GARRAN GOT THE CALL!!!!
No farting yet. His little friend who is 8 said that there is a candy that is supposed to make you fart, so he is going to have his mom go to the store to look for it. Wouldnt that be a crazy idea...lol
He is doing well today. Trying to get used to coughing with his new lungs. He doesnt feel like he has to cough becuase they cut that nerve, but he does need to. He is getting chest PT right now. Nothing compared to the vest he used to get.
He has been walking 3 times a day. yesterday he walked a long way all the way to the other end of the ward, and stood in front of the kitchen. He wouldnt move for about 5 minutes, just stared at it...lol...
Today is a new day, and we are praying for a little gas (funny to pray for gas), so he can eat and drink... Poor kid keeps seeing commercials for food and drinks and starts crying. <img src="i/expressions/face-icon-small-sad.gif" border="0">
Anyway, he has had the urine catheter removed, his arterial line removed, and yesterday they had him off of O2 for a while and he was satting at 100% still, but when he went for a walk we had to go back on 1 litre. which is a far cry from the 3-4 litres pre tx. He is clinging to it, tho. He is a little afraid not to have the O2. He has had it for over a year.
they are just waiting to remove the NG tube, and a couple chest tubes before they can send him to the step down unit. He cant go there with 4 chest tubes.
Otherwise he is doing fantastic. And yes I am sleeping. some. There is a recliner here in the room by the window, and I get some sleep when he sleeps. I will go home tonight and switch with Chris, poor guy is trying to move in at the house with a broken foot.
But so far Garrans meds are doing good, he isnt having any wierd side effects yet. He was cranky yesterday to his nurse, but mostly that was because he wants to eat and drink. He is s little depressed, which I am told is one side effect. I sat up last night and we told stories, that made his day, and he smiled alot.
Chris bought him a harmonica, and everytime I told a new part in the story he would play the harmonica. He said that the biggest difference he can feel so far, is that he can HOLD HIS BREATH. He couldnt do that before. He cant wait to go swimming. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I asked him what he was most grateful for, or excited about concerning his lungs. He said he was excited that he did not die. that just about broke my heart, he was so brave going into surgery, all the while the weight of that thought fully on his shoulder, and he laughed and played, and did everything to make us feel better. What a great kid, and wonderful role model to me.
Well, thats it so far today, I will update tonight after todays events.
Again, Thank you all for your prayers, and Thank you to his beautiful Donor family, without whom my baby would not be here. Please be sure to pray for them, for peace, and comfort during this time.
Victoria
No farting yet. His little friend who is 8 said that there is a candy that is supposed to make you fart, so he is going to have his mom go to the store to look for it. Wouldnt that be a crazy idea...lol
He is doing well today. Trying to get used to coughing with his new lungs. He doesnt feel like he has to cough becuase they cut that nerve, but he does need to. He is getting chest PT right now. Nothing compared to the vest he used to get.
He has been walking 3 times a day. yesterday he walked a long way all the way to the other end of the ward, and stood in front of the kitchen. He wouldnt move for about 5 minutes, just stared at it...lol...
Today is a new day, and we are praying for a little gas (funny to pray for gas), so he can eat and drink... Poor kid keeps seeing commercials for food and drinks and starts crying. <img src="i/expressions/face-icon-small-sad.gif" border="0">
Anyway, he has had the urine catheter removed, his arterial line removed, and yesterday they had him off of O2 for a while and he was satting at 100% still, but when he went for a walk we had to go back on 1 litre. which is a far cry from the 3-4 litres pre tx. He is clinging to it, tho. He is a little afraid not to have the O2. He has had it for over a year.
they are just waiting to remove the NG tube, and a couple chest tubes before they can send him to the step down unit. He cant go there with 4 chest tubes.
Otherwise he is doing fantastic. And yes I am sleeping. some. There is a recliner here in the room by the window, and I get some sleep when he sleeps. I will go home tonight and switch with Chris, poor guy is trying to move in at the house with a broken foot.
But so far Garrans meds are doing good, he isnt having any wierd side effects yet. He was cranky yesterday to his nurse, but mostly that was because he wants to eat and drink. He is s little depressed, which I am told is one side effect. I sat up last night and we told stories, that made his day, and he smiled alot.
Chris bought him a harmonica, and everytime I told a new part in the story he would play the harmonica. He said that the biggest difference he can feel so far, is that he can HOLD HIS BREATH. He couldnt do that before. He cant wait to go swimming. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I asked him what he was most grateful for, or excited about concerning his lungs. He said he was excited that he did not die. that just about broke my heart, he was so brave going into surgery, all the while the weight of that thought fully on his shoulder, and he laughed and played, and did everything to make us feel better. What a great kid, and wonderful role model to me.
Well, thats it so far today, I will update tonight after todays events.
Again, Thank you all for your prayers, and Thank you to his beautiful Donor family, without whom my baby would not be here. Please be sure to pray for them, for peace, and comfort during this time.
Victoria