I am so frustrated after speaking with Josh's CF doc just now. We finally got the amphotericin to treat the fungus but there were no intructions about how to prepare the solution. So I called her.
When she got done explaining, I was confused about the medicine <i>and</i> his condition.
I asked why she chose amphotericin nebs instead of an oral when ampho seems to have so many side effects. She said ampho actually has <i>less</i> than the orals. hmmm She also said Josh <b>does not</b> have fungus in his blood, but the high reading from the blood work showed it <i>is</i> somewhere. She's not sure where but they ruled out lungs. So why use nebs instead of oral?
She said she is not too concerned about the fungus because his lungs were clear. She said she is pretty sure it is not the cause of his current symptoms. GGRRRRRR
How can a person have persistent thrush for 4 months, high fungus count in two blood tests, and feel like crap all the time if the fungus is not doing something?
If its not a big deal to her why didn't she throw some fluconozole our way 2 months ago and be done with it?
When she got done explaining, I was confused about the medicine <i>and</i> his condition.
I asked why she chose amphotericin nebs instead of an oral when ampho seems to have so many side effects. She said ampho actually has <i>less</i> than the orals. hmmm She also said Josh <b>does not</b> have fungus in his blood, but the high reading from the blood work showed it <i>is</i> somewhere. She's not sure where but they ruled out lungs. So why use nebs instead of oral?
She said she is not too concerned about the fungus because his lungs were clear. She said she is pretty sure it is not the cause of his current symptoms. GGRRRRRR
How can a person have persistent thrush for 4 months, high fungus count in two blood tests, and feel like crap all the time if the fungus is not doing something?
If its not a big deal to her why didn't she throw some fluconozole our way 2 months ago and be done with it?