As for the fungus on the skin - I had this once (long ago, in college and no primary or CF doc due to no insurance) and the school doc said it could be related to antibiotic use. Is it red and mostly flat - like scaly?? She prescribed me special shampoo to use as body wash (it was pretty much the same thing as "Head and Shoulders") - and it worked. It's worth a try! It took a few months though. Good luck!
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FEV1 worse then it should be
- Thread starter Alexander
- Start date
As for the fungus on the skin - I had this once (long ago, in college and no primary or CF doc due to no insurance) and the school doc said it could be related to antibiotic use. Is it red and mostly flat - like scaly?? She prescribed me special shampoo to use as body wash (it was pretty much the same thing as "Head and Shoulders") - and it worked. It's worth a try! It took a few months though. Good luck!
As for the fungus on the skin - I had this once (long ago, in college and no primary or CF doc due to no insurance) and the school doc said it could be related to antibiotic use. Is it red and mostly flat - like scaly?? She prescribed me special shampoo to use as body wash (it was pretty much the same thing as "Head and Shoulders") - and it worked. It's worth a try! It took a few months though. Good luck!
As for the fungus on the skin - I had this once (long ago, in college and no primary or CF doc due to no insurance) and the school doc said it could be related to antibiotic use. Is it red and mostly flat - like scaly?? She prescribed me special shampoo to use as body wash (it was pretty much the same thing as "Head and Shoulders") - and it worked. It's worth a try! It took a few months though. Good luck!
As for the fungus on the skin - I had this once (long ago, in college and no primary or CF doc due to no insurance) and the school doc said it could be related to antibiotic use. Is it red and mostly flat - like scaly?? She prescribed me special shampoo to use as body wash (it was pretty much the same thing as "Head and Shoulders") - and it worked. It's worth a try! It took a few months though. Good luck!
NYCLawGirl
New member
First off, sounds like you're dedicated to your health, so good job on that! 45-60 mins of physio is quite a bit for every morning. Do you also do it in the evenings? Even an extra 20-30 min session would be helpful, and since colistin is twice a day I'm assuming you do a nighttime treatment anyway.
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
NYCLawGirl
New member
First off, sounds like you're dedicated to your health, so good job on that! 45-60 mins of physio is quite a bit for every morning. Do you also do it in the evenings? Even an extra 20-30 min session would be helpful, and since colistin is twice a day I'm assuming you do a nighttime treatment anyway.
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
NYCLawGirl
New member
First off, sounds like you're dedicated to your health, so good job on that! 45-60 mins of physio is quite a bit for every morning. Do you also do it in the evenings? Even an extra 20-30 min session would be helpful, and since colistin is twice a day I'm assuming you do a nighttime treatment anyway.
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
NYCLawGirl
New member
First off, sounds like you're dedicated to your health, so good job on that! 45-60 mins of physio is quite a bit for every morning. Do you also do it in the evenings? Even an extra 20-30 min session would be helpful, and since colistin is twice a day I'm assuming you do a nighttime treatment anyway.
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
Good luck. The other suggestions are all great as well!
NYCLawGirl
New member
First off, sounds like you're dedicated to your health, so good job on that! 45-60 mins of physio is quite a bit for every morning. Do you also do it in the evenings? Even an extra 20-30 min session would be helpful, and since colistin is twice a day I'm assuming you do a nighttime treatment anyway.
<br />
<br />Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
<br />
<br />I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
<br />
<br />Good luck. The other suggestions are all great as well!
<br />
<br />Pulmozyme and the saline don't really do the same thing, so I'm curious as to why you only use one depending on how you feel. HTS is typically used twice a day, whereas pulmozyme can be used either once or twice a day, depending on your disease progression and your doctor's recommendation. Although saline does thin mucus, like pulmozyme, it also hydrates the airways and stimulates cough. My suggestion would be to do BOTH meds every day, and do the saline twice a day if possible. I know it's a pain to add more to an already intense routine, but honestly that's the best way to get your lung function as high as it can possibly be.
<br />
<br />I also second Ronnie's suggestion on exercise. It doesn't always cause an improvement, of course, but it can't hurt, and it will help your ENTIRE body, not just your lungs. Also, sometimes exercise just helps us to maintain, which is also important with a progressive disease. 20-30 mins 3 times a week is a great goal to start out with.
<br />
<br />Good luck. The other suggestions are all great as well!
Wow so many responses i feel overwhelmed, but in a positive way <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Wow so many responses i feel overwhelmed, but in a positive way <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Wow so many responses i feel overwhelmed, but in a positive way <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Wow so many responses i feel overwhelmed, but in a positive way <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
I'm really thankful for your efforts to help me!
Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
Wow so many responses i feel overwhelmed, but in a positive way <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
<br />
<br />@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
<br />
<br />@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
<br />
<br />I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
<br />
<br />Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
<br />
<br />I'm really thankful for your efforts to help me!
<br />Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />I do 45-60 minutes physio mornings AND evenings. The reason why I dont always inhale HTS(6%) is due to the fact that it really irretates my lungs and makes me cough hard. But i am starting to use it more often now, since I noticed that I'm not having as many hard cough-ups as before I went to the hospital. Yes, I do have to pick up on exercises. Wont be too hard for me to start, since I have done alot in the past.
<br />
<br />@CFkitty: My apologies, I should have given you a brief history on my fight against the fungus on my skin (btw its a yeast infection). Ive tried many cremes, shampoos and so on. And they do work but heres the problem: It comes back as soon as i stop using them. Also, it is all over my body, I dont really have the time to creme every single spot mornings and evening. I mean, if i didnt have CF and I'd have some spare time, ok. But that would really be too much. The only thing that really helps are those fungus tablets. But it takes like 4 weeks untill they really kick in. Unfortunately i dont get those fungus tablets all the time cause the doc says its not good for the liver. And yes, the fungus is flat, flaky and it causes redness.
<br />
<br />@mom2brooke: I'm changing my doc anyway, cause my current doc is retireing. He knows me since i was 3 weeks old. Very emotional farewell we had... Anyway I'll tell my new doc all about the fungus history on my skin and such. Maybe some fresh new guy has different aspects to add.
<br />
<br />I never really threw up due to coughin. It happend to me like 5 times in my life maybe. Between my physio therapies i hardly ever cough, today i coughed 2 times. When I had lunch break from work, i visited a friend he lives in the 6th floor, so i took 2 steps at a time and when i was up there i didnt have to gasp for more air then lets say anyone else would after going up 6 floors. What I'm trying to say is, that I dont let myself get pulled down by the number of my fev1. I still feel good. Its just that I would really like to know the cause of the low lung function. If my doc would say "its the damage of your lungs that cause such a low fev1" then at least I would know. But right now my lungs dont look that way. Of course, I have some damages, but they're minor and not as severe. It just doesnt add up...
<br />
<br />Sorry guys, I was drifting off, thinking loudly and there you have another novel haha
<br />
<br />I'm really thankful for your efforts to help me!
<br />Its bedtime for me now <img src="i/expressions/face-icon-small-smile.gif" border="0">
M
MiddleAgedLady
Guest
Yogurt or acidolpholus capsules (probiotics) help greatly with the yeast. As does decreasing sugar as much as you can. Yeast feeds on sugar. Good luck to you!
Joan
Joan
M
MiddleAgedLady
Guest
Yogurt or acidolpholus capsules (probiotics) help greatly with the yeast. As does decreasing sugar as much as you can. Yeast feeds on sugar. Good luck to you!
Joan
Joan
M
MiddleAgedLady
Guest
Yogurt or acidolpholus capsules (probiotics) help greatly with the yeast. As does decreasing sugar as much as you can. Yeast feeds on sugar. Good luck to you!
Joan
Joan
M
MiddleAgedLady
Guest
Yogurt or acidolpholus capsules (probiotics) help greatly with the yeast. As does decreasing sugar as much as you can. Yeast feeds on sugar. Good luck to you!
Joan
Joan
M
MiddleAgedLady
Guest
Yogurt or acidolpholus capsules (probiotics) help greatly with the yeast. As does decreasing sugar as much as you can. Yeast feeds on sugar. Good luck to you!
<br />
<br />Joan
<br />
<br />Joan