Feeding Tube

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anonymous

New member
For those with feeding tubes, at what point did you decide a feeding tube was needed. Or what made you decide a feeding tube would be best?

Thanks
Just Curious
 
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Allie

New member
We decided to get one for Ry when his weight kept dropping despite our best efforts. and he hated it, hated using it , blah blah, but it helped him keep some weight on longer. And then he didn't need to push himself to eat a truck full of food.
 
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Starfall99

New member
I've always had appetite issues, so eating enough and maintaining my weight was always difficult. For several years I just kept losing and losing, finally when I went in for a tune up and was down to 93 lbs (I'm 5'3") I decided I'd had enough. It was the BEST decision ever! 4 years later I'm at around 125 lbs (maybe even a little more!), and though I still have trouble eating properly it takes so much pressure off me to knowI have the tube to rely on. My lung function has also improved along with my nutrition.

I got a PEG, because I have a very strong gag reflex and didn't think I could handle a nasal tube; at first I regretted it because the recovery was horribly painful, once it healed though I was SO glad because it's really pretty easy to take care of. I got a button, it's little and not even noticable as long as I'm not wearing anything too tight around my belly, and mine healed up beauftifully so I rarely have any irritation around the site. Most of the time I don't even notice it... though I've developed a bad habit of playing with it when I'm not paying attention. <img src="i/expressions/face-icon-small-blush.gif" border="0">
 
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anonymous

New member
The Dr.'s decided that I needed to do tube feeds. NOT ME! I have been doing them since I was 9 yrs ols and I am 24 now so a long time. They had said I was only going to have to do them until I gained 10lbs. Once I did they decided that they were going to keep me on them. To this day I am doing tube feeds willingly because even when I miss a day I loose those calories and I need them or my weight goes down.
Sincerely,
Amanda 24 w CF
 
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