Perhaps this would be better served by posting in my blog, but I haven't really posted anything in so long I am not sure anymore. It seems each time I come back, I read about another CFer who has gotten their wings, and am too sad to post anything after that. I recently came for a visit since I have begun to suffer from the effects of CFRD and wanted to seek out Melissa's advice, and was distraught to find that she had recently passed.
I also have suffered from unrelated (we think) cardiac issues ( had open heart surgery 3 years ago to remove a tumor from right atrium) and Paul/Q helped me so much during this difficult time and I see that he too has now passed.
There are many others I "knew" too that seemed to have passed recently, and I hope they all are breathing easy now, but I can't help but wonder about CF and aging.
I have had the fortune of a relatively "good" year. I have only been hospitalized once in the past 18 months and still continue to work full time. Recently, though, I have not been feeling "well" and have cultured non-TB mycobacteria and have experienced super high and low blood sugars. I have the added challenge of cardiac issues, and my valves seem worse with each echo.
I can't help but wonder (and in a skewed fortunate way at that) if this is what our parents and grandparents talk and worry about. If so, I am glad that I have lived long enough to be able to worry about things like this. If not, I wonder what they do worry about.
As an aging CFer, besides thinking about leaving a child or spouse behind, what do you think and worry about as you age?
I also have suffered from unrelated (we think) cardiac issues ( had open heart surgery 3 years ago to remove a tumor from right atrium) and Paul/Q helped me so much during this difficult time and I see that he too has now passed.
There are many others I "knew" too that seemed to have passed recently, and I hope they all are breathing easy now, but I can't help but wonder about CF and aging.
I have had the fortune of a relatively "good" year. I have only been hospitalized once in the past 18 months and still continue to work full time. Recently, though, I have not been feeling "well" and have cultured non-TB mycobacteria and have experienced super high and low blood sugars. I have the added challenge of cardiac issues, and my valves seem worse with each echo.
I can't help but wonder (and in a skewed fortunate way at that) if this is what our parents and grandparents talk and worry about. If so, I am glad that I have lived long enough to be able to worry about things like this. If not, I wonder what they do worry about.
As an aging CFer, besides thinking about leaving a child or spouse behind, what do you think and worry about as you age?