Has anyone forgone a cf center for a pulmonologist?

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

One thing to consider about NOT going to an accredited CF Center is if you are interested in doing clinical trials & such that comes through the CFF. That & maybe other things normally wouldnt be available unless at an accredited CF Center.



Good Luck!</end quote></div>


I agree with Mel! Things such as germ control and proper cleaning of nebs, etc. aren't "equal" across the board and the CFF puts out lots of cutting edge information with regard to trials and proper ways for CFers to do things that have been studied.

But, I also have gone to a terrible CF clinic and a great pulmonologist and would choose that particular pulomnologist over that CF clinic anyday... The pulmonologist had great bedside manner and actually seemed to care about me and follow and treat my symptoms, unlike the CF clinic who seemed way too into politics and treating every single CF patient the exact same. Not good. They ran the CF clinic as a corporation, whereas the pulmonologist did everything short of giving me his home phone number. So, it can go either way and you have to go with what you feel comfortable with.

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

One thing to consider about NOT going to an accredited CF Center is if you are interested in doing clinical trials & such that comes through the CFF. That & maybe other things normally wouldnt be available unless at an accredited CF Center.



Good Luck!</end quote></div>


I agree with Mel! Things such as germ control and proper cleaning of nebs, etc. aren't "equal" across the board and the CFF puts out lots of cutting edge information with regard to trials and proper ways for CFers to do things that have been studied.

But, I also have gone to a terrible CF clinic and a great pulmonologist and would choose that particular pulomnologist over that CF clinic anyday... The pulmonologist had great bedside manner and actually seemed to care about me and follow and treat my symptoms, unlike the CF clinic who seemed way too into politics and treating every single CF patient the exact same. Not good. They ran the CF clinic as a corporation, whereas the pulmonologist did everything short of giving me his home phone number. So, it can go either way and you have to go with what you feel comfortable with.

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

One thing to consider about NOT going to an accredited CF Center is if you are interested in doing clinical trials & such that comes through the CFF. That & maybe other things normally wouldnt be available unless at an accredited CF Center.



Good Luck!</end quote></div>


I agree with Mel! Things such as germ control and proper cleaning of nebs, etc. aren't "equal" across the board and the CFF puts out lots of cutting edge information with regard to trials and proper ways for CFers to do things that have been studied.

But, I also have gone to a terrible CF clinic and a great pulmonologist and would choose that particular pulomnologist over that CF clinic anyday... The pulmonologist had great bedside manner and actually seemed to care about me and follow and treat my symptoms, unlike the CF clinic who seemed way too into politics and treating every single CF patient the exact same. Not good. They ran the CF clinic as a corporation, whereas the pulmonologist did everything short of giving me his home phone number. So, it can go either way and you have to go with what you feel comfortable with.

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

One thing to consider about NOT going to an accredited CF Center is if you are interested in doing clinical trials & such that comes through the CFF. That & maybe other things normally wouldnt be available unless at an accredited CF Center.



Good Luck!</end quote>


I agree with Mel! Things such as germ control and proper cleaning of nebs, etc. aren't "equal" across the board and the CFF puts out lots of cutting edge information with regard to trials and proper ways for CFers to do things that have been studied.

But, I also have gone to a terrible CF clinic and a great pulmonologist and would choose that particular pulomnologist over that CF clinic anyday... The pulmonologist had great bedside manner and actually seemed to care about me and follow and treat my symptoms, unlike the CF clinic who seemed way too into politics and treating every single CF patient the exact same. Not good. They ran the CF clinic as a corporation, whereas the pulmonologist did everything short of giving me his home phone number. So, it can go either way and you have to go with what you feel comfortable with.

 

[ladybug]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>
<br />
<br />One thing to consider about NOT going to an accredited CF Center is if you are interested in doing clinical trials & such that comes through the CFF. That & maybe other things normally wouldnt be available unless at an accredited CF Center.
<br />
<br />
<br />
<br />Good Luck!</end quote>
<br />
<br />
<br />I agree with Mel! Things such as germ control and proper cleaning of nebs, etc. aren't "equal" across the board and the CFF puts out lots of cutting edge information with regard to trials and proper ways for CFers to do things that have been studied.
<br />
<br />But, I also have gone to a terrible CF clinic and a great pulmonologist and would choose that particular pulomnologist over that CF clinic anyday... The pulmonologist had great bedside manner and actually seemed to care about me and follow and treat my symptoms, unlike the CF clinic who seemed way too into politics and treating every single CF patient the exact same. Not good. They ran the CF clinic as a corporation, whereas the pulmonologist did everything short of giving me his home phone number. So, it can go either way and you have to go with what you feel comfortable with.
<br />
<br />

 

[rubyroselee]

Just a quick question for all the people that use a pulmonologist....do they also take care of your other CF problems (i.e. pancreas, sinus, etc.)?

 

[rubyroselee]

Just a quick question for all the people that use a pulmonologist....do they also take care of your other CF problems (i.e. pancreas, sinus, etc.)?

 

[rubyroselee]

Just a quick question for all the people that use a pulmonologist....do they also take care of your other CF problems (i.e. pancreas, sinus, etc.)?

 

[rubyroselee]

Just a quick question for all the people that use a pulmonologist....do they also take care of your other CF problems (i.e. pancreas, sinus, etc.)?

 

[rubyroselee]

Just a quick question for all the people that use a pulmonologist....do they also take care of your other CF problems (i.e. pancreas, sinus, etc.)?

 

[JenDiS]

yes my pulmonologist takes care of everything that comes with CF and if she feels that I need to see a certain specialist for it then shell tell me.

only thing she does not deal with, which I had to get a regular physician, was birth control. she never perscribes that at all which makes sense she is pediatrician but she feels that the women with CF need a gynocologist specializing in that.

shes great!!

 

[JenDiS]

yes my pulmonologist takes care of everything that comes with CF and if she feels that I need to see a certain specialist for it then shell tell me.

only thing she does not deal with, which I had to get a regular physician, was birth control. she never perscribes that at all which makes sense she is pediatrician but she feels that the women with CF need a gynocologist specializing in that.

shes great!!

 

[JenDiS]

yes my pulmonologist takes care of everything that comes with CF and if she feels that I need to see a certain specialist for it then shell tell me.

only thing she does not deal with, which I had to get a regular physician, was birth control. she never perscribes that at all which makes sense she is pediatrician but she feels that the women with CF need a gynocologist specializing in that.

shes great!!

 

[JenDiS]

yes my pulmonologist takes care of everything that comes with CF and if she feels that I need to see a certain specialist for it then shell tell me.

only thing she does not deal with, which I had to get a regular physician, was birth control. she never perscribes that at all which makes sense she is pediatrician but she feels that the women with CF need a gynocologist specializing in that.

shes great!!

 

[JenDiS]

yes my pulmonologist takes care of everything that comes with CF and if she feels that I need to see a certain specialist for it then shell tell me.
<br />
<br />only thing she does not deal with, which I had to get a regular physician, was birth control. she never perscribes that at all which makes sense she is pediatrician but she feels that the women with CF need a gynocologist specializing in that.
<br />
<br />shes great!!

 

[Brad]

I have been seeing a Pulmonologist for the last 20 years now.
Thats when My Cf Doc retired. He turns 100 this year..

I have been trying to be seen at a accredited Cf center, I went to One
Listed on the CFF site ( Fairfax Va. ) They told me I was Too Old ??
They told me they don't see Cfers over 35 ( WHAT !! ) ............

 

[Brad]

I have been seeing a Pulmonologist for the last 20 years now.
Thats when My Cf Doc retired. He turns 100 this year..

I have been trying to be seen at a accredited Cf center, I went to One
Listed on the CFF site ( Fairfax Va. ) They told me I was Too Old ??
They told me they don't see Cfers over 35 ( WHAT !! ) ............

 

[Brad]

I have been seeing a Pulmonologist for the last 20 years now.
Thats when My Cf Doc retired. He turns 100 this year..

I have been trying to be seen at a accredited Cf center, I went to One
Listed on the CFF site ( Fairfax Va. ) They told me I was Too Old ??
They told me they don't see Cfers over 35 ( WHAT !! ) ............

 

[Brad]

I have been seeing a Pulmonologist for the last 20 years now.
Thats when My Cf Doc retired. He turns 100 this year..

I have been trying to be seen at a accredited Cf center, I went to One
Listed on the CFF site ( Fairfax Va. ) They told me I was Too Old ??
They told me they don't see Cfers over 35 ( WHAT !! ) ............

 

[Brad]

I have been seeing a Pulmonologist for the last 20 years now.
<br /> Thats when My Cf Doc retired. He turns 100 this year..
<br />
<br /> I have been trying to be seen at a accredited Cf center, I went to One
<br /> Listed on the CFF site ( Fairfax Va. ) They told me I was Too Old ??
<br /> They told me they don't see Cfers over 35 ( WHAT !! ) ............
<br />