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F508 MUTATION
- Thread starter anonymous
- Start date
Hi - Don't know if you'll get this, as I don't know how this all works. I don't know why you said Kendall was too young for the vest. My Bonnie-Rose got hers when she was 14 months old. It was a sanity saver! She and I were fighting every day about doing the cpt. I could hardly hold her down to do it and she screamed though most of it about half the time. She is 27 months old now and insists on putting on the vest herself and turning on the machine herself. My only problem now is that she doesn't want to shake fast, so changes the settings every chance she gets. Hope this helps - Marie
Hi - Don't know if you'll get this, as I don't know how this all works. I don't know why you said Kendall was too young for the vest. My Bonnie-Rose got hers when she was 14 months old. It was a sanity saver! She and I were fighting every day about doing the cpt. I could hardly hold her down to do it and she screamed though most of it about half the time. She is 27 months old now and insists on putting on the vest herself and turning on the machine herself. My only problem now is that she doesn't want to shake fast, so changes the settings every chance she gets. Hope this helps - Marie
Hi - Don't know if you'll get this, as I don't know how this all works. I don't know why you said Kendall was too young for the vest. My Bonnie-Rose got hers when she was 14 months old. It was a sanity saver! She and I were fighting every day about doing the cpt. I could hardly hold her down to do it and she screamed though most of it about half the time. She is 27 months old now and insists on putting on the vest herself and turning on the machine herself. My only problem now is that she doesn't want to shake fast, so changes the settings every chance she gets. Hope this helps - Marie
My son is 4 months old and was diag. at birth. He had meconium ileus, doulble barrell ileostony and feeding tube- Now, the reversal was done and he has no feeding tube. He is thriving well. He did have Pseudomonas- what did they say that means? Is it bad for his future health- since the dx- the tobi and cipro got rid of it and we have had 2 normal sputum cx...
My son is 4 months old and was diag. at birth. He had meconium ileus, doulble barrell ileostony and feeding tube- Now, the reversal was done and he has no feeding tube. He is thriving well. He did have Pseudomonas- what did they say that means? Is it bad for his future health- since the dx- the tobi and cipro got rid of it and we have had 2 normal sputum cx...
My son is 4 months old and was diag. at birth. He had meconium ileus, doulble barrell ileostony and feeding tube- Now, the reversal was done and he has no feeding tube. He is thriving well. He did have Pseudomonas- what did they say that means? Is it bad for his future health- since the dx- the tobi and cipro got rid of it and we have had 2 normal sputum cx...
My son is 4 months old and was diag. at birth. He had meconium ileus, doulble barrell ileostony and feeding tube- Now, the reversal was done and he has no feeding tube. He is thriving well. He did have Pseudomonas- what did they say that means? Is it bad for his future health- since the dx- the tobi and cipro got rid of it and we have had 2 normal sputum cx...
My son is 4 months old and was diag. at birth. He had meconium ileus, doulble barrell ileostony and feeding tube- Now, the reversal was done and he has no feeding tube. He is thriving well. He did have Pseudomonas- what did they say that means? Is it bad for his future health- since the dx- the tobi and cipro got rid of it and we have had 2 normal sputum cx...
My son is 4 months old and was diag. at birth. He had meconium ileus, doulble barrell ileostony and feeding tube- Now, the reversal was done and he has no feeding tube. He is thriving well. He did have Pseudomonas- what did they say that means? Is it bad for his future health- since the dx- the tobi and cipro got rid of it and we have had 2 normal sputum cx...
VanessaVillamar
New member
Vanessa:
Hi I have a 4 year old son dignosed with CF at 6 monts old he has delF508 & G551D mutations, I understand that those are the most common mutation. He's recieving a treatment that's consist's in nebulizations 3 times a day,pulmonar therapy, CREON 10 enzymes & ADEK's vitamins and whwn his very sick his Dr. gives him Ciprofloxacin (antibiotic), I want to know if there is another or better treatment or if that's it and if swmming helps his lungs to function better, if you can write me back I will appreciate it very much, my e-mail is vanessavillamar@hotmail.com thank you.
Hi I have a 4 year old son dignosed with CF at 6 monts old he has delF508 & G551D mutations, I understand that those are the most common mutation. He's recieving a treatment that's consist's in nebulizations 3 times a day,pulmonar therapy, CREON 10 enzymes & ADEK's vitamins and whwn his very sick his Dr. gives him Ciprofloxacin (antibiotic), I want to know if there is another or better treatment or if that's it and if swmming helps his lungs to function better, if you can write me back I will appreciate it very much, my e-mail is vanessavillamar@hotmail.com thank you.