Gina / Pepe

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senatorgraham

New member
"There is no norm." Everyone is different and everyones' body is different. People react differently to the trauma the body has to go through to recieve new lungs and people also react differently to medications.

For those considering going through transplant, I would say that it is a very personal decision. For myself, I can only say that mine went very smoothly, and I feel very lucky. I left the hospital and went back to work-part time-on the fourteenth day. I would do it again if I had to.

However, when I read about what Gina/Pepe continues to go through post-transplant my heart aches. I am saddened that she must continue to go through so much. I hope and pray Gina makes an easier and quicker recovery.
 
S

senatorgraham

New member
"There is no norm." Everyone is different and everyones' body is different. People react differently to the trauma the body has to go through to recieve new lungs and people also react differently to medications.

For those considering going through transplant, I would say that it is a very personal decision. For myself, I can only say that mine went very smoothly, and I feel very lucky. I left the hospital and went back to work-part time-on the fourteenth day. I would do it again if I had to.

However, when I read about what Gina/Pepe continues to go through post-transplant my heart aches. I am saddened that she must continue to go through so much. I hope and pray Gina makes an easier and quicker recovery.
 
S

senatorgraham

New member
"There is no norm." Everyone is different and everyones' body is different. People react differently to the trauma the body has to go through to recieve new lungs and people also react differently to medications.

For those considering going through transplant, I would say that it is a very personal decision. For myself, I can only say that mine went very smoothly, and I feel very lucky. I left the hospital and went back to work-part time-on the fourteenth day. I would do it again if I had to.

However, when I read about what Gina/Pepe continues to go through post-transplant my heart aches. I am saddened that she must continue to go through so much. I hope and pray Gina makes an easier and quicker recovery.
 
S

senatorgraham

New member
"There is no norm." Everyone is different and everyones' body is different. People react differently to the trauma the body has to go through to recieve new lungs and people also react differently to medications.

For those considering going through transplant, I would say that it is a very personal decision. For myself, I can only say that mine went very smoothly, and I feel very lucky. I left the hospital and went back to work-part time-on the fourteenth day. I would do it again if I had to.

However, when I read about what Gina/Pepe continues to go through post-transplant my heart aches. I am saddened that she must continue to go through so much. I hope and pray Gina makes an easier and quicker recovery.
 
S

senatorgraham

New member
"There is no norm." Everyone is different and everyones' body is different. People react differently to the trauma the body has to go through to recieve new lungs and people also react differently to medications.
<br />
<br />For those considering going through transplant, I would say that it is a very personal decision. For myself, I can only say that mine went very smoothly, and I feel very lucky. I left the hospital and went back to work-part time-on the fourteenth day. I would do it again if I had to.
<br />
<br />However, when I read about what Gina/Pepe continues to go through post-transplant my heart aches. I am saddened that she must continue to go through so much. I hope and pray Gina makes an easier and quicker recovery.
<br />
<br />
 
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Transplantmommy

New member
It is very unfortunate that Gina has had all of these complications but I agree with the others, it might be due to the state that she was in before she got the lungs.

As for the hallucinations...my Tx doctors warned me that I might have those and that I would have to have meds for them if they continued. That's one of the reasons that I had to see a psychiatrist before and after Tx.

When I was first being evaluated for the transplants, it was thought that I might not do so well afterwards because I was having double lung and liver and the Cleveland Clinic had never done that before. They prepared me for everything possible. Fortunately the only things that I had go wrong was uncontrolled pain, bad nightmares, lost my voice for two months due to a vocal cord injury, and 2 acute rejections.

Everyone will have complications of come sort but everyone is also different and some will be more severe than others.

I really hope that things turn around for Gina. She is a definite fighter with everything that has come her way!!!
 
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Transplantmommy

New member
It is very unfortunate that Gina has had all of these complications but I agree with the others, it might be due to the state that she was in before she got the lungs.

As for the hallucinations...my Tx doctors warned me that I might have those and that I would have to have meds for them if they continued. That's one of the reasons that I had to see a psychiatrist before and after Tx.

When I was first being evaluated for the transplants, it was thought that I might not do so well afterwards because I was having double lung and liver and the Cleveland Clinic had never done that before. They prepared me for everything possible. Fortunately the only things that I had go wrong was uncontrolled pain, bad nightmares, lost my voice for two months due to a vocal cord injury, and 2 acute rejections.

Everyone will have complications of come sort but everyone is also different and some will be more severe than others.

I really hope that things turn around for Gina. She is a definite fighter with everything that has come her way!!!
 
T

Transplantmommy

New member
It is very unfortunate that Gina has had all of these complications but I agree with the others, it might be due to the state that she was in before she got the lungs.

As for the hallucinations...my Tx doctors warned me that I might have those and that I would have to have meds for them if they continued. That's one of the reasons that I had to see a psychiatrist before and after Tx.

When I was first being evaluated for the transplants, it was thought that I might not do so well afterwards because I was having double lung and liver and the Cleveland Clinic had never done that before. They prepared me for everything possible. Fortunately the only things that I had go wrong was uncontrolled pain, bad nightmares, lost my voice for two months due to a vocal cord injury, and 2 acute rejections.

Everyone will have complications of come sort but everyone is also different and some will be more severe than others.

I really hope that things turn around for Gina. She is a definite fighter with everything that has come her way!!!
 
T

Transplantmommy

New member
It is very unfortunate that Gina has had all of these complications but I agree with the others, it might be due to the state that she was in before she got the lungs.

As for the hallucinations...my Tx doctors warned me that I might have those and that I would have to have meds for them if they continued. That's one of the reasons that I had to see a psychiatrist before and after Tx.

When I was first being evaluated for the transplants, it was thought that I might not do so well afterwards because I was having double lung and liver and the Cleveland Clinic had never done that before. They prepared me for everything possible. Fortunately the only things that I had go wrong was uncontrolled pain, bad nightmares, lost my voice for two months due to a vocal cord injury, and 2 acute rejections.

Everyone will have complications of come sort but everyone is also different and some will be more severe than others.

I really hope that things turn around for Gina. She is a definite fighter with everything that has come her way!!!
 
T

Transplantmommy

New member
It is very unfortunate that Gina has had all of these complications but I agree with the others, it might be due to the state that she was in before she got the lungs.
<br />
<br />As for the hallucinations...my Tx doctors warned me that I might have those and that I would have to have meds for them if they continued. That's one of the reasons that I had to see a psychiatrist before and after Tx.
<br />
<br />When I was first being evaluated for the transplants, it was thought that I might not do so well afterwards because I was having double lung and liver and the Cleveland Clinic had never done that before. They prepared me for everything possible. Fortunately the only things that I had go wrong was uncontrolled pain, bad nightmares, lost my voice for two months due to a vocal cord injury, and 2 acute rejections.
<br />
<br />Everyone will have complications of come sort but everyone is also different and some will be more severe than others.
<br />
<br />I really hope that things turn around for Gina. She is a definite fighter with everything that has come her way!!!
 
P

purpledoggy

New member
My husband had alot of complications after his transplant as well. His first night in icu his blood pressure was unstable and he started with a fever. A few days later he started bleeding into his right lung which collapsed that side. He also had a pneumothorax on his other side, his kidneys failed, his heart rate would jump into the 180's for hours, he had horrible anxiety, he developed a bleeding ulcer in his stomach, his sats would drop from mucous plugs in his new lungs, so yeah you can have alot of complications post transplant. I was told by his transplant docs that what he experienced was not uncommon. They said some people fly through with few problems while others don't. I wish they would have explained the post transplant stuff to us so I didn't feel like everything was going horribly wrong. Also my husband did hallucinate alot from all the meds they had him on. He thought our cat was under his chair, that he was going through a maze in his hospital bed and that dragons were in his room. He was also very sick before his transplant so I would guess that had something to do with his post transplant problems he had. When I read the blogs about Gina's progress I see alot of what my husband went through so I'm hopeful that its just semi normal post transplant stuff.
 
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purpledoggy

New member
My husband had alot of complications after his transplant as well. His first night in icu his blood pressure was unstable and he started with a fever. A few days later he started bleeding into his right lung which collapsed that side. He also had a pneumothorax on his other side, his kidneys failed, his heart rate would jump into the 180's for hours, he had horrible anxiety, he developed a bleeding ulcer in his stomach, his sats would drop from mucous plugs in his new lungs, so yeah you can have alot of complications post transplant. I was told by his transplant docs that what he experienced was not uncommon. They said some people fly through with few problems while others don't. I wish they would have explained the post transplant stuff to us so I didn't feel like everything was going horribly wrong. Also my husband did hallucinate alot from all the meds they had him on. He thought our cat was under his chair, that he was going through a maze in his hospital bed and that dragons were in his room. He was also very sick before his transplant so I would guess that had something to do with his post transplant problems he had. When I read the blogs about Gina's progress I see alot of what my husband went through so I'm hopeful that its just semi normal post transplant stuff.
 
P

purpledoggy

New member
My husband had alot of complications after his transplant as well. His first night in icu his blood pressure was unstable and he started with a fever. A few days later he started bleeding into his right lung which collapsed that side. He also had a pneumothorax on his other side, his kidneys failed, his heart rate would jump into the 180's for hours, he had horrible anxiety, he developed a bleeding ulcer in his stomach, his sats would drop from mucous plugs in his new lungs, so yeah you can have alot of complications post transplant. I was told by his transplant docs that what he experienced was not uncommon. They said some people fly through with few problems while others don't. I wish they would have explained the post transplant stuff to us so I didn't feel like everything was going horribly wrong. Also my husband did hallucinate alot from all the meds they had him on. He thought our cat was under his chair, that he was going through a maze in his hospital bed and that dragons were in his room. He was also very sick before his transplant so I would guess that had something to do with his post transplant problems he had. When I read the blogs about Gina's progress I see alot of what my husband went through so I'm hopeful that its just semi normal post transplant stuff.
 
P

purpledoggy

New member
My husband had alot of complications after his transplant as well. His first night in icu his blood pressure was unstable and he started with a fever. A few days later he started bleeding into his right lung which collapsed that side. He also had a pneumothorax on his other side, his kidneys failed, his heart rate would jump into the 180's for hours, he had horrible anxiety, he developed a bleeding ulcer in his stomach, his sats would drop from mucous plugs in his new lungs, so yeah you can have alot of complications post transplant. I was told by his transplant docs that what he experienced was not uncommon. They said some people fly through with few problems while others don't. I wish they would have explained the post transplant stuff to us so I didn't feel like everything was going horribly wrong. Also my husband did hallucinate alot from all the meds they had him on. He thought our cat was under his chair, that he was going through a maze in his hospital bed and that dragons were in his room. He was also very sick before his transplant so I would guess that had something to do with his post transplant problems he had. When I read the blogs about Gina's progress I see alot of what my husband went through so I'm hopeful that its just semi normal post transplant stuff.
 
P

purpledoggy

New member
My husband had alot of complications after his transplant as well. His first night in icu his blood pressure was unstable and he started with a fever. A few days later he started bleeding into his right lung which collapsed that side. He also had a pneumothorax on his other side, his kidneys failed, his heart rate would jump into the 180's for hours, he had horrible anxiety, he developed a bleeding ulcer in his stomach, his sats would drop from mucous plugs in his new lungs, so yeah you can have alot of complications post transplant. I was told by his transplant docs that what he experienced was not uncommon. They said some people fly through with few problems while others don't. I wish they would have explained the post transplant stuff to us so I didn't feel like everything was going horribly wrong. Also my husband did hallucinate alot from all the meds they had him on. He thought our cat was under his chair, that he was going through a maze in his hospital bed and that dragons were in his room. He was also very sick before his transplant so I would guess that had something to do with his post transplant problems he had. When I read the blogs about Gina's progress I see alot of what my husband went through so I'm hopeful that its just semi normal post transplant stuff.
 
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findingher

New member
Especially right after transplant, hallucinations are very common. It's such a high dosage of steroids, that you can experience paranoia (a friend of mine was convinced the hospital staff was trying to kill him), strange and vivid dreams, and yes, hallucinations. I think it's unfortunate, but a lot of hospitals seem to not really tell you how bad the steroids can make you feel emotionally.
 
F

findingher

New member
Especially right after transplant, hallucinations are very common. It's such a high dosage of steroids, that you can experience paranoia (a friend of mine was convinced the hospital staff was trying to kill him), strange and vivid dreams, and yes, hallucinations. I think it's unfortunate, but a lot of hospitals seem to not really tell you how bad the steroids can make you feel emotionally.
 
F

findingher

New member
Especially right after transplant, hallucinations are very common. It's such a high dosage of steroids, that you can experience paranoia (a friend of mine was convinced the hospital staff was trying to kill him), strange and vivid dreams, and yes, hallucinations. I think it's unfortunate, but a lot of hospitals seem to not really tell you how bad the steroids can make you feel emotionally.
 
F

findingher

New member
Especially right after transplant, hallucinations are very common. It's such a high dosage of steroids, that you can experience paranoia (a friend of mine was convinced the hospital staff was trying to kill him), strange and vivid dreams, and yes, hallucinations. I think it's unfortunate, but a lot of hospitals seem to not really tell you how bad the steroids can make you feel emotionally.
 
F

findingher

New member
Especially right after transplant, hallucinations are very common. It's such a high dosage of steroids, that you can experience paranoia (a friend of mine was convinced the hospital staff was trying to kill him), strange and vivid dreams, and yes, hallucinations. I think it's unfortunate, but a lot of hospitals seem to not really tell you how bad the steroids can make you feel emotionally.
 
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