Helf-advice needed

M

mom2lillian

New member
Hello

I am an adult with CF and my friends daughter just got diagnosed with CF, she is 4.5

I was wondering what is the best ways I can be of help, of course no babysitting or contact with the child but I need some ideas. He has my email and cell phone and knows they are open but what else?

What was helpful to you after your child was dx?
 
M

mom2lillian

New member
Hello

I am an adult with CF and my friends daughter just got diagnosed with CF, she is 4.5

I was wondering what is the best ways I can be of help, of course no babysitting or contact with the child but I need some ideas. He has my email and cell phone and knows they are open but what else?

What was helpful to you after your child was dx?
 
M

mom2lillian

New member
Hello

I am an adult with CF and my friends daughter just got diagnosed with CF, she is 4.5

I was wondering what is the best ways I can be of help, of course no babysitting or contact with the child but I need some ideas. He has my email and cell phone and knows they are open but what else?

What was helpful to you after your child was dx?
 
M

mom2lillian

New member
Hello

I am an adult with CF and my friends daughter just got diagnosed with CF, she is 4.5

I was wondering what is the best ways I can be of help, of course no babysitting or contact with the child but I need some ideas. He has my email and cell phone and knows they are open but what else?

What was helpful to you after your child was dx?
 
M

mom2lillian

New member
Hello

I am an adult with CF and my friends daughter just got diagnosed with CF, she is 4.5

I was wondering what is the best ways I can be of help, of course no babysitting or contact with the child but I need some ideas. He has my email and cell phone and knows they are open but what else?

What was helpful to you after your child was dx?
 
M

mom2lillian

New member
Hello

I am an adult with CF and my friends daughter just got diagnosed with CF, she is 4.5

I was wondering what is the best ways I can be of help, of course no babysitting or contact with the child but I need some ideas. He has my email and cell phone and knows they are open but what else?

What was helpful to you after your child was dx?
 
K

ktsmom

New member
Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry.

A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen.

I read your blog; you are a good friend and you will undoubtedly be a huge source of support and strength for this family. <img src="i/expressions/heart.gif" border="0">
 
K

ktsmom

New member
Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry.

A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen.

I read your blog; you are a good friend and you will undoubtedly be a huge source of support and strength for this family. <img src="i/expressions/heart.gif" border="0">
 
K

ktsmom

New member
Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry.

A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen.

I read your blog; you are a good friend and you will undoubtedly be a huge source of support and strength for this family. <img src="i/expressions/heart.gif" border="0">
 
K

ktsmom

New member
Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry.

A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen.

I read your blog; you are a good friend and you will undoubtedly be a huge source of support and strength for this family. <img src="i/expressions/heart.gif" border="0">
 
K

ktsmom

New member
Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry.

A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen.

I read your blog; you are a good friend and you will undoubtedly be a huge source of support and strength for this family. <img src="i/expressions/heart.gif" border="0">
 
K

ktsmom

New member
Someone to talk to that understood what I was going through. And don't forget, sometimes things can't be solved - your friends may just need to vent, rage, cry.

A group of parents from the school brought us dinner for a month of Mondays as we were struggling to adjust to the treatment regimen.

I read your blog; you are a good friend and you will undoubtedly be a huge source of support and strength for this family. <img src="i/expressions/heart.gif" border="0">
 
C

copolla

New member
buy her that book Kyle's First Crush.
It is about a little boy who falls in love with a little girl who is I think 4 years old with CF. The book is great for her, so she knows there are other little girld out there just like her.
john
 
C

copolla

New member
buy her that book Kyle's First Crush.
It is about a little boy who falls in love with a little girl who is I think 4 years old with CF. The book is great for her, so she knows there are other little girld out there just like her.
john
 
C

copolla

New member
buy her that book Kyle's First Crush.
It is about a little boy who falls in love with a little girl who is I think 4 years old with CF. The book is great for her, so she knows there are other little girld out there just like her.
john
 
C

copolla

New member
buy her that book Kyle's First Crush.
It is about a little boy who falls in love with a little girl who is I think 4 years old with CF. The book is great for her, so she knows there are other little girld out there just like her.
john
 
C

copolla

New member
buy her that book Kyle's First Crush.
It is about a little boy who falls in love with a little girl who is I think 4 years old with CF. The book is great for her, so she knows there are other little girld out there just like her.
john
 
C

copolla

New member
buy her that book Kyle's First Crush.
It is about a little boy who falls in love with a little girl who is I think 4 years old with CF. The book is great for her, so she knows there are other little girld out there just like her.
john
 
R

Rebjane

Super Moderator
I think everyone deals with the diagnosis in their own way. I had anger, denial, grief, a feeling of loss. Having someone to vent to was really what I needed. After that initial period, I felt like I needed information; access to what was the right treatment, a good pediatrician, a good pulmonologist, CF clinic as much knowledge as my poor little brain could absorb. Everyone's different though. You are a good friend.
 
R

Rebjane

Super Moderator
I think everyone deals with the diagnosis in their own way. I had anger, denial, grief, a feeling of loss. Having someone to vent to was really what I needed. After that initial period, I felt like I needed information; access to what was the right treatment, a good pediatrician, a good pulmonologist, CF clinic as much knowledge as my poor little brain could absorb. Everyone's different though. You are a good friend.
 
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