Thanks for the post re. the saline soaks- that sounds like a great idea to try when Emily gets these! She was getting a LOT of ooze and crusting in the weeks before her tube broke and needed to be replaced- I think it was leaking and therefore allowing leakage of stomach contents.
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<br />She had a pretty large growth of granulation tissue once before but that was a different issue entirely than the crusty stuff and about 10 days of triamiconolone helped a lot. She's developing a bit of that again so I plan on starting it again. It comes in a huge tube so we have plenty for several rounds, but we were told not to use it for more than 2wks at a time since it can thin the skin with prolonged use.
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<br />We get a box of split gauze every month with the rest of her feeding supplies but use them more for cleaning around the site rather than leaving them on long term (I agree a small amount of crustiness is normal and cleaning with a warm wet gauze as needed plus her regular showering.) Occasionally leaving one on for part of a day helps when it's oozing a lot, but doing so frequently starts to bother her (and it smells.)
<br />
<br />She had a pretty large growth of granulation tissue once before but that was a different issue entirely than the crusty stuff and about 10 days of triamiconolone helped a lot. She's developing a bit of that again so I plan on starting it again. It comes in a huge tube so we have plenty for several rounds, but we were told not to use it for more than 2wks at a time since it can thin the skin with prolonged use.
<br />
<br />We get a box of split gauze every month with the rest of her feeding supplies but use them more for cleaning around the site rather than leaving them on long term (I agree a small amount of crustiness is normal and cleaning with a warm wet gauze as needed plus her regular showering.) Occasionally leaving one on for part of a day helps when it's oozing a lot, but doing so frequently starts to bother her (and it smells.)