Expecting a CF Child

Z

zeeannie

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MargaritaChic</b></i>

Genes alone do not predict clinical outcome. Siblings, who have the same CF genes (because they're siblings), have dramatically different clinical outcomes.



CF health, or lackthereof, depends on proactive medical treatment, environment, modifier genes (other genes that modify the way that CF genes are expressed), exercise, and compliance with medical therapy.



Early diagnosis is great because you can begin proactive care immediately.</end quote></div>

Marla puts it very well, and I strongly feel the need to support this idea. Don't try to predict what's going to happen. The first year of our daughter's life was tough, but at every turn, her health changed for the positive where if it went the other way we'd have a completely different life today. There was no way we could have known what would happen unless we just weren't doing what we could for her. Now, she's very healthy, relative to CF. She's a double DF508. Just do all the things necessary to keep your new baby healthy and don't try to second guess.
 
Z

zeeannie

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MargaritaChic</b></i>

Genes alone do not predict clinical outcome. Siblings, who have the same CF genes (because they're siblings), have dramatically different clinical outcomes.



CF health, or lackthereof, depends on proactive medical treatment, environment, modifier genes (other genes that modify the way that CF genes are expressed), exercise, and compliance with medical therapy.



Early diagnosis is great because you can begin proactive care immediately.</end quote></div>

Marla puts it very well, and I strongly feel the need to support this idea. Don't try to predict what's going to happen. The first year of our daughter's life was tough, but at every turn, her health changed for the positive where if it went the other way we'd have a completely different life today. There was no way we could have known what would happen unless we just weren't doing what we could for her. Now, she's very healthy, relative to CF. She's a double DF508. Just do all the things necessary to keep your new baby healthy and don't try to second guess.
 
Z

zeeannie

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MargaritaChic</b></i>

Genes alone do not predict clinical outcome. Siblings, who have the same CF genes (because they're siblings), have dramatically different clinical outcomes.



CF health, or lackthereof, depends on proactive medical treatment, environment, modifier genes (other genes that modify the way that CF genes are expressed), exercise, and compliance with medical therapy.



Early diagnosis is great because you can begin proactive care immediately.</end quote></div>

Marla puts it very well, and I strongly feel the need to support this idea. Don't try to predict what's going to happen. The first year of our daughter's life was tough, but at every turn, her health changed for the positive where if it went the other way we'd have a completely different life today. There was no way we could have known what would happen unless we just weren't doing what we could for her. Now, she's very healthy, relative to CF. She's a double DF508. Just do all the things necessary to keep your new baby healthy and don't try to second guess.
 
Z

zeeannie

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MargaritaChic</b></i>

Genes alone do not predict clinical outcome. Siblings, who have the same CF genes (because they're siblings), have dramatically different clinical outcomes.



CF health, or lackthereof, depends on proactive medical treatment, environment, modifier genes (other genes that modify the way that CF genes are expressed), exercise, and compliance with medical therapy.



Early diagnosis is great because you can begin proactive care immediately.</end quote>

Marla puts it very well, and I strongly feel the need to support this idea. Don't try to predict what's going to happen. The first year of our daughter's life was tough, but at every turn, her health changed for the positive where if it went the other way we'd have a completely different life today. There was no way we could have known what would happen unless we just weren't doing what we could for her. Now, she's very healthy, relative to CF. She's a double DF508. Just do all the things necessary to keep your new baby healthy and don't try to second guess.
 
Z

zeeannie

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MargaritaChic</b></i>
<br />
<br />Genes alone do not predict clinical outcome. Siblings, who have the same CF genes (because they're siblings), have dramatically different clinical outcomes.
<br />
<br />
<br />
<br />CF health, or lackthereof, depends on proactive medical treatment, environment, modifier genes (other genes that modify the way that CF genes are expressed), exercise, and compliance with medical therapy.
<br />
<br />
<br />
<br />Early diagnosis is great because you can begin proactive care immediately.</end quote>
<br />
<br />Marla puts it very well, and I strongly feel the need to support this idea. Don't try to predict what's going to happen. The first year of our daughter's life was tough, but at every turn, her health changed for the positive where if it went the other way we'd have a completely different life today. There was no way we could have known what would happen unless we just weren't doing what we could for her. Now, she's very healthy, relative to CF. She's a double DF508. Just do all the things necessary to keep your new baby healthy and don't try to second guess.
 

shoot4parr

New member
Our son was born with the same mutations he is now 5 wks old and I feel like I am sitting and waiting for things to fall apart. I was dealing with things until 2 days ago when his stool changed. Goodluck and please keep updating so I know they say every child and outcome is different but it helps.
 

shoot4parr

New member
Our son was born with the same mutations he is now 5 wks old and I feel like I am sitting and waiting for things to fall apart. I was dealing with things until 2 days ago when his stool changed. Goodluck and please keep updating so I know they say every child and outcome is different but it helps.
 

shoot4parr

New member
Our son was born with the same mutations he is now 5 wks old and I feel like I am sitting and waiting for things to fall apart. I was dealing with things until 2 days ago when his stool changed. Goodluck and please keep updating so I know they say every child and outcome is different but it helps.
 

shoot4parr

New member
Our son was born with the same mutations he is now 5 wks old and I feel like I am sitting and waiting for things to fall apart. I was dealing with things until 2 days ago when his stool changed. Goodluck and please keep updating so I know they say every child and outcome is different but it helps.
 

shoot4parr

New member
Our son was born with the same mutations he is now 5 wks old and I feel like I am sitting and waiting for things to fall apart. I was dealing with things until 2 days ago when his stool changed. Goodluck and please keep updating so I know they say every child and outcome is different but it helps.
 

jacket2230

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthcentral.com/ibd/news-260746-66.html">http://www.healthcentral.com/ibd/news-260746-66.html</a>

Someone mentioned this drug for the latest in treating CF and I wanted to add a link just in case someone wanted to read more about it.
 

jacket2230

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthcentral.com/ibd/news-260746-66.html">http://www.healthcentral.com/ibd/news-260746-66.html</a>

Someone mentioned this drug for the latest in treating CF and I wanted to add a link just in case someone wanted to read more about it.
 

jacket2230

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthcentral.com/ibd/news-260746-66.html">http://www.healthcentral.com/ibd/news-260746-66.html</a>

Someone mentioned this drug for the latest in treating CF and I wanted to add a link just in case someone wanted to read more about it.
 

jacket2230

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthcentral.com/ibd/news-260746-66.html">http://www.healthcentral.com/ibd/news-260746-66.html</a>

Someone mentioned this drug for the latest in treating CF and I wanted to add a link just in case someone wanted to read more about it.
 

jacket2230

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.healthcentral.com/ibd/news-260746-66.html">http://www.healthcentral.com/ibd/news-260746-66.html</a>
<br />
<br />Someone mentioned this drug for the latest in treating CF and I wanted to add a link just in case someone wanted to read more about it.
 
Top