I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
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Family history discovered?
- Thread starter ktsmom
- Start date
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
I hope you have better luck at getting your family members to understand the way that genetics work. My granddaughter was born in 2005 and was diagnosed while my daughter was pregnant and I guess like you I wondered where it came from since neither side of the family had a history. I also had my son tested to find out if he also was a carrier at which he was and so the curiosity went further to see which side of the family it came from so I was tested and it wasn't me so we knew it came from my husband so of course he was tested just to verify it and we have stressed to his family which he comes from a big family he is the youngest of 9 and to this day not one family member has been tested to see if they could be carriers and possibly passed the gene to their children which are all having kids of their own not knowing that they could posssibly be passing this gene to their grandchildren. This disease may not ever show up again in this family but if it does we tried to get them to understand it but they wouldn't listen. We just had our great strides walk 2 weeks ago and we even went as far as to send letters to cousins and family members that we haven't met before to let them know that this disease could possibly show up in the family or maybe it has and since we haven't met alot of them maybe it has been in the family before and we just didn't know it. My SIL was even doing a family history book for my husbands side of the family and didn't feel it was necessary to add about my granddaughters CF in the family medical history because it never been heard of before it must be something that will only affect my family so I just hope for their sake that in years to come this disease doesn't make its appearance again. Sorry this comment is so long but when i get on this subject of families I could go on forever.
my family is "set in their ways" and grandma is still convienced that her side of the family has no "bad genes" we finally gave up trying to tell her that it had to come from both sides of the family, i think most of my parents generation and down have at least concidered being tested and a few generations ago there was a set of twins that one died shortly after birth of an unkown cause and the other lived to be about 45 but everyone attributed her lung problems to smoking like a chimeny (spelled wrong) and she was always skinny so of course there is the possibility but both my grandparents from that side of the family have passed on so there isn't any good way of finding out. i think the testing is benificial but you jsut got to convence people
my family is "set in their ways" and grandma is still convienced that her side of the family has no "bad genes" we finally gave up trying to tell her that it had to come from both sides of the family, i think most of my parents generation and down have at least concidered being tested and a few generations ago there was a set of twins that one died shortly after birth of an unkown cause and the other lived to be about 45 but everyone attributed her lung problems to smoking like a chimeny (spelled wrong) and she was always skinny so of course there is the possibility but both my grandparents from that side of the family have passed on so there isn't any good way of finding out. i think the testing is benificial but you jsut got to convence people
my family is "set in their ways" and grandma is still convienced that her side of the family has no "bad genes" we finally gave up trying to tell her that it had to come from both sides of the family, i think most of my parents generation and down have at least concidered being tested and a few generations ago there was a set of twins that one died shortly after birth of an unkown cause and the other lived to be about 45 but everyone attributed her lung problems to smoking like a chimeny (spelled wrong) and she was always skinny so of course there is the possibility but both my grandparents from that side of the family have passed on so there isn't any good way of finding out. i think the testing is benificial but you jsut got to convence people
my family is "set in their ways" and grandma is still convienced that her side of the family has no "bad genes" we finally gave up trying to tell her that it had to come from both sides of the family, i think most of my parents generation and down have at least concidered being tested and a few generations ago there was a set of twins that one died shortly after birth of an unkown cause and the other lived to be about 45 but everyone attributed her lung problems to smoking like a chimeny (spelled wrong) and she was always skinny so of course there is the possibility but both my grandparents from that side of the family have passed on so there isn't any good way of finding out. i think the testing is benificial but you jsut got to convence people
my family is "set in their ways" and grandma is still convienced that her side of the family has no "bad genes" we finally gave up trying to tell her that it had to come from both sides of the family, i think most of my parents generation and down have at least concidered being tested and a few generations ago there was a set of twins that one died shortly after birth of an unkown cause and the other lived to be about 45 but everyone attributed her lung problems to smoking like a chimeny (spelled wrong) and she was always skinny so of course there is the possibility but both my grandparents from that side of the family have passed on so there isn't any good way of finding out. i think the testing is benificial but you jsut got to convence people
my family is "set in their ways" and grandma is still convienced that her side of the family has no "bad genes" we finally gave up trying to tell her that it had to come from both sides of the family, i think most of my parents generation and down have at least concidered being tested and a few generations ago there was a set of twins that one died shortly after birth of an unkown cause and the other lived to be about 45 but everyone attributed her lung problems to smoking like a chimeny (spelled wrong) and she was always skinny so of course there is the possibility but both my grandparents from that side of the family have passed on so there isn't any good way of finding out. i think the testing is benificial but you jsut got to convence people
My MIL is sure it's on my FIL's side of the family, my mother is sure it comes from her side. When DS was first diagnosed we reviewed family histories to see if there were any young deaths. My great uncle has a geneology that goes back to the 1300s in Holland -- Most of those people lived to be in their 80s. Other family histories goe back to the 1800s and there was supposedly only one young death -- my mom's brother was stillborn; however, my dad mentioned this past week that he just found out that HE had two or three uncles/aunts who died in infancy.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.
My MIL is sure it's on my FIL's side of the family, my mother is sure it comes from her side. When DS was first diagnosed we reviewed family histories to see if there were any young deaths. My great uncle has a geneology that goes back to the 1300s in Holland -- Most of those people lived to be in their 80s. Other family histories goe back to the 1800s and there was supposedly only one young death -- my mom's brother was stillborn; however, my dad mentioned this past week that he just found out that HE had two or three uncles/aunts who died in infancy.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.
My MIL is sure it's on my FIL's side of the family, my mother is sure it comes from her side. When DS was first diagnosed we reviewed family histories to see if there were any young deaths. My great uncle has a geneology that goes back to the 1300s in Holland -- Most of those people lived to be in their 80s. Other family histories goe back to the 1800s and there was supposedly only one young death -- my mom's brother was stillborn; however, my dad mentioned this past week that he just found out that HE had two or three uncles/aunts who died in infancy.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.
My MIL is sure it's on my FIL's side of the family, my mother is sure it comes from her side. When DS was first diagnosed we reviewed family histories to see if there were any young deaths. My great uncle has a geneology that goes back to the 1300s in Holland -- Most of those people lived to be in their 80s. Other family histories goe back to the 1800s and there was supposedly only one young death -- my mom's brother was stillborn; however, my dad mentioned this past week that he just found out that HE had two or three uncles/aunts who died in infancy.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.
Oh well, we NOW know about CF and the possibility and several relatives are pursuing testing before they have children.