I've been around 30% fev1 for the most part of my life, I think from when I was 7 finally had my transplant when I was 22. It slowly went down when I was very little and I think that is why my nbody adapted to it very good. I still did a lot of the things that my friends did too. It got less and less with time. But all I can say is that every body is different. I think that you do have to look at your numbers, regarding transplant. But, I think it's good to look at what you can still do too. Transplant is no guaranty and no cure, you trade in one thing for another. And if you still feel like you have a good life I think I would grab those years while you can.
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FEV1 Validity
- Thread starter Lex
- Start date
I've been around 30% fev1 for the most part of my life, I think from when I was 7 finally had my transplant when I was 22. It slowly went down when I was very little and I think that is why my nbody adapted to it very good. I still did a lot of the things that my friends did too. It got less and less with time. But all I can say is that every body is different. I think that you do have to look at your numbers, regarding transplant. But, I think it's good to look at what you can still do too. Transplant is no guaranty and no cure, you trade in one thing for another. And if you still feel like you have a good life I think I would grab those years while you can.
I've been around 30% fev1 for the most part of my life, I think from when I was 7 finally had my transplant when I was 22. It slowly went down when I was very little and I think that is why my nbody adapted to it very good. I still did a lot of the things that my friends did too. It got less and less with time. But all I can say is that every body is different. I think that you do have to look at your numbers, regarding transplant. But, I think it's good to look at what you can still do too. Transplant is no guaranty and no cure, you trade in one thing for another. And if you still feel like you have a good life I think I would grab those years while you can.
I've been around 30% fev1 for the most part of my life, I think from when I was 7 finally had my transplant when I was 22. It slowly went down when I was very little and I think that is why my nbody adapted to it very good. I still did a lot of the things that my friends did too. It got less and less with time. But all I can say is that every body is different. I think that you do have to look at your numbers, regarding transplant. But, I think it's good to look at what you can still do too. Transplant is no guaranty and no cure, you trade in one thing for another. And if you still feel like you have a good life I think I would grab those years while you can.
I've been around 30% fev1 for the most part of my life, I think from when I was 7 finally had my transplant when I was 22. It slowly went down when I was very little and I think that is why my nbody adapted to it very good. I still did a lot of the things that my friends did too. It got less and less with time. But all I can say is that every body is different. I think that you do have to look at your numbers, regarding transplant. But, I think it's good to look at what you can still do too. Transplant is no guaranty and no cure, you trade in one thing for another. And if you still feel like you have a good life I think I would grab those years while you can.
Marjolean raises some really good points...there are many things that go into considering tx besides FEV1. Quality of life, frequency of need for IV, resistance to antibiotics, how much has FEV1 decreased in the last few years, heart health. When you visit a center they kind of rate your quality of life on a scale from 1-10 based on what you tell them about how you feel and of course your medical experiences in the last few months.
Marjolean raises some really good points...there are many things that go into considering tx besides FEV1. Quality of life, frequency of need for IV, resistance to antibiotics, how much has FEV1 decreased in the last few years, heart health. When you visit a center they kind of rate your quality of life on a scale from 1-10 based on what you tell them about how you feel and of course your medical experiences in the last few months.
Marjolean raises some really good points...there are many things that go into considering tx besides FEV1. Quality of life, frequency of need for IV, resistance to antibiotics, how much has FEV1 decreased in the last few years, heart health. When you visit a center they kind of rate your quality of life on a scale from 1-10 based on what you tell them about how you feel and of course your medical experiences in the last few months.
Marjolean raises some really good points...there are many things that go into considering tx besides FEV1. Quality of life, frequency of need for IV, resistance to antibiotics, how much has FEV1 decreased in the last few years, heart health. When you visit a center they kind of rate your quality of life on a scale from 1-10 based on what you tell them about how you feel and of course your medical experiences in the last few months.
Marjolean raises some really good points...there are many things that go into considering tx besides FEV1. Quality of life, frequency of need for IV, resistance to antibiotics, how much has FEV1 decreased in the last few years, heart health. When you visit a center they kind of rate your quality of life on a scale from 1-10 based on what you tell them about how you feel and of course your medical experiences in the last few months.
Thanks for the posts guys.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
Thanks for the posts guys.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
Thanks for the posts guys.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
Thanks for the posts guys.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
Thanks for the asthma info...I will check it out.
Thanks for the posts guys.
<br />
<br />I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
<br />
<br />My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
<br />
<br />Thanks for the asthma info...I will check it out.
<br />
<br />I've talked with my doc about how the PFT's are a performance test and therefore, may not be an accurate measure. No one has ever told me how to do the test; they just say, "deep breath in....and blow it out...keep going, keep going, keep going..." that's it. No bronchial dialators either.
<br />
<br />My quality of life is very good (not excellent, as I do get winded sometimes--probably more to do with my asthma). I respond very well to abx, and I've never been hospitalized--a fact that my doc can't believe. I've been really "lucky" in that sense. But still, my FEV1 has been dropping. My slope of decline isn't that much, but it's still tipped down.
<br />
<br />Thanks for the asthma info...I will check it out.
I think you should definitely ask about bronchial dilators - not only for testing but for daily use. My kids have had several PFT's with pre and post dilator numbers to see if they respond to the dilators and would benefit from them.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
I think you should definitely ask about bronchial dilators - not only for testing but for daily use. My kids have had several PFT's with pre and post dilator numbers to see if they respond to the dilators and would benefit from them.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
I think you should definitely ask about bronchial dilators - not only for testing but for daily use. My kids have had several PFT's with pre and post dilator numbers to see if they respond to the dilators and would benefit from them.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
I think you should definitely ask about bronchial dilators - not only for testing but for daily use. My kids have had several PFT's with pre and post dilator numbers to see if they respond to the dilators and would benefit from them.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
I think you should definitely ask about bronchial dilators - not only for testing but for daily use. My kids have had several PFT's with pre and post dilator numbers to see if they respond to the dilators and would benefit from them.
<br />
<br />It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
<br />
<br />If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.
<br />
<br />It is my understanding that the category you want to be looking at for the asthma component and pre and post numbers is the 25% - 75% column.
<br />
<br />If your doctors have never considered treating your asthma I would think they have been missing the boat here. Both my kids take long acting, steroid based, maintenance asthma meds - my son is on symbicort and my daughter is on flovent as well as albuteral with hypertonic saline. It is my understanding that these drugs keep inflammation down and help keep the bronchial tubes open.