egg protein with yogurt, fruit, crushed hemp seeds (a geat anti-inflammatory), bananas, fruit, flaxseed oil mixed in...
 
 You could have good fats like nuts, avacados, almond butter,
 multigrain breads, lowfat cheeses, fruits of all kinds with blueberries being the most healthy...
 
 There are so many healthy snacks made with fruit juice that are really good like Barbara's brand or Pamela's cookies, packaged snacks like Pirate's Booty or Snapeas...If you have a Trader Joe's there are so many healthy snacks without high sugar or junk in them.
 
 A look in Whole Foods or online on a discount site like Vitacost by punching in organic snacks or fruit juice sweetened snacks will come up with so many healthy snacks.
 
 I just found a product called Eden Wild Berry Mix -- discounted on Vitacost that is healthy and so good.. I found fruit juice sweetened coconut bars (a bit high in calories and fat) so I would have it infrequently.
 
 Feed the machine well and it will last.

NYCLawGirl · Jan 20, 2010

I agree that eating healthy is important.

Nightwriter, can you please post some support for your claim that sugar contributes to lung bleeds? I know the CFF is studying the use of sugar alcohol (mannitol) to actually decrease inflammation and other issues int he lungs.

Also, asthma is a disease, not just a reaction. People with COPD who experience inflammation or chronic bronchitis in the airways are not considered to have "asthma" -- so your statement about steroids/bronchodilators always meaning "asthma" is incorrect. Some of the inflammation in CFers (caused by chronic infections) is not considered to be reversible, whereas asthma is reversible inflammation with particular symptoms. (For more info, check out: <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asthma)">http://en.wikipedia.org/wiki/Asthma)</a> This certainly doesn't mean that people with CF shouldn't be aware of foods that can contribute to inflammation, but I think we should be careful about our terms. Also, please bear in mind that different asthmatics have different triggers, so it's not particularly helpful to make overgeneralized statements about those sorts of things.

Just my perspective. People with CF should consult with their doctors and nutritionists when making drastic changes to their diets.

NYCLawGirl · Jan 20, 2010

I agree that eating healthy is important.

Nightwriter, can you please post some support for your claim that sugar contributes to lung bleeds? I know the CFF is studying the use of sugar alcohol (mannitol) to actually decrease inflammation and other issues int he lungs.

Also, asthma is a disease, not just a reaction. People with COPD who experience inflammation or chronic bronchitis in the airways are not considered to have "asthma" -- so your statement about steroids/bronchodilators always meaning "asthma" is incorrect. Some of the inflammation in CFers (caused by chronic infections) is not considered to be reversible, whereas asthma is reversible inflammation with particular symptoms. (For more info, check out: <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asthma)">http://en.wikipedia.org/wiki/Asthma)</a> This certainly doesn't mean that people with CF shouldn't be aware of foods that can contribute to inflammation, but I think we should be careful about our terms. Also, please bear in mind that different asthmatics have different triggers, so it's not particularly helpful to make overgeneralized statements about those sorts of things.

Just my perspective. People with CF should consult with their doctors and nutritionists when making drastic changes to their diets.

NYCLawGirl · Jan 20, 2010

I agree that eating healthy is important.

Nightwriter, can you please post some support for your claim that sugar contributes to lung bleeds? I know the CFF is studying the use of sugar alcohol (mannitol) to actually decrease inflammation and other issues int he lungs.

Also, asthma is a disease, not just a reaction. People with COPD who experience inflammation or chronic bronchitis in the airways are not considered to have "asthma" -- so your statement about steroids/bronchodilators always meaning "asthma" is incorrect. Some of the inflammation in CFers (caused by chronic infections) is not considered to be reversible, whereas asthma is reversible inflammation with particular symptoms. (For more info, check out: <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asthma)">http://en.wikipedia.org/wiki/Asthma)</a> This certainly doesn't mean that people with CF shouldn't be aware of foods that can contribute to inflammation, but I think we should be careful about our terms. Also, please bear in mind that different asthmatics have different triggers, so it's not particularly helpful to make overgeneralized statements about those sorts of things.

Just my perspective. People with CF should consult with their doctors and nutritionists when making drastic changes to their diets.

NYCLawGirl · Jan 20, 2010

I agree that eating healthy is important.

Nightwriter, can you please post some support for your claim that sugar contributes to lung bleeds? I know the CFF is studying the use of sugar alcohol (mannitol) to actually decrease inflammation and other issues int he lungs.

Also, asthma is a disease, not just a reaction. People with COPD who experience inflammation or chronic bronchitis in the airways are not considered to have "asthma" -- so your statement about steroids/bronchodilators always meaning "asthma" is incorrect. Some of the inflammation in CFers (caused by chronic infections) is not considered to be reversible, whereas asthma is reversible inflammation with particular symptoms. (For more info, check out: <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asthma)">http://en.wikipedia.org/wiki/Asthma)</a> This certainly doesn't mean that people with CF shouldn't be aware of foods that can contribute to inflammation, but I think we should be careful about our terms. Also, please bear in mind that different asthmatics have different triggers, so it's not particularly helpful to make overgeneralized statements about those sorts of things.

Just my perspective. People with CF should consult with their doctors and nutritionists when making drastic changes to their diets.

NYCLawGirl · Jan 20, 2010

I agree that eating healthy is important.
 
 Nightwriter, can you please post some support for your claim that sugar contributes to lung bleeds? I know the CFF is studying the use of sugar alcohol (mannitol) to actually decrease inflammation and other issues int he lungs.
 
 Also, asthma is a disease, not just a reaction. People with COPD who experience inflammation or chronic bronchitis in the airways are not considered to have "asthma" -- so your statement about steroids/bronchodilators always meaning "asthma" is incorrect. Some of the inflammation in CFers (caused by chronic infections) is not considered to be reversible, whereas asthma is reversible inflammation with particular symptoms. (For more info, check out: <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asthma)">http://en.wikipedia.org/wiki/Asthma)</a> This certainly doesn't mean that people with CF shouldn't be aware of foods that can contribute to inflammation, but I think we should be careful about our terms. Also, please bear in mind that different asthmatics have different triggers, so it's not particularly helpful to make overgeneralized statements about those sorts of things.
 
 Just my perspective. People with CF should consult with their doctors and nutritionists when making drastic changes to their diets.

Exercise, and cystic fibrosis

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New member

New member

New member