FEV1 Validity

[Skye]

funny....i was just thinking about posting something similar to this. i have what is considered a "not so great" FEV1 and yet my life is very normal. I don't feel much different than I did 10 years or so ago. I do admit that I have to be a lot more dilligant and on top of things though. That is about the only difference. I do think asthma is a big component as well as some of the inhaled antibiotics and meds we are on. My lungs are sensitive to them. I have stayed off of Tobi for abot 8 weeks now and my lung function actually went up.

That all being said....I think it is very convenient for all of us to think of reasons to not follow docs advice and not get evaluated. I was evaluated a couple of years ago for a tx. They said I am way too healthy...i have had all the testing done now....it is out of my head.....i see them once a year now.....i am glad i did it. You don't want to be in a position of being very sick and trying to connect with a center. That would be too hard. Empower yourself, take control, and take the steps your docs recommend. You are in control and it will bring you some peace of mind. If you don't need one for years, that would be great and you will have lost nothing by talking to a tx center<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs to you and congrats on the running....I think that is fantastic!

Karen

 

[Skye]

funny....i was just thinking about posting something similar to this. i have what is considered a "not so great" FEV1 and yet my life is very normal. I don't feel much different than I did 10 years or so ago. I do admit that I have to be a lot more dilligant and on top of things though. That is about the only difference. I do think asthma is a big component as well as some of the inhaled antibiotics and meds we are on. My lungs are sensitive to them. I have stayed off of Tobi for abot 8 weeks now and my lung function actually went up.

That all being said....I think it is very convenient for all of us to think of reasons to not follow docs advice and not get evaluated. I was evaluated a couple of years ago for a tx. They said I am way too healthy...i have had all the testing done now....it is out of my head.....i see them once a year now.....i am glad i did it. You don't want to be in a position of being very sick and trying to connect with a center. That would be too hard. Empower yourself, take control, and take the steps your docs recommend. You are in control and it will bring you some peace of mind. If you don't need one for years, that would be great and you will have lost nothing by talking to a tx center<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs to you and congrats on the running....I think that is fantastic!

Karen

 

[Skye]

funny....i was just thinking about posting something similar to this. i have what is considered a "not so great" FEV1 and yet my life is very normal. I don't feel much different than I did 10 years or so ago. I do admit that I have to be a lot more dilligant and on top of things though. That is about the only difference. I do think asthma is a big component as well as some of the inhaled antibiotics and meds we are on. My lungs are sensitive to them. I have stayed off of Tobi for abot 8 weeks now and my lung function actually went up.

That all being said....I think it is very convenient for all of us to think of reasons to not follow docs advice and not get evaluated. I was evaluated a couple of years ago for a tx. They said I am way too healthy...i have had all the testing done now....it is out of my head.....i see them once a year now.....i am glad i did it. You don't want to be in a position of being very sick and trying to connect with a center. That would be too hard. Empower yourself, take control, and take the steps your docs recommend. You are in control and it will bring you some peace of mind. If you don't need one for years, that would be great and you will have lost nothing by talking to a tx center<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs to you and congrats on the running....I think that is fantastic!

Karen

 

[Skye]

funny....i was just thinking about posting something similar to this. i have what is considered a "not so great" FEV1 and yet my life is very normal. I don't feel much different than I did 10 years or so ago. I do admit that I have to be a lot more dilligant and on top of things though. That is about the only difference. I do think asthma is a big component as well as some of the inhaled antibiotics and meds we are on. My lungs are sensitive to them. I have stayed off of Tobi for abot 8 weeks now and my lung function actually went up.

That all being said....I think it is very convenient for all of us to think of reasons to not follow docs advice and not get evaluated. I was evaluated a couple of years ago for a tx. They said I am way too healthy...i have had all the testing done now....it is out of my head.....i see them once a year now.....i am glad i did it. You don't want to be in a position of being very sick and trying to connect with a center. That would be too hard. Empower yourself, take control, and take the steps your docs recommend. You are in control and it will bring you some peace of mind. If you don't need one for years, that would be great and you will have lost nothing by talking to a tx center<img src="i/expressions/face-icon-small-smile.gif" border="0">

Hugs to you and congrats on the running....I think that is fantastic!

Karen

 

[Skye]

funny....i was just thinking about posting something similar to this. i have what is considered a "not so great" FEV1 and yet my life is very normal. I don't feel much different than I did 10 years or so ago. I do admit that I have to be a lot more dilligant and on top of things though. That is about the only difference. I do think asthma is a big component as well as some of the inhaled antibiotics and meds we are on. My lungs are sensitive to them. I have stayed off of Tobi for abot 8 weeks now and my lung function actually went up.
<br />
<br />That all being said....I think it is very convenient for all of us to think of reasons to not follow docs advice and not get evaluated. I was evaluated a couple of years ago for a tx. They said I am way too healthy...i have had all the testing done now....it is out of my head.....i see them once a year now.....i am glad i did it. You don't want to be in a position of being very sick and trying to connect with a center. That would be too hard. Empower yourself, take control, and take the steps your docs recommend. You are in control and it will bring you some peace of mind. If you don't need one for years, that would be great and you will have lost nothing by talking to a tx center<img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Hugs to you and congrats on the running....I think that is fantastic!
<br />
<br />Karen

 

[cfsucks]

i am also interested in this topic as well.

 

[cfsucks]

i am also interested in this topic as well.

 

[cfsucks]

i am also interested in this topic as well.

 

[cfsucks]

i am also interested in this topic as well.

 

[cfsucks]

i am also interested in this topic as well.

 

[DanaInSeattle]

Interesting...my fev1 is relatively good (80% +) yet I suck at running. I haven't been training very long, though. Still, it's interesting to hear that there's a lot more to it than just how well you move air.

 

[DanaInSeattle]

Interesting...my fev1 is relatively good (80% +) yet I suck at running. I haven't been training very long, though. Still, it's interesting to hear that there's a lot more to it than just how well you move air.

 

[DanaInSeattle]

Interesting...my fev1 is relatively good (80% +) yet I suck at running. I haven't been training very long, though. Still, it's interesting to hear that there's a lot more to it than just how well you move air.

 

[DanaInSeattle]

Interesting...my fev1 is relatively good (80% +) yet I suck at running. I haven't been training very long, though. Still, it's interesting to hear that there's a lot more to it than just how well you move air.

 

[DanaInSeattle]

Interesting...my fev1 is relatively good (80% +) yet I suck at running. I haven't been training very long, though. Still, it's interesting to hear that there's a lot more to it than just how well you move air.

 

[Nightwriter]

Lex,

Even though people acclimate to their declining lung functions, I am amazed that you can do sprints. When my FEV1 was 32%, I could barely walk around my house. So you sprinting is impressive.

I am hardly an expert, but when I started treating the asthma component to my C.F. (11 years ago) -- instead of my FEV1 going down, as it steadiliy had --it started going back up. So in my case, I learned that when I took protective measures for asthma, my health changed drastically.

I don't know how much improvement you can get (if at all) but I don't think anybody can argue with the fact that asthma is treatable. So why not try? But it takes some lifestyle changes that you may not want to do or may not believe will work. I didn't know whether I could be helped, but I was willing to do everything my doctor asked.

We all know that being compliant with treatments is essential. But I also know from experience that it is very frustrating to be compliant and watch PFT's go down, or be on antibiotics for weeks and still feel bad. I have learned that things in the environment at home, outdoors and work were making me sick.

Let me give you a recent example. Last week, I went to an outdoor concert. Way on the other side of the park was a lot of smoke from a big barbecue. Later, when the barbeque was over, I went walking where for hours the smoke had been (obviously still hanging in the air). Two days laster, I had congestion, my chest was aching, SOB, and my doctor said my lungs were making a whistling noise that hasn't been there in years. I was unable to workout the whole week. So in other words, if my house or job is contributing to my asthma, and the inflamation in my body is high -- I'm going to be sick all the time. See what I'm saying?

So about your PFT's -- I have some questions: I was wondering if you had complete PFT's and what do the doctors say about your other lung functions? Is that 25% before or after bronchodiators. Did they test you before and after using bronchodialors? If they do... after a bronchodialator, do your numbers go up at all? When you run and can breath well, do you use a bronchodialotor before your run? When you are tested for FEV1, has anyone ever commented on your technique. They always tell me I'm not doing it right.

I think your questions about how asthma figures into the health of your lungs are really imortant. And even if you decide to pursue a transplant, why not make sure you are getting the most from the lungs you have in the meantime? You already know you have asthma. You know that means your airways are inflamed and swollen. So if your asthma was better controlled, would your PFT's go up? A question for your doctor. And maybe you should consult an allergist too. It takes detective work to see what triggers your asthma. Could be chemical sensitivities too.

I found a website that actually lists some of the things you must change if you want to address your asthma:

Google CMHC-SCHL, then under search, put in "Fighting Asthma in Your House."

This is just a start. There's so much more and I'm sure you can get good advice from other people on this site too who have gotten some great results by making lifestyle changes too.

Hope this helps.

 

[Nightwriter]

Lex,

Even though people acclimate to their declining lung functions, I am amazed that you can do sprints. When my FEV1 was 32%, I could barely walk around my house. So you sprinting is impressive.

I am hardly an expert, but when I started treating the asthma component to my C.F. (11 years ago) -- instead of my FEV1 going down, as it steadiliy had --it started going back up. So in my case, I learned that when I took protective measures for asthma, my health changed drastically.

I don't know how much improvement you can get (if at all) but I don't think anybody can argue with the fact that asthma is treatable. So why not try? But it takes some lifestyle changes that you may not want to do or may not believe will work. I didn't know whether I could be helped, but I was willing to do everything my doctor asked.

We all know that being compliant with treatments is essential. But I also know from experience that it is very frustrating to be compliant and watch PFT's go down, or be on antibiotics for weeks and still feel bad. I have learned that things in the environment at home, outdoors and work were making me sick.

Let me give you a recent example. Last week, I went to an outdoor concert. Way on the other side of the park was a lot of smoke from a big barbecue. Later, when the barbeque was over, I went walking where for hours the smoke had been (obviously still hanging in the air). Two days laster, I had congestion, my chest was aching, SOB, and my doctor said my lungs were making a whistling noise that hasn't been there in years. I was unable to workout the whole week. So in other words, if my house or job is contributing to my asthma, and the inflamation in my body is high -- I'm going to be sick all the time. See what I'm saying?

So about your PFT's -- I have some questions: I was wondering if you had complete PFT's and what do the doctors say about your other lung functions? Is that 25% before or after bronchodiators. Did they test you before and after using bronchodialors? If they do... after a bronchodialator, do your numbers go up at all? When you run and can breath well, do you use a bronchodialotor before your run? When you are tested for FEV1, has anyone ever commented on your technique. They always tell me I'm not doing it right.

I think your questions about how asthma figures into the health of your lungs are really imortant. And even if you decide to pursue a transplant, why not make sure you are getting the most from the lungs you have in the meantime? You already know you have asthma. You know that means your airways are inflamed and swollen. So if your asthma was better controlled, would your PFT's go up? A question for your doctor. And maybe you should consult an allergist too. It takes detective work to see what triggers your asthma. Could be chemical sensitivities too.

I found a website that actually lists some of the things you must change if you want to address your asthma:

Google CMHC-SCHL, then under search, put in "Fighting Asthma in Your House."

This is just a start. There's so much more and I'm sure you can get good advice from other people on this site too who have gotten some great results by making lifestyle changes too.

Hope this helps.

 

[Nightwriter]

Lex,

Even though people acclimate to their declining lung functions, I am amazed that you can do sprints. When my FEV1 was 32%, I could barely walk around my house. So you sprinting is impressive.

I am hardly an expert, but when I started treating the asthma component to my C.F. (11 years ago) -- instead of my FEV1 going down, as it steadiliy had --it started going back up. So in my case, I learned that when I took protective measures for asthma, my health changed drastically.

I don't know how much improvement you can get (if at all) but I don't think anybody can argue with the fact that asthma is treatable. So why not try? But it takes some lifestyle changes that you may not want to do or may not believe will work. I didn't know whether I could be helped, but I was willing to do everything my doctor asked.

We all know that being compliant with treatments is essential. But I also know from experience that it is very frustrating to be compliant and watch PFT's go down, or be on antibiotics for weeks and still feel bad. I have learned that things in the environment at home, outdoors and work were making me sick.

Let me give you a recent example. Last week, I went to an outdoor concert. Way on the other side of the park was a lot of smoke from a big barbecue. Later, when the barbeque was over, I went walking where for hours the smoke had been (obviously still hanging in the air). Two days laster, I had congestion, my chest was aching, SOB, and my doctor said my lungs were making a whistling noise that hasn't been there in years. I was unable to workout the whole week. So in other words, if my house or job is contributing to my asthma, and the inflamation in my body is high -- I'm going to be sick all the time. See what I'm saying?

So about your PFT's -- I have some questions: I was wondering if you had complete PFT's and what do the doctors say about your other lung functions? Is that 25% before or after bronchodiators. Did they test you before and after using bronchodialors? If they do... after a bronchodialator, do your numbers go up at all? When you run and can breath well, do you use a bronchodialotor before your run? When you are tested for FEV1, has anyone ever commented on your technique. They always tell me I'm not doing it right.

I think your questions about how asthma figures into the health of your lungs are really imortant. And even if you decide to pursue a transplant, why not make sure you are getting the most from the lungs you have in the meantime? You already know you have asthma. You know that means your airways are inflamed and swollen. So if your asthma was better controlled, would your PFT's go up? A question for your doctor. And maybe you should consult an allergist too. It takes detective work to see what triggers your asthma. Could be chemical sensitivities too.

I found a website that actually lists some of the things you must change if you want to address your asthma:

Google CMHC-SCHL, then under search, put in "Fighting Asthma in Your House."

This is just a start. There's so much more and I'm sure you can get good advice from other people on this site too who have gotten some great results by making lifestyle changes too.

Hope this helps.

 

[Nightwriter]

Lex,

Even though people acclimate to their declining lung functions, I am amazed that you can do sprints. When my FEV1 was 32%, I could barely walk around my house. So you sprinting is impressive.

I am hardly an expert, but when I started treating the asthma component to my C.F. (11 years ago) -- instead of my FEV1 going down, as it steadiliy had --it started going back up. So in my case, I learned that when I took protective measures for asthma, my health changed drastically.

I don't know how much improvement you can get (if at all) but I don't think anybody can argue with the fact that asthma is treatable. So why not try? But it takes some lifestyle changes that you may not want to do or may not believe will work. I didn't know whether I could be helped, but I was willing to do everything my doctor asked.

We all know that being compliant with treatments is essential. But I also know from experience that it is very frustrating to be compliant and watch PFT's go down, or be on antibiotics for weeks and still feel bad. I have learned that things in the environment at home, outdoors and work were making me sick.

Let me give you a recent example. Last week, I went to an outdoor concert. Way on the other side of the park was a lot of smoke from a big barbecue. Later, when the barbeque was over, I went walking where for hours the smoke had been (obviously still hanging in the air). Two days laster, I had congestion, my chest was aching, SOB, and my doctor said my lungs were making a whistling noise that hasn't been there in years. I was unable to workout the whole week. So in other words, if my house or job is contributing to my asthma, and the inflamation in my body is high -- I'm going to be sick all the time. See what I'm saying?

So about your PFT's -- I have some questions: I was wondering if you had complete PFT's and what do the doctors say about your other lung functions? Is that 25% before or after bronchodiators. Did they test you before and after using bronchodialors? If they do... after a bronchodialator, do your numbers go up at all? When you run and can breath well, do you use a bronchodialotor before your run? When you are tested for FEV1, has anyone ever commented on your technique. They always tell me I'm not doing it right.

I think your questions about how asthma figures into the health of your lungs are really imortant. And even if you decide to pursue a transplant, why not make sure you are getting the most from the lungs you have in the meantime? You already know you have asthma. You know that means your airways are inflamed and swollen. So if your asthma was better controlled, would your PFT's go up? A question for your doctor. And maybe you should consult an allergist too. It takes detective work to see what triggers your asthma. Could be chemical sensitivities too.

I found a website that actually lists some of the things you must change if you want to address your asthma:

Google CMHC-SCHL, then under search, put in "Fighting Asthma in Your House."

This is just a start. There's so much more and I'm sure you can get good advice from other people on this site too who have gotten some great results by making lifestyle changes too.

Hope this helps.

 

[Nightwriter]

Lex,
<br />
<br />Even though people acclimate to their declining lung functions, I am amazed that you can do sprints. When my FEV1 was 32%, I could barely walk around my house. So you sprinting is impressive.
<br />
<br />I am hardly an expert, but when I started treating the asthma component to my C.F. (11 years ago) -- instead of my FEV1 going down, as it steadiliy had --it started going back up. So in my case, I learned that when I took protective measures for asthma, my health changed drastically.
<br />
<br />I don't know how much improvement you can get (if at all) but I don't think anybody can argue with the fact that asthma is treatable. So why not try? But it takes some lifestyle changes that you may not want to do or may not believe will work. I didn't know whether I could be helped, but I was willing to do everything my doctor asked.
<br />
<br />We all know that being compliant with treatments is essential. But I also know from experience that it is very frustrating to be compliant and watch PFT's go down, or be on antibiotics for weeks and still feel bad. I have learned that things in the environment at home, outdoors and work were making me sick.
<br />
<br />Let me give you a recent example. Last week, I went to an outdoor concert. Way on the other side of the park was a lot of smoke from a big barbecue. Later, when the barbeque was over, I went walking where for hours the smoke had been (obviously still hanging in the air). Two days laster, I had congestion, my chest was aching, SOB, and my doctor said my lungs were making a whistling noise that hasn't been there in years. I was unable to workout the whole week. So in other words, if my house or job is contributing to my asthma, and the inflamation in my body is high -- I'm going to be sick all the time. See what I'm saying?
<br />
<br />So about your PFT's -- I have some questions: I was wondering if you had complete PFT's and what do the doctors say about your other lung functions? Is that 25% before or after bronchodiators. Did they test you before and after using bronchodialors? If they do... after a bronchodialator, do your numbers go up at all? When you run and can breath well, do you use a bronchodialotor before your run? When you are tested for FEV1, has anyone ever commented on your technique. They always tell me I'm not doing it right.
<br />
<br />I think your questions about how asthma figures into the health of your lungs are really imortant. And even if you decide to pursue a transplant, why not make sure you are getting the most from the lungs you have in the meantime? You already know you have asthma. You know that means your airways are inflamed and swollen. So if your asthma was better controlled, would your PFT's go up? A question for your doctor. And maybe you should consult an allergist too. It takes detective work to see what triggers your asthma. Could be chemical sensitivities too.
<br />
<br />I found a website that actually lists some of the things you must change if you want to address your asthma:
<br />
<br />Google CMHC-SCHL, then under search, put in "Fighting Asthma in Your House."
<br />
<br />This is just a start. There's so much more and I'm sure you can get good advice from other people on this site too who have gotten some great results by making lifestyle changes too.
<br />
<br />Hope this helps.