First time in hospital?

[jaimers]

first time i was in the hosp i was 6 i think and i stayed in the full 2 weeks. I guess they didn't have PICCs back then because i never got one until i was about 10 or 12ish. anyway, i got the old midlines or regular little short peripheral IVs like mel was talking about. i got mine the first day i was there.

the past few years when i've been admitted i usually would go in for a couple days to get the PICC put in then go home. the regular IV team couldn't get PICCs in me anymore so i had to go down to Vascular radiology and have them put it in and they are always busy so thats why i would be admitted b/c it would take a couple days for me to get on the schedule down in radiology.

i wish i went to the hospital where saveferris goes because when i'm in the hospital i NEVER get good rest. there are people in and out ALL day and usually several times during the night--not nurses but blood draw people, PTs etc. i have heard of some cfers here that put up signs on their doors about not being disturbed between x and y hours of the night so they can rest and i think that is a fabulous idea!

now i have a port so if i need IVs my doc just calls the prescription into the home health people and they deliver it to my house and i do everything at home. (unless of course its really really serious or something, then i go in to the hosp.)

i usually don't bring my vest to the hosp with me because i like getting the manual chest pt which i get 4xday. if i do home IVs (majority of the time) i do my vest 4+ times a day if i'm being super compliant but most of the time i do 3 vest sessions.

i'm pretty positive i picked up my PA and either one, or both of my strains of staph while in the hospital when i was little. there were not strict contact precautions then and i remember going into my friends rooms and playing and having a grand old time. now CFers are usually all on isolation (at least at UNC where i go) when admitted so we can't leave the room and if you do you have to do gown/mask/gloves. its a really pretty outfit! <img src="i/expressions/face-icon-small-wink.gif" border="0">

hope that helps some!

 

[jaimers]

first time i was in the hosp i was 6 i think and i stayed in the full 2 weeks. I guess they didn't have PICCs back then because i never got one until i was about 10 or 12ish. anyway, i got the old midlines or regular little short peripheral IVs like mel was talking about. i got mine the first day i was there.

the past few years when i've been admitted i usually would go in for a couple days to get the PICC put in then go home. the regular IV team couldn't get PICCs in me anymore so i had to go down to Vascular radiology and have them put it in and they are always busy so thats why i would be admitted b/c it would take a couple days for me to get on the schedule down in radiology.

i wish i went to the hospital where saveferris goes because when i'm in the hospital i NEVER get good rest. there are people in and out ALL day and usually several times during the night--not nurses but blood draw people, PTs etc. i have heard of some cfers here that put up signs on their doors about not being disturbed between x and y hours of the night so they can rest and i think that is a fabulous idea!

now i have a port so if i need IVs my doc just calls the prescription into the home health people and they deliver it to my house and i do everything at home. (unless of course its really really serious or something, then i go in to the hosp.)

i usually don't bring my vest to the hosp with me because i like getting the manual chest pt which i get 4xday. if i do home IVs (majority of the time) i do my vest 4+ times a day if i'm being super compliant but most of the time i do 3 vest sessions.

i'm pretty positive i picked up my PA and either one, or both of my strains of staph while in the hospital when i was little. there were not strict contact precautions then and i remember going into my friends rooms and playing and having a grand old time. now CFers are usually all on isolation (at least at UNC where i go) when admitted so we can't leave the room and if you do you have to do gown/mask/gloves. its a really pretty outfit! <img src="i/expressions/face-icon-small-wink.gif" border="0">

hope that helps some!

 

[jaimers]

first time i was in the hosp i was 6 i think and i stayed in the full 2 weeks. I guess they didn't have PICCs back then because i never got one until i was about 10 or 12ish. anyway, i got the old midlines or regular little short peripheral IVs like mel was talking about. i got mine the first day i was there.

the past few years when i've been admitted i usually would go in for a couple days to get the PICC put in then go home. the regular IV team couldn't get PICCs in me anymore so i had to go down to Vascular radiology and have them put it in and they are always busy so thats why i would be admitted b/c it would take a couple days for me to get on the schedule down in radiology.

i wish i went to the hospital where saveferris goes because when i'm in the hospital i NEVER get good rest. there are people in and out ALL day and usually several times during the night--not nurses but blood draw people, PTs etc. i have heard of some cfers here that put up signs on their doors about not being disturbed between x and y hours of the night so they can rest and i think that is a fabulous idea!

now i have a port so if i need IVs my doc just calls the prescription into the home health people and they deliver it to my house and i do everything at home. (unless of course its really really serious or something, then i go in to the hosp.)

i usually don't bring my vest to the hosp with me because i like getting the manual chest pt which i get 4xday. if i do home IVs (majority of the time) i do my vest 4+ times a day if i'm being super compliant but most of the time i do 3 vest sessions.

i'm pretty positive i picked up my PA and either one, or both of my strains of staph while in the hospital when i was little. there were not strict contact precautions then and i remember going into my friends rooms and playing and having a grand old time. now CFers are usually all on isolation (at least at UNC where i go) when admitted so we can't leave the room and if you do you have to do gown/mask/gloves. its a really pretty outfit! <img src="i/expressions/face-icon-small-wink.gif" border="0">

hope that helps some!

 

[jaimers]

first time i was in the hosp i was 6 i think and i stayed in the full 2 weeks. I guess they didn't have PICCs back then because i never got one until i was about 10 or 12ish. anyway, i got the old midlines or regular little short peripheral IVs like mel was talking about. i got mine the first day i was there.

the past few years when i've been admitted i usually would go in for a couple days to get the PICC put in then go home. the regular IV team couldn't get PICCs in me anymore so i had to go down to Vascular radiology and have them put it in and they are always busy so thats why i would be admitted b/c it would take a couple days for me to get on the schedule down in radiology.

i wish i went to the hospital where saveferris goes because when i'm in the hospital i NEVER get good rest. there are people in and out ALL day and usually several times during the night--not nurses but blood draw people, PTs etc. i have heard of some cfers here that put up signs on their doors about not being disturbed between x and y hours of the night so they can rest and i think that is a fabulous idea!

now i have a port so if i need IVs my doc just calls the prescription into the home health people and they deliver it to my house and i do everything at home. (unless of course its really really serious or something, then i go in to the hosp.)

i usually don't bring my vest to the hosp with me because i like getting the manual chest pt which i get 4xday. if i do home IVs (majority of the time) i do my vest 4+ times a day if i'm being super compliant but most of the time i do 3 vest sessions.

i'm pretty positive i picked up my PA and either one, or both of my strains of staph while in the hospital when i was little. there were not strict contact precautions then and i remember going into my friends rooms and playing and having a grand old time. now CFers are usually all on isolation (at least at UNC where i go) when admitted so we can't leave the room and if you do you have to do gown/mask/gloves. its a really pretty outfit! <img src="i/expressions/face-icon-small-wink.gif" border="0">

hope that helps some!

 

[jaimers]

first time i was in the hosp i was 6 i think and i stayed in the full 2 weeks. I guess they didn't have PICCs back then because i never got one until i was about 10 or 12ish. anyway, i got the old midlines or regular little short peripheral IVs like mel was talking about. i got mine the first day i was there.
<br />
<br />the past few years when i've been admitted i usually would go in for a couple days to get the PICC put in then go home. the regular IV team couldn't get PICCs in me anymore so i had to go down to Vascular radiology and have them put it in and they are always busy so thats why i would be admitted b/c it would take a couple days for me to get on the schedule down in radiology.
<br />
<br />i wish i went to the hospital where saveferris goes because when i'm in the hospital i NEVER get good rest. there are people in and out ALL day and usually several times during the night--not nurses but blood draw people, PTs etc. i have heard of some cfers here that put up signs on their doors about not being disturbed between x and y hours of the night so they can rest and i think that is a fabulous idea!
<br />
<br />now i have a port so if i need IVs my doc just calls the prescription into the home health people and they deliver it to my house and i do everything at home. (unless of course its really really serious or something, then i go in to the hosp.)
<br />
<br />i usually don't bring my vest to the hosp with me because i like getting the manual chest pt which i get 4xday. if i do home IVs (majority of the time) i do my vest 4+ times a day if i'm being super compliant but most of the time i do 3 vest sessions.
<br />
<br />i'm pretty positive i picked up my PA and either one, or both of my strains of staph while in the hospital when i was little. there were not strict contact precautions then and i remember going into my friends rooms and playing and having a grand old time. now CFers are usually all on isolation (at least at UNC where i go) when admitted so we can't leave the room and if you do you have to do gown/mask/gloves. its a really pretty outfit! <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />hope that helps some!

 

[Kelli]

My 1st time was when I was 10 and that was when I was diagnosed, I had to learn CPT, nebs, etc. It wasn't anything great. I'm not even sure if I had an IV.

I was admitted in high school for IV's though.
And as an adult, I practically refuse to be admitted to the hosp. It is so germy and gross, I do all of my IV's at home. I hate the hospital! I had to go in right before Christmas to spend 1 night, my floor was dirty (had a lid from salad dressing or something) on my floor....like they cleaned that well, my bathroom had hairs in it, it was sick. Plus I get no sleep. So I do everything at home.

I was symptom free for a long time, like other people posted.

Kelli
31 f CF

 

[Kelli]

My 1st time was when I was 10 and that was when I was diagnosed, I had to learn CPT, nebs, etc. It wasn't anything great. I'm not even sure if I had an IV.

I was admitted in high school for IV's though.
And as an adult, I practically refuse to be admitted to the hosp. It is so germy and gross, I do all of my IV's at home. I hate the hospital! I had to go in right before Christmas to spend 1 night, my floor was dirty (had a lid from salad dressing or something) on my floor....like they cleaned that well, my bathroom had hairs in it, it was sick. Plus I get no sleep. So I do everything at home.

I was symptom free for a long time, like other people posted.

Kelli
31 f CF

 

[Kelli]

My 1st time was when I was 10 and that was when I was diagnosed, I had to learn CPT, nebs, etc. It wasn't anything great. I'm not even sure if I had an IV.

I was admitted in high school for IV's though.
And as an adult, I practically refuse to be admitted to the hosp. It is so germy and gross, I do all of my IV's at home. I hate the hospital! I had to go in right before Christmas to spend 1 night, my floor was dirty (had a lid from salad dressing or something) on my floor....like they cleaned that well, my bathroom had hairs in it, it was sick. Plus I get no sleep. So I do everything at home.

I was symptom free for a long time, like other people posted.

Kelli
31 f CF

 

[Kelli]

My 1st time was when I was 10 and that was when I was diagnosed, I had to learn CPT, nebs, etc. It wasn't anything great. I'm not even sure if I had an IV.

I was admitted in high school for IV's though.
And as an adult, I practically refuse to be admitted to the hosp. It is so germy and gross, I do all of my IV's at home. I hate the hospital! I had to go in right before Christmas to spend 1 night, my floor was dirty (had a lid from salad dressing or something) on my floor....like they cleaned that well, my bathroom had hairs in it, it was sick. Plus I get no sleep. So I do everything at home.

I was symptom free for a long time, like other people posted.

Kelli
31 f CF

 

[Kelli]

My 1st time was when I was 10 and that was when I was diagnosed, I had to learn CPT, nebs, etc. It wasn't anything great. I'm not even sure if I had an IV.
<br />
<br />I was admitted in high school for IV's though.
<br />And as an adult, I practically refuse to be admitted to the hosp. It is so germy and gross, I do all of my IV's at home. I hate the hospital! I had to go in right before Christmas to spend 1 night, my floor was dirty (had a lid from salad dressing or something) on my floor....like they cleaned that well, my bathroom had hairs in it, it was sick. Plus I get no sleep. So I do everything at home.
<br />
<br />I was symptom free for a long time, like other people posted.
<br />
<br />Kelli
<br />31 f CF

 

[NYCLawGirl]

I was actually 9 when I had my first IVs, and they were entirely outpatient. I was 16 when I was first admitted inpatient for a tune-up and since then have always been in at least once a year. I have never run the full 2 week course in the hospital - I think my longest admit was 6 days. Most of the time I do everything outpatient (first with a PICC and now with a port I had placed at 18), but about once/twice a year I will go in for four days or so to get started. I agree that the rest/CPT aspects of the hospital are great, and also the fact that they can monitor your dosages levels and drug reactions better, but for me there's no place like home.

Edit to add that I too was "symptom free" (although I did have a cough - just no real respiratory issues) for a LONG time. I had PFTs in the 100s well into middle school, and mine never dropped below 85% until I was in my 20s. That's not to scare anyone, but definitely do want to echo that prevention of progression is the name of the game here - almost all of us had a "mild" stage, but we still have CF.

 

[NYCLawGirl]

I was actually 9 when I had my first IVs, and they were entirely outpatient. I was 16 when I was first admitted inpatient for a tune-up and since then have always been in at least once a year. I have never run the full 2 week course in the hospital - I think my longest admit was 6 days. Most of the time I do everything outpatient (first with a PICC and now with a port I had placed at 18), but about once/twice a year I will go in for four days or so to get started. I agree that the rest/CPT aspects of the hospital are great, and also the fact that they can monitor your dosages levels and drug reactions better, but for me there's no place like home.

Edit to add that I too was "symptom free" (although I did have a cough - just no real respiratory issues) for a LONG time. I had PFTs in the 100s well into middle school, and mine never dropped below 85% until I was in my 20s. That's not to scare anyone, but definitely do want to echo that prevention of progression is the name of the game here - almost all of us had a "mild" stage, but we still have CF.

 

[NYCLawGirl]

I was actually 9 when I had my first IVs, and they were entirely outpatient. I was 16 when I was first admitted inpatient for a tune-up and since then have always been in at least once a year. I have never run the full 2 week course in the hospital - I think my longest admit was 6 days. Most of the time I do everything outpatient (first with a PICC and now with a port I had placed at 18), but about once/twice a year I will go in for four days or so to get started. I agree that the rest/CPT aspects of the hospital are great, and also the fact that they can monitor your dosages levels and drug reactions better, but for me there's no place like home.

Edit to add that I too was "symptom free" (although I did have a cough - just no real respiratory issues) for a LONG time. I had PFTs in the 100s well into middle school, and mine never dropped below 85% until I was in my 20s. That's not to scare anyone, but definitely do want to echo that prevention of progression is the name of the game here - almost all of us had a "mild" stage, but we still have CF.

 

[NYCLawGirl]

I was actually 9 when I had my first IVs, and they were entirely outpatient. I was 16 when I was first admitted inpatient for a tune-up and since then have always been in at least once a year. I have never run the full 2 week course in the hospital - I think my longest admit was 6 days. Most of the time I do everything outpatient (first with a PICC and now with a port I had placed at 18), but about once/twice a year I will go in for four days or so to get started. I agree that the rest/CPT aspects of the hospital are great, and also the fact that they can monitor your dosages levels and drug reactions better, but for me there's no place like home.

Edit to add that I too was "symptom free" (although I did have a cough - just no real respiratory issues) for a LONG time. I had PFTs in the 100s well into middle school, and mine never dropped below 85% until I was in my 20s. That's not to scare anyone, but definitely do want to echo that prevention of progression is the name of the game here - almost all of us had a "mild" stage, but we still have CF.

 

[NYCLawGirl]

I was actually 9 when I had my first IVs, and they were entirely outpatient. I was 16 when I was first admitted inpatient for a tune-up and since then have always been in at least once a year. I have never run the full 2 week course in the hospital - I think my longest admit was 6 days. Most of the time I do everything outpatient (first with a PICC and now with a port I had placed at 18), but about once/twice a year I will go in for four days or so to get started. I agree that the rest/CPT aspects of the hospital are great, and also the fact that they can monitor your dosages levels and drug reactions better, but for me there's no place like home.
<br />
<br />Edit to add that I too was "symptom free" (although I did have a cough - just no real respiratory issues) for a LONG time. I had PFTs in the 100s well into middle school, and mine never dropped below 85% until I was in my 20s. That's not to scare anyone, but definitely do want to echo that prevention of progression is the name of the game here - almost all of us had a "mild" stage, but we still have CF.

 

[Kristen]

I was 12 the first time I was admitted. I got a horrible case of pneumonia that put me in ICU. I spent 10 days in the hospital, and then had to do at-home IVs for another week or some. I didn't have to go into the hospital or on IVs again until I was 27, and that was only because I got a lung infection and had just moved and didn't have a CF doctor yet, and the guy I was seeing wouldn't prescribe me a long enough dose of antibiotics, so I just admitted myself into the hospital so I could get some IVs. I was only there for 2 days, but it did the trick.

Also, to parents, please remember that everyone is different. Yes, CF is progressive and everyone has a mild or asymptomatic stage. But just because your child is admitted doesn't necessarily mean it is the start of a downhill spiral. When I was admitted at age 12, that was pretty much the first time I showed any symptoms of CF and my parents were scared I was going to start getting sick all the time. Now it is 20 years later (almost exactly, actually) , and although I have CF related problems (sinus infections, re-curring bronchitis, etc.), my lung function is still over 100%.

 

[Kristen]

I was 12 the first time I was admitted. I got a horrible case of pneumonia that put me in ICU. I spent 10 days in the hospital, and then had to do at-home IVs for another week or some. I didn't have to go into the hospital or on IVs again until I was 27, and that was only because I got a lung infection and had just moved and didn't have a CF doctor yet, and the guy I was seeing wouldn't prescribe me a long enough dose of antibiotics, so I just admitted myself into the hospital so I could get some IVs. I was only there for 2 days, but it did the trick.

Also, to parents, please remember that everyone is different. Yes, CF is progressive and everyone has a mild or asymptomatic stage. But just because your child is admitted doesn't necessarily mean it is the start of a downhill spiral. When I was admitted at age 12, that was pretty much the first time I showed any symptoms of CF and my parents were scared I was going to start getting sick all the time. Now it is 20 years later (almost exactly, actually) , and although I have CF related problems (sinus infections, re-curring bronchitis, etc.), my lung function is still over 100%.

 

[Kristen]

I was 12 the first time I was admitted. I got a horrible case of pneumonia that put me in ICU. I spent 10 days in the hospital, and then had to do at-home IVs for another week or some. I didn't have to go into the hospital or on IVs again until I was 27, and that was only because I got a lung infection and had just moved and didn't have a CF doctor yet, and the guy I was seeing wouldn't prescribe me a long enough dose of antibiotics, so I just admitted myself into the hospital so I could get some IVs. I was only there for 2 days, but it did the trick.

Also, to parents, please remember that everyone is different. Yes, CF is progressive and everyone has a mild or asymptomatic stage. But just because your child is admitted doesn't necessarily mean it is the start of a downhill spiral. When I was admitted at age 12, that was pretty much the first time I showed any symptoms of CF and my parents were scared I was going to start getting sick all the time. Now it is 20 years later (almost exactly, actually) , and although I have CF related problems (sinus infections, re-curring bronchitis, etc.), my lung function is still over 100%.

 

[Kristen]

I was 12 the first time I was admitted. I got a horrible case of pneumonia that put me in ICU. I spent 10 days in the hospital, and then had to do at-home IVs for another week or some. I didn't have to go into the hospital or on IVs again until I was 27, and that was only because I got a lung infection and had just moved and didn't have a CF doctor yet, and the guy I was seeing wouldn't prescribe me a long enough dose of antibiotics, so I just admitted myself into the hospital so I could get some IVs. I was only there for 2 days, but it did the trick.

Also, to parents, please remember that everyone is different. Yes, CF is progressive and everyone has a mild or asymptomatic stage. But just because your child is admitted doesn't necessarily mean it is the start of a downhill spiral. When I was admitted at age 12, that was pretty much the first time I showed any symptoms of CF and my parents were scared I was going to start getting sick all the time. Now it is 20 years later (almost exactly, actually) , and although I have CF related problems (sinus infections, re-curring bronchitis, etc.), my lung function is still over 100%.

 

[Kristen]

I was 12 the first time I was admitted. I got a horrible case of pneumonia that put me in ICU. I spent 10 days in the hospital, and then had to do at-home IVs for another week or some. I didn't have to go into the hospital or on IVs again until I was 27, and that was only because I got a lung infection and had just moved and didn't have a CF doctor yet, and the guy I was seeing wouldn't prescribe me a long enough dose of antibiotics, so I just admitted myself into the hospital so I could get some IVs. I was only there for 2 days, but it did the trick.
<br />
<br />Also, to parents, please remember that everyone is different. Yes, CF is progressive and everyone has a mild or asymptomatic stage. But just because your child is admitted doesn't necessarily mean it is the start of a downhill spiral. When I was admitted at age 12, that was pretty much the first time I showed any symptoms of CF and my parents were scared I was going to start getting sick all the time. Now it is 20 years later (almost exactly, actually) , and although I have CF related problems (sinus infections, re-curring bronchitis, etc.), my lung function is still over 100%.