I appreciated everyones reply. I think i have got the ball rolling now. I feel like i tell all my concerns to all the hospital personel. I just need everyone to be on the same page. I am hoping the next couple days Graycie will be back off TPN and all IV fluids. The doctors had to rethink their decisions and remember she same a short gut and CF. She is doing good today. I got lots of smiles. I hope it won't be much longer.
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Graysons huge step back
- Thread starter Tcole
- Start date
I appreciated everyones reply. I think i have got the ball rolling now. I feel like i tell all my concerns to all the hospital personel. I just need everyone to be on the same page. I am hoping the next couple days Graycie will be back off TPN and all IV fluids. The doctors had to rethink their decisions and remember she same a short gut and CF. She is doing good today. I got lots of smiles. I hope it won't be much longer.
I appreciated everyones reply. I think i have got the ball rolling now. I feel like i tell all my concerns to all the hospital personel. I just need everyone to be on the same page. I am hoping the next couple days Graycie will be back off TPN and all IV fluids. The doctors had to rethink their decisions and remember she same a short gut and CF. She is doing good today. I got lots of smiles. I hope it won't be much longer.
I appreciated everyones reply. I think i have got the ball rolling now. I feel like i tell all my concerns to all the hospital personel. I just need everyone to be on the same page. I am hoping the next couple days Graycie will be back off TPN and all IV fluids. The doctors had to rethink their decisions and remember she same a short gut and CF. She is doing good today. I got lots of smiles. I hope it won't be much longer.
I appreciated everyones reply. I think i have got the ball rolling now. I feel like i tell all my concerns to all the hospital personel. I just need everyone to be on the same page. I am hoping the next couple days Graycie will be back off TPN and all IV fluids. The doctors had to rethink their decisions and remember she same a short gut and CF. She is doing good today. I got lots of smiles. I hope it won't be much longer.
Tcole,
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Tcole,
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Tcole,
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Tcole,
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
www.benjaminanthony.blogspot.com
Feel free to send me a private message and I can give you my number if you would like to talk.
Hang in there!
Hugs,
Kati
Tcole,
<br />
<br />Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
<br />
<br />www.benjaminanthony.blogspot.com
<br />
<br />Feel free to send me a private message and I can give you my number if you would like to talk.
<br />
<br />Hang in there!
<br />
<br />Hugs,
<br />Kati
<br />
<br />
<br />Our situation is very similar to yours. This is my first time posting/replying to this forum. My son Ben was born March 10, 2008. He had MI and had 75% of his small intestine removed. We have spent the first four months in the hospital with TPN, lipids, antibiotics etc. We finally went home June 19th. Ben was finally doing great and eating about 4 ounces of Elecare (24 k/cal) seven times a day. He was slowly gaining and was about 9lbs 15 oz. He was taking two capsules of Ultrase before each feed. We are now back in the hospital as of last Thursday (8/28) because Ben had bloody stools and tested positive for C-diff. He is back on TPN and lipids and has lost over a pound since we admitted! I am beside myself with this set back. I am so sick of living in the hospital and just want my son to have a break (my husband and me too). I feel for you having to endure this. It is the most challenging experience of my life. I have been on an emotional rollercoaster and don't even know what I feel some days. I have been very happy with Ben's care under Dr. Nasr at University of Michigan Hospital. She is great at reminding me to be positive and reassures me he will pull through this. You can read about Ben on his blog at
<br />
<br />www.benjaminanthony.blogspot.com
<br />
<br />Feel free to send me a private message and I can give you my number if you would like to talk.
<br />
<br />Hang in there!
<br />
<br />Hugs,
<br />Kati
<br />