<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>
I asked why she chose amphotericin nebs instead of an oral when ampho seems to have so many side effects. She said ampho actually has <i>less</i> than the orals.
hmmm She also said Josh <b>does not</b> have fungus in his blood, but the high reading from the blood work showed it <i>is</i> somewhere. She's not sure where but they ruled out lungs. So why use nebs instead of oral?
She said she is not too concerned about the fungus because his lungs were clear. She said she is pretty sure it is not the cause of his current symptoms. GGRRRRRR
How can a person have persistent thrush for 4 months, high fungus count in two blood tests, and feel like crap all the time if the fungus is not doing something?
If its not a big deal to her why didn't she throw some fluconozole our way 2 months ago and be done with it?</end quote></div>
Jane
I think you need a serious talk about questioning your doctor. No matter what treatment is RX you need to understand it and their reasoning, it is your RIGHT. Perhaps a consult with a GI or infectious disease doc who has more fungul experience?
The level of overpopulation of yeast you describe would probably not be treatable with just throwing some diflucan at it especially with still including sugary foods (this is from waht I have read).
1st you need to know what blood tests they ran. THen what they mean. If he is having a systemic allergic reaction i.e 500# to some form fungal you've got basically aspergillus or candida as your main two culprits.
Just because they are not getting aspergillus on the culture doesnt mean he doesnt have it. Please see the note Dr Moss sent my doctor here: <a target=_blank class=ftalternatingbarlinklarge href="http://cftoo.blogspot.com/2010/03/consultation-recommendations.html
">http://cftoo.blogspot.com/2010...-recommendations.html
</a>
Additionally, if they are so certain that it isnt in his longs then the inhaled therapy would be a bad idea because the benefit of an inhaled therapy is that it goes to the SOURCE of the problem not because it is absorbed better, it is actually very poorly absorbed into the blood stream. This, for example, is why being on TOBI is not a concern when pregnant.
There is a very good possibilty there is something that is missing here that would make the treatment make sense but you have to either find out what it is or question their ability to treat Josh for this problem.
I am sorry you are getting such a run around. We will see how my clinic appointment goes this month!