finally i have a e-flow!!

K

Keepercjr

Guest
I just started Cayston yesterday. So far so good. I got the impression from my clinic that Cayston is being prescribed every other month just like TObi- so Tobi one month, Cayston the other.

I think the Altera seems pretty durable just as long as your little one doesn't try to open it. There is a piece inside that seems to be the $$$$$ piece and I would hate to see it get ruined. It literally takes 2 minutes to neb the cayston so you could just sit and watch your child and then take it away as soon as it is done. In my paperwork from the pharmacy, it said that the Altera is $1600 and if I were to break it or lose it I would be responsible for paying the cost (it is "loaned" with the script for cayston from the drug company). Just food for thought.

I am trying to acquire the Trio (other eflow) and they will have to compound the tobra but said I could use hypertonic saline in it. I don't use other inhaled drugs so I don't know. Try calling Foundation Care and asking.
 
K

Keepercjr

Guest
I just started Cayston yesterday. So far so good. I got the impression from my clinic that Cayston is being prescribed every other month just like TObi- so Tobi one month, Cayston the other.

I think the Altera seems pretty durable just as long as your little one doesn't try to open it. There is a piece inside that seems to be the $$$$$ piece and I would hate to see it get ruined. It literally takes 2 minutes to neb the cayston so you could just sit and watch your child and then take it away as soon as it is done. In my paperwork from the pharmacy, it said that the Altera is $1600 and if I were to break it or lose it I would be responsible for paying the cost (it is "loaned" with the script for cayston from the drug company). Just food for thought.

I am trying to acquire the Trio (other eflow) and they will have to compound the tobra but said I could use hypertonic saline in it. I don't use other inhaled drugs so I don't know. Try calling Foundation Care and asking.
 
K

Keepercjr

Guest
I just started Cayston yesterday. So far so good. I got the impression from my clinic that Cayston is being prescribed every other month just like TObi- so Tobi one month, Cayston the other.

I think the Altera seems pretty durable just as long as your little one doesn't try to open it. There is a piece inside that seems to be the $$$$$ piece and I would hate to see it get ruined. It literally takes 2 minutes to neb the cayston so you could just sit and watch your child and then take it away as soon as it is done. In my paperwork from the pharmacy, it said that the Altera is $1600 and if I were to break it or lose it I would be responsible for paying the cost (it is "loaned" with the script for cayston from the drug company). Just food for thought.

I am trying to acquire the Trio (other eflow) and they will have to compound the tobra but said I could use hypertonic saline in it. I don't use other inhaled drugs so I don't know. Try calling Foundation Care and asking.
 
K

Keepercjr

Guest
I just started Cayston yesterday. So far so good. I got the impression from my clinic that Cayston is being prescribed every other month just like TObi- so Tobi one month, Cayston the other.

I think the Altera seems pretty durable just as long as your little one doesn't try to open it. There is a piece inside that seems to be the $$$$$ piece and I would hate to see it get ruined. It literally takes 2 minutes to neb the cayston so you could just sit and watch your child and then take it away as soon as it is done. In my paperwork from the pharmacy, it said that the Altera is $1600 and if I were to break it or lose it I would be responsible for paying the cost (it is "loaned" with the script for cayston from the drug company). Just food for thought.

I am trying to acquire the Trio (other eflow) and they will have to compound the tobra but said I could use hypertonic saline in it. I don't use other inhaled drugs so I don't know. Try calling Foundation Care and asking.
 
K

Keepercjr

Guest
I just started Cayston yesterday. So far so good. I got the impression from my clinic that Cayston is being prescribed every other month just like TObi- so Tobi one month, Cayston the other.
<br />
<br />I think the Altera seems pretty durable just as long as your little one doesn't try to open it. There is a piece inside that seems to be the $$$$$ piece and I would hate to see it get ruined. It literally takes 2 minutes to neb the cayston so you could just sit and watch your child and then take it away as soon as it is done. In my paperwork from the pharmacy, it said that the Altera is $1600 and if I were to break it or lose it I would be responsible for paying the cost (it is "loaned" with the script for cayston from the drug company). Just food for thought.
<br />
<br />I am trying to acquire the Trio (other eflow) and they will have to compound the tobra but said I could use hypertonic saline in it. I don't use other inhaled drugs so I don't know. Try calling Foundation Care and asking.
 

Giggles

New member
I use THE TRIO from Foundation Care Pharmacy at 1-877-291-1122 and they compound Tobra for me so I can use it in there and then I use my regular Pulmozyme, Albuterol and HTS in it too! As I posted before I just love it. Pharm Care will also talk to you doc if he/she is unfamiliar with using the TRIO for all other meds. Good Luck!


Jennifer 38 with CF and CFRD
 

Giggles

New member
I use THE TRIO from Foundation Care Pharmacy at 1-877-291-1122 and they compound Tobra for me so I can use it in there and then I use my regular Pulmozyme, Albuterol and HTS in it too! As I posted before I just love it. Pharm Care will also talk to you doc if he/she is unfamiliar with using the TRIO for all other meds. Good Luck!


Jennifer 38 with CF and CFRD
 

Giggles

New member
I use THE TRIO from Foundation Care Pharmacy at 1-877-291-1122 and they compound Tobra for me so I can use it in there and then I use my regular Pulmozyme, Albuterol and HTS in it too! As I posted before I just love it. Pharm Care will also talk to you doc if he/she is unfamiliar with using the TRIO for all other meds. Good Luck!


Jennifer 38 with CF and CFRD
 

Giggles

New member
I use THE TRIO from Foundation Care Pharmacy at 1-877-291-1122 and they compound Tobra for me so I can use it in there and then I use my regular Pulmozyme, Albuterol and HTS in it too! As I posted before I just love it. Pharm Care will also talk to you doc if he/she is unfamiliar with using the TRIO for all other meds. Good Luck!


Jennifer 38 with CF and CFRD
 

Giggles

New member
I use THE TRIO from Foundation Care Pharmacy at 1-877-291-1122 and they compound Tobra for me so I can use it in there and then I use my regular Pulmozyme, Albuterol and HTS in it too! As I posted before I just love it. Pharm Care will also talk to you doc if he/she is unfamiliar with using the TRIO for all other meds. Good Luck!
<br />
<br />
<br />Jennifer 38 with CF and CFRD
 
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