Having another child wcf

[eli]

We actually thought about just taking our chances, but than again if i had a CVS test and it was positive my only option then is to abort the pregnancy or have another child with CF.

Abortion is out of the question for me, anyway. The whole situation is extremley hard to deal with, and i just don't know what
HELL.... to do. It is something we have been trying to decide on for months....!

You are very lucky to have had a second child without CF, as it is a 1 in4 chance.
Medically that is a high risk to take.
Congratulations to you and best wishes to your family.

Thanks
Eli<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[eli]

We actually thought about just taking our chances, but than again if i had a CVS test and it was positive my only option then is to abort the pregnancy or have another child with CF.

Abortion is out of the question for me, anyway. The whole situation is extremley hard to deal with, and i just don't know what
HELL.... to do. It is something we have been trying to decide on for months....!

You are very lucky to have had a second child without CF, as it is a 1 in4 chance.
Medically that is a high risk to take.
Congratulations to you and best wishes to your family.

Thanks
Eli<img src="i/expressions/face-icon-small-confused.gif" border="0">

 

[eli]

PS: I will be away for the weekend, so i will read and reply to responces on Monday.
Keep them coming!

Eli<img src="i/expressions/angel.gif" border="0">

 

[eli]

PS: I will be away for the weekend, so i will read and reply to responces on Monday.
Keep them coming!

Eli<img src="i/expressions/angel.gif" border="0">

 

[anonymous]

I have heard from people who have gotten their PGD covered by insurance. Wrote a letter with the costs involved with raising a child wcf, included possible NICU stay and surgery because of meconium illeus, long term effects, medications vs. costs of PGD.

 

[anonymous]

I have heard from people who have gotten their PGD covered by insurance. Wrote a letter with the costs involved with raising a child wcf, included possible NICU stay and surgery because of meconium illeus, long term effects, medications vs. costs of PGD.

 

[anonymous]

To the Mom of Sydney

What an adorable little person. She is so full of love and looks like she will grow up to be a star!!!

What a great website

God Bless You new Baby on its way
Risa

 

[anonymous]

To the Mom of Sydney

What an adorable little person. She is so full of love and looks like she will grow up to be a star!!!

What a great website

God Bless You new Baby on its way
Risa

 

[DietRootBeer]

Hi Eli,

I have been in your shoes. My husband has a son w/cf and I did not find out I was a carrier till I was 20 weeks pregnant. We looked into many options to have another baby. We met with specialists, looked at adoption...the doctors kept insisting we get pregnant and test the baby...and if the baby had CF then terminate it and try again!! No Thank You!!! This is such an individual choice....we decided to call it quits and love the two we have. But I totally agree with you if this disease can be avoided by IVF why the hell not! As long as you can afford it ofcourse! I was not willing to take the gamble ....My personal opinion only.

Made in Canada<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[DietRootBeer]

Hi Eli,

I have been in your shoes. My husband has a son w/cf and I did not find out I was a carrier till I was 20 weeks pregnant. We looked into many options to have another baby. We met with specialists, looked at adoption...the doctors kept insisting we get pregnant and test the baby...and if the baby had CF then terminate it and try again!! No Thank You!!! This is such an individual choice....we decided to call it quits and love the two we have. But I totally agree with you if this disease can be avoided by IVF why the hell not! As long as you can afford it ofcourse! I was not willing to take the gamble ....My personal opinion only.

Made in Canada<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

My husband and I are in this situation currently. I did so much research regarding IVF and PGD and submitted requests to my insurance company for coverage, which of course was denied and we cannot afford it without assistance. We have a 3 year old son with CF, diagnosed at 10 months old. He's struggled quite a bit, but what a blessing he is to us. I can't imagine him any other way and wouldn't trade our struggles for anything. We decided just a few months to try again ourselves. I got pregnant the first month of trying. How excited were we!!!!!!! However, miscarried. Dreams shattered. Which again has me scared to death now, not just of CF, but of miscarrying again. What an emotional roller coaster. I know that I as a parent of a child that already has CF has to know in advance, not only for emotional well being, but so that I can be prepared and that the doctors also can be prepared. I can't just do the wait and wish thing. My son was so sick and I do not want to have to wait for a diagnois after delivery to confirm anything. I need to know ahead of time. So it's already been discussed with my obgyn and they plan on doing an amino and extra ultra sounds throughout my pregnancy, whenever that happens again. Keep your fingers crossed that it will happen quickly again.

Mother to 3 yr.old w/cf

 

[anonymous]

My husband and I are in this situation currently. I did so much research regarding IVF and PGD and submitted requests to my insurance company for coverage, which of course was denied and we cannot afford it without assistance. We have a 3 year old son with CF, diagnosed at 10 months old. He's struggled quite a bit, but what a blessing he is to us. I can't imagine him any other way and wouldn't trade our struggles for anything. We decided just a few months to try again ourselves. I got pregnant the first month of trying. How excited were we!!!!!!! However, miscarried. Dreams shattered. Which again has me scared to death now, not just of CF, but of miscarrying again. What an emotional roller coaster. I know that I as a parent of a child that already has CF has to know in advance, not only for emotional well being, but so that I can be prepared and that the doctors also can be prepared. I can't just do the wait and wish thing. My son was so sick and I do not want to have to wait for a diagnois after delivery to confirm anything. I need to know ahead of time. So it's already been discussed with my obgyn and they plan on doing an amino and extra ultra sounds throughout my pregnancy, whenever that happens again. Keep your fingers crossed that it will happen quickly again.

Mother to 3 yr.old w/cf

 

[eli]

Thank's to all who replied. I am still in the same boat as i have not yet made up my mind as to which way we will go about having our
second child. Although we have made a start by making an appointment with the IVF clinic, to find out costs of PGD and also about the whole procedure. It might take a bit longer than expected as it is the only clinic in Sydney that deos PGD.

I am also very stressed out about the whole thing,and would greatley appreciate some advice from mums that have been through it.

Also congratulations to the pregnant mum of 3yr/wcf. Keep us posted on your pregnancy and how things go with your amnio. Best of luck with
everything. I'm sure youe baby will be fine.

Best wishes
Eli<img src="i/expressions/angel.gif" border="0">

 

[eli]

Thank's to all who replied. I am still in the same boat as i have not yet made up my mind as to which way we will go about having our
second child. Although we have made a start by making an appointment with the IVF clinic, to find out costs of PGD and also about the whole procedure. It might take a bit longer than expected as it is the only clinic in Sydney that deos PGD.

I am also very stressed out about the whole thing,and would greatley appreciate some advice from mums that have been through it.

Also congratulations to the pregnant mum of 3yr/wcf. Keep us posted on your pregnancy and how things go with your amnio. Best of luck with
everything. I'm sure youe baby will be fine.

Best wishes
Eli<img src="i/expressions/angel.gif" border="0">

 

[anonymous]

Thanks for the good wishes, however, I miscarried, so we are in our waiting period until we can start trying again. Just adds to the stress, worrying again about a miscarriage on top of CF. Let me know how your appointment goes. I wish you the best of luck.

Mom to 3 yr/old w/cf

 

[anonymous]

Thanks for the good wishes, however, I miscarried, so we are in our waiting period until we can start trying again. Just adds to the stress, worrying again about a miscarriage on top of CF. Let me know how your appointment goes. I wish you the best of luck.

Mom to 3 yr/old w/cf

 

[anonymous]

When I had my first child Nicholas(just turned 3 w/cf) I had no idea what was coming. I didn't even know what cf was. He was diagnosed right after birth (thank God!) and was in surgery within 3 hours of his arrival. He had a bowl obstruction, that did not allow his colon to grow all the way in, and was given a colostomy. The Colosomy was reversed after about 6 months and now he is perfectly normal. We took it all day by day and step by step.....we had a lot of learning to do how to care for him and so forth... and when Nicky was a year old I found out I was pregnant again. I was really shaken by the news, even though I really wanted another child, I was not sure I was strong enough to possibly go through the whole traumatic experience of
Nicky's birth again. ( He was in the NICU for 2 months and we did not know if he would make it) To make a long story short, I played the odds and I now have a little girl Tessa 14 months w/cf. Her birth was so different from Nicky's and since we knew the odds she was monitored really close throughout the pregnancy and even though she did have an obstruction in her bowl as well, it did not require surgery and all her organs developed normal. She did spend 20 days in the NICU but came through with flying colors! As we go about our daily routine I find it a blessing that both have to be on the same meds and have to have the same treatments. They are like two regular kids....and they have no idea that they have any healthproblems. And since they are only 22 months apart - they seems to be very close and if everybody around us gets sick and we are home, they keep each other company. So from my perspective if I had to do it all over agin with the second baby, I would.
I did however have my tubes tied after this one.....but then I am also considered an "older mom" (39 for a few more weeks)

Tanja (mom of Nicholas 3w/cf and Tessa 14 months w/cf)

 

[anonymous]

When I had my first child Nicholas(just turned 3 w/cf) I had no idea what was coming. I didn't even know what cf was. He was diagnosed right after birth (thank God!) and was in surgery within 3 hours of his arrival. He had a bowl obstruction, that did not allow his colon to grow all the way in, and was given a colostomy. The Colosomy was reversed after about 6 months and now he is perfectly normal. We took it all day by day and step by step.....we had a lot of learning to do how to care for him and so forth... and when Nicky was a year old I found out I was pregnant again. I was really shaken by the news, even though I really wanted another child, I was not sure I was strong enough to possibly go through the whole traumatic experience of
Nicky's birth again. ( He was in the NICU for 2 months and we did not know if he would make it) To make a long story short, I played the odds and I now have a little girl Tessa 14 months w/cf. Her birth was so different from Nicky's and since we knew the odds she was monitored really close throughout the pregnancy and even though she did have an obstruction in her bowl as well, it did not require surgery and all her organs developed normal. She did spend 20 days in the NICU but came through with flying colors! As we go about our daily routine I find it a blessing that both have to be on the same meds and have to have the same treatments. They are like two regular kids....and they have no idea that they have any healthproblems. And since they are only 22 months apart - they seems to be very close and if everybody around us gets sick and we are home, they keep each other company. So from my perspective if I had to do it all over agin with the second baby, I would.
I did however have my tubes tied after this one.....but then I am also considered an "older mom" (39 for a few more weeks)

Tanja (mom of Nicholas 3w/cf and Tessa 14 months w/cf)

 

[eli]

TO Mum of 3yr old w/cf,

I'm sorry to hear the sad news. But don't worry it will happen when its meant to. I've heard from many of my friends that have misscaried that its better in a sence, because your body is getting rid of an abnormal featus.
I also understand the amount of stress you must feel, especially the fact that you and i both hope our second child is free of CF.
I pray that things work out for you!

ps:i will let you know how the appoinment goes, although it may be a while.

I will keep you posted.


Regards
Eli<img src="i/expressions/sun.gif" border="0">

 

[eli]

TO Mum of 3yr old w/cf,

I'm sorry to hear the sad news. But don't worry it will happen when its meant to. I've heard from many of my friends that have misscaried that its better in a sence, because your body is getting rid of an abnormal featus.
I also understand the amount of stress you must feel, especially the fact that you and i both hope our second child is free of CF.
I pray that things work out for you!

ps:i will let you know how the appoinment goes, although it may be a while.

I will keep you posted.


Regards
Eli<img src="i/expressions/sun.gif" border="0">