?get insurance to pay 4 an eflow?

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>

I dont know if I have been of any help but if you are interested in trying out a pari trek I think I have one I was going to sell on ebay, let me kknow.</end quote></div>


Be careful - as I'm sure you already know, the Trek cannot be used with Pulmozyme or TOBI/tobramycin.

The compressor simply doesn't give an adequate respirable does to be effective.</end quote></div>



You also have to keep in mind portable nebs are not approved for tobi or pulmozyme but from what I can read/feel/tell I get nearly the same from the portable trek so if it is a one off situaiton I am not concerned and I do my pulmozyme on it every otehr month in the car when on TOBI.


Amy-see the line right above the one you quoted. We all have to decide what risks/benefits are worth it to us and this is one I have decided to take (Not advising others to do so). When I looked up the performance of the trek-s particle size and output I think its fairly close to a home neb however obviously thats not science. All the more reason I am hoping they speed along the e-flow en masse (&Popularity) though!

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>

I dont know if I have been of any help but if you are interested in trying out a pari trek I think I have one I was going to sell on ebay, let me kknow.</end quote></div>


Be careful - as I'm sure you already know, the Trek cannot be used with Pulmozyme or TOBI/tobramycin.

The compressor simply doesn't give an adequate respirable does to be effective.</end quote></div>



You also have to keep in mind portable nebs are not approved for tobi or pulmozyme but from what I can read/feel/tell I get nearly the same from the portable trek so if it is a one off situaiton I am not concerned and I do my pulmozyme on it every otehr month in the car when on TOBI.


Amy-see the line right above the one you quoted. We all have to decide what risks/benefits are worth it to us and this is one I have decided to take (Not advising others to do so). When I looked up the performance of the trek-s particle size and output I think its fairly close to a home neb however obviously thats not science. All the more reason I am hoping they speed along the e-flow en masse (&Popularity) though!

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>

I dont know if I have been of any help but if you are interested in trying out a pari trek I think I have one I was going to sell on ebay, let me kknow.</end quote></div>


Be careful - as I'm sure you already know, the Trek cannot be used with Pulmozyme or TOBI/tobramycin.

The compressor simply doesn't give an adequate respirable does to be effective.</end quote></div>



You also have to keep in mind portable nebs are not approved for tobi or pulmozyme but from what I can read/feel/tell I get nearly the same from the portable trek so if it is a one off situaiton I am not concerned and I do my pulmozyme on it every otehr month in the car when on TOBI.


Amy-see the line right above the one you quoted. We all have to decide what risks/benefits are worth it to us and this is one I have decided to take (Not advising others to do so). When I looked up the performance of the trek-s particle size and output I think its fairly close to a home neb however obviously thats not science. All the more reason I am hoping they speed along the e-flow en masse (&Popularity) though!

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>

I dont know if I have been of any help but if you are interested in trying out a pari trek I think I have one I was going to sell on ebay, let me kknow.</end quote>


Be careful - as I'm sure you already know, the Trek cannot be used with Pulmozyme or TOBI/tobramycin.

The compressor simply doesn't give an adequate respirable does to be effective.</end quote>



You also have to keep in mind portable nebs are not approved for tobi or pulmozyme but from what I can read/feel/tell I get nearly the same from the portable trek so if it is a one off situaiton I am not concerned and I do my pulmozyme on it every otehr month in the car when on TOBI.


Amy-see the line right above the one you quoted. We all have to decide what risks/benefits are worth it to us and this is one I have decided to take (Not advising others to do so). When I looked up the performance of the trek-s particle size and output I think its fairly close to a home neb however obviously thats not science. All the more reason I am hoping they speed along the e-flow en masse (&Popularity) though!

 

[mom2lillian]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>
<br />
<br />I dont know if I have been of any help but if you are interested in trying out a pari trek I think I have one I was going to sell on ebay, let me kknow.</end quote>
<br />
<br />
<br />Be careful - as I'm sure you already know, the Trek cannot be used with Pulmozyme or TOBI/tobramycin.
<br />
<br />The compressor simply doesn't give an adequate respirable does to be effective.</end quote>
<br />
<br />
<br />
<br />You also have to keep in mind portable nebs are not approved for tobi or pulmozyme but from what I can read/feel/tell I get nearly the same from the portable trek so if it is a one off situaiton I am not concerned and I do my pulmozyme on it every otehr month in the car when on TOBI.
<br />
<br />
<br />Amy-see the line right above the one you quoted. We all have to decide what risks/benefits are worth it to us and this is one I have decided to take (Not advising others to do so). When I looked up the performance of the trek-s particle size and output I think its fairly close to a home neb however obviously thats not science. All the more reason I am hoping they speed along the e-flow en masse (&Popularity) though!
<br />
<br />
<br />
<br />
<br />

 

[Scarlett81]

ok,well i think i've seen both sides.
i'd love to get a trek-and will consider it. however, how do we know that the same thing that happened to those few patients with tobi doses won't happen w the trek-or an ultrasonic neb from omron for that matter?
if none of them have been approved for tobi or pulmo, how does anyone really know?
maybe this is all reaching, but it gives further "oomf" to the cf/frontier medicine argument. someone has to try these things, and there is always a risk benefit ratio.
that being said, personally, since i have an 11 month old i don't want to start guinea pigging things yet.
i think for me the way to go would be to get an eflow or trek (i'm not going w omron again) and use it for my other nebs-maybe i can cut down on treatment time a little that way-and keep the old neb plugged in upstairs so i can run up there to do tobi away from the baby.

 

[Scarlett81]

ok,well i think i've seen both sides.
i'd love to get a trek-and will consider it. however, how do we know that the same thing that happened to those few patients with tobi doses won't happen w the trek-or an ultrasonic neb from omron for that matter?
if none of them have been approved for tobi or pulmo, how does anyone really know?
maybe this is all reaching, but it gives further "oomf" to the cf/frontier medicine argument. someone has to try these things, and there is always a risk benefit ratio.
that being said, personally, since i have an 11 month old i don't want to start guinea pigging things yet.
i think for me the way to go would be to get an eflow or trek (i'm not going w omron again) and use it for my other nebs-maybe i can cut down on treatment time a little that way-and keep the old neb plugged in upstairs so i can run up there to do tobi away from the baby.

 

[Scarlett81]

ok,well i think i've seen both sides.
i'd love to get a trek-and will consider it. however, how do we know that the same thing that happened to those few patients with tobi doses won't happen w the trek-or an ultrasonic neb from omron for that matter?
if none of them have been approved for tobi or pulmo, how does anyone really know?
maybe this is all reaching, but it gives further "oomf" to the cf/frontier medicine argument. someone has to try these things, and there is always a risk benefit ratio.
that being said, personally, since i have an 11 month old i don't want to start guinea pigging things yet.
i think for me the way to go would be to get an eflow or trek (i'm not going w omron again) and use it for my other nebs-maybe i can cut down on treatment time a little that way-and keep the old neb plugged in upstairs so i can run up there to do tobi away from the baby.

 

[Scarlett81]

ok,well i think i've seen both sides.
i'd love to get a trek-and will consider it. however, how do we know that the same thing that happened to those few patients with tobi doses won't happen w the trek-or an ultrasonic neb from omron for that matter?
if none of them have been approved for tobi or pulmo, how does anyone really know?
maybe this is all reaching, but it gives further "oomf" to the cf/frontier medicine argument. someone has to try these things, and there is always a risk benefit ratio.
that being said, personally, since i have an 11 month old i don't want to start guinea pigging things yet.
i think for me the way to go would be to get an eflow or trek (i'm not going w omron again) and use it for my other nebs-maybe i can cut down on treatment time a little that way-and keep the old neb plugged in upstairs so i can run up there to do tobi away from the baby.

 

[Scarlett81]

ok,well i think i've seen both sides.
<br />i'd love to get a trek-and will consider it. however, how do we know that the same thing that happened to those few patients with tobi doses won't happen w the trek-or an ultrasonic neb from omron for that matter?
<br />if none of them have been approved for tobi or pulmo, how does anyone really know?
<br />maybe this is all reaching, but it gives further "oomf" to the cf/frontier medicine argument. someone has to try these things, and there is always a risk benefit ratio.
<br />that being said, personally, since i have an 11 month old i don't want to start guinea pigging things yet.
<br />i think for me the way to go would be to get an eflow or trek (i'm not going w omron again) and use it for my other nebs-maybe i can cut down on treatment time a little that way-and keep the old neb plugged in upstairs so i can run up there to do tobi away from the baby.

 

[Scarlett81]

btw, for those of u that have used the trek, do u like it? is it faster than a standard neb?

 

[Scarlett81]

btw, for those of u that have used the trek, do u like it? is it faster than a standard neb?

 

[Scarlett81]

btw, for those of u that have used the trek, do u like it? is it faster than a standard neb?

 

[Scarlett81]

btw, for those of u that have used the trek, do u like it? is it faster than a standard neb?

 

[Scarlett81]

btw, for those of u that have used the trek, do u like it? is it faster than a standard neb?

 

[AnD]

The Trek isn't faster, but the Pari Sprint neb that comes with it is a <i>tiny</i> bit faster than the Pari LC +. The Sprint neb isn't approved for Tobi or Pulmozyme either (particle size again), so if I end up having to do all my nebs in the car, I use the Pari LC + with it for the Pulmozyme/Tobi/Colistin. I do the Tobi, Colistin or Pulmozyme in it rarely (going on the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do my Xopenex and HS in it at least 2 mornings a week, on my way to the pool, or on the way home from the movies, etc..

The good thing about the Trek is that it can be plugged into the car or run off of its battery, so it's easily portable (I made a net "sling" for mine so I can wear it hands free, lol). It's also nice to have around if the power goes out <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I got mine from a place called Espot Deals, for around $140, including the battery. I have had to have it replace under warranty once (recently), but Pari was great in handling it <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

 

[AnD]

The Trek isn't faster, but the Pari Sprint neb that comes with it is a <i>tiny</i> bit faster than the Pari LC +. The Sprint neb isn't approved for Tobi or Pulmozyme either (particle size again), so if I end up having to do all my nebs in the car, I use the Pari LC + with it for the Pulmozyme/Tobi/Colistin. I do the Tobi, Colistin or Pulmozyme in it rarely (going on the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do my Xopenex and HS in it at least 2 mornings a week, on my way to the pool, or on the way home from the movies, etc..

The good thing about the Trek is that it can be plugged into the car or run off of its battery, so it's easily portable (I made a net "sling" for mine so I can wear it hands free, lol). It's also nice to have around if the power goes out <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I got mine from a place called Espot Deals, for around $140, including the battery. I have had to have it replace under warranty once (recently), but Pari was great in handling it <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

 

[AnD]

The Trek isn't faster, but the Pari Sprint neb that comes with it is a <i>tiny</i> bit faster than the Pari LC +. The Sprint neb isn't approved for Tobi or Pulmozyme either (particle size again), so if I end up having to do all my nebs in the car, I use the Pari LC + with it for the Pulmozyme/Tobi/Colistin. I do the Tobi, Colistin or Pulmozyme in it rarely (going on the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do my Xopenex and HS in it at least 2 mornings a week, on my way to the pool, or on the way home from the movies, etc..

The good thing about the Trek is that it can be plugged into the car or run off of its battery, so it's easily portable (I made a net "sling" for mine so I can wear it hands free, lol). It's also nice to have around if the power goes out <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I got mine from a place called Espot Deals, for around $140, including the battery. I have had to have it replace under warranty once (recently), but Pari was great in handling it <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

 

[AnD]

The Trek isn't faster, but the Pari Sprint neb that comes with it is a <i>tiny</i> bit faster than the Pari LC +. The Sprint neb isn't approved for Tobi or Pulmozyme either (particle size again), so if I end up having to do all my nebs in the car, I use the Pari LC + with it for the Pulmozyme/Tobi/Colistin. I do the Tobi, Colistin or Pulmozyme in it rarely (going on the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do my Xopenex and HS in it at least 2 mornings a week, on my way to the pool, or on the way home from the movies, etc..

The good thing about the Trek is that it can be plugged into the car or run off of its battery, so it's easily portable (I made a net "sling" for mine so I can wear it hands free, lol). It's also nice to have around if the power goes out <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I got mine from a place called Espot Deals, for around $140, including the battery. I have had to have it replace under warranty once (recently), but Pari was great in handling it <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

 

[AnD]

The Trek isn't faster, but the Pari Sprint neb that comes with it is a <i>tiny</i> bit faster than the Pari LC +. The Sprint neb isn't approved for Tobi or Pulmozyme either (particle size again), so if I end up having to do all my nebs in the car, I use the Pari LC + with it for the Pulmozyme/Tobi/Colistin. I do the Tobi, Colistin or Pulmozyme in it rarely (going on the "something is better than nothing" theory <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but I do my Xopenex and HS in it at least 2 mornings a week, on my way to the pool, or on the way home from the movies, etc..
<br />
<br />The good thing about the Trek is that it can be plugged into the car or run off of its battery, so it's easily portable (I made a net "sling" for mine so I can wear it hands free, lol). It's also nice to have around if the power goes out <img src="i/expressions/face-icon-small-wink.gif" border="0"> . I got mine from a place called Espot Deals, for around $140, including the battery. I have had to have it replace under warranty once (recently), but Pari was great in handling it <img src="i/expressions/face-icon-small-smile.gif" border="0"> .