Gathering info...

[Scarlett81]

24

DF508 and ?- very rare mutation

fev1-77.

 

[Bumblebee]

23<br>
<br>
Double delta 508<br>
<br>
FEV1 = 65%<br>
<br>
No Transplant

 

[Bumblebee]

23<br>
<br>
Double delta 508<br>
<br>
FEV1 = 65%<br>
<br>
No Transplant

 

[Bumblebee]

23<br>
<br>
Double delta 508<br>
<br>
FEV1 = 65%<br>
<br>
No Transplant

 

[Momtana]

I have only found one reference to others with my second mutation - siblings in Belgium.
I was diagnosed at age 50.
Mutations are DeltaF508 and 1556K
no Tx
since diagnosis my FEV1 has ranged from 69-90 - 8/06 was the 90!

 

[Momtana]

I have only found one reference to others with my second mutation - siblings in Belgium.
I was diagnosed at age 50.
Mutations are DeltaF508 and 1556K
no Tx
since diagnosis my FEV1 has ranged from 69-90 - 8/06 was the 90!

 

[Momtana]

I have only found one reference to others with my second mutation - siblings in Belgium.
I was diagnosed at age 50.
Mutations are DeltaF508 and 1556K
no Tx
since diagnosis my FEV1 has ranged from 69-90 - 8/06 was the 90!

 

[LouLou]

28

DF508 and G551D

FEV1 61%

No transplant

 

[LouLou]

28

DF508 and G551D

FEV1 61%

No transplant

 

[LouLou]

28

DF508 and G551D

FEV1 61%

No transplant

 

[JazzysMom]

38

Double Delta F508

FEV 48%

No Tx

 

[JazzysMom]

38

Double Delta F508

FEV 48%

No Tx

 

[JazzysMom]

38

Double Delta F508

FEV 48%

No Tx

 

[NoExcuses]

Genetics is so interesting!

25

Delta F508
Delta i507

FEV1 95%

No transplant

 

[NoExcuses]

Genetics is so interesting!

25

Delta F508
Delta i507

FEV1 95%

No transplant

 

[NoExcuses]

Genetics is so interesting!

25

Delta F508
Delta i507

FEV1 95%

No transplant

 

[princessjdc]

Age: 26

Mutations : G542X and G542X

Fev1: 89%


If you have had a tx, at what age?: No TX

 

[princessjdc]

Age: 26

Mutations : G542X and G542X

Fev1: 89%


If you have had a tx, at what age?: No TX

 

[princessjdc]

Age: 26

Mutations : G542X and G542X

Fev1: 89%


If you have had a tx, at what age?: No TX

 

[TCNJcystic]

20
D508/D508
90%
NO TX