it's strange how a clinic visit is a tenacious cocktail of misery and hope. my pft's are down, way down. 50 from 72 two months ago. my pulse ox sits at 95; i'm usually at 98, so that's a little low. and i've lost 7lbs. but my exercise tolerance is at an all time high, and i have no shortness of breath, and not so much coughing.
what really puzzles me, i guess, is my pft's that seem to bounce erratically from mid 50's to as high as 78. i know late july to mid september are my worst months, so the drop in pft's then is no surprise, but what about the rest, dammit?!?!
so, i'm being admitted. awesome. but it isn't so much out of severity, even though the pft's are pretty effin sad. there is thought that cipro combined with renewed access to meds that i should have been on for the last two months, and some clinical trials i can participate in, will probably do the trick. but being that i'm unemployed and off from school for now, this is a great time to get back to tip top shape by doing a full fledged time and tune. and being at my peak baseline gives me a better shot at participating in the current clinical trials - tobi inhaler, and one i.v. targeting the biofilms of pa...or something. i opted for the tune up.
*sigh* it's not a total upheaval, partly because i chose it, but mostly because it's not a last ditch effort like the last time. this is an intervention of sorts, and i intend to make the best of it. i intend to set myself up to stay at the top, too. a lot of changes have occurred since my last awakening, now's the time to test their efficacy.
i'm not so good about journaling progress, but i will immersed in boredom, and i'll likely take it out on my blog, my guitar, and my notebook....and whatever else between.
what really puzzles me, i guess, is my pft's that seem to bounce erratically from mid 50's to as high as 78. i know late july to mid september are my worst months, so the drop in pft's then is no surprise, but what about the rest, dammit?!?!
so, i'm being admitted. awesome. but it isn't so much out of severity, even though the pft's are pretty effin sad. there is thought that cipro combined with renewed access to meds that i should have been on for the last two months, and some clinical trials i can participate in, will probably do the trick. but being that i'm unemployed and off from school for now, this is a great time to get back to tip top shape by doing a full fledged time and tune. and being at my peak baseline gives me a better shot at participating in the current clinical trials - tobi inhaler, and one i.v. targeting the biofilms of pa...or something. i opted for the tune up.
*sigh* it's not a total upheaval, partly because i chose it, but mostly because it's not a last ditch effort like the last time. this is an intervention of sorts, and i intend to make the best of it. i intend to set myself up to stay at the top, too. a lot of changes have occurred since my last awakening, now's the time to test their efficacy.
i'm not so good about journaling progress, but i will immersed in boredom, and i'll likely take it out on my blog, my guitar, and my notebook....and whatever else between.