Family history of CF

C

cysticfibrosisgirl

New member
a little boy on my moms side died from Cystic fibrosis here in MN before the doctors could do anything for him. So there is CF in our family. I have CF but the docs can not find what genes I have for My CF yet. They say that new genes are found allot and they may be able to find my genes some day.

Also my sweat test was normal 30 I think? but my stool test was not normal and my chest x-rays are not noraml too. I have low PFT's so that how I got my Dx of CF. I was tested for everything eles under the sun and nothing came up by CF.

So thats my story I just glad that the treatments I have in and out of the hospital have helped me so well..
And I thank god for Pulozyme!
 
C

cysticfibrosisgirl

New member
a little boy on my moms side died from Cystic fibrosis here in MN before the doctors could do anything for him. So there is CF in our family. I have CF but the docs can not find what genes I have for My CF yet. They say that new genes are found allot and they may be able to find my genes some day.

Also my sweat test was normal 30 I think? but my stool test was not normal and my chest x-rays are not noraml too. I have low PFT's so that how I got my Dx of CF. I was tested for everything eles under the sun and nothing came up by CF.

So thats my story I just glad that the treatments I have in and out of the hospital have helped me so well..
And I thank god for Pulozyme!
 
C

cysticfibrosisgirl

New member
a little boy on my moms side died from Cystic fibrosis here in MN before the doctors could do anything for him. So there is CF in our family. I have CF but the docs can not find what genes I have for My CF yet. They say that new genes are found allot and they may be able to find my genes some day.

Also my sweat test was normal 30 I think? but my stool test was not normal and my chest x-rays are not noraml too. I have low PFT's so that how I got my Dx of CF. I was tested for everything eles under the sun and nothing came up by CF.

So thats my story I just glad that the treatments I have in and out of the hospital have helped me so well..
And I thank god for Pulozyme!
 
C

cysticfibrosisgirl

New member
a little boy on my moms side died from Cystic fibrosis here in MN before the doctors could do anything for him. So there is CF in our family. I have CF but the docs can not find what genes I have for My CF yet. They say that new genes are found allot and they may be able to find my genes some day.

Also my sweat test was normal 30 I think? but my stool test was not normal and my chest x-rays are not noraml too. I have low PFT's so that how I got my Dx of CF. I was tested for everything eles under the sun and nothing came up by CF.

So thats my story I just glad that the treatments I have in and out of the hospital have helped me so well..
And I thank god for Pulozyme!
 
C

cysticfibrosisgirl

New member
a little boy on my moms side died from Cystic fibrosis here in MN before the doctors could do anything for him. So there is CF in our family. I have CF but the docs can not find what genes I have for My CF yet. They say that new genes are found allot and they may be able to find my genes some day.

Also my sweat test was normal 30 I think? but my stool test was not normal and my chest x-rays are not noraml too. I have low PFT's so that how I got my Dx of CF. I was tested for everything eles under the sun and nothing came up by CF.

So thats my story I just glad that the treatments I have in and out of the hospital have helped me so well..
And I thank god for Pulozyme!
 
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