Goodbye

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asperger_syndrome
">http://en.wikipedia.org/wiki/Asperger_syndrome
</a>



I will not stand by and let someone with a SERIOUS disability be picked on by competent adults. I hope it is just an issue of misunderstanding.</end quote></div>

I certainly hope so too!

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asperger_syndrome
">http://en.wikipedia.org/wiki/Asperger_syndrome
</a>



I will not stand by and let someone with a SERIOUS disability be picked on by competent adults. I hope it is just an issue of misunderstanding.</end quote></div>

I certainly hope so too!

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asperger_syndrome
">http://en.wikipedia.org/wiki/Asperger_syndrome
</a>



I will not stand by and let someone with a SERIOUS disability be picked on by competent adults. I hope it is just an issue of misunderstanding.</end quote></div>

I certainly hope so too!

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asperger_syndrome
">http://en.wikipedia.org/wiki/Asperger_syndrome
</a>



I will not stand by and let someone with a SERIOUS disability be picked on by competent adults. I hope it is just an issue of misunderstanding.</end quote>

I certainly hope so too!

 

[JazzysMom]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>katyf13</b></i>
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Asperger_syndrome
<br />">http://en.wikipedia.org/wiki/Asperger_syndrome
<br /></a>
<br />
<br />
<br />
<br />I will not stand by and let someone with a SERIOUS disability be picked on by competent adults. I hope it is just an issue of misunderstanding.</end quote>
<br />
<br />I certainly hope so too!
<br />
<br />

 

[CFHockeyMom]

I understand where you are coming from Katy but maybe you should review all of her posts. I don't believe a diagnosis of Aspbergers accounts for lying/deceit or multiple usernames with conflicting information.

We have Aspergers in our family and it definitley affects communication and human interaction but is not associated with distortion of the truth. "Sarah" has alleged diagnosis at various ages (3, 13, and 15). She also alleged mutations of DDF508 then later as DF508/M470V.

 

[CFHockeyMom]

I understand where you are coming from Katy but maybe you should review all of her posts. I don't believe a diagnosis of Aspbergers accounts for lying/deceit or multiple usernames with conflicting information.

We have Aspergers in our family and it definitley affects communication and human interaction but is not associated with distortion of the truth. "Sarah" has alleged diagnosis at various ages (3, 13, and 15). She also alleged mutations of DDF508 then later as DF508/M470V.

 

[CFHockeyMom]

I understand where you are coming from Katy but maybe you should review all of her posts. I don't believe a diagnosis of Aspbergers accounts for lying/deceit or multiple usernames with conflicting information.

We have Aspergers in our family and it definitley affects communication and human interaction but is not associated with distortion of the truth. "Sarah" has alleged diagnosis at various ages (3, 13, and 15). She also alleged mutations of DDF508 then later as DF508/M470V.

 

[CFHockeyMom]

I understand where you are coming from Katy but maybe you should review all of her posts. I don't believe a diagnosis of Aspbergers accounts for lying/deceit or multiple usernames with conflicting information.

We have Aspergers in our family and it definitley affects communication and human interaction but is not associated with distortion of the truth. "Sarah" has alleged diagnosis at various ages (3, 13, and 15). She also alleged mutations of DDF508 then later as DF508/M470V.

 

[CFHockeyMom]

I understand where you are coming from Katy but maybe you should review all of her posts. I don't believe a diagnosis of Aspbergers accounts for lying/deceit or multiple usernames with conflicting information.
<br />
<br />We have Aspergers in our family and it definitley affects communication and human interaction but is not associated with distortion of the truth. "Sarah" has alleged diagnosis at various ages (3, 13, and 15). She also alleged mutations of DDF508 then later as DF508/M470V.
<br />
<br />
<br />

 

[katyf13]

Oh well.

Poor kid, either way. If she is just being misundertood, poor kid. If she is making some or all of it up, poor kid.

Either way, I wish you the best.

 

[katyf13]

Oh well.

Poor kid, either way. If she is just being misundertood, poor kid. If she is making some or all of it up, poor kid.

Either way, I wish you the best.

 

[katyf13]

Oh well.

Poor kid, either way. If she is just being misundertood, poor kid. If she is making some or all of it up, poor kid.

Either way, I wish you the best.

 

[katyf13]

Oh well.

Poor kid, either way. If she is just being misundertood, poor kid. If she is making some or all of it up, poor kid.

Either way, I wish you the best.

 

[katyf13]

Oh well.
<br />
<br />Poor kid, either way. If she is just being misundertood, poor kid. If she is making some or all of it up, poor kid.
<br />
<br />Either way, I wish you the best.

 

[miesl]

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31576&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>Hey my name is Sarah I am new here. I have CF and I was dx with I was 3. I am 20 now. </end quote></div>

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=32106&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>I was DX when I was 13. I had the newborn screening test when I was born that said It was CF but my mom and dad would not told about it till years later.</end quote></div>

Not even looking at posts from cysticfibrosisgirl...
At various points in posting over the past 3 weeks, your PFTs have been:
4/11 93% (previously 50-60%) (taken THAT DAY)
4/23 96% (previously 50-75%)
4/29 121% Ooops, that's old.
4/29 45% (THAT DAY)

With a 93% and a clear culture (that's another story entirely), it's doubtful you would have gone back for clinic in less than three weeks.

O2:
4/15 "I went to RT today and my oxygen droped to 91 as I walked. when is it time to put on oxygen below 91?? "
4/23 "I also have Bronchiectasis and I am in reheab at the hospital 2 days a week and the rest of the week I walk with oxygen at the park for 15 to 20 mins. I do really well in reheab so far. Somtimes my sats do get a little low but not to bad."

The contradictions never end. I didn't even look for posts about sputum cultures (which are all over the place from clear to PA to b.cep) I'd look into it more, but I feel like crap today and don't feel like looking at these posts anymore.

 

[miesl]

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31576&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>Hey my name is Sarah I am new here. I have CF and I was dx with I was 3. I am 20 now. </end quote></div>

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=32106&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>I was DX when I was 13. I had the newborn screening test when I was born that said It was CF but my mom and dad would not told about it till years later.</end quote></div>

Not even looking at posts from cysticfibrosisgirl...
At various points in posting over the past 3 weeks, your PFTs have been:
4/11 93% (previously 50-60%) (taken THAT DAY)
4/23 96% (previously 50-75%)
4/29 121% Ooops, that's old.
4/29 45% (THAT DAY)

With a 93% and a clear culture (that's another story entirely), it's doubtful you would have gone back for clinic in less than three weeks.

O2:
4/15 "I went to RT today and my oxygen droped to 91 as I walked. when is it time to put on oxygen below 91?? "
4/23 "I also have Bronchiectasis and I am in reheab at the hospital 2 days a week and the rest of the week I walk with oxygen at the park for 15 to 20 mins. I do really well in reheab so far. Somtimes my sats do get a little low but not to bad."

The contradictions never end. I didn't even look for posts about sputum cultures (which are all over the place from clear to PA to b.cep) I'd look into it more, but I feel like crap today and don't feel like looking at these posts anymore.

 

[miesl]

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31576&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>Hey my name is Sarah I am new here. I have CF and I was dx with I was 3. I am 20 now. </end quote></div>

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=32106&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>I was DX when I was 13. I had the newborn screening test when I was born that said It was CF but my mom and dad would not told about it till years later.</end quote></div>

Not even looking at posts from cysticfibrosisgirl...
At various points in posting over the past 3 weeks, your PFTs have been:
4/11 93% (previously 50-60%) (taken THAT DAY)
4/23 96% (previously 50-75%)
4/29 121% Ooops, that's old.
4/29 45% (THAT DAY)

With a 93% and a clear culture (that's another story entirely), it's doubtful you would have gone back for clinic in less than three weeks.

O2:
4/15 "I went to RT today and my oxygen droped to 91 as I walked. when is it time to put on oxygen below 91?? "
4/23 "I also have Bronchiectasis and I am in reheab at the hospital 2 days a week and the rest of the week I walk with oxygen at the park for 15 to 20 mins. I do really well in reheab so far. Somtimes my sats do get a little low but not to bad."

The contradictions never end. I didn't even look for posts about sputum cultures (which are all over the place from clear to PA to b.cep) I'd look into it more, but I feel like crap today and don't feel like looking at these posts anymore.

 

[miesl]

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31576&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>Hey my name is Sarah I am new here. I have CF and I was dx with I was 3. I am 20 now. </end quote>

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=32106&highlight_key=y">here:</a>
<div class="FTQUOTE"><begin quote>I was DX when I was 13. I had the newborn screening test when I was born that said It was CF but my mom and dad would not told about it till years later.</end quote>

Not even looking at posts from cysticfibrosisgirl...
At various points in posting over the past 3 weeks, your PFTs have been:
4/11 93% (previously 50-60%) (taken THAT DAY)
4/23 96% (previously 50-75%)
4/29 121% Ooops, that's old.
4/29 45% (THAT DAY)

With a 93% and a clear culture (that's another story entirely), it's doubtful you would have gone back for clinic in less than three weeks.

O2:
4/15 "I went to RT today and my oxygen droped to 91 as I walked. when is it time to put on oxygen below 91?? "
4/23 "I also have Bronchiectasis and I am in reheab at the hospital 2 days a week and the rest of the week I walk with oxygen at the park for 15 to 20 mins. I do really well in reheab so far. Somtimes my sats do get a little low but not to bad."

The contradictions never end. I didn't even look for posts about sputum cultures (which are all over the place from clear to PA to b.cep) I'd look into it more, but I feel like crap today and don't feel like looking at these posts anymore.

 

[miesl]

From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=31576&highlight_key=y">here:</a>
<br /><div class="FTQUOTE"><begin quote>Hey my name is Sarah I am new here. I have CF and I was dx with I was 3. I am 20 now. </end quote>
<br />
<br />From <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=32106&highlight_key=y">here:</a>
<br /><div class="FTQUOTE"><begin quote>I was DX when I was 13. I had the newborn screening test when I was born that said It was CF but my mom and dad would not told about it till years later.</end quote>
<br />
<br />Not even looking at posts from cysticfibrosisgirl...
<br />At various points in posting over the past 3 weeks, your PFTs have been:
<br />4/11 93% (previously 50-60%) (taken THAT DAY)
<br />4/23 96% (previously 50-75%)
<br />4/29 121% Ooops, that's old.
<br />4/29 45% (THAT DAY)
<br />
<br />With a 93% and a clear culture (that's another story entirely), it's doubtful you would have gone back for clinic in less than three weeks.
<br />
<br />O2:
<br />4/15 "I went to RT today and my oxygen droped to 91 as I walked. when is it time to put on oxygen below 91?? "
<br />4/23 "I also have Bronchiectasis and I am in reheab at the hospital 2 days a week and the rest of the week I walk with oxygen at the park for 15 to 20 mins. I do really well in reheab so far. Somtimes my sats do get a little low but not to bad."
<br />
<br />The contradictions never end. I didn't even look for posts about sputum cultures (which are all over the place from clear to PA to b.cep) I'd look into it more, but I feel like crap today and don't feel like looking at these posts anymore.