Well I just wanted to say a couple words of encouragement. I have been listed for 17 months and counting. I am a hard match because of resisitant antibodies in my blood. With that being said, I am still very hopeful. I knew going into this it could be a two year wait. So a few things I say to myself when I start to get anxious....1st, I feel very confident that the lungs that were made for me to have and spend the rest of my life with will come when they were meant to come. That is more about faith than anything, but it does help me. Also, I don't know where your numbers are and what your daily life is like,but I know at times I feel more urgent than others. The 2nd thing I do alot is, it seems like many day I get up saying today would be a great day for lungs, I feel everything is in order and place, and then I go to bed saying, well I guess I made it thru with my own, so today was not my day.
I have 3 kids and am very busy, but definately feel myself slowing down, and do not want this to go on much longer, so I may consider trying to list with a second clinic soon, I am going over that in my head know as an option.
I don't know if any of this helps at all, but just know you are not alone, and the wait will surely be worth it. Heres hoping for new lungs!!!!