Fev1 not responding

B

Busbie

New member
Hi,

I have been on Cipro for two weeks then I was put on home IV'S for three weeks and my Fev's have not come back to baseline. They are talking about admitting me to Hospital. Has anybody ever experienced this before??? By the way my culture grows two types of pseudo which is sensitive to my IV's of Tobi and Fort.

Help.......
 
B

Busbie

New member
Hi,

I have been on Cipro for two weeks then I was put on home IV'S for three weeks and my Fev's have not come back to baseline. They are talking about admitting me to Hospital. Has anybody ever experienced this before??? By the way my culture grows two types of pseudo which is sensitive to my IV's of Tobi and Fort.

Help.......
 
B

Busbie

New member
Hi,

I have been on Cipro for two weeks then I was put on home IV'S for three weeks and my Fev's have not come back to baseline. They are talking about admitting me to Hospital. Has anybody ever experienced this before??? By the way my culture grows two types of pseudo which is sensitive to my IV's of Tobi and Fort.

Help.......
 
J

JazzysMom

New member
I had this in early 2005. I was so bad tho. My airways were clamped quite tight. The were pumping with antibiotics, fluids, prednisone and given me around the clock albeuterol treatments. It took about 3 weeks of ALL of that and numerous CPT daily for me to start feeling somewhat myself and monthswith home care for me to get close to where my fev was. Have you tried exercising? What is your O2 sat?
 
J

JazzysMom

New member
I had this in early 2005. I was so bad tho. My airways were clamped quite tight. The were pumping with antibiotics, fluids, prednisone and given me around the clock albeuterol treatments. It took about 3 weeks of ALL of that and numerous CPT daily for me to start feeling somewhat myself and monthswith home care for me to get close to where my fev was. Have you tried exercising? What is your O2 sat?
 
J

JazzysMom

New member
I had this in early 2005. I was so bad tho. My airways were clamped quite tight. The were pumping with antibiotics, fluids, prednisone and given me around the clock albeuterol treatments. It took about 3 weeks of ALL of that and numerous CPT daily for me to start feeling somewhat myself and monthswith home care for me to get close to where my fev was. Have you tried exercising? What is your O2 sat?
 
B

Busbie

New member
Thanks for responding.

I don't know what my Oxygen saturation is because they haven't taken them, but I feel quite well apart from a bit breathless. Could it be astma like symptoms or have I just lost the lung function. I had a lung function of 44% but I am curently at 31%.
 
B

Busbie

New member
Thanks for responding.

I don't know what my Oxygen saturation is because they haven't taken them, but I feel quite well apart from a bit breathless. Could it be astma like symptoms or have I just lost the lung function. I had a lung function of 44% but I am curently at 31%.
 
B

Busbie

New member
Thanks for responding.

I don't know what my Oxygen saturation is because they haven't taken them, but I feel quite well apart from a bit breathless. Could it be astma like symptoms or have I just lost the lung function. I had a lung function of 44% but I am curently at 31%.
 
C

cf4life

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Sometimes lung function doesn't return...that's why people die of this disease.</end quote></div>

ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not lost in the short term.

All hope is not lost when you have a drop and they don't bounce back immediately. After 5 weeks of IV's you may be pretty deconditioned. Also all the inflammation from you infection may not have gone done. Get into an exercise routine and stick to it for a month or two and then try your pfts again. Antibiotics can only help so much after awhile and you need to put in more effort to bounce back. With some hard work, exercise, diet, med compliance, you might be surprised to see some lung function come back, especially after 5 week battle.
 
C

cf4life

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Sometimes lung function doesn't return...that's why people die of this disease.</end quote></div>

ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not lost in the short term.

All hope is not lost when you have a drop and they don't bounce back immediately. After 5 weeks of IV's you may be pretty deconditioned. Also all the inflammation from you infection may not have gone done. Get into an exercise routine and stick to it for a month or two and then try your pfts again. Antibiotics can only help so much after awhile and you need to put in more effort to bounce back. With some hard work, exercise, diet, med compliance, you might be surprised to see some lung function come back, especially after 5 week battle.
 
C

cf4life

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

Sometimes lung function doesn't return...that's why people die of this disease.</end quote></div>

ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not lost in the short term.

All hope is not lost when you have a drop and they don't bounce back immediately. After 5 weeks of IV's you may be pretty deconditioned. Also all the inflammation from you infection may not have gone done. Get into an exercise routine and stick to it for a month or two and then try your pfts again. Antibiotics can only help so much after awhile and you need to put in more effort to bounce back. With some hard work, exercise, diet, med compliance, you might be surprised to see some lung function come back, especially after 5 week battle.
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cf4life</b></i>



ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not lost in the short term.



All hope is not lost when you have a drop and they don't bounce back immediately. After 5 weeks of IV's you may be pretty deconditioned. Also all the inflammation from you infection may not have gone done. Get into an exercise routine and stick to it for a month or two and then try your pfts again. Antibiotics can only help so much after awhile and you need to put in more effort to bounce back. With some hard work, exercise, diet, med compliance, you might be surprised to see some lung function come back, especially after 5 week battle.</end quote></div>

Ouch, I think you're giving false hope.

If CF was that simple, no one would die of this disease. We all would live normal life expectancy and never have declines in lung function.

I don't think your post was very helpful either! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cf4life</b></i>



ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not lost in the short term.



All hope is not lost when you have a drop and they don't bounce back immediately. After 5 weeks of IV's you may be pretty deconditioned. Also all the inflammation from you infection may not have gone done. Get into an exercise routine and stick to it for a month or two and then try your pfts again. Antibiotics can only help so much after awhile and you need to put in more effort to bounce back. With some hard work, exercise, diet, med compliance, you might be surprised to see some lung function come back, especially after 5 week battle.</end quote></div>

Ouch, I think you're giving false hope.

If CF was that simple, no one would die of this disease. We all would live normal life expectancy and never have declines in lung function.

I don't think your post was very helpful either! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cf4life</b></i>



ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not lost in the short term.



All hope is not lost when you have a drop and they don't bounce back immediately. After 5 weeks of IV's you may be pretty deconditioned. Also all the inflammation from you infection may not have gone done. Get into an exercise routine and stick to it for a month or two and then try your pfts again. Antibiotics can only help so much after awhile and you need to put in more effort to bounce back. With some hard work, exercise, diet, med compliance, you might be surprised to see some lung function come back, especially after 5 week battle.</end quote></div>

Ouch, I think you're giving false hope.

If CF was that simple, no one would die of this disease. We all would live normal life expectancy and never have declines in lung function.

I don't think your post was very helpful either! <img src="i/expressions/face-icon-small-disgusted.gif" border="0">
 
T

TIN

Guest
long time lurker here. first post, though... so please bare with me:

are there other "success" stories like jazzy's mom shared, where people HAVE been able to improve their fev1 -- even if it took quite a while?

if so, please share.

btw... on the idea of hope: one can't really say anything about hope being 'true' or 'false' in terms of pfts coming back up or staying at a new, lower level. no one knows another's full case history/circumstances. Until your doctor tells you you've reached a new baseline, i think there's always room for hope! And even then, it <i>may </i>be possible to surpass expectations. I think a doctor would love to be "wrong" in that direction.
 
T

TIN

Guest
long time lurker here. first post, though... so please bare with me:

are there other "success" stories like jazzy's mom shared, where people HAVE been able to improve their fev1 -- even if it took quite a while?

if so, please share.

btw... on the idea of hope: one can't really say anything about hope being 'true' or 'false' in terms of pfts coming back up or staying at a new, lower level. no one knows another's full case history/circumstances. Until your doctor tells you you've reached a new baseline, i think there's always room for hope! And even then, it <i>may </i>be possible to surpass expectations. I think a doctor would love to be "wrong" in that direction.
 
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