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Freaking Out Over Clinic Visit....Help
- Thread starter DEES4
- Start date
DEAR DEES, I'M NEW AT THIS SO BE PATIENT WITH ANY TYPING AREAS..ECT.. IT SOUNDS LIKE NIGHTRIDER IS THE CLOSE'S ON ABOUT THE ASTHMA COMPONET ETC,,, MY GRANDBABY NOW 7 HAD POLYP SURGERY WHEN SHE JUST TURNED 5 (SHE HAD HER 5TH B-DAY THERE). HER POLYPS WERE NOT PROTRUDING OUT HER NOSE BUT THERE WERE COMPLETE BLOCKAGE ON ONE SIDE AND ALMOST COMPLETE ON THE OTHER SIDE. SHE HAD BEEN TREATED WITH NASANEX, SINUS FLLUSHES DAILY JUST TRYING TO LOOSEN HER MUCOUS,BECAUSE IT WAS SO THICK HER NOSE WOULDN'T RUN...HER THROAT WAS VERY RED AND INFLAMMED, FROM THE MUCOU DRAINING DOWN THE BACK OF HER THROAT AT NIGHT,,, AND ONE OF THE BIGGEST SIGNS WAS HER CHEST WOULD RUBBLE ALL NIGHT WHEN SHE WAS SLEEPING,,AND BY AM SHE WOULD CHOKE ALOT ON THE MUCOUS FROM IT DRAINING DOWN WHILE SHE SLEPT...WE WERE TERRIFIED AT THE TIME OF SURGERY,, NOTHING WENT RIGHT, IT WAS OUR FIRST EXPERIENCE WITH PICC LINES,, BOTH ARMS GOT SEVERELY INFECTED !!! BUT, BACK TO THE POLYPS, SHE WAS GETTING CONSTANT INFECTIONS,,THEY PUT HER ON A 21 DAY COURSE OF MAJOR ANTIBIOTICS AT HOME THEN ADMITTED HER FOR A TUNE UP BEFORE THE SURGERY AND THEN DID THE SURGERY WHICH THEY ALSO REMOVED HER ADNOIDS, AND REMOVED THE POLYPS, AND DID A CLEANOUT OF HER SINUS'S, THEY REMOVED SOMETHING ELSE IN THE SINUS CAVITY AREA (I CAN'T THINK OF THE NAME OF IT RIGHT NOW),TO HELP THE MUCOUS MAYBE NOT GET SO CLOGGED UP AND HER BREATHING WOULD BE BETTER, AND HELP FOR FUTURE THICK MUCOUS THAT IS INEVITABLE TO RETURN..THE GOOD THING ABOUT HAVING THE SURGERY AT THE TIME I WILL NEVER FORGET THE DAY SHE SAID 'WHAT IS THAT SMELL', WE DIDN'T KNOW NOR SHE THAT SHE COULDN'T SMELL...ANOTHER SIGN THAT YOU'LL KNOW WHEN HE MAY NEED SURGERY WAS SHE HAD H/A'S, AND UNDERNEATH HER EYES WERE SO PUFFY AND BLUEISH,, IT'S JUST ONE OF THOSE THINGS YOU'LL KNOW when IT will NEED TO BE DONE TO HELP THEM,, BREATH BETTER. AND A CT SCAN CAN TELL IT ALL... WE CONTINUE WITH NOSE SPRAYS NASAL FLUSHES,ETC. TO HELP WITH HER THICK SINUS MUCOUS..SINCE LAST JUNE SHE HAS BEEN HAVING ALOT OF SINUS INFECTIONS AGAIN,, BUT IT'S THE MUCOUS PROBLEMS,,SO FAR NOT POLYPS AGAIN...THE DOCTORS SAY SHE ACTUALLY HAS THE 'SINUS DISEASE' ALONG WITH THE LUNG DISEASE OF CF,, AND THIS IS JUST THE WAY IT IS...REGARDING AIR TRAPPING,,THIS CAN BE SEEN CLEARLY ON A CHEST-XRAY,, AND MAKAILYN HAD OVER INFLATED LUNGS BEFORE HER SURGERY...ALSO, MAKAILYNS, LOWER LUNG FUNCTIONS WERE ALWAYS LOW , BUT WE DIDN'T KNOW WHY OR WHAT THIS MEANT UNTIL WE MOVED HER TO ANOTHER CF CLINIC,( WHICH WE ARE VERY THANKFUL THAT WE FINALLY DID),, WHICH NOW WE ARE LEARNING THIS IS AN ASTHMA COMPONET... WHEN THEY DO A LUNG FUCTION TEST WITHOUT TREATMENT, IT IS VERY LOW, AND WHEN THEY GIVE HER A TREATMENT AND DO A POST FEV TEST THE NUMBERS CHANGE DRAMATICLY...THEY NOW HAVE HER ON ADVAIR(A LONG ACTING MED WITH A MILD STEROID) ALONG WITH HER MANY, MANY OTHER MEDS,,AND HER LOWER AIRWAYS ARE GREAT !!! AND TEACHING HIM TO HUFF IS A GREAT LUNG EXERCIZE,(DO IT IN FRONT OF A MIRROR SO HE CAN SEE THE MIRROR FOG UP,,,, THEY LIKE THAT AT THAT AGE),, AND THE SUGGESTIONS PEOPLE WERE GIVING ABOUT PARTY BLOWERS ARE A GREAT IDEA....ALSO, I KNOW IT'S HARD,, BUT WAIT TILL YOU GET ALL TEST CONFIRMED,SUCH AS A MUST CT SCAN, AND A CHEST X-RAY,,, THE CF CLINIC SHOULD HAVE AN ENT,AND THEY WILL WORK CLOSELY TOGETHER THROUGH EVERY STEP, BEFORE ANYTHING, IF NEEDED WOULD BE DONE...I HOPE THIS WAS SOME HELP TO YOU ,,,IT'S A DAILY, MIN. BY MIN. LEARNING,, AND IT SEEMS THERE'S NOT ENOUGH TIME,,IT'S TRULY A DREADFUL COMPLEX DISEASE !!!MY PRAYERS ARE WITH U ,GOD BLESS, AND YOUR LITTLE ONE..
DEAR DEES, I'M NEW AT THIS SO BE PATIENT WITH ANY TYPING AREAS..ECT.. IT SOUNDS LIKE NIGHTRIDER IS THE CLOSE'S ON ABOUT THE ASTHMA COMPONET ETC,,, MY GRANDBABY NOW 7 HAD POLYP SURGERY WHEN SHE JUST TURNED 5 (SHE HAD HER 5TH B-DAY THERE). HER POLYPS WERE NOT PROTRUDING OUT HER NOSE BUT THERE WERE COMPLETE BLOCKAGE ON ONE SIDE AND ALMOST COMPLETE ON THE OTHER SIDE. SHE HAD BEEN TREATED WITH NASANEX, SINUS FLLUSHES DAILY JUST TRYING TO LOOSEN HER MUCOUS,BECAUSE IT WAS SO THICK HER NOSE WOULDN'T RUN...HER THROAT WAS VERY RED AND INFLAMMED, FROM THE MUCOU DRAINING DOWN THE BACK OF HER THROAT AT NIGHT,,, AND ONE OF THE BIGGEST SIGNS WAS HER CHEST WOULD RUBBLE ALL NIGHT WHEN SHE WAS SLEEPING,,AND BY AM SHE WOULD CHOKE ALOT ON THE MUCOUS FROM IT DRAINING DOWN WHILE SHE SLEPT...WE WERE TERRIFIED AT THE TIME OF SURGERY,, NOTHING WENT RIGHT, IT WAS OUR FIRST EXPERIENCE WITH PICC LINES,, BOTH ARMS GOT SEVERELY INFECTED !!! BUT, BACK TO THE POLYPS, SHE WAS GETTING CONSTANT INFECTIONS,,THEY PUT HER ON A 21 DAY COURSE OF MAJOR ANTIBIOTICS AT HOME THEN ADMITTED HER FOR A TUNE UP BEFORE THE SURGERY AND THEN DID THE SURGERY WHICH THEY ALSO REMOVED HER ADNOIDS, AND REMOVED THE POLYPS, AND DID A CLEANOUT OF HER SINUS'S, THEY REMOVED SOMETHING ELSE IN THE SINUS CAVITY AREA (I CAN'T THINK OF THE NAME OF IT RIGHT NOW),TO HELP THE MUCOUS MAYBE NOT GET SO CLOGGED UP AND HER BREATHING WOULD BE BETTER, AND HELP FOR FUTURE THICK MUCOUS THAT IS INEVITABLE TO RETURN..THE GOOD THING ABOUT HAVING THE SURGERY AT THE TIME I WILL NEVER FORGET THE DAY SHE SAID 'WHAT IS THAT SMELL', WE DIDN'T KNOW NOR SHE THAT SHE COULDN'T SMELL...ANOTHER SIGN THAT YOU'LL KNOW WHEN HE MAY NEED SURGERY WAS SHE HAD H/A'S, AND UNDERNEATH HER EYES WERE SO PUFFY AND BLUEISH,, IT'S JUST ONE OF THOSE THINGS YOU'LL KNOW when IT will NEED TO BE DONE TO HELP THEM,, BREATH BETTER. AND A CT SCAN CAN TELL IT ALL... WE CONTINUE WITH NOSE SPRAYS NASAL FLUSHES,ETC. TO HELP WITH HER THICK SINUS MUCOUS..SINCE LAST JUNE SHE HAS BEEN HAVING ALOT OF SINUS INFECTIONS AGAIN,, BUT IT'S THE MUCOUS PROBLEMS,,SO FAR NOT POLYPS AGAIN...THE DOCTORS SAY SHE ACTUALLY HAS THE 'SINUS DISEASE' ALONG WITH THE LUNG DISEASE OF CF,, AND THIS IS JUST THE WAY IT IS...REGARDING AIR TRAPPING,,THIS CAN BE SEEN CLEARLY ON A CHEST-XRAY,, AND MAKAILYN HAD OVER INFLATED LUNGS BEFORE HER SURGERY...ALSO, MAKAILYNS, LOWER LUNG FUNCTIONS WERE ALWAYS LOW , BUT WE DIDN'T KNOW WHY OR WHAT THIS MEANT UNTIL WE MOVED HER TO ANOTHER CF CLINIC,( WHICH WE ARE VERY THANKFUL THAT WE FINALLY DID),, WHICH NOW WE ARE LEARNING THIS IS AN ASTHMA COMPONET... WHEN THEY DO A LUNG FUCTION TEST WITHOUT TREATMENT, IT IS VERY LOW, AND WHEN THEY GIVE HER A TREATMENT AND DO A POST FEV TEST THE NUMBERS CHANGE DRAMATICLY...THEY NOW HAVE HER ON ADVAIR(A LONG ACTING MED WITH A MILD STEROID) ALONG WITH HER MANY, MANY OTHER MEDS,,AND HER LOWER AIRWAYS ARE GREAT !!! AND TEACHING HIM TO HUFF IS A GREAT LUNG EXERCIZE,(DO IT IN FRONT OF A MIRROR SO HE CAN SEE THE MIRROR FOG UP,,,, THEY LIKE THAT AT THAT AGE),, AND THE SUGGESTIONS PEOPLE WERE GIVING ABOUT PARTY BLOWERS ARE A GREAT IDEA....ALSO, I KNOW IT'S HARD,, BUT WAIT TILL YOU GET ALL TEST CONFIRMED,SUCH AS A MUST CT SCAN, AND A CHEST X-RAY,,, THE CF CLINIC SHOULD HAVE AN ENT,AND THEY WILL WORK CLOSELY TOGETHER THROUGH EVERY STEP, BEFORE ANYTHING, IF NEEDED WOULD BE DONE...I HOPE THIS WAS SOME HELP TO YOU ,,,IT'S A DAILY, MIN. BY MIN. LEARNING,, AND IT SEEMS THERE'S NOT ENOUGH TIME,,IT'S TRULY A DREADFUL COMPLEX DISEASE !!!MY PRAYERS ARE WITH U ,GOD BLESS, AND YOUR LITTLE ONE..
DEAR DEES, I'M NEW AT THIS SO BE PATIENT WITH ANY TYPING AREAS..ECT.. IT SOUNDS LIKE NIGHTRIDER IS THE CLOSE'S ON ABOUT THE ASTHMA COMPONET ETC,,, MY GRANDBABY NOW 7 HAD POLYP SURGERY WHEN SHE JUST TURNED 5 (SHE HAD HER 5TH B-DAY THERE). HER POLYPS WERE NOT PROTRUDING OUT HER NOSE BUT THERE WERE COMPLETE BLOCKAGE ON ONE SIDE AND ALMOST COMPLETE ON THE OTHER SIDE. SHE HAD BEEN TREATED WITH NASANEX, SINUS FLLUSHES DAILY JUST TRYING TO LOOSEN HER MUCOUS,BECAUSE IT WAS SO THICK HER NOSE WOULDN'T RUN...HER THROAT WAS VERY RED AND INFLAMMED, FROM THE MUCOU DRAINING DOWN THE BACK OF HER THROAT AT NIGHT,,, AND ONE OF THE BIGGEST SIGNS WAS HER CHEST WOULD RUBBLE ALL NIGHT WHEN SHE WAS SLEEPING,,AND BY AM SHE WOULD CHOKE ALOT ON THE MUCOUS FROM IT DRAINING DOWN WHILE SHE SLEPT...WE WERE TERRIFIED AT THE TIME OF SURGERY,, NOTHING WENT RIGHT, IT WAS OUR FIRST EXPERIENCE WITH PICC LINES,, BOTH ARMS GOT SEVERELY INFECTED !!! BUT, BACK TO THE POLYPS, SHE WAS GETTING CONSTANT INFECTIONS,,THEY PUT HER ON A 21 DAY COURSE OF MAJOR ANTIBIOTICS AT HOME THEN ADMITTED HER FOR A TUNE UP BEFORE THE SURGERY AND THEN DID THE SURGERY WHICH THEY ALSO REMOVED HER ADNOIDS, AND REMOVED THE POLYPS, AND DID A CLEANOUT OF HER SINUS'S, THEY REMOVED SOMETHING ELSE IN THE SINUS CAVITY AREA (I CAN'T THINK OF THE NAME OF IT RIGHT NOW),TO HELP THE MUCOUS MAYBE NOT GET SO CLOGGED UP AND HER BREATHING WOULD BE BETTER, AND HELP FOR FUTURE THICK MUCOUS THAT IS INEVITABLE TO RETURN..THE GOOD THING ABOUT HAVING THE SURGERY AT THE TIME I WILL NEVER FORGET THE DAY SHE SAID 'WHAT IS THAT SMELL', WE DIDN'T KNOW NOR SHE THAT SHE COULDN'T SMELL...ANOTHER SIGN THAT YOU'LL KNOW WHEN HE MAY NEED SURGERY WAS SHE HAD H/A'S, AND UNDERNEATH HER EYES WERE SO PUFFY AND BLUEISH,, IT'S JUST ONE OF THOSE THINGS YOU'LL KNOW when IT will NEED TO BE DONE TO HELP THEM,, BREATH BETTER. AND A CT SCAN CAN TELL IT ALL... WE CONTINUE WITH NOSE SPRAYS NASAL FLUSHES,ETC. TO HELP WITH HER THICK SINUS MUCOUS..SINCE LAST JUNE SHE HAS BEEN HAVING ALOT OF SINUS INFECTIONS AGAIN,, BUT IT'S THE MUCOUS PROBLEMS,,SO FAR NOT POLYPS AGAIN...THE DOCTORS SAY SHE ACTUALLY HAS THE 'SINUS DISEASE' ALONG WITH THE LUNG DISEASE OF CF,, AND THIS IS JUST THE WAY IT IS...REGARDING AIR TRAPPING,,THIS CAN BE SEEN CLEARLY ON A CHEST-XRAY,, AND MAKAILYN HAD OVER INFLATED LUNGS BEFORE HER SURGERY...ALSO, MAKAILYNS, LOWER LUNG FUNCTIONS WERE ALWAYS LOW , BUT WE DIDN'T KNOW WHY OR WHAT THIS MEANT UNTIL WE MOVED HER TO ANOTHER CF CLINIC,( WHICH WE ARE VERY THANKFUL THAT WE FINALLY DID),, WHICH NOW WE ARE LEARNING THIS IS AN ASTHMA COMPONET... WHEN THEY DO A LUNG FUCTION TEST WITHOUT TREATMENT, IT IS VERY LOW, AND WHEN THEY GIVE HER A TREATMENT AND DO A POST FEV TEST THE NUMBERS CHANGE DRAMATICLY...THEY NOW HAVE HER ON ADVAIR(A LONG ACTING MED WITH A MILD STEROID) ALONG WITH HER MANY, MANY OTHER MEDS,,AND HER LOWER AIRWAYS ARE GREAT !!! AND TEACHING HIM TO HUFF IS A GREAT LUNG EXERCIZE,(DO IT IN FRONT OF A MIRROR SO HE CAN SEE THE MIRROR FOG UP,,,, THEY LIKE THAT AT THAT AGE),, AND THE SUGGESTIONS PEOPLE WERE GIVING ABOUT PARTY BLOWERS ARE A GREAT IDEA....ALSO, I KNOW IT'S HARD,, BUT WAIT TILL YOU GET ALL TEST CONFIRMED,SUCH AS A MUST CT SCAN, AND A CHEST X-RAY,,, THE CF CLINIC SHOULD HAVE AN ENT,AND THEY WILL WORK CLOSELY TOGETHER THROUGH EVERY STEP, BEFORE ANYTHING, IF NEEDED WOULD BE DONE...I HOPE THIS WAS SOME HELP TO YOU ,,,IT'S A DAILY, MIN. BY MIN. LEARNING,, AND IT SEEMS THERE'S NOT ENOUGH TIME,,IT'S TRULY A DREADFUL COMPLEX DISEASE !!!MY PRAYERS ARE WITH U ,GOD BLESS, AND YOUR LITTLE ONE..
DEAR DEES, I'M NEW AT THIS SO BE PATIENT WITH ANY TYPING AREAS..ECT.. IT SOUNDS LIKE NIGHTRIDER IS THE CLOSE'S ON ABOUT THE ASTHMA COMPONET ETC,,, MY GRANDBABY NOW 7 HAD POLYP SURGERY WHEN SHE JUST TURNED 5 (SHE HAD HER 5TH B-DAY THERE). HER POLYPS WERE NOT PROTRUDING OUT HER NOSE BUT THERE WERE COMPLETE BLOCKAGE ON ONE SIDE AND ALMOST COMPLETE ON THE OTHER SIDE. SHE HAD BEEN TREATED WITH NASANEX, SINUS FLLUSHES DAILY JUST TRYING TO LOOSEN HER MUCOUS,BECAUSE IT WAS SO THICK HER NOSE WOULDN'T RUN...HER THROAT WAS VERY RED AND INFLAMMED, FROM THE MUCOU DRAINING DOWN THE BACK OF HER THROAT AT NIGHT,,, AND ONE OF THE BIGGEST SIGNS WAS HER CHEST WOULD RUBBLE ALL NIGHT WHEN SHE WAS SLEEPING,,AND BY AM SHE WOULD CHOKE ALOT ON THE MUCOUS FROM IT DRAINING DOWN WHILE SHE SLEPT...WE WERE TERRIFIED AT THE TIME OF SURGERY,, NOTHING WENT RIGHT, IT WAS OUR FIRST EXPERIENCE WITH PICC LINES,, BOTH ARMS GOT SEVERELY INFECTED !!! BUT, BACK TO THE POLYPS, SHE WAS GETTING CONSTANT INFECTIONS,,THEY PUT HER ON A 21 DAY COURSE OF MAJOR ANTIBIOTICS AT HOME THEN ADMITTED HER FOR A TUNE UP BEFORE THE SURGERY AND THEN DID THE SURGERY WHICH THEY ALSO REMOVED HER ADNOIDS, AND REMOVED THE POLYPS, AND DID A CLEANOUT OF HER SINUS'S, THEY REMOVED SOMETHING ELSE IN THE SINUS CAVITY AREA (I CAN'T THINK OF THE NAME OF IT RIGHT NOW),TO HELP THE MUCOUS MAYBE NOT GET SO CLOGGED UP AND HER BREATHING WOULD BE BETTER, AND HELP FOR FUTURE THICK MUCOUS THAT IS INEVITABLE TO RETURN..THE GOOD THING ABOUT HAVING THE SURGERY AT THE TIME I WILL NEVER FORGET THE DAY SHE SAID 'WHAT IS THAT SMELL', WE DIDN'T KNOW NOR SHE THAT SHE COULDN'T SMELL...ANOTHER SIGN THAT YOU'LL KNOW WHEN HE MAY NEED SURGERY WAS SHE HAD H/A'S, AND UNDERNEATH HER EYES WERE SO PUFFY AND BLUEISH,, IT'S JUST ONE OF THOSE THINGS YOU'LL KNOW when IT will NEED TO BE DONE TO HELP THEM,, BREATH BETTER. AND A CT SCAN CAN TELL IT ALL... WE CONTINUE WITH NOSE SPRAYS NASAL FLUSHES,ETC. TO HELP WITH HER THICK SINUS MUCOUS..SINCE LAST JUNE SHE HAS BEEN HAVING ALOT OF SINUS INFECTIONS AGAIN,, BUT IT'S THE MUCOUS PROBLEMS,,SO FAR NOT POLYPS AGAIN...THE DOCTORS SAY SHE ACTUALLY HAS THE 'SINUS DISEASE' ALONG WITH THE LUNG DISEASE OF CF,, AND THIS IS JUST THE WAY IT IS...REGARDING AIR TRAPPING,,THIS CAN BE SEEN CLEARLY ON A CHEST-XRAY,, AND MAKAILYN HAD OVER INFLATED LUNGS BEFORE HER SURGERY...ALSO, MAKAILYNS, LOWER LUNG FUNCTIONS WERE ALWAYS LOW , BUT WE DIDN'T KNOW WHY OR WHAT THIS MEANT UNTIL WE MOVED HER TO ANOTHER CF CLINIC,( WHICH WE ARE VERY THANKFUL THAT WE FINALLY DID),, WHICH NOW WE ARE LEARNING THIS IS AN ASTHMA COMPONET... WHEN THEY DO A LUNG FUCTION TEST WITHOUT TREATMENT, IT IS VERY LOW, AND WHEN THEY GIVE HER A TREATMENT AND DO A POST FEV TEST THE NUMBERS CHANGE DRAMATICLY...THEY NOW HAVE HER ON ADVAIR(A LONG ACTING MED WITH A MILD STEROID) ALONG WITH HER MANY, MANY OTHER MEDS,,AND HER LOWER AIRWAYS ARE GREAT !!! AND TEACHING HIM TO HUFF IS A GREAT LUNG EXERCIZE,(DO IT IN FRONT OF A MIRROR SO HE CAN SEE THE MIRROR FOG UP,,,, THEY LIKE THAT AT THAT AGE),, AND THE SUGGESTIONS PEOPLE WERE GIVING ABOUT PARTY BLOWERS ARE A GREAT IDEA....ALSO, I KNOW IT'S HARD,, BUT WAIT TILL YOU GET ALL TEST CONFIRMED,SUCH AS A MUST CT SCAN, AND A CHEST X-RAY,,, THE CF CLINIC SHOULD HAVE AN ENT,AND THEY WILL WORK CLOSELY TOGETHER THROUGH EVERY STEP, BEFORE ANYTHING, IF NEEDED WOULD BE DONE...I HOPE THIS WAS SOME HELP TO YOU ,,,IT'S A DAILY, MIN. BY MIN. LEARNING,, AND IT SEEMS THERE'S NOT ENOUGH TIME,,IT'S TRULY A DREADFUL COMPLEX DISEASE !!!MY PRAYERS ARE WITH U ,GOD BLESS, AND YOUR LITTLE ONE..
DEAR DEES, I'M NEW AT THIS SO BE PATIENT WITH ANY TYPING AREAS..ECT.. IT SOUNDS LIKE NIGHTRIDER IS THE CLOSE'S ON ABOUT THE ASTHMA COMPONET ETC,,, MY GRANDBABY NOW 7 HAD POLYP SURGERY WHEN SHE JUST TURNED 5 (SHE HAD HER 5TH B-DAY THERE). HER POLYPS WERE NOT PROTRUDING OUT HER NOSE BUT THERE WERE COMPLETE BLOCKAGE ON ONE SIDE AND ALMOST COMPLETE ON THE OTHER SIDE. SHE HAD BEEN TREATED WITH NASANEX, SINUS FLLUSHES DAILY JUST TRYING TO LOOSEN HER MUCOUS,BECAUSE IT WAS SO THICK HER NOSE WOULDN'T RUN...HER THROAT WAS VERY RED AND INFLAMMED, FROM THE MUCOU DRAINING DOWN THE BACK OF HER THROAT AT NIGHT,,, AND ONE OF THE BIGGEST SIGNS WAS HER CHEST WOULD RUBBLE ALL NIGHT WHEN SHE WAS SLEEPING,,AND BY AM SHE WOULD CHOKE ALOT ON THE MUCOUS FROM IT DRAINING DOWN WHILE SHE SLEPT...WE WERE TERRIFIED AT THE TIME OF SURGERY,, NOTHING WENT RIGHT, IT WAS OUR FIRST EXPERIENCE WITH PICC LINES,, BOTH ARMS GOT SEVERELY INFECTED !!! BUT, BACK TO THE POLYPS, SHE WAS GETTING CONSTANT INFECTIONS,,THEY PUT HER ON A 21 DAY COURSE OF MAJOR ANTIBIOTICS AT HOME THEN ADMITTED HER FOR A TUNE UP BEFORE THE SURGERY AND THEN DID THE SURGERY WHICH THEY ALSO REMOVED HER ADNOIDS, AND REMOVED THE POLYPS, AND DID A CLEANOUT OF HER SINUS'S, THEY REMOVED SOMETHING ELSE IN THE SINUS CAVITY AREA (I CAN'T THINK OF THE NAME OF IT RIGHT NOW),TO HELP THE MUCOUS MAYBE NOT GET SO CLOGGED UP AND HER BREATHING WOULD BE BETTER, AND HELP FOR FUTURE THICK MUCOUS THAT IS INEVITABLE TO RETURN..THE GOOD THING ABOUT HAVING THE SURGERY AT THE TIME I WILL NEVER FORGET THE DAY SHE SAID 'WHAT IS THAT SMELL', WE DIDN'T KNOW NOR SHE THAT SHE COULDN'T SMELL...ANOTHER SIGN THAT YOU'LL KNOW WHEN HE MAY NEED SURGERY WAS SHE HAD H/A'S, AND UNDERNEATH HER EYES WERE SO PUFFY AND BLUEISH,, IT'S JUST ONE OF THOSE THINGS YOU'LL KNOW when IT will NEED TO BE DONE TO HELP THEM,, BREATH BETTER. AND A CT SCAN CAN TELL IT ALL... WE CONTINUE WITH NOSE SPRAYS NASAL FLUSHES,ETC. TO HELP WITH HER THICK SINUS MUCOUS..SINCE LAST JUNE SHE HAS BEEN HAVING ALOT OF SINUS INFECTIONS AGAIN,, BUT IT'S THE MUCOUS PROBLEMS,,SO FAR NOT POLYPS AGAIN...THE DOCTORS SAY SHE ACTUALLY HAS THE 'SINUS DISEASE' ALONG WITH THE LUNG DISEASE OF CF,, AND THIS IS JUST THE WAY IT IS...REGARDING AIR TRAPPING,,THIS CAN BE SEEN CLEARLY ON A CHEST-XRAY,, AND MAKAILYN HAD OVER INFLATED LUNGS BEFORE HER SURGERY...ALSO, MAKAILYNS, LOWER LUNG FUNCTIONS WERE ALWAYS LOW , BUT WE DIDN'T KNOW WHY OR WHAT THIS MEANT UNTIL WE MOVED HER TO ANOTHER CF CLINIC,( WHICH WE ARE VERY THANKFUL THAT WE FINALLY DID),, WHICH NOW WE ARE LEARNING THIS IS AN ASTHMA COMPONET... WHEN THEY DO A LUNG FUCTION TEST WITHOUT TREATMENT, IT IS VERY LOW, AND WHEN THEY GIVE HER A TREATMENT AND DO A POST FEV TEST THE NUMBERS CHANGE DRAMATICLY...THEY NOW HAVE HER ON ADVAIR(A LONG ACTING MED WITH A MILD STEROID) ALONG WITH HER MANY, MANY OTHER MEDS,,AND HER LOWER AIRWAYS ARE GREAT !!! AND TEACHING HIM TO HUFF IS A GREAT LUNG EXERCIZE,(DO IT IN FRONT OF A MIRROR SO HE CAN SEE THE MIRROR FOG UP,,,, THEY LIKE THAT AT THAT AGE),, AND THE SUGGESTIONS PEOPLE WERE GIVING ABOUT PARTY BLOWERS ARE A GREAT IDEA....ALSO, I KNOW IT'S HARD,, BUT WAIT TILL YOU GET ALL TEST CONFIRMED,SUCH AS A MUST CT SCAN, AND A CHEST X-RAY,,, THE CF CLINIC SHOULD HAVE AN ENT,AND THEY WILL WORK CLOSELY TOGETHER THROUGH EVERY STEP, BEFORE ANYTHING, IF NEEDED WOULD BE DONE...I HOPE THIS WAS SOME HELP TO YOU ,,,IT'S A DAILY, MIN. BY MIN. LEARNING,, AND IT SEEMS THERE'S NOT ENOUGH TIME,,IT'S TRULY A DREADFUL COMPLEX DISEASE !!!MY PRAYERS ARE WITH U ,GOD BLESS, AND YOUR LITTLE ONE..