My3wsonsljj
New member
Hello,
It has been a really long time since I posted on the CF site. I really need some CF support this morning about G-tubes. I reviewed some older post about G-tubes and feedings. I have 9 year old twins that recieved a tube last Thursday. We were told this was a simple procedure and if it did not work out for our family it could be removed. Well, our boy's have entered a deep state of depression. They will not resume any normal activity, they would not go to school, they will not look at it and don't want us to look at it either. The first morning home one had blood running down his stomach from the insertion and had a panic attack (me as well) and then the next morning we awoke to him spitting up blood(another panic attack) This tube has taken the life out of them. All they want to do is lay on the couch with the TV on and not move. I am talking about boys that normally live outdoors(they are not TV kids). I feel so guilty. They only weigh 44 pounds and 46 pounds and at the clinic they have pushed for the tube for over a year. I finally agreed and now I feel like I have made the biggest mistake ever. Our whole family has been in an uproar all weekend. My husband is actually sick at his stomach and I also feel so depressed. I thought it was going to be much smaller than it actually is. I know they will recieve the mickey button in two months but what do we do in the meantime? I saw on the site how many people were impressed with the tube and I just wanted to get some advice on how to handle this. Did anyone have a child go through such a state of depression over their tube? Any recommendations on what to do? I feel so hopeless. I hope we have done the right thing. Any advice or support would be greatly appreciated. I also have another question is this an expense out of your own pocket or is your insurance paying for the formual. Our insurance denied coverage. Is there something I can do to get them to cover the cost. It is very expensive, especially for two. Thanks in advance for the support on this site. I have been here many times for hope and support. It has been awhile but I knew this is where I needed to turn. Please keep our family in your prayers.
Mom to CF twins and 1 CF free
It has been a really long time since I posted on the CF site. I really need some CF support this morning about G-tubes. I reviewed some older post about G-tubes and feedings. I have 9 year old twins that recieved a tube last Thursday. We were told this was a simple procedure and if it did not work out for our family it could be removed. Well, our boy's have entered a deep state of depression. They will not resume any normal activity, they would not go to school, they will not look at it and don't want us to look at it either. The first morning home one had blood running down his stomach from the insertion and had a panic attack (me as well) and then the next morning we awoke to him spitting up blood(another panic attack) This tube has taken the life out of them. All they want to do is lay on the couch with the TV on and not move. I am talking about boys that normally live outdoors(they are not TV kids). I feel so guilty. They only weigh 44 pounds and 46 pounds and at the clinic they have pushed for the tube for over a year. I finally agreed and now I feel like I have made the biggest mistake ever. Our whole family has been in an uproar all weekend. My husband is actually sick at his stomach and I also feel so depressed. I thought it was going to be much smaller than it actually is. I know they will recieve the mickey button in two months but what do we do in the meantime? I saw on the site how many people were impressed with the tube and I just wanted to get some advice on how to handle this. Did anyone have a child go through such a state of depression over their tube? Any recommendations on what to do? I feel so hopeless. I hope we have done the right thing. Any advice or support would be greatly appreciated. I also have another question is this an expense out of your own pocket or is your insurance paying for the formual. Our insurance denied coverage. Is there something I can do to get them to cover the cost. It is very expensive, especially for two. Thanks in advance for the support on this site. I have been here many times for hope and support. It has been awhile but I knew this is where I needed to turn. Please keep our family in your prayers.
Mom to CF twins and 1 CF free